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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

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  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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Anti-Psychotic Medication Side Effects Measure

23 Shared Subjects

Questionnaire measuring participants' side effects from their anti-psychotic medication
Clinical Assessments
Questionnaire
01/14/2021
antipsme01
01/15/2021
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
study String 100 Recommended Study; The code for each individual study
q1a Integer Recommended I had headaches 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q1b Integer Recommended How much do headaches affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q1c Integer Recommended Tick if headaches are distressing 0;1; -99 0=False; 1= True; -99=Missing
q2a Integer Recommended I had trouble feeling emotions 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q2b Integer Recommended How much does not feeling emotions affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q2c Integer Recommended Tick if not feeling emotions is distressing 0;1; -99 0=False; 1= True; -99=Missing
q3a Integer Recommended I have been passing urine frequently 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q3b Integer Recommended How much does passing urine frequently affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q3c Integer Recommended Tick if passing urine frequently is distressing 0;1; -99 0=False; 1= True; -99=Missing
q4a Integer Recommended I couldn't stop eating 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q4b Integer Recommended How much does you not being able to stop eating affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q4c Integer Recommended Tick if you not being able to stop eating is distressing 0;1; -99 0=False; 1= True; -99=Missing
q5a Integer Recommended My mouth was dry 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q5b Integer Recommended How much does your mouth being dry affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q5c Integer Recommended Tick if your mouth being dry is distressing 0;1; -99 0=False; 1= True; -99=Missing
q6a Integer Recommended I have had problems with my memory 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q6b Integer Recommended How much do problems with your memory affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q6c Integer Recommended Tick if problems with your memory is distressing 0;1; -99 0=False; 1= True; -99=Missing
q7a Integer Recommended I have had fits 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q7b Integer Recommended How much do having fits affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q7c Integer Recommended Tick if having fits is distressing 0;1; -99 0=False; 1= True; -99=Missing
q8a Integer Recommended I have wet the bed 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q8b Integer Recommended How much does wetting the bed affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q8c Integer Recommended Tick if wetting the bed is distressing 0;1; -99 0=False; 1= True; -99=Missing
q9a Integer Recommended I felt tired 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q9b Integer Recommended How much does feeling tired affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q9c Integer Recommended Tick if feeling tired is distressing 0;1; -99 0=False; 1= True; -99=Missing
q10a Integer Recommended I had problems getting an erection 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q10b Integer Recommended How much does having problems getting an erection affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q10c Integer Recommended Tick if having problems getting an erection is distressing 0;1; -99 0=False; 1= True; -99=Missing
q11a1 Integer Recommended I got very thirsty 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing; q11a
q11b Integer Recommended How much does getting thirsty affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q11c Integer Recommended Tick if getting thirsty is distressing 0;1; -99 0=False; 1= True; -99=Missing
q12a Integer Recommended My body was bloated 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q12b Integer Recommended How much does your body getting bloated affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q12c Integer Recommended Tick if your body getting bloated is distressing 0;1; -99 0=False; 1= True; -99=Missing
q13a Integer Recommended I have had problems passing water 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q13b Integer Recommended How much does having problems passing water affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q13c Integer Recommended Tick if having problems passing water is distressing 0;1; -99 0=False; 1= True; -99=Missing
q14a Integer Recommended I have had a rapid or irregular heartbeat 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q14b Integer Recommended How much does having a rapid or irregular heartbeat affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q14c Integer Recommended Tick if having a rapid or irregular heartbeat is distressing 0;1; -99 0=False; 1= True; -99=Missing
q15a Integer Recommended My hands or arms have been shaky 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q15b Integer Recommended How much does your hands or arms being shaky affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q15c Integer Recommended Tick if your hands or arms being shaky is distressing 0;1; -99 0=False; 1= True; -99=Missing
q16a Integer Recommended I have lost my sex drive 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q16b Integer Recommended How much does losing your sex drive affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q16c Integer Recommended Tick if losing your stress drive distressing 0;1; -99 0=False; 1= True; -99=Missing
q17a Integer Recommended I have had tremors (part of my body shakes or trembles uncontrollably) 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q17b Integer Recommended How much do tremors (part of my body shakes or trembles uncontrollably) affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q17c Integer Recommended Tick if tremors (part of my body shakes or trembles uncontrollably) are distressing 0;1; -99 0=False; 1= True; -99=Missing
q18a Integer Recommended I have noticed fluid coming from my nipples 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q18b Integer Recommended How much does fluid coming from my nipples affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q18c Integer Recommended Tick if fluid coming from my nipples is distressing 0;1; -99 0=False; 1= True; -99=Missing
