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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Adaptation Phase Protocol and Interview

46 Shared Subjects

N/A
Clinical Assessments
Questionnaire
07/24/2015
appi01
07/24/2015
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
Query adapt_pt01 String 50 Recommended P: Tell me about the last time you interacted with child's teacher/parent about a concern with your child's academic performance, behavior or social interactions. Teacher: Tell me about the last time you interacted with this student's parent about a concern with this child's academic performance, behavior or social interactions. pintq1a, tintq1a
Query adapt_pt02 String 50 Recommended P: How many times did you meet with your child's teacher? Teacher: How many times did you meet with this student's parent? pintq2, tintq2
Query adapt_pt03 String 20 Recommended How long did each meeting last? pintq3, tintq3
Query adapt_pt04 String 20 Recommended For meetings and intactions: Where did these meetings take place? pintq4, tintq4
Query adapt_pt05 String 20 Recommended What time of the day did these meetings take place? pintq5, tintq5
adapt_pt06 String 50 Recommended How were the meetings structured? Did it feel like one person was teaching the other person? Or did it feel like you were talking to each other? What made it feel that way?
adapt_pt07 String 20 Recommended How did these meetings fit (or not fit) into your other demands/responsibilities?
adapt_pt08 String 20 Recommended P: What were some things that negatively affected your communication with your child's teacher? Teacher: What were some things that negatively affected your communication with this student's parent?
Query adapt_pt09 String 50 Recommended Tell me what that would look like. pintq8, tintq8
Query adapt_pt10 Integer Recommended How many meetings would you be willing to participate in (over a span of 3 months) to address a single problem? pintq9, tintq9
Query adapt_pt11 String 20 Recommended How long would each meeting last? pintq10, tintq10
Query adapt_pt12 String 20 Recommended Where would these meetings take place? pintq11, tintq11
Query adapt_pt13 String 20 Recommended What time of the day would these meetings take place? pintq12, tintq12
adapt_pt14 String 20 Recommended How would these meetings fit into your other demands/responsibilities?
adapt_pt15 String 50 Recommended What are some things that could help your communication with your child's teacher/parent? What do you think would work well?
adapt_pt16 String 20 Recommended What are your top 3 academic, behavioral or social concerns about child right now?
adapt_pt17 String 50 Recommended P: Sometimes parents are asked to practice strategies at home that children use in school. What are some ways to support busy parents so they can effectively use strategies with their children at home? Teacher: Sometimes teachers are asked to practice strategies with students. What are some ways to support busy teachers so they can effectively use strategies with students in their classrooms?
adapt_pt17a String 20 Recommended If you were asked to practice using a visual schedule with child, what are some things that would help you actually do that at home/classroom?
adapt_pt17b String 20 Recommended P: If you were asked to practice using a sticker chart with your child, what are some things that would help you actually do that at home? Teacher: Example 2: If you were asked to practice using a sticker chart with this student, what are some things that would help you actually do that in your classroom?
adapt_pt18 String 20 Recommended What is your view about including the child/student in general education?
adapt_pt19 String 20 Recommended P: Does your child have TSS (Therapeutic Staff Support)? If so, what role does he/she play in your communication and/or relationship with your child's teacher? Teacher: Does this student have TSS (Therapeutic Staff Support)? If so, what role does he/she play in your communication and/or relationship with this student's parent?
version_form String 100 Recommended Form used/assessment name
Query pintq1aspecf String 50 Recommended P: Tell me about the last time you interacted with child's teacher/parent about a concern with your child's academic performance, behavior or social interactions. Teacher: Tell me about the last time you interacted with this student's parent about a concern with this child's academic performance, behavior or social interactions. OTHER SPECIFIED tintq1aspecf
Query tintq1b String 10 Recommended P/T: Tell me about the last time you interacted with your childs teacher (OR Parent), when did the interaction take place? 1 = A few days ago; 2 = Last week; 3 = Two weeks ago ; 4 = Several weeks ago; ; 6 = Two to six months ago; 7 = Over six months ago pintq1b
Query tintq1c Integer Recommended P/T: Tell me about the last time you interacted with your childs teacher (OR Parent), was the context of communication specified? 1;0 1=Yes; 0=No pintq1c
Query tintq1cspecf String 50 Recommended P/T: Tell me about the last time you interacted with your childs teacher (OR Parent), was the context of communication specified? SPECIFIED 1 = IEP meeting; 2 = Report card conference; 3 = During the school day (e.g., lunch or prep); 4 = Before/after school (e.g., pick-up or drop-off) pintq1cspecf
Query tintq1d Integer Recommended P/T: Tell me about the last time you interacted with your childs teacher (OR Parent), did it include outside involvement? 0;1 0=No;1=Yes pintq1d
