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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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ABCD Screener

11,869 Shared Subjects

Eligibility screener and screener risk measures
Clinical Assessments
Questionnaire
12/08/2017
abcd_screen01
06/26/2020
View Change History
01
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
eventname String 60 Required The event name for which the data was collected
Query scrn_hr_school Integer Recommended Enjoys school? ¿Disfruta la escuela? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_disobey Integer Recommended Is disobedient at school? ¿Es desobediente en la escuela? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_sleep Integer Recommended Sleeps well? ¿Duerme bien? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_fear Integer Recommended Is too fearful or anxious? ¿Es demasiado miedoso o ansioso? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_liecheat Integer Recommended Lies or cheats? ¿Miente o hace trampa? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_music Integer Recommended Plays a musical instrument? ¿Toca un instrumento musical? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_dep Integer Recommended Is unhappy, sad, or depressed? ¿Está infeliz, triste o deprimido? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_help Integer Recommended Likes helping others? ¿Le gusta ayudar a los demás? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_destroy Integer Recommended Destroys things belonging to his/her family or others? ¿Destruye cosas que le pertenecen a su familia o a otras personas? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_steal Integer Recommended Steals outside the home? ¿Roba fuera de casa? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_sport Integer Recommended Enjoys playing sports? ¿Disfruta participar en deportes? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_som Integer Recommended Experiences physical problems that are without known medical cause; such as aches or pains, feeling sick, headaches, stomachaches, rashes, or vomiting? ¿Tiene problemas físicos sin causa médica conocida, como achaques o dolores, náuseas, dolores de cabeza, dolores de estómago, sarpullidos o vómitos? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_read Integer Recommended Enjoys reading? ¿Disfruta leer? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_slowfriend Integer Recommended Tends to be slow at making friends? ¿Suele tardarse en hacer amigos? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_stress Integer Recommended Finds life to be stressful? ¿Considera que la vida es estresante? 2 ; 1 ; 0 2 = very true or often true Muy cierto o frecuentemente cierto; 1 = somewhat or sometimes true algo cierto o a veces cierto; 0 = not true falso // I now have a few questions about (Child's name) behavior. Some of these questions may not apply to your child but it is important that we include a diverse group of children in our study. I'm going to read a list of items that describe children and youth. For each item that describes (Child's name) now or within the past 6 months, please indicate if it is very true or often true of your child, somewhat or sometimes true of your child, or not true of your child. Remember, the questions are about how your child is now or in the past 6 months.
Query scrn_hr_smoke Integer Recommended Finally, one last question about you and your family. In the past six months, has anyone who lives with your child (e.g., you, a spouse or partner) smoked a cigarette, e-cigarette, or used any other type of tobacco? Para terminar, le haré una última pregunta acerca de usted y su familia. En los últimos seis meses, ¿alguna persona que viva con su hijo (p. ej., usted, un cónyuge o una pareja) ha fumado un cigarrillo o un cigarrillo electrónico, o ha consumido cualquier otro tipo de tabaco? 0 ; 1 1 = Yes; 0 = No
Query scrn_select_language___1 Integer Recommended Enable Spanish translation? (1, Yes) 0 ; 1 0 = No; 1 = Yes
Query scrn_twin_reg___1 Integer Recommended ABCD Intro Script (optional) (1, Twin Registry Script) 0 ; 1 0 = No; 1 = Yes
Query scrn_twin_reg___2 Integer Recommended ABCD Intro Script (optional) ( 0, Non-Twin Registry Script) 0 ; 1 0 = No; 1 = Yes scrn_twin_reg___0
Query scrn_braces Integer Recommended Does (Child's name) have metal braces, spacers, or other dental appliances that cannot be removed? /¿(Nombre del menor) tiene aparatos de ortodoncia, espaciadores o otros aparatos dentales metálicos que no se puedan quitar? 1 ; 0 ; 2 1 = Yes; 0 = No; 2 = Unsure - (Consult PI) | If only regular fillings, removable retainers and non-metal braces (e.g., Invisalign), RECORD AS NO. If palate expander, determine if it is metal, and record when it will be removed. If gold teeth/grill, ask if/when they can be removed. If they cannot be removed for scans, ask how many teeth are covered. If more than four teeth, record as 'unsure', continue screener, and consult with investigator.
scrn_bracesdate String 30 Recommended scrn_braces == 1 When would they come off? /¿Cuándo se le retirarán?
