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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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ABCD Youth Pubertal Development Scale and Menstrual Cycle Survey History (PDMS)

11,878 Shared Subjects

Pubertal stage and menstrual phase (for postmenarcheal girls) - youth survey
Clinical Assessments
Phys Characteristics
12/04/2017
abcd_ypdms01
05/14/2021
View Change History
01
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
eventname String 60 Required The event name for which the data was collected
Query pds_sex_y Integer Recommended Do you consider yourself male or female? 1 ; 2 1 = Male; 2 = Female; The next questions are about changes that may be happening to your body. These changes normally happen to different young people at different ages. Since they may have something to do with your brain image results, do your best to answer carefully. To give you some privacy, we will let you read and answer the questions on your own. However, if you would like help reading or you don't understand the questions, just let me know and I can help you. pubertdev_sex
Query pds_ht2_y Integer Recommended Would you say that your growth in height: 1 ; 2 ; 3 ; 4 ; 999; 777 1 = has not yet begun to spurt; 2 = has barely started; 3 = is definitely underway; 4 = seems complete; 999 = I don't know; 777= refuse to answer. The next questions are about changes that may be happening to your body. These changes normally happen to different young people at different ages. Since they may have something to do with your brain image results, do your best to answer carefully. To give you some privacy, we will let you read and answer the questions on your own. However, if you would like help reading or you don't understand the questions, just let me know and I can help you. pubertdev_ht
Query pds_skin2_y Integer Recommended Have you noticed any skin changes, especially pimples? 1 ; 2 ; 3 ; 4 ; 999; 777 1 = skin has not yet started changing; 2 = skin has barely started changing; 3 = skin changes are definitely underway; 4 = skin changes seem complete; 999 = I don't know ; ; 777= refuse to answer. The next questions are about changes that may be happening to your body. These changes normally happen to different young people at different ages. Since they may have something to do with your brain image results, do your best to answer carefully. To give you some privacy, we will let you read and answer the questions on your own. However, if you would like help reading or you don't understand the questions, just let me know and I can help you. pubertdev_skin
Query pds_bdyhair_y Integer Recommended And how about the growth of your body hair? ("Body hair" means hair any place other than your head, such as under your arms) Would you say that your body hair growth: 1 ; 2 ; 3 ; 4 ; 999; 777 1 = has not yet begun to spurt; 2 = has barely started; 3 = is definitely underway; 4 = seems complete; 999 = I don't know; 777= refuse to answer. The next questions are about changes that may be happening to your body. These changes normally happen to different young people at different ages. Since they may have something to do with your brain image results, do your best to answer carefully. To give you some privacy, we will let you read and answer the questions on your own. However, if you would like help reading or you don't understand the questions, just let me know and I can help you. pubertdev_bdyhair
Query pds_f4_2_y Integer Recommended pds_sex_y == 2 Have you noticed that your breasts have begun to grow? 1 ; 2 ; 3 ; 4 ; 999; 777 1 = have not yet started growing; 2 = have barely started growing; 3 = breast growth is definitely underway; 4 = breast growth seems complete; 999 = I don't know; 777= refuse to answer pubertdev_f4
Query pds_f5_y Integer Recommended pds_sex_y == 2 Have you begun to menstruate (started to have your period)? 4 ; 1 ; 999; 777 4 = Yes; 1 = No; 999 = I don't know; 777= refuse to answer pubertdev_f5
Query pds_f6_y Float 30 Recommended pds_f5_y == 4 && isNull(pds_f6_y_dk) If yes, how old were you when you started to menstruate? 0::20 If you don't know, please choose "don't know" in what follows below. pubertdev_f6
Query pds_f6_y_dk Integer Recommended pds_f5_y == 4 && isNull(pds_f6_y) how old were you when you started to menstruate? Don't know 999; 777 999 = I Don't know; 777=refuse to answer pubertdev_f6_dk
Query pds_m4_y Integer Recommended pds_sex_y == 1 Have you noticed a deepening of your voice? 1 ; 2 ; 3 ; 4 ; 999; 777 1 = Voice has not yet started to changing; 2 = Voice has barely started changing; 3 = Voice changes are definitely underway; 4 = Voice changes seem complete; 999 = I don't know; 777= refuse to answer pubertdev_m4
