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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Anxiety Scale for Autism

0 Shared Subjects

The Anxiety Scale for Autism - ASA is the first self-report anxiety questionnaire specifically developed and validated for autistic adults. The ASA is an adapted version of the RCADS. The ASA was created based on empirical evidence of anxiety phenomenology in ASD, which included additional items related to sensory anxiety, intolerance of uncertainty, and phobias. https://doi.org/10.1002/aur.1603 https://doi.org/10.1089/aut.2019.0044
Clinical Assessments
Anxiety; Autism Spectrum Disorders
02/24/2023
anxiety_asd01
02/27/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
ihrespon Integer Recommended Respondent 0::4; -9 0 = Self/subject; 1 = Mother; 2 = Father; 3 = Other primary caregiver; 4 = Other (describe); -9 = Missing value
respondent String 20 Recommended Respondent Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
timepoint_label String 50 Recommended Timepoint/visit label
asa_adult01 Integer Recommended All of a sudden I feel really scared. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult02 Integer Recommended I worry what other people think of me. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult03 Integer Recommended My heart suddenly starts to beat too quickly. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult04 Integer Recommended I feel anxious in situations where I could make a mistake. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult05 Integer Recommended I worry that I will do badly when I am being assessed (like work, college, interviews). 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult06 Integer Recommended I suddenly feel as if I cannot breathe. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult07 Integer Recommended I am anxious about unfamiliar things, people or places. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult08 Integer Recommended When I have a problem, I feel physically shaky. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult09 Integer Recommended I worry about changes to my surroundings or my routine. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult10 Integer Recommended I worry about making mistakes during social interactions. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult11 Integer Recommended When I do not know what will happen, I cannot do things. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult12 Integer Recommended I worry when I think I have not done as well as I hoped. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult13 Integer Recommended I need to be prepared before things happen. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult14 Integer Recommended I feel anxious that I will make a fool of myself in front of people. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult15 Integer Recommended I worry that something awful will happen to someone I am familiar with. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult16 Integer Recommended I suddenly start to physically shake or tremble. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult17 Integer Recommended I suddenly become dizzy or faint. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult18 Integer Recommended I worry if I do not know what will happen, e.g. if plans change. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult19 Integer Recommended I worry that something bad will happen to me. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_adult20 Integer Recommended I suddenly shut down and become unable to think, speak or do things. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child01 Integer Recommended All of a sudden I feel really scared for no reason at all. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child02 Integer Recommended I worry what other people think of me. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child03 Integer Recommended My heart suddenly starts to beat too quickly for no reason. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child04 Integer Recommended I feel scared when I have to take a test in case I make a mistake. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child05 Integer Recommended I worry people will bump into me or touch me in busy or crowded environments. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child06 Integer Recommended I am afraid of being in crowded places (like shopping centers, the movies, buses, busy playgrounds) in case I am separated from my family. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child07 Integer Recommended I worry that I will do badly at my school work. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child08 Integer Recommended I suddenly feel as if I cannot breathe when there is no reason for this. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child09 Integer Recommended I am afraid of new things, or new people or new places. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child10 Integer Recommended I am afraid of entering a room full of people. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child11 Integer Recommended I worry when I go to bed at night because I do not like to be away from my parents/ family. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child12 Integer Recommended When I have a problem I feel shaky. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child13 Integer Recommended I suddenly start to tremble or shake when there is no reason for this. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child14 Integer Recommended When I do not know what will happen, I cannot do things. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child15 Integer Recommended I worry when I think I have done poorly at something. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child16 Integer Recommended I always need to be prepared before things happen. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child17 Integer Recommended I feel afraid that I will make a fool of myself in front of people. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child18 Integer Recommended I worry about being away from my parents. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child19 Integer Recommended I worry that something awful will happen to someone in my family. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child20 Integer Recommended I would feel scared if I had to stay away from home overnight because I like to be close to my parents/family. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child21 Integer Recommended I worry about being in places that are too loud, or too bright or too busy. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child22 Integer Recommended I suddenly become dizzy or faint when there is no reason for this. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child23 Integer Recommended I worry if I do not know what will happen e.g. if plans change. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
asa_child24 Integer Recommended I worry that something bad will happen to me. 1 :: 4 1= Never; 2= Sometimes; 3= Often; 4= Always
acs_ethnicity_res Integer Recommended Ethnicty of Respondent 1 :: 5 1= African American; 2= Asian; 3= Caucasian; 4= Hispanic; 5= Other
acs_ethnicity_sub Integer Recommended Ethnicty of Subject 1 :: 5 1= African American; 2= Asian; 3= Caucasian; 4= Hispanic; 5= Other
acs_ethnicity_other String 50 Recommended If other, please specify ethnicity:
acs_parent01 Integer Recommended Has difficulty sleeping due to fears or worries. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent02 Integer Recommended Uneasy in new situations. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent03 Integer Recommended Overly fearful of weather events (e.g., storms, hurricanes or tornados). 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent04 Integer Recommended Uncomfortable in social situations. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent05 Integer Recommended Gets stuck on what might go wrong. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent06 Integer Recommended Consistently avoids certain situations due to anxiety. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent07 Integer Recommended On the look-out for any change in routine. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent08 Integer Recommended Needs a lot of reassurance that things will work out. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent09 Integer Recommended Anxious about upcoming events. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent10 Integer Recommended Is fearful when separated from parents. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent11 Integer Recommended Is extremely tense or unable to relax. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent12 Integer Recommended Complains about heart pounding. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent13 Integer Recommended Worries about sticking out or being noticed by others. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent14 Integer Recommended Nervous about being late or getting off schedule. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent15 Integer Recommended Shuts down when anxious. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent16 Integer Recommended Gets upset by loud noises (e.g., public address systems, trains, vacuum cleaners, fire alarms, sirens, loud toilets). 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent17 Integer Recommended Gets upset when things are not perfect. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent18 Integer Recommended Hyperventilates when anxious or afraid. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent19 Integer Recommended Asks the same questions over and over for reassurance. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent20 Integer Recommended Is overly self-critical. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent21 Integer Recommended Paces or does other repetitive behaviors when tense or worried. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent22 Integer Recommended Has difficulty controlling worries. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent23 Integer Recommended Complains about physical problems. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent24 Integer Recommended Over-reacts when things do not go as planned. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent25 Integer Recommended Fears being alone. 0 :: 3 0= None; 1= Mild; 2= Moderate; 3= Severe
acs_parent_total Float Recommended Total Score for Parent Rated Anxiety Scale Sum of all 25 questions
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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