Query scrn_bracescallback Integer Recommended scrn_braces == 1 If metal braces will be removed before end of enrollment period, mark to Yes call back. If metal braces will not be removed before end of enrollment period, permanent metal retainer, or metal dental implant that is clearly contraindication, mark No call back. If parent is unsure, ask for their best guess, mark to Yes call back. 1 ; 0 1 = Yes - Need to Call Back; 0 = No Call Back - GO TO END
Query scrn_met_inj Integer Recommended scrn_braces == 0 || scrn_bracescallback == 1 || scrn_braces == 2 Has (Child's name) ever been injured by any metallic foreign body (e.g., bullet, BB, shrapnel, etc.)? Or had an injury to the eye involving a metallic object? /¿Alguna vez se ha lesionado (nombre del menor) con algún cuerpo extraño metálico (p. ej., una bala, proyectil, munición (BB), metralla, etc.)? ¿O se ha lesionado los ojos con algún objeto metálico? 1 ; 0 1 = Yes; 0 = No
Query scrn_met_injenter Integer Recommended scrn_met_inj == 1 Did the object enter your child's body? /¿El objeto entró al cuerpo de su niño(a)? 1 ; 0 1 = Yes; 0 = No (Continue)
Query scrn_met_injremove Integer Recommended scrn_met_injenter == 1 Was the object completely removed? /¿Fue el objeto removidó o retiradó por completo? 1 ; 0 1 = Yes; 0 = No - GO TO END
Query scrn_met_injmdnote Integer Recommended scrn_met_injremove == 1 Would you be willing to give us a doctor's note confirming that? /¿Estaría dispuesto a proporcionarnos una nota de su médico que lo confirme? 1 ; 0 1 = Yes; 0 = No - GO TO END
Query scrn_surgery Integer Recommended scrn_met_inj == 0 || scrn_met_injenter == 0 || scrn_met_injmdnote == 1 Has your child ever had surgery? /¿Alguna vez le han hecho alguna cirugía a su niño(a)? 0 ; 1 1 = Yes; 0 = No
Query scrn_met_obj Integer Recommended scrn_surgery == 1 || scrn_surgery == 0 Does (Child's name) have any metal in his/her body or had any devices inserted in their body? / ¿(Nombre del menor) tiene algún objeto metálico en el cuerpo o se le ha insertado algún dispositivo? 1 ; 0 1 = Yes; 0 = No
scrn_met_objyear String 30 Recommended scrn_met_obj == 1 What year was it put in? /¿En qué año se le colocó?
Query scrn_met_excl Integer Recommended scrn_met_obj == 1 Is the device/metal exclusionary? 0 ; 1 ; 2 0 = Yes - GO TO END; 1 = No; 2 = Unsure - (Consult PI)
Query scrn_nr_hair Integer Recommended scrn_met_obj == 0 || scrn_met_excl == 1 || scrn_met_excl == 2 Does your child wear non-removable hair extensions or a non-removable hair piece? /¿Su niño(a) utiliza extensiones de cabello no removibles, cabello postizo, no removible? 1 ; 0 1 = Yes - GO TO END; 0 = No
Query scrn_eyeliner Integer Recommended scrn_nr_hair == 0 Does your child have tattooed eyeliner or permanent eyebrow fill-in or permanent makeup? /¿Su niño(a) tiene tatuajes de delineador de ojos, relleno para cejas o maquillaje permanentes? 1 ; 0 1 = Yes - GO TO END; 0 = No
Query scrn_nr_piercing Integer Recommended scrn_eyeliner == 0 Does your child have any non-removable metal piercings on his/her head, face, tongue, neck or chest? /¿Su niño(a) tiene algún piercing (como un arete) o joyería metálica no removible en la cabeza, el rostro, la lengua, el cuello o el pecho? 1 ; 0 1 = Yes - GO TO END; 0 = No
Query scrn_weight_mri Integer Recommended scrn_nr_piercing == 0 Is weight within acceptable range for MRI? (under 250 lbs) 0 ; 1 0 = Yes; 1 = No - GO TO END
Query scrn_claustrophob Integer Recommended scrn_weight_mri == 0 Does (Child's name) have serious problems with claustrophobia or being in small places? / ¿(Nombre del menor) tiene problemas serios de claustrofobia o para estar en lugares pequeños? 2 ; 1 ; 0 2 = Yes - GO TO END; 1 = No; 0 = Unsure
Query scrn_claustrophobexcl Integer Recommended scrn_claustrophob == 0 Has this problem prevented your child from doing anything, like getting into elevators or going to places s/he thought would be too small? / ¿Este problema ha evitado que su niño(a) haga alguna cosa, como subirse a un elevador o ir a lugares que pensara que serían demasiado pequeños? 1 ; 0 1 = Yes - GO TO END; 0 = No
