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Advocacy Behaviors Form

107 Shared Subjects

N/A
Clinical Assessments
Questionnaire
06/30/2017
adbf01
06/30/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query sixmo_advbeh_agenc Integer Recommended Searched the internet to find agencies and/or services to meet your child's needs? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_par Integer Recommended Talked with other parents about agencies and/or services to meet your child's needs? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_asp Integer Recommended Called adult service provider agencies to ask about eligibility and services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_train Integer Recommended Attended trainings about adult services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_docum Integer Recommended put into writing) your advocacy/communication with agencies and professionals? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_asked Integer Recommended Asked questions to professionals about services/eligbility? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_phone Integer Recommended Talked with other parents (over the phone) about agencies and/or services to meet their child's needs? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_inpers Integer Recommended Talked with other parents in person about agencies and/or services to meet their child's needs? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_facil Integer Recommended Facilitated trainings or support groups for other families about adult services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_review Integer Recommended Reviewed the records of another family to help them determine which services they are eligible for? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_comm Integer Recommended Helped another family communicate with agencies and professionals? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_visit Integer Recommended Visited the office or held meetings with legislators about disability services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_letters Integer Recommended Written letters to legislators about disability services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_media Integer Recommended Tried to get media attention (e.g., newspaper, television, radio) about disability services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_leader Integer Recommended Taken on leadership roles in national, state, or local agencies related to disability services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_present Integer Recommended Presented at state or national conferences about disability services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.