|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
date_taken |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
candidate_age |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
|
M = Male; F = Female; O=Other; NR = Not reported
|
|
|
respondent |
String |
20
|
Required |
Respondent |
|
|
completed_by |
|
comqother |
String |
255
|
Recommended |
Respondent - Other (text) |
|
|
completed_by_other |
|
total_apsi_score |
Integer |
|
Recommended |
Total Score: Autism Parent Screen for Infants (APSI) |
0::52
|
|
|
|
apsi_1 |
Integer |
|
Recommended |
Does your child have difficulty visually tracking a moving object, that is, smoothly moving his/her eyes to follow an object's direction of movement? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_2 |
Integer |
|
Recommended |
Does your child visually fixate on, or stare at, certain objects such as lights, or objects with patterns? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_3 |
Integer |
|
Recommended |
Does your child frequently fail to respond, or show a delay in responding, when you call his/her name? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_4 |
Integer |
|
Recommended |
Does your child react to changes in your facial expression (i.e., without changes in your voice) when you are upset or distressed? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_5 |
Integer |
|
Recommended |
Does your child enjoy and anticipate the pleasure of social games such as "peek-a-boo" or "Ring around the Rosie"? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_6 |
Integer |
|
Recommended |
Does your child imitate the sounds or actions of others? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_7 |
Integer |
|
Recommended |
Does your child vocalize back-and-forth with you, either by babbling or speaking in response to your attempts to converse and interact with him/her? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_8 |
Integer |
|
Recommended |
Is it difficult to establish eye contact with your child, or does he/she look only briefly at others in face-to-face contact? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_9 |
Integer |
|
Recommended |
Does your child generally smile in response to your smiles? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_10 |
Integer |
|
Recommended |
Does your child have difficulty coordinating his/her actions with eye gaze; that is, are there times that he/she plays with or manipulates objects without looking at them? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_11 |
Integer |
|
Recommended |
Does your child tend to be over-reactive and/or under-reactive to his/her environment (events or people), that is, show little reaction to what is happening, or startle easily and become distressed or upset? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_12 |
Integer |
|
Recommended |
Does your child cuddle into your body when you are holding him/her? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_13 |
Integer |
|
Recommended |
Is it difficult to soothe your child when he/she is upset? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_14 |
Integer |
|
Recommended |
Does your child show sustained interest and pleasure in interacting with others? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_15 |
Integer |
|
Recommended |
Does your child have difficulty with change, such as moving from one activity to another, giving up a toy, using a new cup, or other changes in routine? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_16 |
Integer |
|
Recommended |
Compared to other children his/her age, does your child have difficulty using his/her hands or controlling his/her movements (e.g., grasping something small, rolling over, sitting up or walking)? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_17 |
Integer |
|
Recommended |
Does your child have unusual or repetitive motor behaviours such as walking on his/her toes, hand posturing or flapping, or flicking fingers close to his/her eyes? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_18 |
Integer |
|
Recommended |
Does your child ever take someone else's hand and place it on an object, or use another's hand for actions such as opening a door? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_19 |
Integer |
|
Recommended |
Does your child have any unusual sensory behaviours such as smelling of toys or objects, feeling or avoiding certain textures, or seeking out or avoiding particular sounds? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_20 |
Integer |
|
Recommended |
Does your child have difficulty focusing his/her attention on objects or events for a sustained period of time? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_21 |
Integer |
|
Recommended |
Does your child insist on holding on to, or playing with a particular toy, blanket or other object? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
q21 |
|
apsi_22 |
Integer |
|
Recommended |
Does your child resist others joining into his/her play, or have fixed play routines that he/she does not want others to disrupt? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_23 |
Integer |
|
Recommended |
Does your child share interest in an object or event with others by moving his/her eyes between the object and the person? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_24 |
Integer |
|
Recommended |
Does your child point at a distance to objects or events such as an airplane or a balloon, specifically to "show" and share with you, rather than to "ask" for the object? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_25 |
Integer |
|
Recommended |
Does your child use gestures such as waving good-bye, nodding his/her head or blowing a kiss? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
apsi_26 |
Integer |
|
Recommended |
Over the past 2-3 months, has your child lost any skills, either words spoken or his/her ability to look at and establish a social-emotional connection with others? |
|
0 = Definitely; 1 = Possibly; 2 = No
|
|
|
q26_speech |
Integer |
|
Recommended |
Please indicate whether loss involved speech |
|
0 = No; 1 = Yes
|
|
|
q26_social |
Integer |
|
Recommended |
Please indicate whether loss involved eye contact and social-emotional connectedness |
|
0 = No; 1 = Yes
|
|
|
q26_other |
String |
300
|
Recommended |
If other, please identify skill(s) lost |
|
|
|
|
q26_words |
String |
300
|
Recommended |
f relevant, please list words used meaningfully (i.e. to refer consistently to particular objects, persons or actions) before speech loss |
|
|
|
|
q26_order |
Integer |
|
Recommended |
If relevant, please indicate whether speech loss occurred before or after loss of eye contact and social-emotional connectedness, or whether the two occurred closely together in time |
|
1 = Before; 2 = After; 3 = Together
|
|
|
comments |
String |
4,000
|
Recommended |
Comments about assessment |
|
|
|
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|