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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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Autism Parent Screen for Infants

1,092 Shared Subjects

The Autism Parent Screen for Infants: Predicting risk of autism spectrum disorder based on parent-reported behavior observed at 6–24 months of age
Clinical Assessments
Social Responsiveness
09/29/2020
apsfi01
09/29/2020
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY date_taken
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. candidate_age
sex String 20 Required Sex of subject at birth
M;F; O; NR
M = Male; F = Female; O=Other; NR = Not reported
respondent String 20 Required Respondent
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
completed_by
comqother String 255 Recommended Respondent - Other (text) completed_by_other
total_apsi_score Integer Recommended Total Score: Autism Parent Screen for Infants (APSI) 0::52
apsi_1 Integer Recommended Does your child have difficulty visually tracking a moving object, that is, smoothly moving his/her eyes to follow an object's direction of movement?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_2 Integer Recommended Does your child visually fixate on, or stare at, certain objects such as lights, or objects with patterns?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_3 Integer Recommended Does your child frequently fail to respond, or show a delay in responding, when you call his/her name?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_4 Integer Recommended Does your child react to changes in your facial expression (i.e., without changes in your voice) when you are upset or distressed?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_5 Integer Recommended Does your child enjoy and anticipate the pleasure of social games such as "peek-a-boo" or "Ring around the Rosie"?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_6 Integer Recommended Does your child imitate the sounds or actions of others?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_7 Integer Recommended Does your child vocalize back-and-forth with you, either by babbling or speaking in response to your attempts to converse and interact with him/her?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_8 Integer Recommended Is it difficult to establish eye contact with your child, or does he/she look only briefly at others in face-to-face contact?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_9 Integer Recommended Does your child generally smile in response to your smiles?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_10 Integer Recommended Does your child have difficulty coordinating his/her actions with eye gaze; that is, are there times that he/she plays with or manipulates objects without looking at them?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_11 Integer Recommended Does your child tend to be over-reactive and/or under-reactive to his/her environment (events or people), that is, show little reaction to what is happening, or startle easily and become distressed or upset?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_12 Integer Recommended Does your child cuddle into your body when you are holding him/her?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_13 Integer Recommended Is it difficult to soothe your child when he/she is upset?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_14 Integer Recommended Does your child show sustained interest and pleasure in interacting with others?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_15 Integer Recommended Does your child have difficulty with change, such as moving from one activity to another, giving up a toy, using a new cup, or other changes in routine?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_16 Integer Recommended Compared to other children his/her age, does your child have difficulty using his/her hands or controlling his/her movements (e.g., grasping something small, rolling over, sitting up or walking)?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_17 Integer Recommended Does your child have unusual or repetitive motor behaviours such as walking on his/her toes, hand posturing or flapping, or flicking fingers close to his/her eyes?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_18 Integer Recommended Does your child ever take someone else's hand and place it on an object, or use another's hand for actions such as opening a door?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_19 Integer Recommended Does your child have any unusual sensory behaviours such as smelling of toys or objects, feeling or avoiding certain textures, or seeking out or avoiding particular sounds?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_20 Integer Recommended Does your child have difficulty focusing his/her attention on objects or events for a sustained period of time?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_21 Integer Recommended Does your child insist on holding on to, or playing with a particular toy, blanket or other object?
0::2
0 = Definitely; 1 = Possibly; 2 = No q21
apsi_22 Integer Recommended Does your child resist others joining into his/her play, or have fixed play routines that he/she does not want others to disrupt?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_23 Integer Recommended Does your child share interest in an object or event with others by moving his/her eyes between the object and the person?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_24 Integer Recommended Does your child point at a distance to objects or events such as an airplane or a balloon, specifically to "show" and share with you, rather than to "ask" for the object?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_25 Integer Recommended Does your child use gestures such as waving good-bye, nodding his/her head or blowing a kiss?
0::2
0 = Definitely; 1 = Possibly; 2 = No
apsi_26 Integer Recommended Over the past 2-3 months, has your child lost any skills, either words spoken or his/her ability to look at and establish a social-emotional connection with others?
0::2
0 = Definitely; 1 = Possibly; 2 = No
q26_speech Integer Recommended Please indicate whether loss involved speech
0;1
0 = No; 1 = Yes
q26_social Integer Recommended Please indicate whether loss involved eye contact and social-emotional connectedness
0;1
0 = No; 1 = Yes
q26_other String 300 Recommended If other, please identify skill(s) lost
q26_words String 300 Recommended f relevant, please list words used meaningfully (i.e. to refer consistently to particular objects, persons or actions) before speech loss
q26_order Integer Recommended If relevant, please indicate whether speech loss occurred before or after loss of eye contact and social-emotional connectedness, or whether the two occurred closely together in time
1::3
1 = Before; 2 = After; 3 = Together
comments String 4,000 Recommended Comments about assessment
site String 101 Recommended Site Study Site
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.