q19a Integer Recommended I have had a drooling mouth (dribbling) 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q19b Integer Recommended How much does a drooling mouth (dribbling) affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q19c Integer Recommended Tick if having a drooling mouth (dribbling) is distressing 0;1; -99 0=False; 1= True; -99=Missing
q20a Integer Recommended I felt faint when I stood up 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q20b Integer Recommended How much does feeling faint when you stand up affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q20c Integer Recommended Tick if feeling faint when you stand up is distressing 0;1; -99 0=False; 1= True; -99=Missing
q21a Integer Recommended My vision has been blurry 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q21b Integer Recommended How much does your vision being blurry affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q21c Integer Recommended Tick if your vision being blurry is distressing 0;1; -99 0=False; 1= True; -99=Missing
q22a Integer Recommended I felt restless 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q22b Integer Recommended How much does feeling restless affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q22c Integer Recommended Tick if feeling restless is distressing 0;1; -99 0=False; 1= True; -99=Missing
q23a Integer Recommended I have put on weight 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q23b Integer Recommended How much does putting on weight affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q23c Integer Recommended Tick if putting on weight is distressing 0;1; -99 0=False; 1= True; -99=Missing
q24a Integer Recommended I was slower moving around 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q24b Integer Recommended How much does being slower moving around affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q24c Integer Recommended Tick if being slower moving around is distressing 0;1; -99 0=False; 1= True; -99=Missing
q25a Integer Recommended I slept too much 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q25b Integer Recommended How much does sleeping too much affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q25c Integer Recommended Tick if sleeping too much is distressing 0;1; -99 0=False; 1= True; -99=Missing
q26a Integer Recommended My ejaculation has reduced 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q26b Integer Recommended How much does your ejaculation being reduced affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q26c Integer Recommended Tick if your ejaculation being reduced is distressing 0;1; -99 0=False; 1= True; -99=Missing
q27a Integer Recommended My joints have hurt 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q27b Integer Recommended How much does your joints hurting affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q27c Integer Recommended Tick if your joints hurting is distressing 0;1; -99 0=False; 1= True; -99=Missing
q28a Integer Recommended I have trouble staying awake during the day 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q28b Integer Recommended How much does having trouble staying awake during the day affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q28c Integer Recommended Tick if having trouble staying awake during the day is distressing 0;1; -99 0=False; 1= True; -99=Missing
q29a Integer Recommended I now have diabetes/my diabetes has got worse 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q29b Integer Recommended How much does now having diabetes/your diabetes getting worse affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q29c Integer Recommended Tick if now having diabetes/your diabetes getting worse is distressing 0;1; -99 0=False; 1= True; -99=Missing
q30a Integer Recommended I have had muscle spasms/cramps 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q30b Integer Recommended How much does having muscle spasms/cramps affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q30c Integer Recommended Tick if muscle spasms/cramps are distressing 0;1; -99 0=False; 1= True; -99=Missing
q31a Integer Recommended I have felt like the room is spinning or moving 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q31b Integer Recommended How much does this feeling like the room is spinning or moving affects your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q31c Integer Recommended Tick if feeling like the room is spinning or moving is distressing 0;1; -99 0=False; 1= True; -99=Missing
q32a1 Integer Recommended I have developed breasts 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing; q32a
q32b Integer Recommended How much does developing breasts affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q32c Integer Recommended Tick if developing breasts is distressing 0;1; -99 0=False; 1= True; -99=Missing
q33a Integer Recommended I have had a rash 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q33b Integer Recommended How much does having a rash affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q33c Integer Recommended Tick if having a rash is distressing 0;1; -99 0=False; 1= True; -99=Missing
q34a Integer Recommended I felt feverish 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q34b Integer Recommended How much does feeling feverish affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q34c Integer Recommended Tick if feeling feverish is distressing 0;1; -99 0=False; 1= True; -99=Missing
q35a Integer Recommended I have had problems enjoying sex 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q35b Integer Recommended How much does having problems enjoying sex affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q35c Integer Recommended Tick if having problems enjoying sex is distressing 0;1; -99 0=False; 1= True; -99=Missing
q36a Integer Recommended My thought processes have slowed down 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q36b Integer Recommended How much does your thought process slowing down affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q36c Integer Recommended Tick if your thought process slowing down is distressing 0;1; -99 0=False; 1= True; -99=Missing
q37a Integer Recommended My periods have changed 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q37b Integer Recommended How much do your periods changing affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q37c Integer Recommended Tick if your periods changing is distressing 0;1; -99 0=False; 1= True; -99=Missing