Query scrn_speakeng Integer Recommended scrn_claustrophob == 1 || scrn_claustrophobexcl == 0 Does (Child's name) speak and understand English well? / ¿(Nombre del menor) habla y entiende bien el inglés? 1 ; 0 ; 3 1 = Yes; 0 = No - GO TO END; 3 = Unsure
Query scrn_fluency Integer Recommended scrn_speakeng == 3 Has your child been taking some classes in English for at least 1 year? / ¿Su niño(a) ha estado tomando algunas clases en inglés durante al menos 1 año? 1 ; 0 1 = Yes; 0 = No - GO TO END
Query scrn_percept Integer Recommended scrn_speakeng == 1 || scrn_fluency == 1 Does (Child's name) have any vision, hearing, or coordination problems that would affect your child's understanding and responding to the tests, questionnaires, and brain scans? /¿(Nombre del menor) tiene algún problema visual, auditivo o de coordinación que pudiera afectar su comprensión de las pruebas, los cuestionarios y los estudios cerebrales y su capacidad de responder los mismos? 0 ; 1 1 = Yes; 0 = No
Query scrn_percept_corr Integer Recommended scrn_percept == 1 Can these problems be corrected with glasses, hearing aids, or other devices? / ¿Estos problemas pueden corregirse con lentes, aparatos auditivos o otros dispositivos? 1 ; 0 1 = Yes; 0 = No - GO TO END | If unsure, ask if the child is able to sufficiently hear without the correction device during brain scans, which may require the device to be removed. Mark NO if child is not able to sufficiently hear during brain scans without a correction device.
Query scrn_cpalsy Integer Recommended scrn_percept_corr == 1 || scrn_percept == 0 Has your child been diagnosed with any of the following serious medical or neurological conditions by a health professional? Cerebral Palsy? / ¿Parálisis cerebral? 0 ; 1 0 = Yes - GO TO END; 1 = No (Continue)
Query scrn_tumor Integer Recommended scrn_percept_corr == 1 || scrn_percept == 0 Has your child been diagnosed with any of the following serious medical or neurological conditions by a health professional? Brain tumor? / ¿Tumor cerebral? 0 ; 1 0 = Yes - GO TO END; 1 = No (Continue)
Query scrn_stroke Integer Recommended scrn_percept == 0 || scrn_percept_corr == 1 Has your child been diagnosed with any of the following serious medical or neurological conditions by a health professional? Stroke? / ¿Infarto o Derrame cerebral? 0 ; 1 0 = Yes - GO TO END; 1 = No (Continue)
Query scrn_aneurysm Integer Recommended scrn_percept == 0 || scrn_percept_corr == 1 Has your child been diagnosed with any of the following serious medical or neurological conditions by a health professional? Brain aneurysm? / ¿Aneurisma cerebral? 0 ; 1 0 = Yes - GO TO END; 1 = No (Continue)
Query scrn_hemorrhage Integer Recommended scrn_percept == 0 || scrn_percept_corr == 1 Has your child been diagnosed with any of the following serious medical or neurological conditions by a health professional? Brain hemorrhage? / ¿Hemorragia cerebral? 0 ; 1 0 = Yes - GO TO END; 1 = No (Continue)
Query scrn_hemotoma Integer Recommended scrn_percept == 0 || scrn_percept_corr == 1 Has your child been diagnosed with any of the following serious medical or neurological conditions by a health professional? Subdural hematoma? / ¿Hematoma (colección de sangre) subdural? 0 ; 1 0 = Yes - GO TO END; 1 = No (Continue)
Query scrn_medcond_other Integer Recommended scrn_hemotoma == 1 Has your child been diagnosed with any of the following serious medical or neurological conditions by a health professional? Any other serious medical or neurological conditions 0 ; 1 1 = Yes; 0 = No
Query scrn_epls Integer Recommended scrn_medcond_other == 1 Did parent/guardian name seizure or epilepsy as a condition? 0 ; 1 1 = Yes; 0 = No
Query scrn_seizure Integer Recommended scrn_epls == 1 About how many seizures does your child have per month when taking medication? /¿Aproximadamente cuántas convulsiones tiene su niño(a) al mes cuando está tomando medicamentos? 0 ; 1 0 = Less than once a month; 1 = One or more per month - GO TO END | One seizure per month or more on medication is exclusionary.
