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ABCD Youth Pubertal Development Scale and Menstrual Cycle Survey History (PDMS)

11,877 Shared Subjects

Pubertal stage and menstrual phase (for postmenarcheal girls) - youth survey
Clinical Assessments
Phys Characteristics
12/04/2017
abcd_ypdms01
05/14/2021
View Change History
01
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
eventname String 60 Required The event name for which the data was collected
Query pds_sex_y Integer Recommended Do you consider yourself male or female? 1 ; 2 1 = Male; 2 = Female; The next questions are about changes that may be happening to your body. These changes normally happen to different young people at different ages. Since they may have something to do with your brain image results, do your best to answer carefully. To give you some privacy, we will let you read and answer the questions on your own. However, if you would like help reading or you don't understand the questions, just let me know and I can help you. pubertdev_sex
Query pds_ht2_y Integer Recommended Would you say that your growth in height: 1 ; 2 ; 3 ; 4 ; 999; 777 1 = has not yet begun to spurt; 2 = has barely started; 3 = is definitely underway; 4 = seems complete; 999 = I don't know; 777= refuse to answer. The next questions are about changes that may be happening to your body. These changes normally happen to different young people at different ages. Since they may have something to do with your brain image results, do your best to answer carefully. To give you some privacy, we will let you read and answer the questions on your own. However, if you would like help reading or you don't understand the questions, just let me know and I can help you. pubertdev_ht
Query pds_skin2_y Integer Recommended Have you noticed any skin changes, especially pimples? 1 ; 2 ; 3 ; 4 ; 999; 777 1 = skin has not yet started changing; 2 = skin has barely started changing; 3 = skin changes are definitely underway; 4 = skin changes seem complete; 999 = I don't know ; ; 777= refuse to answer. The next questions are about changes that may be happening to your body. These changes normally happen to different young people at different ages. Since they may have something to do with your brain image results, do your best to answer carefully. To give you some privacy, we will let you read and answer the questions on your own. However, if you would like help reading or you don't understand the questions, just let me know and I can help you. pubertdev_skin
Query pds_bdyhair_y Integer Recommended And how about the growth of your body hair? ("Body hair" means hair any place other than your head, such as under your arms) Would you say that your body hair growth: 1 ; 2 ; 3 ; 4 ; 999; 777 1 = has not yet begun to spurt; 2 = has barely started; 3 = is definitely underway; 4 = seems complete; 999 = I don't know; 777= refuse to answer. The next questions are about changes that may be happening to your body. These changes normally happen to different young people at different ages. Since they may have something to do with your brain image results, do your best to answer carefully. To give you some privacy, we will let you read and answer the questions on your own. However, if you would like help reading or you don't understand the questions, just let me know and I can help you. pubertdev_bdyhair
Query pds_f4_2_y Integer Recommended pds_sex_y == 2 Have you noticed that your breasts have begun to grow? 1 ; 2 ; 3 ; 4 ; 999; 777 1 = have not yet started growing; 2 = have barely started growing; 3 = breast growth is definitely underway; 4 = breast growth seems complete; 999 = I don't know; 777= refuse to answer pubertdev_f4
Query pds_f5_y Integer Recommended pds_sex_y == 2 Have you begun to menstruate (started to have your period)? 4 ; 1 ; 999; 777 4 = Yes; 1 = No; 999 = I don't know; 777= refuse to answer pubertdev_f5
Query pds_f6_y Float 30 Recommended pds_f5_y == 4 && isNull(pds_f6_y_dk) If yes, how old were you when you started to menstruate? 0::20 If you don't know, please choose "don't know" in what follows below. pubertdev_f6
Query pds_f6_y_dk Integer Recommended pds_f5_y == 4 && isNull(pds_f6_y) how old were you when you started to menstruate? Don't know 999; 777 999 = I Don't know; 777=refuse to answer pubertdev_f6_dk
Query pds_m4_y Integer Recommended pds_sex_y == 1 Have you noticed a deepening of your voice? 1 ; 2 ; 3 ; 4 ; 999; 777 1 = Voice has not yet started to changing; 2 = Voice has barely started changing; 3 = Voice changes are definitely underway; 4 = Voice changes seem complete; 999 = I don't know; 777= refuse to answer pubertdev_m4
Query pds_m5_y Integer Recommended pds_sex_y == 1 Have you begun to grow hair on your face? 1 ; 2 ; 3 ; 4 ; 999; 777 1 = Facial hair not yet started growing; 2 = Facial hair has barely started growing; 3 = Facial hair has definitely started; 4 = Facial hair growth seems complete; 999 = I don't know; 777= refuse to answer pubertdev_m5
