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Frequently Asked Questions


NDA Help Center

Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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ACE Demographics



Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender, sex
child_ethnicString55RecommendedChild's Ethnicity1. Hispanic;2. Non-Hispanic; 3. Refusedchild_ethnicity
child_raceString55RecommendedChild's RaceAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
parent_et_spString50RecommendedSpecify ethnicitychild_race_other
child_langIntegerRecommendedChild's primary language1::31= English; 2= Spanish; 3= Other
demo_first_lang_otherString200RecommendedIf other language, please specifylanguage_other
fh13IntegerRecommendedBirth order0::13; 9999 = Missing valuebirth_order
bio_mom_knownIntegerRecommendedBiological Mother0;10= Unknown; 1= Known
cg1_ethnicityString30RecommendedCaregiver/Parent 1's ethnicityHispanic or Latino; Not Hispanic or Latino
cg1_genderString10RecommendedCaregiver/Parent 1's GenderMale;Female
bio_dadIntegerRecommendedBiological Father0;10= Unknown; 1= Known
cg2_ethnicityString30RecommendedCaregiver/Parent 2's ethnicityHispanic or Latino; Not Hispanic or Latino
cg2_raceString100RecommendedRace of the Caregiver/Parent 2American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
cg2_race_specifyString50RecommendedCaregiver2: Specify Other Race
cg1_cg2_relationshipString100RecommendedRelationship of Caregiver/Parent 2 to Caregiver/Parent 1Spouse;In a relationship, unmarried;Other
cg1_cg2_relationship_specifyString100RecommendedRelationship of Caregiver/Parent 2 to Caregiver/Parent 1 Other Specify
pri_divorcedIntegerRecommendedIf primary caregiver(s) are sparated/divorced, what is the custody status of the child?1::31= Joint custody; 2= Mother has sole custody; 3= Father has sole custody; 9= Other (specify)
pri_divorced_otherString20RecommendedSpecify other Custody Status
totaladultsIntegerRecommendedHow many total adults are in the home, including PCG?demo_num_of_adults
demo_totalhh_incomeIntegerRecommendedWhat was the total combined household income of the child's primary residence before taxes last year?1::91= Under 25,000; 2= 25,000 to 49,999; 3= 50,000 to 74,999; 4= 75,000 to 99,999; 5= 100,000 to 124,999; 6= 125,000 to 149,999; 7= 150,000 to 174,999; 8= 175,000 to 199,999 ; 9= 200,000 and above
demo_pri_reporter_whoIntegerRecommendedWho is the Primary Reporter (select only one)1::81= Biological mother; 2= Adoptive mother; 3= Biological father; 4= Adoptive father; 5= Grandmother; 6= Grandfather; 7= Stepmother; 8= Stepfather; 9= Other
demo_pri_reporter_otherString20RecommendedSpecify other primary reporter
demo_pri_educationIntegerRecommendedPrimary Reporter's highest level of education:1::81= Less than 8th grade; 2= High School Certificate of Attendance; 3= HS diploma or equivalent; 4= Some college, no degree; 5= Associate's degree; 6= Bachelor's degree; 7= Some graduate school; 8= Graduate school degree/s
demo_pri_employmentIntegerRecommendedIs the Primary Reporter employed?0;10= No; 1= Yes
demo_pri_employedIntegerRecommendedIf employed: Status of employment1;21= Full-time; 2= Part-time
demo_another_repIntegerRecommendedIs there another person reporting on the child?0;10= No; 1= Yes
demo_sec_reporter_whoIntegerRecommendedWho is the Secondary Reporter?1::81= Biological mother; 2= Adoptive mother; 3= Biological father; 4= Adoptive father; 5= Grandmother; 6= Grandfather; 7= Stepmother; 8= Stepfather 9= Other
demo_sec_reporter_otherString20RecommendedSpecify other Secondary Reporter
demo_sec_educationIntegerRecommendedSecondary Reporter's highest level of education:1::81= Less than 8th grade; 2= High School Certificate of Attendance; 3= HS diploma or equivalent; 4= Some college, no degree; 5= Associate's degree; 6= Bacherlor's degree; 7= Some graduate school ; 8= Graduate school degree/s
demo_sec_employmentIntegerRecommendedIs the Secondary Reporter employed?0;10= No; 1= Yes
demo_sec_employedIntegerRecommendedIf employed: Status of employment:1;21= Full-time; 2= Part-time
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: acedemo01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.