Query scrn_con_excl Integer Recommended scrn_epls == 0 || ( scrn_epls == 1 && scrn_seizure == 0) Is a reported other medical condition deemed exclusionary? 0 ; 1 ; 2 0 = Yes - GO TO END; 1 = No; 2 = Unsure - (Consult PI)
Query scrn_gestage Integer Recommended scrn_medcond_other == 0 || scrn_con_excl == 1 || scrn_con_excl == 2 Was your child born less than 28 weeks of gestation, or in other words, was your child born more than 12 weeks premature? /¿Su niño(a) nació antes de las 28 semanas de gestación o, en otras palabras, fue prematuro por más de 12 semanas? 1 ; 0 ; 2 1 = Yes - GO TO END; 0 = No; 2 = Don't know | If born at or after 28 weeks, mark No.
Query scrn_birthwt Integer Recommended scrn_gestage == 0 || scrn_gestage == 2 At birth, did your child weigh less than 2 lbs 11 ounces (1200 grams)? /Al nacer, ¿su niño(a) pesó menos de 2 libras 11 onzas (1,200 gramos)? 1 ; 0 ; 2 1 = Yes - GO TO END; 0 = No; 2 = Don't know
Query scrn_birthcomp Integer Recommended scrn_birthwt == 0 || scrn_birthwt == 2 Were there any birth complications that resulted in (Child's name) being hospitalized for more than a month? /¿Hubo complicaciones en el parto que causaran que (nombre del menor) tuviera que estar hospitalizado(a) durante más de un mes? 1 ; 0 ; 2 1 = Yes; 0 = No; 2 = Don't know | Note: If hospitalization was due to prematurity alone then that is not a basis for exclusion.
scrn_birthcomp_y String 30 Recommended scrn_birthcomp == 1 What kind of birth complications? /¿Qué tipo de complicaciones tuvo al nacer?
Query scrn_birthcomp_excl Integer Recommended scrn_birthcomp == 1 Is the complication deemed exclusionary? 0 ; 1 ; 2 0 = Yes - GO TO END; 1 = No; 2 = Unsure - (Consult PI)
Query scrn_commondx Integer Recommended scrn_birthcomp_excl == 2 || scrn_birthcomp_excl == 1 || scrn_birthcomp == 0 || scrn_birthcomp == 2 Has your child been diagnosed with... ADHD, Depression, Bipolar Disorder, Anxiety, Phobias / Trastorno por deficit de atención e hiperactividad (TDAH or ADHD), depresión, trastorno bipolar, ansiedad o fobias 1 ; 0 1 = Yes (Continue); 0 = No (Continue) | These diagnoses are not exclusionary.
