|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
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Query
|
ucla11x2 |
Integer |
|
Recommended |
I feel left out |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
|
aqol2 |
Query
|
t_sleep_12 |
Integer |
|
Recommended |
How often have you had trouble falling asleep at bedtime? |
1::5
|
1 = Never; 2 = Not very often; 3 =Sometimes; 4 =Usually; 5 =Always;
|
aqol12 |
Query
|
eddep04 |
Integer |
|
Recommended |
In the past 7 days...I felt worthless |
1::5;-5;-999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always; -5= Item seen but not answered; -999= Data not submitted (incomplete, item not seen)
|
aqol13 |
Query
|
pa019 |
Integer |
|
Recommended |
Self-report: In the past 7 days; I felt enthusiastic / Parent report: In the past 7 days, my child was enthusiastic |
1::5
|
1=Not at all; 2=A little bit; 3=Somewhat; 4=Quite a bit; 5=Very much
|
aqol17 |
Query
|
edanx30 |
Integer |
|
Recommended |
In the past 7 days... I felt worried |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
aqol18 |
Query
|
aqol1 |
Integer |
|
Recommended |
Thinking about how much energy you have to do the things you want to do, I am |
1::5
|
1 = always full of energy; 2 = usually full of energy; 3 = occasionally energetic; 4 = usually tired and lacking energy; 5 = always tired and lacking energy
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Query
|
aqol3 |
Integer |
|
Recommended |
Thinking about how easy or difficult it is for you to get around by yourself outside your house (e.g., shopping, visiting): |
1::6
|
1 = getting around is enjoyable and easy; 2 = I have no difficulty getting around outside my house; 3 = a little difficulty; 4 = moderate difficulty; 5 = a lot of difficulty; 6 = I cannot get around unless somebody is there to help me
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Query
|
aqol4 |
Integer |
|
Recommended |
Thinking about your health and your role in your community (that is to say neighbourhood, sporting, work, church or cultural groups): |
1::4
|
1 = my role in the community is unaffected by my health; 2 = there are some parts of my community role I cannot carry out; 3 = there are many parts of my community role I cannot carry out; 4 = I cannot carry out any part of my community role
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Query
|
aqol5 |
Integer |
|
Recommended |
How often do you feel sad? |
1::5
|
1 = never; 2 = rarely; 3 = some of the time; 4 = usually; 5 = nearly all the time
|
|
Query
|
aqol6 |
Integer |
|
Recommended |
Thinking about how often you experience serious pain, I experience it: |
1::4
|
1 = very rarely; 2 = less than once a week; 3 = three to four times a week; 4 = most of the time
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|
Query
|
aqol7 |
Integer |
|
Recommended |
How much confidence do you have in yourself? |
1::5
|
1 = complete confidence; 2 = a lot; 3 = a moderate amount; 4 = a little; 5 = none at all
|
|
Query
|
aqol8 |
Integer |
|
Recommended |
When you think about whether you are calm and tranquil or agitated, I am: |
1::5
|
1 = always calm and tranquil; 2 = usually calm and tranquil; 3 = sometimes calm and tranquil, sometimes agitated; 4 = usually agitated; 5 = always agitated
|
|
Query
|
aqol9 |
Integer |
|
Recommended |
Thinking about your health and your relationship with your family: |
1::4
|
1 = my role in the family is unaffected by my health; 2 = there are some parts of my family role I cannot carry out; 3 = there are many parts of my family role I cannot carry out; 4 = I cannot carry out any part of my family role
|
|
Query
|
aqol10 |
Integer |
|
Recommended |
Your close relationships (family and friends) are: |
1::6
|
1 = very satisfying; 2 = satisfying; 3 = neither satisfying nor dissatisfying; 4 = dissatisfying; 5 = unpleasant; 6 = very unpleasant
|
|
Query
|
aqol11 |
Integer |
|
Recommended |
When you communicate with others, e.g., by talking, listening, writing or signing: |
1::4
|
1 = I have no trouble speaking to them or understanding what they are saying; 2 = I have some difficulty being understood by people who do not know me. I have no trouble understanding what others are saying to me; 3 = I am understood only by people who know me well. I have great trouble understanding what others are saying to me. ; 4 = I cannot adequately communicate with others
|
|
Query
|
aqol14 |
Integer |
|
Recommended |
How often do you feel angry? |
1::5
|
1 = never; 2 = almost never; 3 = sometimes; 4 = often; 5 = all the time
|
|
Query
|
aqol15 |
Integer |
|
Recommended |
Thinking about your mobility, including using any aids or equipment such as wheelchairs, frames, sticks: |
1::6
|