menstrual_cycle_script String 30 Recommended pds_f5_y == 4 The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. Descriptive field menstrual_script
menstrualcycle1_y String 30 Recommended pds_f5_y == 4 What was the date of the first day of your/your child's last period? The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrual_1
Query menstrualcycle2_y Float 30 Recommended pds_f5_y == 4 && isNull(menstrualcycle2_y_dk) On average, how many days are there between the first day of your/your child's period and the first day of your/her next period? (e.g., 30 days) 17 :: 50 If you don't know, please choose "don't know" in what follows below. menstrual_2
Query menstrualcycle2_y_dk Integer Recommended pds_f5_y == 4 && isNull(menstrualcycle2_y) On average, how many days are there between the first day of your period and the first day of your next period? (e.g., 30 days). Don't know 999; 777 999 = Don't know; 777= refuse to answer menstrual_2_dk
Query menstrualcycle3_y Integer Recommended pds_f5_y == 4 Is your menstrual cycle regular? 0::3 1 = Yes; 0 = No; 2 = Don't know; 3 = Refuse to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrual_3
Query menstrualcycle4_y Integer Recommended pds_f5_y == 4 Are you currently using hormonal birth control (eg. the pill, hormone patch, hormone injection)? 1 ; 0 ; 2 ; 3 1 = Yes; 0 = No; 2 = Don't know; 3 = Refuse to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrual_4
Query menstrualcycle5_y Integer Recommended pds_f5_y == 4 Do you experience premenstrual symptoms, such as irritability, fatigue, etc., which start before a period and stop within a few days of bleeding? 1 :: 4; 777; 999 1 = Not at all; 2 = Mild; 3 = Moderate; 4 = Severe; 777 = Decline to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrual_5
Query menstrualcycle6_y Integer Recommended pds_f5_y == 4 Do your premenstrual symptoms interfere with your/her relationships with family and friends, productivity, and/or social life activities? 1 :: 4; 777; 999 1 = Not at all; 2 = Mild; 3 = Moderate; 4 = Severe; 777 = Decline to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrual_6
menstrualcycle11_y Integer Recommended How much does your menstrual pain stop you from doing your usual activities? 0 (Not at all) - 10 (stops me from doing anything) 0::10 0=0; 1=1; 2=2; 3=3; 4=4; 5=5; 6=6; 7=7; 8=8; 9=9; 10=10 [pds_f5_y] = '4' and [event-name] = ''3_year_follow_up_y_arm_1''
menstrualcycle7_y Integer Recommended On average, how long does your menstrual period (bleeding) last? 0::2 0=1-2 days; 1=3-7 days; 2=More than 7 days [pds_f5_y] = '4' and [event-name] = ''3_year_follow_up_y_arm_1''
menstrualcycle8_y Integer Recommended Do you experience a light, medium, or heavy flow? 0::2 0=Light; 1=Medium; 2=Heavy [pds_f5_y] = '4' and [event-name] = ''3_year_follow_up_y_arm_1''
menstrualcycle9_y Integer Recommended On average, how would you rate the intensity of your menstrual pain on a scale of 0-10? 0 (No pain at all) - 10 (the worst pain I have ever felt) 0::10 0=0; 1=1; 2=2; 3=3; 4=4; 5=5; 6=6; 7=7; 8=8; 9=9; 10=10 [pds_f5_y] = '4' and [event-name] = ''3_year_follow_up_y_arm_1''
pds_remote___1 Integer Recommended Remote method of Pubertal Developmental Scale administration [Check all that apply]: 1, Audio (i.e. phone call) ; 2, Video/Webcam ; 3, Screen Sharing ; 4, Link 0;1 1=Yes; 0=No [sched_delay] = '9'
pds_remote___2 Integer Recommended Remote method of Pubertal Developmental Scale administration [Check all that apply]: 2, Video/Webcam 0;1 1=Yes; 0=No [sched_delay] = '9'
pds_remote___3 Integer Recommended Remote method of Pubertal Developmental Scale administration [Check all that apply]: 3, Screen Sharing 0;1 1=Yes; 0=No [sched_delay] = '9'
pds_remote___4 Integer Recommended Remote method of Pubertal Developmental Scale administration [Check all that apply]: 4, Link 0;1 1=Yes; 0=No [sched_delay] = '9'
mentrualcycle11_y Integer Recommended What form of birth control do you use? 1::6;999 1=Birth control pill (e.g. Yasmin=Yaz); 2=Birth control patch; 3=Birth control shot (e.g. depo-provera shot); 4=Birth control implant (e.g. Nexplanon); 5=Hormonal IUD (e.g. Mirena); 6=Other; 999=Don't know [menstrualcycle4_y] = '1' AND [event-name] = '4_year_follow_up_y_arm_1'
pds_device Integer Recommended Youth's Device: 1::3 1=Phone Screen; 2=Tablet/iPad Screen; 3=Computer Screen [pds_remote(2)] = ''1'' or [pds_remote(3)] = ''1''
menstrualcycle10_y Integer Recommended How long does your menstrual pain last? 0::4 0=0 days; 1=1 day; 2=2 days; 3=3 days; 4=4 days or more [pds_f5_y] = '4' and [event-name] = ''3_year_follow_up_y_arm_1''
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