Query scrn_schiz Integer Recommended scrn_birthcomp_excl == 2 || scrn_birthcomp_excl == 1 || scrn_birthcomp == 0 || scrn_birthcomp == 2 Has your child been diagnosed with... Schizophrenia /Esquizofrenia 1 ; 0 1 = Yes - GO TO END; 0 = No (Continue)
Query scrn_asd Integer Recommended scrn_birthcomp_excl == 2 || scrn_birthcomp_excl == 1 || scrn_birthcomp == 0 || scrn_birthcomp == 2 Has your child been diagnosed with... Autism spectrum disorder / Trastorno del espectro autista 1 ; 0 1 = Yes; 0 = No
Query scrn_asd_regclasses Integer Recommended scrn_asd == 1 Is your child attending all regular classes at school? /¿Todas las clases a las que asiste su niño(a) en la escuela son regulares? 1 ; 0 1 = Yes; 0 = No - GO TO END
Query scrn_sud Integer Recommended scrn_birthcomp_excl == 2 || scrn_birthcomp_excl == 1 || scrn_birthcomp == 0 || scrn_birthcomp == 2 Has your child been diagnosed with... Alcohol or substance use disorder /Trastorno por consumo de alcohol o drogas 1 ; 0 1 = Yes - GO TO END; 0 = No (Continue)
Query scrn_intdisab Integer Recommended scrn_birthcomp_excl == 2 || scrn_birthcomp_excl == 1 || scrn_birthcomp == 0 || scrn_birthcomp == 2 Has your child been diagnosed with... Intellectual disability /Discapacidad intelectual 1 ; 0 1 = Yes - GO TO END; 0 = No (Continue)
Query scrn_psychdx_other Integer Recommended scrn_birthcomp_excl == 2 || scrn_birthcomp_excl == 1 || scrn_birthcomp == 0 || scrn_birthcomp == 2 Has your child been diagnosed with... Any other psychological or psychiatric diagnoses? / ¿Le han dado algún otro diagnóstico psicológico o psiquiátrico? 0 ; 1 1 = Yes; 0 = No
Query scrn_psych_excl Integer Recommended scrn_psychdx_other == 1 Is a reported other psychological condition deemed exclusionary? 1 ; 0 ; 2 1 = Yes - GO TO END; 0 = No; 2 = Unsure - (Consult PI)
Query scrn_concerns_p Integer Recommended scrn_psych_excl == 0 || scrn_psychdx_other == 0 || scrn_psych_excl == 2 As I mentioned before, this study involves your child working with our research team to answer questions and solve puzzles on an iPad, follow directions, and lie still in the MRI scanner. Do you have any concerns about (Child's name)'s ability to do these things that have not already been discussed? / Como mencioné anteriormente, este estudio requiere que su niño(a) trabaje con nuestro equipo de investigación contestando preguntas y resolviendo rompecabezas en un iPad, que siga indicaciones y que se recueste y permanezca quieto en el aparato de MRI. ¿Tiene usted alguna inquietud de la que no hayamos hablado sobre la capacidad de (nombre del menor) para hacer estas cosas? 0 ; 1 1 = Yes; 0 = No
Query scrn_concerns_excl Integer Recommended scrn_concerns_p == 1 Are the concerns deemed exclusionary? 0 ; 1 ; 2 0 = Yes - GO TO END; 1 = No; 2 = Unsure - (Consult PI)
Query scrn_tbi_loc Integer Recommended scrn_concerns_p == 0 || scrn_concerns_excl == 1 || scrn_concerns_excl == 2 Has (Child's name) ever had a head injury that resulted in a loss of consciousness for more than 30 minutes? / ¿Alguna vez tuvo (nombre del menor) una lesión en la cabeza que haya causado que perdiera el conocimiento durante más de 30 minutos? 1 ; 0 1 = Yes - GO TO END; 0 = No
Query scrn_tbi_mem Integer Recommended scrn_tbi_loc == 0 Has (Child's name) ever had a head injury that resulted in difficulties remembering that lasted for longer than a day? / ¿Alguna vez tuvo (nombre del menor) una lesión en la cabeza que haya causado que tuviera dificultades para recordar durante más de un día? 1 ; 0 1 = Yes - GO TO END; 0 = No
