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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Assessment of Quality of Life

0 Shared Subjects

N/A
Clinical Assessments
Quality of Life
05/05/2017
aqol8d01
07/14/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
version_form String 121 Recommended Form used/assessment name
Query ucla11x2 Integer Recommended I feel left out 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always aqol2
Query t_sleep_12 Integer Recommended How often have you had trouble falling asleep at bedtime? 1::5 1 = Never; 2 = Not very often; 3 =Sometimes; 4 =Usually; 5 =Always; aqol12
Query eddep04 Integer Recommended In the past 7 days...I felt worthless 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always aqol13
Query pa019 Integer Recommended Self-report: In the past 7 days; I felt enthusiastic / Parent report: In the past 7 days, my child was enthusiastic 1::5 1=Not at all; 2=A little bit; 3=Somewhat; 4=Quite a bit; 5=Very much aqol17
Query edanx30 Integer Recommended In the past 7 days... I felt worried 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always aqol18
Query aqol1 Integer Recommended Thinking about how much energy you have to do the things you want to do, I am 1::5 1 = always full of energy; 2 = usually full of energy; 3 = occasionally energetic; 4 = usually tired and lacking energy; 5 = always tired and lacking energy
Query aqol3 Integer Recommended Thinking about how easy or difficult it is for you to get around by yourself outside your house (e.g., shopping, visiting): 1::6 1 = getting around is enjoyable and easy; 2 = I have no difficulty getting around outside my house; 3 = a little difficulty; 4 = moderate difficulty; 5 = a lot of difficulty; 6 = I cannot get around unless somebody is there to help me
Query aqol4 Integer Recommended Thinking about your health and your role in your community (that is to say neighbourhood, sporting, work, church or cultural groups): 1::4 1 = my role in the community is unaffected by my health; 2 = there are some parts of my community role I cannot carry out; 3 = there are many parts of my community role I cannot carry out; 4 = I cannot carry out any part of my community role
Query aqol5 Integer Recommended How often do you feel sad? 1::5 1 = never; 2 = rarely; 3 = some of the time; 4 = usually; 5 = nearly all the time
Query aqol6 Integer Recommended Thinking about how often you experience serious pain, I experience it: 1::4 1 = very rarely; 2 = less than once a week; 3 = three to four times a week; 4 = most of the time
Query aqol7 Integer Recommended How much confidence do you have in yourself? 1::5 1 = complete confidence; 2 = a lot; 3 = a moderate amount; 4 = a little; 5 = none at all
Query aqol8 Integer Recommended When you think about whether you are calm and tranquil or agitated, I am: 1::5 1 = always calm and tranquil; 2 = usually calm and tranquil; 3 = sometimes calm and tranquil, sometimes agitated; 4 = usually agitated; 5 = always agitated
Query aqol9 Integer Recommended Thinking about your health and your relationship with your family: 1::4 1 = my role in the family is unaffected by my health; 2 = there are some parts of my family role I cannot carry out; 3 = there are many parts of my family role I cannot carry out; 4 = I cannot carry out any part of my family role
Query aqol10 Integer Recommended Your close relationships (family and friends) are: 1::6 1 = very satisfying; 2 = satisfying; 3 = neither satisfying nor dissatisfying; 4 = dissatisfying; 5 = unpleasant; 6 = very unpleasant
Query aqol11 Integer Recommended When you communicate with others, e.g., by talking, listening, writing or signing: 1::4 1 = I have no trouble speaking to them or understanding what they are saying; 2 = I have some difficulty being understood by people who do not know me. I have no trouble understanding what others are saying to me; 3 = I am understood only by people who know me well. I have great trouble understanding what others are saying to me. ; 4 = I cannot adequately communicate with others
Query aqol14 Integer Recommended How often do you feel angry? 1::5 1 = never; 2 = almost never; 3 = sometimes; 4 = often; 5 = all the time
Query aqol15 Integer Recommended Thinking about your mobility, including using any aids or equipment such as wheelchairs, frames, sticks: 1::6 1 = I am very mobile; 2 = I have no difficulty with mobility; 3 = I have some difficulty with mobility (for example, going uphill); 4 = I have difficulty with mobility. I can go short distances only. ; 5 = I have a lot of difficulty with mobility. I need someone to help me. ; 6 = I am bedridden
