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subjectkey |
GUID |
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Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
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Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
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Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
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Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
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Required |
Sex of subject at birth |
M;F; O; NR
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M = Male; F = Female; O=Other; NR = Not reported
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gender |
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diagnosis |
String |
255
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Recommended |
Subject Diagnosis |
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Final diagnostic group based on ascertainment, ADOS, ADIR, and SCQ
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Query
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ahrs_1 |
Float |
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Recommended |
Length of time experiencing voices (years) |
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ahrs_2 |
String |
50
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Recommended |
Hallucinations in other modalities |
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f.e. Visual, Olfactory, gustatory, tactile
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Query
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ahrs_3 |
Integer |
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Recommended |
Frequency. How often do you experience voices? |
0::4
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0= Voices not present or present less than once a week (specify frequency if present).;1 =Voices occur for at least once a week; 2 =Voices occur at least once a day.; 3 =Voices occur at least once an hour.; 4= Voices occur continuously or almost continually i.e. stop only for a few seconds or minutes.
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Query
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ahrs_4 |
Integer |
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Recommended |
Duration. When you hear your voices, how long do they last e.g. a few seconds, minutes, hours, all day long |
0::4
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0=Voices not present.; 1=Voices last for a few seconds, fleeting voices.; 2=Voices last for several minutes.; 3=Voices last for at least one hour.; 4=Voices last for hours at a time.
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Query
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ahrs_5 |
Integer |
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Recommended |
Location. When you hear your voices where do they sound like they're coming from? - inside your head and/or outside your head? - If voices sound like they are outside your head, whereabouts do they sound like they're coming from? |
0::4
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0 =No voices present; 1 =Voices originate inside head only; 2 =Voices outside the head, but close to ears or head. Voices inside head may also be present; 3 =Voices originate inside or close to ears and outside head away from ears; 4 =Voices originate from outside space, away from head only.
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Query
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ahrs_6 |
Integer |
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Recommended |
Loudness. How loud are your voices? Are they louder than your voice, about the same loudness, quieter or just a whisper? |
0::4
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0 =Voices not present; 1 =Quieter than own voice, whisper; 2 =About the same loudness as own voice; 3 =Louder than own voice; 4 =Extremely loud, shouting.
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Query
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ahrs_7 |
Integer |
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Recommended |
Beliefs re-origin of voices. What do you think has caused your voices? - Are the voices caused by factors related to yourself or solely due to other people or factors. If patient expresses an external origin - How much do you believe that your voices are caused by (patients attribution) on a scale from 0-100 with 100 being that you are totally convinced, have no doubts and 0 being that it is completely untrue |
0::4
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0 =Voices not present; 1= Believes voices to be solely internally generated and related to self; 2 =Holds a less than 50% conviction that voices originate from external causes; 3 =Holds 50% or more conviction (but less than 100%) that voices originate from external cause; 4 =Believes voices are solely due to external causes (100% conviction)
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Query
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ahrs_8 |
Integer |
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Recommended |
Amound of negative content of voices. Do your voices say unpleasant or negative things? - Can you give me some examples of what the voices say? - How much of the time do the voices say these type of unpleasant or negative items? |
0::4
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0 =No unpleasant content; 1 =Occasional unpleasant content; 2 =Minority of voice content is unpleasant or negative (less than 50%); 3 =Majority of voice content is unpleasant or negative (more than 50%); 4 =All of voice content is unpleasant or negative.
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Query
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ahrs_9 |
Integer |
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Recommended |
Degree of negative content. Rate using criteria on scale, asking patient for more detail if necessary |
0::4
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0= Not unpleasant or negative; 1= Some degree of negative content, but not personal comments relating to self or family e.g. swear words or comments not directed to self, e.g. "The milk man is ugly"; 2= Personal verbal abuse, comments on behaviour e.g. "Shouldn't do that, or say that"; 3= Personal verbal abuse relating to self-concept e.g. "You're lazy, ugly, mad, perverted"; 4= Personal threats to self e.g. threats to harm to self or family, extreme instructions or commands to harm self or others and personal verbal abuse as in (3).
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Query
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ahrs_10 |
Integer |
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Recommended |
Amount of distress. Are your voices distressing? - How much of the time? |
0::4
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0 =Voices not distressing at all; 1= Voices occasionally distressing, majority not distressing; 2 =Equal amounts of distressing and non-distressing voices; 3= Majority of voices distressing, minority not distressing ; 4 =Voices always distressing.
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Query
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ahrs_11 |
Integer |
|
Recommended |
Intensity of distress. When voices are distressing, how distressing are they? - Do they cause you minimal, moderate, severe distress? - Are they the most distressing they have ever been? |
0::4
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0= Voices not distressing at al; 1= Voices slightly distressing; 2= Voices are distressing to a moderate degree; 3= Voices are very distressing, although subject could feel worse; 4 =Voices are extremely distressing, feel the worst he/she could possibly feel.