Query scrn_tbi_scan Integer Recommended scrn_tbi_mem == 0 Has (Child's name) ever had a head injury that resulted in getting a brain scan? / ¿Alguna vez tuvo (nombre del menor) una lesión en la cabeza que haya resultado en que le hicieran un estudio del cerebro? 1 ; 0 1 = Yes; 0 = No
Query scrn_tbi_scan_excl Integer Recommended scrn_tbi_scan == 1 Abnormal findings on the scan? 0 ; 1 ; 2 0 = Yes - GO TO END; 1 = No; 2 = Unsure - (Consult PI)
Query scrn_brain_scn Integer Recommended scrn_tbi_scan == 0 || scrn_tbi_scan_excl == 1 || scrn_tbi_scan_excl == 2 Has your doctor ever requested a brain scan for your child? /¿Su médico alguna vez le ha ordenado un estudio cerebral para su niño(a)? 0 ; 1 1 = Yes; 0 = No
Query scrn_abn_scan Integer Recommended scrn_brain_scn == 1 Abnormal findings on the scan? 0 ; 1 ; 2 0 = Yes - GO TO END; 1 = No; 2 = Unsure - (Consult PI)
Query zygos_quest___1 Integer Recommended scrn_abn_scan == 2 || scrn_abn_scan == 1 || scrn_brain_scn == 0 Zygosity questions (optional) (1, Show Questions) 0 ; 1 0 = No; 1 = Yes
Query zygos_q1 Integer Recommended zygos_quest__1 == 1 When standing together, how do the twins' eyes compare... are their eyes the same color and shade, different shade, or different color? /Cuando están parados uno junto al otro, ¿cómo se comparan los ojos de los gemelos? ¿Son del mismo color y tonalidad, de diferente tonalidad o de diferente color? 1 ; 2 ; 3 1 = Same Color and Shade; 2 = Different Shade; 3 = Different Color
Query zygos_q2 Integer Recommended zygos_quest__1 == 1 How does their hair compare...is their hair the same color and shade, different shade, or different color? /¿Cómo se compara su cabello? ¿Es del mismo color y tonalidad, diferente tonalidad o diferente color? 1 ; 2 ; 3 1 = Same Color and Shade; 2 = Different Shade; 3 = Different Color
Query zygos_q4 Integer Recommended zygos_quest__1 == 1 Do the twins look like two peas in a pod or are they no more alike in appearance than ordinary sisters or brothers? / ¿Los gemelos se ven 'como dos gotas de agua' o solo parecen como si fueran hermanos normales? 1 ; 2 ; 3 1 = Like "two peas"; 2 = Ordinary likeness; 3 = IF VOLUNTEERED- Quite unalike
Query zygos_q5 Integer Recommended zygos_quest__1 == 1 Based on their appearance now, how often do people have trouble telling them apart? Would you say never, sometimes, or always? /Con base en la apariencia actual de los niños, ¿con qué frecuencia tiene problemas la gente para distinguirlos? ¿Diría que nunca, a veces o siempre? 1 ; 2 ; 3 1 = Never; 2 = Sometimes; 3 = Always
Query zygos_q6 Integer Recommended zygos_quest__1 == 1 Could one twin fool friends or family by pretending to be the other? Would you say yes, maybe or no?/ ¿Uno de los gemelos podría engañar a sus amigos o familiares haciéndose pasar por el otro? ¿Diría que sí, tal vez o no? 1 ; 2 ; 3 1 = Yes; 2 = Maybe; 3 = No
scrn_time String 30 Recommended Time of screener completion:
Query scrn_alt_status Integer Recommended ( scrn_met_injmdnote == 1 && scrn_brain_scn == 0) || ( scrn_met_injmdnote == 1 && scrn_abn_scan == 1) || ( scrn_met_excl == 2 && scrn_abn_scan == 1) || ( scrn_met_excl == 2 && scrn_brain_scn == 0) || ( scrn_con_excl == 2 && scrn_brain_scn == 0) || ( scrn_con_excl == 2 && scrn_abn_scan == 1) || ( scrn_psych_excl == 2 && scrn_abn_scan == 1) || ( scrn_psych_excl == 2 && scrn_brain_scn == 0) || ( scrn_birthcomp_excl == 2 && scrn_abn_scan == 1) || ( scrn_birthcomp_excl == 2 && scrn_brain_scn == 