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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Autism-Specific Quality of Life Questionnaire

0 Shared Subjects

The ASQoL module has been designed as an ‘add-on’ set of 9 items and includes one global item and eight others from which a factor score can be calculated. The autism and quality of life study involved extensive consultation with autistic people about what might be particularly important in their experiences contributing to quality of life or missed out from the existing measures. https://doi.org/10.1007/s10803-017-3402-z
Clinical Assessments
Autism Spectrum Disorders; Quality of Life
10/31/2022
asqol01
10/31/2022
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
asqol_1 Integer Recommended Do you have enough support from others to make important decisions? For example, picking a course to study, finding a job, deciding where to live, planning for getting older. 1::5 1 = Not at all; 2 = A little; 3 = Moderately; 4 = Mostly; 5 = Totally
asqol_2 Integer Recommended Can you ''be yourself'' around your friends/people you know well? For example, you don't have to put on an ''act''. 1::5 1 = Not at all; 2 = A little; 3 = Moderately; 4 = Mostly; 5 = Totally
asqol_3 Integer Recommended How secure do you feel about your financial situation? That is, that your current sources of income will continue (e.g. benefits, salary, pension etc.) 1::5 1 = Not at all; 2 = A little; 3 = Moderately; 4 = Mostly; 5 = Totally
asqol_4 Integer Recommended Do you have enough support, if or when you need it, to help you deal with problems? For example, someone who knows you well and will give advice about social and other problems. 1::5 1 = Not at all; 2 = A little; 3 = Moderately; 4 = Mostly; 5 = Totally
asqol_5 Integer Recommended Are you satisfied with your current friendships? (i.e. whether you have several, few, or no friends). 1::5 1 = Not at all; 2 = A little; 3 = Moderately; 4 = Mostly; 5 = Totally
asqol_6 Integer Recommended Do you feel there are barriers when accessing health services? For example, staff do not allow you time to answer, or you cannot see the same doctor. 1::5 1 = Not at all; 2 = A little; 3 = Moderately; 4 = Mostly; 5 = Totally
asqol_7 Integer Recommended Do sensory issues in the environment make it difficult to do things you want to do? For example, supermarket too noisy, public transport too busy, etc. 1::5 1 = Not at all; 2 = A little; 3 = Moderately; 4 = Mostly; 5 = Totally
asqol_8 Integer Recommended Do you feel there are barriers to your needs being met in ''official'' situations (e.g. at the benefits office, at work, with your landlord, etc.)? For example, how other people communicate with you, or share information; feeling unable to disclose your autism diagnosis 1::5 1 = Not at all; 2 = A little; 3 = Moderately; 4 = Mostly; 5 = Totally
asqol_9 Integer Recommended Are you at ease (OK) with ''Autism'' as an aspect of your identity? Here, ''Autism'' means any of the words that refer to the Autism Spectrum. 1::5 1 = Not at all; 2 = A little; 3 = Moderately; 4 = Mostly; 5 = Totally
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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