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Data Structures with shared data
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ACE Demographics

59 Shared Subjects

N/A
Clinical Assessments
Demographics
03/08/2018
acedemo01
03/09/2018
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported sex
child_ethnic String 55 Recommended Child's Ethnicity 1. Hispanic;2. Non-Hispanic; 3. Refused child_ethnicity
child_race String 55 Recommended Child's Race American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
parent_et_sp String 50 Recommended Specify ethnicity child_race_other
child_lang Integer Recommended Child's primary language 1::3 1= English; 2= Spanish; 3= Other
demo_first_lang_other String 200 Recommended If other language, please specify language_other
fh13 Integer Recommended Birth order 0::13; 99 99 = Missing value birth_order
bio_mom_known Integer Recommended Biological Mother 0;1 0= Unknown; 1= Known
cg1_ethnicity String 30 Recommended Caregiver/Parent 1's ethnicity Hispanic or Latino; Not Hispanic or Latino
cg1_gender String 10 Recommended Caregiver/Parent 1's Gender Male;Female
bio_dad Integer Recommended Biological Father 0;1 0= Unknown; 1= Known
cg2_ethnicity String 30 Recommended Caregiver/Parent 2's ethnicity Hispanic or Latino; Not Hispanic or Latino
cg2_race String 100 Recommended Race of the Caregiver/Parent 2 American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
cg2_race_specify String 50 Recommended Caregiver2: Specify Other Race
cg1_cg2_relationship String 100 Recommended Relationship of Caregiver/Parent 2 to Caregiver/Parent 1 Spouse;In a relationship, unmarried;Other
cg1_cg2_relationship_specify String 100 Recommended Relationship of Caregiver/Parent 2 to Caregiver/Parent 1 Other Specify
pri_divorced Integer Recommended If primary caregiver(s) are sparated/divorced, what is the custody status of the child? 1::3 1= Joint custody; 2= Mother has sole custody; 3= Father has sole custody; 9= Other (specify)
pri_divorced_other String 20 Recommended Specify other Custody Status
totaladults Integer Recommended How many total adults are in the home, including PCG? demo_num_of_adults
demo_totalhh_income Integer Recommended What was the total combined household income of the child's primary residence before taxes last year? 1::9 1= Under 25,000; 2= 25,000 to 49,999; 3= 50,000 to 74,999; 4= 75,000 to 99,999; 5= 100,000 to 124,999; 6= 125,000 to 149,999; 7= 150,000 to 174,999; 8= 175,000 to 199,999 ; 9= 200,000 and above
demo_pri_reporter_who Integer Recommended Who is the Primary Reporter (select only one) 1::8 1= Biological mother; 2= Adoptive mother; 3= Biological father; 4= Adoptive father; 5= Grandmother; 6= Grandfather; 7= Stepmother; 8= Stepfather; 9= Other
demo_pri_reporter_other String 20 Recommended Specify other primary reporter
demo_pri_education Integer Recommended Primary Reporter's highest level of education: 1::8 1= Less than 8th grade; 2= High School Certificate of Attendance; 3= HS diploma or equivalent; 4= Some college, no degree; 5= Associate's degree; 6= Bachelor's degree; 7= Some graduate school; 8= Graduate school degree/s
demo_pri_employment Integer Recommended Is the Primary Reporter employed? 0;1 0= No; 1= Yes
demo_pri_employed Integer Recommended If employed: Status of employment 1;2 1= Full-time; 2= Part-time
demo_another_rep Integer Recommended Is there another person reporting on the child? 0;1 0= No; 1= Yes
demo_sec_reporter_who Integer Recommended Who is the Secondary Reporter? 1::8 1= Biological mother; 2= Adoptive mother; 3= Biological father; 4= Adoptive father; 5= Grandmother; 6= Grandfather; 7= Stepmother; 8= Stepfather 9= Other
demo_sec_reporter_other String 20 Recommended Specify other Secondary Reporter
demo_sec_education Integer Recommended Secondary Reporter's highest level of education: 1::8 1= Less than 8th grade; 2= High School Certificate of Attendance; 3= HS diploma or equivalent; 4= Some college, no degree; 5= Associate's degree; 6= Bacherlor's degree; 7= Some graduate school ; 8= Graduate school degree/s
demo_sec_employment Integer Recommended Is the Secondary Reporter employed? 0;1 0= No; 1= Yes
demo_sec_employed Integer Recommended If employed: Status of employment: 1;2 1= Full-time; 2= Part-time
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.