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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

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Accommodation and Enabling Scale for Eating Disorders

26 Shared Subjects

N/A
Clinical Assessments
Eating Disorder
12/05/2019
aesed01
12/17/2019
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
aebes01 Integer Recommended In the last month, did your child with an eating disorder control: the choices of food that you bought? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes02 Integer Recommended In the last month, did your child with an eating disorder control: what other family members did and for how long in the kitchen? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes03 Integer Recommended In the last month, did your child with an eating disorder control: cooking practice (i.e., how you cooked)? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes04 Integer Recommended In the last month, did your child with an eating disorder control: The specific ingredients used in cooking (e.g., fat free cooking spray, butter, oil, etc.)? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes05 Integer Recommended In the last month, did your child with an eating disorder control: how food was presented on the plate? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes06 Integer Recommended In the last month, did your child with an eating disorder control: what other family members ate? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes07 Integer Recommended In the last month, did your child with an eating disorder control: what other family members did in other rooms in the house (not the kitchen)? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes08 Integer Recommended In the last month, did your child with an eating disorder control: what other family members could talk about in front of her/him? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes09 Integer Recommended Did your child engage any family member in repeated conversations about the following in the last month: reassurance about whether she/he will get fat? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes10 Integer Recommended Did your child engage any family member in repeated conversations about the following in the last month: whether it is safe or acceptable to eat certain foods? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes11 Integer Recommended Did your child engage any family member in repeated conversations about the following in the last month: reassurance about whether she/he looks fat in certain clothes? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes12 Integer Recommended Did your child engage any family member in repeated conversations about the following in the last month: ingredients and amounts, possible substitutes for ingredients? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes13 Integer Recommended Did your child engage any family member in repeated conversations about the following in the last month: negative thoughts and feelings? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes14 Integer Recommended Did your child engage any family member in repeated conversations about the following in the last month: self-harm? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes15 Integer Recommended Did any family members have to accommodate (i.e., change what they would normally do - often in order to avoid a scene) the following in the last month: which dishes were used? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes16 Integer Recommended Did any family members have to accommodate (i.e., change what they would normally do - often in order to avoid a scene) the following in the last month: how dishes were washed? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes17 Integer Recommended Did any family members have to accommodate (i.e., change what they would normally do - often in order to avoid a scene) the following in the last month: what time meals were eaten? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes18 Integer Recommended Did any family members have to accommodate (i.e., change what they would normally do - often in order to avoid a scene) the following in the last month: where meals were eaten? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes19 Integer Recommended Did any family members have to accommodate (i.e., change what they would normally do - often in order to avoid a scene) the following in the last month: how the kitchen was cleaned? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes20 Integer Recommended Did any family members have to accommodate (i.e., change what they would normally do - often in order to avoid a scene) the following in the last month: how food is stored? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes21 Integer Recommended Did any family members have to accommodate (i.e., change what they would normally do - often in order to avoid a scene) the following in the last month: the exercise routine of your child? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes22 Integer Recommended Did any family members have to accommodate (i.e., change what they would normally do - often in order to avoid a scene) the following in the last month: your child's checking their body shape or weight? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes23 Integer Recommended Did any family members have to accommodate (i.e., change what they would normally do - often in order to avoid a scene) the following in the last month: how the house was cleaned and tidied? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes24 Integer Recommended In the last month, how often did you choose to ignore the following aspects of your child's eating disorder that could impact your family's life in an effort to make it tolerable for the rest of the family: when food disappears? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes25 Integer Recommended In the last month, how often did you choose to ignore the following aspects of your child's eating disorder that could impact your family's life in an effort to make it tolerable for the rest of the family: when money is taken? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes26 Integer Recommended In the last month, how often did you choose to ignore the following aspects of your child's eating disorder that could impact your family's life in an effort to make it tolerable for the rest of the family: when the kitchen is left a mess? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes27 Integer Recommended In the last month, how often did you choose to ignore the following aspects of your child's eating disorder that could impact your family's life in an effort to make it tolerable for the rest of the family: when the bathroom is left a mess? 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Every day
aebes28 Integer Recommended In general, to what extent would you say that your child controls family life and activities? 0::10 0= None at all; 5= About Half; 10 = Completely
aebes29 Integer Recommended How often did you reassure your child regarding their anxieties or other concerns related to their eating disorder during the past month? 0::4 0= Never; 1= 1-3 times/month; 2= 1-2 times/week; 3- 3-6 times/week; 4= Daily
aebes30 Integer Recommended How often did you provide items requested by your child for his/her compulsive behaviors? 0::4 0= Never; 1= 1-3 times/month; 2= 1-2 times/week; 3- 3-6 times/week; 4= Daily
aebes31 Integer Recommended How often did you participate in behaviours related to your child's compulsions? 0::4 0= Never; 1= 1-3 times/month; 2= 1-2 times/week; 3- 3-6 times/week; 4= Daily
assist_anxious Integer Recommended How often did you assist your child in avoiding things that might make them anxious? 0::4 0= never; 1= 1-3 times a month; 2= 1-2 times a week; 3= 3-6 times a week; 4= daily aebes32
aebes33 Integer Recommended How often did you avoid doing things, going places, or being with people because of your child's disorder? 0::4 0= Never; 1= 1-3 times/month; 2= 1-2 times/week; 3- 3-6 times/week; 4= Daily
modified_routine Integer Recommended Have you modified your family routine because of your child's symptoms? 0::4 0= never; 1= 1-3 times a month; 2= 1-2 times a week; 3= 3-6 times a week; 4= daily aebes34
aebes35 Integer Recommended How often did you modify your work schedule because of your child's needs? 0::4 0= Never; 1= 1-3 times/month; 2= 1-2 times/week; 3- 3-6 times/week; 4= Daily
aebes36 Integer Recommended How often did you modify your leisure activities because of your child's needs? 0::4 0= Never; 1= 1-3 times/month; 2= 1-2 times/week; 3- 3-6 times/week; 4= Daily
aebes37 Integer Recommended Has helping your child in the before mentioned ways (items 29-36) caused you distress? 0::4 0= Never; 1= 1-3 times/month; 2= 1-2 times/week; 3- 3-6 times/week; 4= Daily
aebes38 Integer Recommended How often did you your child with an eating disorder become distressed/anxious when you did not provided assistance? 0::4 0= Never; 1= 1-3 times/month; 2= 1-2 times/week; 3- 3-6 times/week; 4= Daily
aebes39 Integer Recommended How often did your child become angry/abusive when you did not provide assistance? 0::4 0= Never; 1= 1-3 times/month; 2= 1-2 times/week; 3- 3-6 times/week; 4= Daily
aebes40 Integer Recommended How often did our child engage in self-harm (cutting, hitting self, banging head) when you did not provided assistance? 0::4 0= Never; 1= 1-3 times/month; 2= 1-2 times/week; 3- 3-6 times/week; 4= Daily
aebes41 Integer Recommended How often did your child threaten/attempt/actually run away when you did not provide assistance? 0::4 0= Never; 1= 1-3 times/month; 2= 1-2 times/week; 3- 3-6 times/week; 4= Daily
aebes_total Integer Recommended AESED Total Score
aebes_avoi Integer Recommended Avoidance and Modifying Subscore
aebes_reas Integer Recommended Reassure Seeking Subscore
aebes_cof Integer Recommended Control of Family Subscore
aebes_tabe Integer Recommended Turing a Blind Eye Subscore
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.