1 = I am very mobile; 2 = I have no difficulty with mobility; 3 = I have some difficulty with mobility (for example, going uphill); 4 = I have difficulty with mobility. I can go short distances only. ; 5 = I have a lot of difficulty with mobility. I need someone to help me. ; 6 = I am bedridden
|
|
Query
|
aqol16 |
Integer |
|
Recommended |
Do you ever feel like hurting yourself? |
1::5
|
1 = never; 2 = almost never; 3 = sometimes; 4 = often; 5 = all the time
|
|
Query
|
aqol19 |
Integer |
|
Recommended |
Thinking about washing yourself, toileting, dressing, eating or looking after your appearance: |
1::5
|
1 = these tasks are very easy for me; 2 = I have no real difficulty in carrying out these tasks; 3 = I find some of these tasks difficult, but I manage to do them on my own; 4 = many of these tasks are difficult, and I need help to do them; 5 = I cannot do these tasks by myself at all
|
|
Query
|
aqol21 |
Integer |
|
Recommended |
How much do you feel you can cope with life's problems? |
1::5
|
1 = completely; 2 = mostly; 3 = partly; 4 = very little; 5 = not at all
|
|
Query
|
aqol22 |
Integer |
|
Recommended |
How much pain or discomfort do you experience? |
1::4
|
1 = none at all; 2 = I have moderate pain; 3 = I suffer from severe pain; 4 = I suffer unbearable pain
|
|
Query
|
aqol23 |
Integer |
|
Recommended |
How much do you enjoy your close relationships (family and friends)? |
1::5
|
1 = immensely; 2 = a lot; 3 = a little; 4 = not much; 5 = I hate it
|
|
Query
|
aqol24 |
Integer |
|
Recommended |
How often does pain interfere with your usual activities? |
1::5
|
1 = never; 2 = rarely; 3 = sometimes; 4 = often; 5 = always
|
|
Query
|
aqol25 |
Integer |
|
Recommended |
How often do you feel pleasure? |
1::5
|
1 = always; 2 = usually; 3 = sometimes; 4 = almost never; 5 = never
|
|
Query
|
aqol26 |
Integer |
|
Recommended |
How much of a burden do you feel you are to other people? |
1::5
|
1 = not at all; 2 = a little; 3 = a moderate amount; 4 = a lot; 5 = totally
|
|
Query
|
aqol27 |
Integer |
|
Recommended |
How content are you with your life? |
1::5
|
1 = extremely; 2 = mainly; 3 = moderately; 4 = slightly; 5 = not at all
|
|
Query
|
aqol28 |
Integer |
|
Recommended |
Thinking about your vision (using your glasses or contact lenses if needed): |
1::6
|
1 = I have excellent sight; 2 = I see normally; 3 = I have some difficulty focusing on things, or I do not see them sharply (e.g., small print, a newspaper or seeing objects in the distance); 4 = I have a lot of difficulty seeing things. My vision in blurred. I can see just enough to get by with.; 5 = I only see general shapes. I need a guide to move around; 6 = I am completely blind
|
|
Query
|
aqol29 |
Integer |
|
Recommended |
How often do you feel in control of your life? |
1::5
|
1 = always; 2 = mostly; 3 = sometimes; 4 = only occasionally; 5 = never
|
|
Query
|
aqol30 |
Integer |
|
Recommended |
How much help do you need with jobs around the house (e.g. preparing food, cleaning the house or gardening): |
1::5
|
1 = I can do these tasks very quickly and efficiently without any help; 2 = I can do these tasks relatively easily without help; 3 = I can do these tasks only very slowly without help; 4 = I cannot do most of these tasks unless I have help; 5 = I can do none of these tasks by myself
|
|
Query
|
aqol31 |
Integer |
|
Recommended |
How often do you feel socially isolated? |
1::5
|
1 = never; 2 = rarely; 3 = sometimes; 4 = often; 5 = always
|
|
Query
|
aqol32 |
Integer |
|
Recommended |
Thinking about your hearing (using your hearing aid if needed): |
1::6
|
1 = I have excellent hearing; 2 = I hear normally; 3 = I have some difficulty hearing, or I do not hear clearly. I have trouble hearing softly-spoken people or when there is background noise.; 4 = I have difficulty hearing things clearly. Often I do not understand what is said. I usually do not take part in conversations because I cannot hear what is said.; 5 = I hear very little indeed. I cannot fully understand loud voices speaking directly to me.; 6 = I am completely deaf
|
|
Query
|
aqol33 |
Integer |
|
Recommended |
How often do you feel depressed? |
1::6
|
1 = never; 2 = almost never; 3 = sometimes; 4 = often; 5 = very often; 6 = all the time
|
|
Query
|
aqol34 |
Integer |
|
Recommended |
Your close and intimate relationships (including any sexual relationships) make you: |
1::5
|
1 = very happy; 2 = generally happy; 3 = neither happy nor unhappy; 4 = generally happy; 5 = very unhappy
|
|
Query
|
aqol35 |
Integer |
|
Recommended |
How often did you feel in despair over the last seven days? |
1::5
|
1 = never; 2 = occasionally; 3 = sometimes; 4 = often; 5 = all the time
|
|
|
resspec |
String |
50
|
Recommended |
Specify other relationship |
|
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
Query
|
aqol20 |
Integer |
|
Recommended |
How often do you feel happy |
1::5
|
5 = never; 4 = almost never; 3 = sometimes; 2 = mostly; 1 = all the time
|
|