Query tintq1dspecf String 10 Recommended P/T: Tell me about the last time you interacted with your childs teacher (OR Parent), did it include outside involvement? SPECIFIED 1 = General education teacher; 2 = Classroom assistant; 3= TSS/BSE/1:1; 4 = Immediate and/or extended family; 5=Other pintq1dspecf
tintq1specfm String 50 Recommended P/T: Tell me about the last time you interacted with your childs teacher (OR Parent), did it include outside involvement? OTHER SPECIFIED pintq1dspecfm
Query tintq31specf String 10 Recommended How did 15 minute meetings take place? 0 = did not specify ; 1 = face-to-face in the school ; 2 = over a phone call ; 3 = over text messages ; 4 = through written notes ; 5 = more than one pintq31specf
tintq31specfm String 50 Recommended How did 15 minute meetings take place? More than one SPECIFIED pintq31specfm
Query tintq32specf String 10 Recommended How did 16-30 minute meetings take place? 0 = did not specify ; 1 = face-to-face in the school ; 2 = over a phone call ; 3 = over text messages ; 4 = through written notes ; 5 = more than one pintq32specf
tintq32specfm String 50 Recommended How did 16-30 minute meetings take place? More than one SPECIFIED
Query tintq33specf String 10 Recommended How did 31-60 minute meetings take place? 0 = did not specify ; 1 = face-to-face in the school ; 2 = over a phone call ; 3 = over text messages ; 4 = through written notes ; 5 = more than one pintq33specf
tintq33specfm String 50 Recommended How did 31-60 minute meetings take place? More than one SPECIFIED
tintq34specf String 10 Recommended How did over 60 minute meetings take place? 0 = did not specify ; 1 = face-to-face in the school ; 2 = over a phone call ; 3 = over text messages ; 4 = through written notes ; 5 = more than one pintq34specf
tintq34specfm String 50 Recommended How did over 60 minute meetings take place? More than one SPECIFIED pintq34specfm
Query tintq4a4specf String 10 Recommended How did parent and teacher communicate through written note? 1 = Daily report; 2 = Communication book; 3 = Home-school note; 4 = general classroom note/announcements pintq4a4specf
Query tintq4a4specfm Integer Recommended Does parent or teacher e-mail back? 0;1 0=No;1=Yes
Query tintq4b Integer Recommended For meetings and interactions: Does teacher or parent indicate main mode of communication? 0;1 0=No;1=Yes pintq4b
tintq4bspecf String 50 Recommended Does teacher or parent indicate main mode of communication? If yes, specify 1 = General education teacher; 2 = Classroom assistant; 3 = TSS/BSE/1:1; 4 = Immediate and/or extended family pintq4bspecf
Query tintq51specf String 10 Recommended How did morning meetings take place? 0 = did not specify ; 1 = face-to-face in the school ; 2 = over a phone call ; 3 = over text messages ; 4 = through written notes ; 5 = more than one pintq51specf
Query tintq52specf String 10 Recommended How did afternoon meetings take place? 0 = did not specify ; 1 = face-to-face in the school ; 2 = over a phone call ; 3 = over text messages ; 4 = through written notes ; 5 = more than one pintq52specf
Query tintq53specf String 10 Recommended How did afterschool/evening meetings take place? 0 = did not specify ; 1 = face-to-face in the school ; 2 = over a phone call ; 3 = over text messages ; 4 = through written notes ; 5 = more than one pintq53specf
Query tintq54specf String 10 Recommended How did variable timed meetings take place? 0 = did not specify ; 1 = face-to-face in the school ; 2 = over a phone call ; 3 = over text messages ; 4 = through written notes ; 5 = more than one pintq54
Query tintq6 Integer Recommended Do your interactions include outside involvement? 0;1 0=No;1=Yes pintq6
Query tintq6specf String 10 Recommended Do your interactions include outside involvement? Yes specified 1 = General education teacher/Classroom Assistant ; 2 = Principal/SEL ; 3 = TSS/BSE/1:1 ; 4 = Immediate and/or extended family pintq6specf
Query pintq8b1 Integer Recommended Teacher and Parent wants parents to be actively involved - parent initiate communication with teacher 0;1 0=No;1=Yes
pintq8b1specf String 25 Recommended Teacher and Parent wants parents to be actively involved - parent initiate communication with teacher, Specified
Query pintq8b2 Integer Recommended Parent wants to be more actively involved - Being a partner in instruction 0;1 0=No;1=Yes
pintq8b2specf String 25 Recommended Parent wants to be more actively involved - Being a partner in instruction
Query tinq8b1 Integer Recommended Teacher wants parents to be actively involved - Structural Materials 0;1 0=No;1=Yes
tinq8b1specf String 25 Recommended Teacher wants parents to be actively involved - Structural Materials, specified
Query tinq8b2 Integer Recommended Teacher wants parents to be actively involved - Initiating communication with teacher
tinq8b2specf String 25 Recommended Teacher wants parents to be actively involved - Initiating communication with teacher, Specified
Query tinq8b3 Integer Recommended Teacher wants parents to be actively involved - Partner Instruction
tinq8b3specf String 25 Recommended Teacher wants parents to be actively involved - Partner Instruction, Specified
tintq114specf String 10 Recommended Meetings/ interactions - through written notes specified 1 = Daily report; 2 = Communication book; 3 = Home-school note pintq114specf
tintq115specf String 25 Recommended Meetings/ interactions - through written notes specified, other
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.