Query aqol16 Integer Recommended Do you ever feel like hurting yourself? 1::5 1 = never; 2 = almost never; 3 = sometimes; 4 = often; 5 = all the time
Query aqol19 Integer Recommended Thinking about washing yourself, toileting, dressing, eating or looking after your appearance: 1::5 1 = these tasks are very easy for me; 2 = I have no real difficulty in carrying out these tasks; 3 = I find some of these tasks difficult, but I manage to do them on my own; 4 = many of these tasks are difficult, and I need help to do them; 5 = I cannot do these tasks by myself at all
Query aqol21 Integer Recommended How much do you feel you can cope with life's problems? 1::5 1 = completely; 2 = mostly; 3 = partly; 4 = very little; 5 = not at all
Query aqol22 Integer Recommended How much pain or discomfort do you experience? 1::4 1 = none at all; 2 = I have moderate pain; 3 = I suffer from severe pain; 4 = I suffer unbearable pain
Query aqol23 Integer Recommended How much do you enjoy your close relationships (family and friends)? 1::5 1 = immensely; 2 = a lot; 3 = a little; 4 = not much; 5 = I hate it
Query aqol24 Integer Recommended How often does pain interfere with your usual activities? 1::5 1 = never; 2 = rarely; 3 = sometimes; 4 = often; 5 = always
Query aqol25 Integer Recommended How often do you feel pleasure? 1::5 1 = always; 2 = usually; 3 = sometimes; 4 = almost never; 5 = never
Query aqol26 Integer Recommended How much of a burden do you feel you are to other people? 1::5 1 = not at all; 2 = a little; 3 = a moderate amount; 4 = a lot; 5 = totally
Query aqol27 Integer Recommended How content are you with your life? 1::5 1 = extremely; 2 = mainly; 3 = moderately; 4 = slightly; 5 = not at all
Query aqol28 Integer Recommended Thinking about your vision (using your glasses or contact lenses if needed): 1::6 1 = I have excellent sight; 2 = I see normally; 3 = I have some difficulty focusing on things, or I do not see them sharply (e.g., small print, a newspaper or seeing objects in the distance); 4 = I have a lot of difficulty seeing things. My vision in blurred. I can see just enough to get by with.; 5 = I only see general shapes. I need a guide to move around; 6 = I am completely blind
Query aqol29 Integer Recommended How often do you feel in control of your life? 1::5 1 = always; 2 = mostly; 3 = sometimes; 4 = only occasionally; 5 = never
Query aqol30 Integer Recommended How much help do you need with jobs around the house (e.g. preparing food, cleaning the house or gardening): 1::5 1 = I can do these tasks very quickly and efficiently without any help; 2 = I can do these tasks relatively easily without help; 3 = I can do these tasks only very slowly without help; 4 = I cannot do most of these tasks unless I have help; 5 = I can do none of these tasks by myself
Query aqol31 Integer Recommended How often do you feel socially isolated? 1::5 1 = never; 2 = rarely; 3 = sometimes; 4 = often; 5 = always
Query aqol32 Integer Recommended Thinking about your hearing (using your hearing aid if needed): 1::6 1 = I have excellent hearing; 2 = I hear normally; 3 = I have some difficulty hearing, or I do not hear clearly. I have trouble hearing softly-spoken people or when there is background noise.; 4 = I have difficulty hearing things clearly. Often I do not understand what is said. I usually do not take part in conversations because I cannot hear what is said.; 5 = I hear very little indeed. I cannot fully understand loud voices speaking directly to me.; 6 = I am completely deaf
Query aqol33 Integer Recommended How often do you feel depressed? 1::6 1 = never; 2 = almost never; 3 = sometimes; 4 = often; 5 = very often; 6 = all the time
Query aqol34 Integer Recommended Your close and intimate relationships (including any sexual relationships) make you: 1::5 1 = very happy; 2 = generally happy; 3 = neither happy nor unhappy; 4 = generally happy; 5 = very unhappy
Query aqol35 Integer Recommended How often did you feel in despair over the last seven days? 1::5 1 = never; 2 = occasionally; 3 = sometimes; 4 = often; 5 = all the time
resspec String 50 Recommended Specify other relationship
Query visit String 60 Recommended Visit name
Query aqol20 Integer Recommended How often do you feel happy 1::5 5 = never; 4 = almost never; 3 = sometimes; 2 = mostly; 1 = all the time
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.