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ABCD Parent Pubertal Development Scale and Menstrual Cycle Survey History (PDMS)

11,877 Shared Subjects

Pubertal stage and menstrual phase (for postmenarcheal girls) - parent survey
Clinical Assessments
Phys Characteristics
12/04/2017
abcd_ppdms01
10/27/2020
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
eventname String 60 Required The event name for which the data was collected
Query pds_select_language___1 Integer Recommended ¿Español? (1, Sí) 0 ; 1 0 = No; 1 = Yes pubertdev_select_language_p
Query pubertal_sex_p Integer Recommended What sex was your child assigned at birth? ¿Qué sexo le fue asignado a su niño(a) al nacer? 1 ; 2 1 = Male Masculino; 2 = Female Femenino pubertdev_sex_p
Query pds_1_p Integer Recommended Would you say that your child's growth in height: Con respecto a la estatura de su niño(a), ¿diría usted que...? 1 ; 2 ; 3 ; 4 ; 999 1 = has not yet begun to spurt Aún no ha empezado a crecer.; 2 = has barely started Apenas ha empezado a crecer.; 3 = is definitely underway Definitivamente está creciendo.; 4 = seems complete Parece haber terminado de crecer.; 999 = I don't know No sé pubertdev_1_p
Query pds_2_p Integer Recommended And how about the growth of your child's body hair ("body hair" means hair any place other than their head, such as under their arms)? Would you say that your child's body hair growth: ¿Y qué diría del crecimiento del vello corporal de su niño(a) ("vello corporal" se refiere al vello que crece en cualquier parte del cuerpo que no sea el pelo de la cabeza, como en las axilas)?¿Diría usted que el vello corporal de su niño(a)...? 1 ; 2 ; 3 ; 4 ; 999 1 = has not yet begun to grow Aún no le ha empezado a salir.; 2 = has barely started to grow Apenas le está empezando a salir.; 3 = is definitely underway Definitivamente ya le está saliendo.; 4 = seems complete Parece haber terminado de salir.; 999 = I don't know No sé pubertdev_2_p
Query pds_3_p Integer Recommended Have you noticed any changes to their skin, especially pimples? ¿Ha notado cambios en la piel de su niño(a), particularmente acné, granos o espinillas? 1 ; 2 ; 3 ; 4 ; 999 1 = skin has not yet started changing Su piel aún no ha empezado a mostrar cambios.; 2 = skin has barely started changing Su piel apenas ha empezado a mostrar cambios.; 3 = skin changes are definitely underway Definitivamente ya están ocurriendo cambios en su piel.; 4 = skin changes seem complete Parece haber terminado de cambiarle la piel.; 999 = I don't know No sé pubertdev_3_p
Query pds_m5_p Integer Recommended pubertal_sex_p == 1 Has he begun to grow hair on his face? ¿A su niño le ha empezado a crecer vello en la cara? 1 ; 2 ; 3 ; 4 ; 999 1 = facial hair has not yet started growing Aún no le ha empezado a salir vello facial.; 2 = facial hair has barely started growing Apenas le ha empezado a salir vello facial.; 3 = facial hair has definitely started Definitivamente ya le ha empezado a salir vello facial.; 4 = facial growth seems complete Ya parece haber terminado de salirle el vello facial.; 999 = I don't know No sé pubertdev_m5_p
Query pds_m4_p Integer Recommended pubertal_sex_p == 1 Have you noticed a deepening of his voice? ¿Ha notado que la voz de su niño se ha vuelto más profunda? 1 ; 2 ; 3 ; 4 ; 999 1 = voice has not yet started changing Su voz aún no ha empezado a cambiar.; 2 = voice has barely started changing Su voz apenas ha empezado a cambiar.; 3 = voice changes are definitely underway Definitivamente ya están ocurriendo cambios en su voz.; 4 = voice changes seem complete Parece haber terminado de cambiar su voz.; 999 = I don't know No sé pubertdev_m4_p
Query pds_f4_p Integer Recommended pubertal_sex_p == 2 Have you noticed that your child's breasts have begun to grow? ¿Ha notado que los senos de su niña han empezado a crecer? 1 ; 2 ; 3 ; 4 ; 999 1 = have not yet started growing Aún no le han empezado a crecer.; 2 = have barely started growing Apenas le han empezado a crecer.; 3 = breast growth is definitely underway Definitivamente ya le están creciendo los senos.; 4 = breast growth seems complete Sus senos ya parecen haber terminado de crecer.; 999 = I don't know No sé pubertdev_f4_p
Query pds_f5b_p Integer Recommended pubertal_sex_p == 2 Has your child begun to menstruate? 4 ; 1 ; 999 4 = Yes Sí; 1 = No No; 999 = I don't know No sé pubertdev_f5b_p
pds_f6_p String 30 Recommended pds_f5b_p == 4 && isNull(pds_f6_p_dk) How old were they when they started to menstruate? If you don't know, please choose "don't know" in what follows below Si no sabe, por favor escoja "no se" en lo que sigue abajo pubertdev_f6_p
Query pds_f6_p_dk Integer Recommended pds_f5b_p == 4 && isNull(pds_f6_p) How old were they when they started to menstruate? 999 999 = Don't know No lo sé pubertdev_f6_dk_p
menstrualcycle1_p String 30 Recommended pds_f5b_p == 4 What was the date of the first day of your child's last period? menstrual_1_p
menstrualcycle2_p String 30 Recommended pds_f5b_p == 4 && isNull(menstrualcycle2_p_dk) On average, how many days are there between the first day of their period and the first day of their next period? (e.g., 30 days) If you don't know, please choose "don't know" in what follows below Si no sabe, por favor escoja "no se" en lo que sigue abajo menstrual_2_p
Query menstrualcycle2_p_dk Integer Recommended pds_f5b_p == 4 && isNull(menstrualcycle2_p) On average, how many days are there between the first day of their period and the first day of their next period? (e.g., 30 days) 999 999 = Don't know No lo sé menstrual_2_p_dk
Query menstrualcycle3_p Integer Recommended pds_f5b_p == 4 Is your child's menstrual cycle regular? 1 ; 0 ; 999 1 = Yes Sí; 0 = No No; 999 = Don't know No sé menstrual_3_p
Query menstrualcycle4_p Integer Recommended pds_f5b_p == 4 Is your child currently using hormonal birth control (e.g. the pill, hormone patch, hormone injection)? 1 ; 0 ; 999 1 = Yes Sí; 0 = No No; 999 = Don't know No sé menstrual_4_p
Query menstrualcycle5_p Integer Recommended pds_f5b_p == 4 Do they experience premenstrual irritability, fatigue, tearfulness, etc., which start before their period and stop within a few days of bleeding? 1 ; 2 ; 3 ; 4 ; 999 1 = Not at all Para nada; 2 = Mild Leves; 3 = Moderate Moderados; 4 = Severe Graves; 999 = Don't know No sé menstrual_5_p
Query menstrualcycle6_p Integer Recommended pds_f5b_p == 4 Do their premenstrual symptoms interfere with their relationships with family and friends, productivity, and/or social life activities? 1 ; 2 ; 3 ; 4 ; 999 1 = Not at all Para nada; 2 = Mild Leves; 3 = Moderate Moderados; 4 = Severe Graves; 999 = Don't know No sé menstrual_6_p
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

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