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ahrs7 |
Query
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ahrs_12 |
Integer |
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Recommended |
Disruption to life caused by voices. How much disruption do the voices cause to your life? - Do the voices stop you from working or other daytime activity? - Do they interfere with your relationships with friends and/or family? - Do they prevent you from looking after yourself, e.g. bathing changing clothes etc. |
0::4
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0 =No disruption to life, able to maintain independent living with no problems in daily living skills. Able to maintain social and family relationships (if present); 1= Voices cause minimal amount of disruption to life e.g. interferes with concentration although able to maintain daytime activity and social and family relationships and be able to maintain independent living without support; 2 = Voices cause moderate amount of disruption to life causing some disturbance to daytime activity and/or family or social activities. The patient is not in hospital although may live in supported accommodation or receive additional help with daily living skills; 3= Voices cause severe disruption to life so that hospitalisation is usually necessary. The patient is able to maintain some daily activities, self-care and relationships whilst in hospital. The patient may also be in supported accommodation but experiencing severe disruption of life in terms of activities daily living skills and/or relationships; 4 =Voices cause complete disruption of daily life requiring hospitalisation. The patient in unable to maintain any daily activities and social relationships. Self-care is also severely disrupted.
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Query
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ahrs_13 |
Integer |
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Recommended |
Controllability of voices. - Do you think you have any control over when your voices happen? - Can you dismiss or bring on your voices? |
0::4
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0= Subject believes they can have control over their voices and can always bring on or dismiss them at will; 1= Subject believes they can have some control over the voices on the majority of occasions; 2= Subject believes they can have some control over their voices approximately half of the time; 3 =Subject believes they can have some control over their voices but only occasionally. The majority of time the subject experiences voices which are uncontrollable; 4 Subject has no control over when the voices occur and cannot dismiss or bring them on at all.
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Query
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ahrs_14 |
Integer |
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Recommended |
Number of Voices. How many different voices have you heard over the last week? |
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ahrs4 |
Query
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ahrs_15 |
Integer |
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Recommended |
Form of voices. 1st person |
0;1
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0=No; 1= Yes
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Query
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ahrs_16 |
Integer |
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Recommended |
Form of voices. 1st person, number |
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Query
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ahrs_17 |
Integer |
|
Recommended |
Form of voices. 2nd person |
0;1
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0=No; 1= Yes
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Query
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ahrs_18 |
Integer |
|
Recommended |
Form of voices. 2nd person, number |
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Query
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ahrs_19 |
Integer |
|
Recommended |
Form of voices. 3rd person |
0;1
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0=No; 1= Yes
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Query
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ahrs_20 |
Integer |
|
Recommended |
Form of voices. 3rd person, number |
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Query
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ahrs_21 |
Integer |
|
Recommended |
Single words or phrases |
0;1
|
0=No; 1= Yes
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Query
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ahrs_22 |
Integer |
|
Recommended |
Single words or phrases, number |
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Query
|
study_condition |
Integer |
|
Recommended |
Study condition to which participant was assigned |
1::7
|
1 = Cognitive remediation; 2 = Comparison condition; 3 = Other; 4= treatment as usual; 5= Computers first; 6= CRT first; 7=SCIT
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Query
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time_point |
Integer |
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Recommended |
Assessment time point |
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1=Baseline (STARD); 2=Level exit (STARD); 3= Quarterly follow up (STARD);5= Screening; 10= Baseline; 21, 22, 23 = Mid-point 1, 2, 3; 30= End-of-treatment; 41, 42, 43= Follow-up1, 2, 3 etc.; 601 = 6 Month Reassessment ; 602 = 12 Month Reassessment ; 603 = 18 Month Reassessment
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Query
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days_baseline |
Integer |
|
Recommended |
Days since baseline |
|
|
date |
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ahrs1 |
Integer |
|
Recommended |
Frequency. How often do the voices occur? |
0::9
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0 = Stopped; 1 = Rare (1-5 times per 24h); 2 = Occasional (6-10 times per hour); 3 = Occasional (1-2 times per hour); 4= Frequent (approximately 3-6 times per hour); 5 = Frequent (7-10 times per hour); 6= Very Frequent (11-20 time per hour) 7= Very Frequent; (21-50 times per hour); 8 = Rapid (1 per minute); 9 = Relatively uninterrupted
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ahrs2 |
Integer |
|
Recommended |
Reality. How real do the voices seem to you? |
0::5
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0 = Indistinguishable from own thoughts; 1 = Imaginary; 2 = Vague; 3 = Dreamlike; 4 = Somewhat real; 5 = Very real
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ahrs3 |
Integer |
|
Recommended |
Loudness. On average, how loud is the predominant voice? |
0::5
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0 = Too faint to be heard properly; 1 = Whispered but clear; 2 = Soft; 3 = Normal speaking voice; 4 = Loud; 5 = Yelling or screaming
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ahrs5 |
Integer |
|
Recommended |
Length. How extensive is the content of the predominant voice? |
0::4
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0 = No words heard; 1 = Single words; 2 = Phrases; 3 = Whole sentences; 4 = Multiple sentences
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ahrs6 |
Integer |
|
Recommended |
Attentional Salience. To what degree do the voices alter what you think, feel, and do? |
1::7
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1 = Doesn't affect me at all; 2 = Distracts me occasionally; 3 = I am briefly distracted by the voice when it occurs; 4 = I mostly have to pay attention to the voice when I hear it; 5 = When I hear a voice it often alters what I do, say, and think; 6 = When I hear a voice it completely alters what I do, say, and think (talking back, laughing, etc.); 7 = The only thing that is important and I pay attention to is my voices
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