0) || ( scrn_concerns_excl == 2 && scrn_abn_scan == 1) || ( scrn_concerns_excl == 2 && scrn_brain_scn == 0) || ( scrn_braces == 2 && scrn_brain_scn == 0) || ( scrn_abn_scan == 1 && scrn_braces == 2) || scrn_abn_scan == 2 || scrn_tbi_scan_excl == 2 Screener Status 0 ; 1 ; 2 ; 3 0 = Waiting for Doctor's note; 1 = Waiting for PI Consult; 2 = Doctor's note received; 3 = Consulted PI //( scrn_met_injmdnote == 1 && scrn_brain_scn == 0) || ( scrn_met_injmdnote == 1 && scrn_abn_scan == 1) || ( scrn_met_excl == 2 && scrn_abn_scan == 1) || ( scrn_met_excl == 2 && scrn_brain_scn == 0) || ( scrn_con_excl == 2 && scrn_brain_scn == 0) || ( scrn_con_excl == 2 && scrn_abn_scan == 1) || ( scrn_psych_excl == 2 && scrn_abn_scan == 1) || ( scrn_psych_excl == 2 && scrn_brain_scn == 0) || ( scrn_birthcomp_excl == 2 && scrn_abn_scan == 1) || ( scrn_birthcomp_excl == 2 && scrn_brain_scn == 0) || ( scrn_concerns_excl == 2 && scrn_abn_scan == 1) || ( scrn_concerns_excl == 2 && scrn_brain_scn == 0) || ( scrn_braces == 2 && scrn_brain_scn == 0) || ( scrn_abn_scan == 1 && scrn_braces == 2) || scrn_abn_scan == 2 || scrn_tbi_scan_excl == 2
Query scrn_status_2 Integer Recommended scrn_met_injremove == 0 || scrn_met_injmdnote == 0 || scrn_met_excl == 0 || scrn_nr_hair == 1 || scrn_eyeliner == 1 || scrn_nr_piercing == 1 || scrn_claustrophob == 2 || scrn_claustrophobexcl == 1 || scrn_speakeng == 0 || scrn_fluency == 0 || scrn_percept_corr == 0 || scrn_cpalsy == 0 || scrn_tumor == 0 || scrn_stroke == 0 || scrn_aneurysm == 0 || scrn_hemorrhage == 0 || scrn_hemotoma == 0 || scrn_con_excl == 0 || scrn_gestage == 1 || scrn_birthwt == 1 || scrn_birthcomp_excl == 0 || scrn_schiz == 1 || scrn_asd_regclasses == 0 || scrn_sud == 1 || scrn_intdisab == 1 || scrn_psych_excl == 1 || scrn_concerns_excl == 0 || scrn_tbi_loc == 1 || scrn_tbi_mem == 1 || scrn_tbi_scan_excl == 0 || scrn_abn_scan == 0 || scrn_seizure == 1 || scrn_weight_mri == 1 || ( scrn_met_injmdnote <> 1 && scrn_met_excl <> 2 && scrn_con_excl <> 2 && scrn_psych_excl <> 2 && scrn_birthcomp_excl <> 2 && scrn_concerns_excl <> 2 && scrn_abn_scan <> 2 && scrn_braces <> 2 && scrn_tbi_scan_excl <> 2) || scrn_alt_status == 2 || scrn_alt_status == 3 Screener Status 3 ; 0 ; 1 ; 2 3 = Delayed screening for age- SCHEDULE AD HOC EVENT FOR SCREENING; 0 = Eligible; 1 = Eligible- Delayed scheduling for dental; 2 = Ineligible // scrn_met_injremove == 0 || scrn_met_injmdnote == 0 || scrn_met_excl == 0 || scrn_nr_hair == 1 || scrn_eyeliner == 1 || scrn_nr_piercing == 1 || scrn_claustrophob == 2 || scrn_claustrophobexcl == 1 || scrn_speakeng == 0 || scrn_fluency == 0 || scrn_percept_corr == 0 || scrn_cpalsy == 0 || scrn_tumor == 0 || scrn_stroke == 0 || scrn_aneurysm == 0 || scrn_hemorrhage == 0 || scrn_hemotoma == 0 || scrn_con_excl == 0 || scrn_gestage == 1 || scrn_birthwt == 1 || scrn_birthcomp_excl == 0 || scrn_schiz == 1 || scrn_asd_regclasses == 0 || scrn_sud == 1 || scrn_intdisab == 1 || scrn_psych_excl == 1 || scrn_concerns_excl == 0 || scrn_tbi_loc == 1 || scrn_tbi_mem == 1 || scrn_tbi_scan_excl == 0 || scrn_abn_scan == 0 || scrn_seizure == 1 || scrn_weight_mri == 1 || ( scrn_met_injmdnote <> 1 && scrn_met_excl <> 2 && scrn_con_excl <> 2 && scrn_psych_excl <> 2 && scrn_birthcomp_excl <> 2 && scrn_concerns_excl <> 2 && scrn_abn_scan <> 2 && scrn_braces <> 2 && scrn_tbi_scan_excl <> 2) || scrn_alt_status == 2 || scrn_alt_status == 3
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

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