Query pds_m5_y Integer Recommended pds_sex_y == 1 Have you begun to grow hair on your face? 1 ; 2 ; 3 ; 4 ; 999; 777 1 = Facial hair not yet started growing; 2 = Facial hair has barely started growing; 3 = Facial hair has definitely started; 4 = Facial hair growth seems complete; 999 = I don't know; 777= refuse to answer pubertdev_m5
menstrual_cycle_script String 30 Recommended pds_f5_y == 4 The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. Descriptive field menstrual_script
menstrualcycle1_y String 30 Recommended pds_f5_y == 4 What was the date of the first day of your/your child's last period? The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrual_1
Query menstrualcycle2_y Float 30 Recommended pds_f5_y == 4 && isNull(menstrualcycle2_y_dk) On average, how many days are there between the first day of your/your child's period and the first day of your/her next period? (e.g., 30 days) 17 :: 50 If you don't know, please choose "don't know" in what follows below. menstrual_2
Query menstrualcycle2_y_dk Integer Recommended pds_f5_y == 4 && isNull(menstrualcycle2_y) On average, how many days are there between the first day of your period and the first day of your next period? (e.g., 30 days). Don't know 999; 777 999 = Don't know; 777= refuse to answer menstrual_2_dk
Query menstrualcycle3_y Integer Recommended pds_f5_y == 4 Is your menstrual cycle regular? 0::3 1 = Yes; 0 = No; 2 = Don't know; 3 = Refuse to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrual_3
Query menstrualcycle4_y Integer Recommended pds_f5_y == 4 Are you currently using hormonal birth control (eg. the pill, hormone patch, hormone injection)? 1 ; 0 ; 2 ; 3 1 = Yes; 0 = No; 2 = Don't know; 3 = Refuse to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrual_4
Query menstrualcycle5_y Integer Recommended pds_f5_y == 4 Do you experience premenstrual symptoms, such as irritability, fatigue, etc., which start before a period and stop within a few days of bleeding? 1 :: 4; 777; 999 1 = Not at all; 2 = Mild; 3 = Moderate; 4 = Severe; 777 = Decline to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrual_5
Query menstrualcycle6_y Integer Recommended pds_f5_y == 4 Do your premenstrual symptoms interfere with your/her relationships with family and friends, productivity, and/or social life activities? 1 :: 4; 777; 999 1 = Not at all; 2 = Mild; 3 = Moderate; 4 = Severe; 777 = Decline to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrual_6
menstrualcycle11_y Integer Recommended How much does your menstrual pain stop you from doing your usual activities? 0 (Not at all) - 10 (stops me from doing anything) 0::10 0=0; 1=1; 2=2; 3=3; 4=4; 5=5; 6=6; 7=7; 8=8; 9=9; 10=10 [pds_f5_y] = '4' and [event-name] = ''3_year_follow_up_y_arm_1''
menstrualcycle7_y Integer Recommended On average, how long does your menstrual period (bleeding) last? 0::2 0=1-2 days; 1=3-7 days; 2=More than 7 days [pds_f5_y] = '4' and [event-name] = ''3_year_follow_up_y_arm_1''
menstrualcycle8_y Integer Recommended Do you experience a light, medium, or heavy flow? 0::2 0=Light; 1=Medium; 2=Heavy [pds_f5_y] = '4' and [event-name] = ''3_year_follow_up_y_arm_1''
menstrualcycle9_y Integer Recommended On average, how would you rate the intensity of your menstrual pain on a scale of 0-10? 0 (No pain at all) - 10 (the worst pain I have ever felt) 0::10 0=0; 1=1; 2=2; 3=3; 4=4; 5=5; 6=6; 7=7; 8=8; 9=9; 10=10 [pds_f5_y] = '4' and [event-name] = ''3_year_follow_up_y_arm_1''
pds_remote___1 Integer Recommended Remote method of Pubertal Developmental Scale administration [Check all that apply]: 1, Audio (i.e. phone call) ; 2, Video/Webcam ; 3, Screen Sharing ; 4, Link 0;1 1=Yes; 0=No [sched_delay] = '9'
pds_remote___2 Integer Recommended Remote method of Pubertal Developmental Scale administration [Check all that apply]: 2, Video/Webcam 0;1 1=Yes; 0=No [sched_delay] = '9'
pds_remote___3 Integer Recommended Remote method of Pubertal Developmental Scale administration [Check all that apply]: 3, Screen Sharing 0;1 1=Yes; 0=No [sched_delay] = '9'
pds_remote___4 Integer Recommended Remote method of Pubertal Developmental Scale administration [Check all that apply]: 4, Link 0;1 1=Yes; 0=No [sched_delay] = '9'
mentrualcycle11_y Integer Recommended What form of birth control do you use? 1::6;999 1=Birth control pill (e.g. Yasmin=Yaz); 2=Birth control patch; 3=Birth control shot (e.g. depo-provera shot); 4=Birth control implant (e.g. Nexplanon); 5=Hormonal IUD (e.g. Mirena); 6=Other; 999=Don't know [menstrualcycle4_y] = '1' AND [event-name] = '4_year_follow_up_y_arm_1'
pds_device Integer Recommended Youth's Device: 1::3 1=Phone Screen; 2=Tablet/iPad Screen; 3=Computer Screen [pds_remote(2)] = ''1'' or [pds_remote(3)] = ''1''
menstrualcycle10_y Integer Recommended How long does your menstrual pain last? 0::4 0=0 days; 1=1 day; 2=2 days; 3=3 days; 4=4 days or more [pds_f5_y] = '4' and [event-name] = ''3_year_follow_up_y_arm_1''
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.