Data Structure
ABCD Social Development Follow Up Parent Feedback
Version 01Submissions Not Allowed
Short Name: soc_dev_fu_feedback_p01
Data Type: Clinical Assessments
Categories: Questionnaire
Social Development Follow Up (Since last visit...) Parent Feedback Questionnaire
Name, Type, Required, Description, Value Range, Notes
Name | Type | Required | Description | Value Range | Notes |
|---|---|---|---|---|---|
| subjectkey | GUID | Required | The NDAR Global Unique Identifier (GUID) for research subject | NDAR* | |
| src_subject_id | String | Required | Subject ID how it's defined in lab/project | ||
| interview_date | Date | Required | Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY | ||
| interview_age | Integer | Required | Age in months at the time of the interview/test/sampling/imaging. | 0::1440 | Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. |
| sex | String | Required | Sex of subject at birth | M;F; O; NR | M = Male; F = Female; O=Other; NR = Not reported |
| eventname | String | Required | The event name for which the data was collected | ||
| socialdev_pfbi_10_l | Integer | Recommended | I felt comfortable with the staff. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_01_l | Integer | Recommended | My phone calls were returned in a timely manner. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_02_l | Integer | Recommended | Staff members were friendly and courteous. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_03_l | Integer | Recommended | The staff explained the study clearly | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_04_l | Integer | Recommended | The consent form informed me clearly that this is a substudy to the ABCD study in which I am already participating=and that I do not need to participate in both. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_05_l | Integer | Recommended | The staff responded in a clear manner to my questions. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_06_l | Integer | Recommended | The instructions given made it easy to find the research center. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_07_l | Integer | Recommended | The waiting time was too long. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_08_l | Integer | Recommended | I did not understand some of the questions. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_09_l | Integer | Recommended | When I did not understand a question=there was a staff member that I could ask for help. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_11_l | Integer | Recommended | I felt uncomfortable with some of the questions. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_12_l | Integer | Recommended | I am ok with not knowing the responses that my child gave in this survey. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_13_l | Integer | Recommended | My confidential information was treated in a professional manner. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_14_l | Integer | Recommended | The level of compensation seemed appropriate. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_15_l | Integer | Recommended | I would rather participate in both the studies at ONE visit than two different occasions. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_16_l | Integer | Recommended | I would rather schedule separate visits for the ABCD Study and the ABCD-SD Study=since I think it is too strenuous to participate in both in one day. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_17_l | Integer | Recommended | I would participate in this type of research again. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2' |
| socialdev_pfbi_18_l | String | Recommended | Please tell us about your suggestions to make the study even better. | [socialdev_visit_01_l] = '2' | |
| socialdev_pfbc_18_l | String | Recommended | Please tell us about your suggestions to make the study even better. | [socialdev_visit_01_l] = '1' | |
| socialdev_pfbc_01_l | Integer | Recommended | The staff explained the study clearly | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_02_l | Integer | Recommended | The consent form informed me clearly that this is a substudy to the ABCD study in which I am already participating=and that I do not need to participate in both. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_03_l | Integer | Recommended | The staff responded in a clear manner to my questions. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_04_l | Integer | Recommended | The waiting time was too long. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_05_l | Integer | Recommended | I did not understand some of the questions. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_06_l | Integer | Recommended | When I did not understand a question=there was a staff member that I could ask for help. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_07_l | Integer | Recommended | I felt comfortable with the staff. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_08_l | Integer | Recommended | I felt uncomfortable with some of the questions. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_09_l | Integer | Recommended | I am ok with not knowing the responses that my child gave in this survey. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_10_l | Integer | Recommended | My confidential information was treated in a professional manner. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_11_l | Integer | Recommended | The level of compensation seemed appropriate. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_12_l | Integer | Recommended | The adding of this survey to my assessment day was too strenuous. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_13_l | Integer | Recommended | The adding of this survey to my assessment day makes me feel more negative about BOTH the studies I have participated in today. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_14_l | Integer | Recommended | The adding of this survey to my assessment day was positive. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_15_l | Integer | Recommended | I would have rather scheduled a separate visit for this survey. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_16_l | Integer | Recommended | I would rather do both studies at the same time. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |
| socialdev_pfbc_17_l | Integer | Recommended | I would participate in this type of research again. | 1::5 | 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1' |