q38a Integer Recommended I have been constipated 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q38b Integer Recommended How much does being constipated affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q38c Integer Recommended Tick if being constipated is distressing 0;1; -99 0=False; 1= True; -99=Missing
q39a Integer Recommended My muscle felt stiff 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q39b Integer Recommended How much does your muscle feeling stiff affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q39c Integer Recommended Tick if your muscle feeling stiff is distressing 0;1; -99 0=False; 1= True; -99=Missing
q40a Integer Recommended I felt drugged or like a zombie 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q40b Integer Recommended How much does feeling drugged or like a zombie affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q40c Integer Recommended Tick if feeling drugged or like a zombie is distressing 0;1; -99 0=False; 1= True; -99=Missing
q41a Integer Recommended I have had a restless legs 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q41b Integer Recommended How much does having a restless leg affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q41c Integer Recommended Tick if having a restless leg is distressing 0;1; -99 0=False; 1= True; -99=Missing
q42a Integer Recommended I felt sick 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q42b Integer Recommended How much does feeling sick affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q42c Integer Recommended Tick if feeling sick is distressing 0;1; -99 0=False; 1= True; -99=Missing
q43a Integer Recommended I found it hard to fall asleep 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q43b Integer Recommended How much does finding it hard to fall asleep affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q43c Integer Recommended Tick if finding it hard to fall asleep is distressing 0;1; -99 0=False; 1= True; -99=Missing
q44a Integer Recommended I have had catatonia 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q44b Integer Recommended How much does having catatonia affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q44c Integer Recommended Tick if having catatonia is distressing 0;1; -99 0=False; 1= True; -99=Missing
q45a Integer Recommended I have been sweating more 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q45b Integer Recommended How much does sweating more affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q45c Integer Recommended Tick if sweating more is distressing 0;1; -99 0=False; 1= True; -99=Missing
q46a Integer Recommended I have had problems with co-ordination 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q46b Integer Recommended How much does having problems with co-ordination affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q46c Integer Recommended Tick if having problems with co-ordination is distressing 0;1; -99 0=False; 1= True; -99=Missing
q47a Integer Recommended I found it hard to concentrate 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q47b Integer Recommended How much does finding it hard to concentrate affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q47c Integer Recommended Tick if finding it hard to concentrate is distressing 0;1; -99 0=False; 1= True; -99=Missing
q48a Integer Recommended I had a stuffy nose 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q48b Integer Recommended How much does having a stuffy nose affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q48c Integer Recommended Tick if having a stuffy nose is distressing 0;1; -99 0=False; 1= True; -99=Missing
q49a Integer Recommended I have had diarrhea 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q49b Integer Recommended How much does having diarrhea affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q49c Integer Recommended Tick if having diarrhea is distressing 0;1; -99 0=False; 1= True; -99=Missing
q50a Integer Recommended I felt depressed 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q50b Integer Recommended How much does feeling depressed affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q50c Integer Recommended Tick if feeling depressed is distressing 0;1; -99 0=False; 1= True; -99=Missing
q51a Integer Recommended Sometimes my jaw locked up 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q51b Integer Recommended How much does you jaw sometimes locking up affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q51c Integer Recommended Tick if your jaw sometimes locking up is distressing 0;1; -99 0=False; 1= True; -99=Missing
q52a Integer Recommended I have felt sensitive to sunlight 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q52b Integer Recommended How much does feeling sensitive to sunlight affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q52c Integer Recommended Tick if feeling sensitive to sunlight is distressing 0;1; -99 0=False; 1= True; -99=Missing
q53a Integer Recommended I found it hard to get out of bed in the morning 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q53b Integer Recommended How much does finding it hard to get out of bed in the morning affect your life 1:: 4; -99 1= Not at all; 2= Mildly but it didn't bother me much; 3= Moderately- it wasn't pleasant at times; 4= Severely- it bothered me a lot; -99=Missing;
q53c Integer Recommended Tick if finding it hard to get out of bed in the morning is distressing 0;1; -99 0=False; 1= True; -99=Missing
sideeffect1 String 100 Recommended Number 1 Side Effect top 3 side effects
sideeffect2 String 100 Recommended Number 2 Side Effect top 3 side effects
sideeffect3 String 100 Recommended Number 3 Side Effect top 3 side effects
medoutweigh Integer Recommended Do you think the good things about your medication outweigh the bad things? 0;1; -99 0=False; 1= True; -99=Missing
mednames String 100 Recommended Medication Names separate each medication by ",
doses String 100 Recommended Medication Doses separate each dose by ",
dosefreqs String 100 Recommended Medication Dose Frequencies separate for each medication by ",". 1=Once a day; 2=Twice a day; 3=Three times a day; 4=Depot once a week; 5=Depot once every 2 weeks; 6=Depot once every 3 weeks; 7=Depot once every 4 weeks; 8=Other; -99=missing
dosefreqspecifys String 100 Recommended Medication Dose Frequencies Specify separate for each medication by ",
lentimes String 100 Recommended Medication Length of Prescription separate for each medication by ",". 1=1-6 months; 2=7-12 months;3=1-5 years; 4=Over 6 years; -99=missing
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

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