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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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Adult with ASD Questionnaire

0 Shared Subjects

Questionnaire that centers around ASD diagnosis, strengths and abilities, daily living, and past history of participating in ASD research. Adult and Legal Guardian version included.
Clinical Assessments
Questionnaire
09/21/2020
awasdq01
01/29/2021
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
respondent String 20 Required Respondent Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
diagnosis_1 Integer Recommended What was the FIRST autism spectrum disorder (ASD) diagnosis you ever received from a professional? (If it has not changed, this is the ASD diagnosis you have now.) ; What was the FIRST autism spectrum disorder (ASD) diagnosis the adult ever received from a professional? (If it has not changed, this is the ASD diagnosis he or she has now.) 1::9;999 1= Autism or Autistic disorder ; 2= Asperger's Syndrome ; 3= Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS); 4= Childhood Disintegrative Disorder (CDD) ; 5= Pervasive Developmental Disorder (PDD) (choose only if none of the above apply ; 6= Autism Spectrum disorder (ASD) (choose only if none of the above apply ; 7= I have never been diagnosed with an autism spectrum disorder by a professional ; 8. Don't know ; 9= Prefer not to answer; 999= Missing data
diagnosis_2 Integer Recommended Approximately how old (in years) were you when you received this FIRST ASD diagnosis? ; Approximately how old (in years) was the adult when he or she received this FIRST ASD diagnosis? 1::90;999 Age
diagnosis_3 Date Required Please provide the date when you received this FIRST ASD diagnosis. Please indicate the date as accurately as you can. If you do not know the day or month choose Dont Know from the drop down menus for day and month. If you dont know the date at all click on I cant answer because... ; Please provide the date when the adult received this FIRST ASD diagnosis. Please indicate the date as accurately as you can. If you do not know the day or month, choose Dont Know from the drop-down menus for day and month. If you dont know the date at all, click on I cant answer because...
diagnosis_4 Integer Recommended Who gave you this FIRST ASD diagnosis? ; Who gave the adult this FIRST ASD diagnosis? 1::12;999 1= Pediatrician ; 2= Primary care doctor (other than pediatrician) ; 3= Developmental pediatrician ; 4= Psychiatrist ; 5= Clinical Psychologist ; 6= Neurologist ; 7= Team of health professionals ; 8= Team of professionals in a school system ; 9= Speech and Language Pathologist ; 10= Other ; 11= Don't know ; 12= Prefer not to answer ; 999= Missing data
diagnosis_5 Integer Recommended Is your CURRENT ASD diagnosis different than your first? ; Is the adults CURRENT ASD diagnosis different than the first? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
diagnosis_6 Integer Recommended What is your CURRENT ASD diagnosis? ; What is the adults CURRENT ASD diagnosis? 1::9;999 1= Autism or Autistic disorder ; 2= Asperger's Syndrome ; 3= Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS); 4= Childhood Disintegrative Disorder (CDD) ; 5= Pervasive Developmental Disorder (PDD) (choose only if none of the above apply ; 6= Autism Spectrum disorder (ASD) (choose only if none of the above apply ; 7= I no longer have an ASD diagnosis (according to a professional). ; 8. Don't know ; 9= Prefer not to answer; 999= Missing data
diagnosis_7 Integer Recommended Approximately how old (in years) were you when you received this CURRENT ASD diagnosis? ; Approximately how old (in years) was the adult when he or she received this first ASD diagnosis? 1::90;999 Age
diagnosis_8 Date Required Please provide the date when you received this CURRENT ASD diagnosis. Please indicate the date as accurately as you can. If you do not know the day or month, choose Dont Know from the drop down menus for day and month. If you dont know the date at all click on I cant answer that because... ; Please provide the date when the adult received this CURRENT ASD diagnosis. Please indicate the date as accurately as you can. If you do not know the day or month, choose Dont Know from the drop-down menus for day and month. If you dont know the date at all, click on I cant answer because...
diagnosis_9 Integer Recommended Who gave you this CURRENT ASD diagnosis? ; Who gave the adult this CURRENT ASD diagnosis? 1::12;999 1= Pediatrician ; 2= Primary care doctor (other than pediatrician) ; 3= Developmental pediatrician ; 4= Psychiatrist ; 5= Clinical Psychologist ; 6= Neurologist ; 7= Team of health professionals ; 8= Team of professionals in a school system ; 9= Speech and Language Pathologist ; 10= Other ; 11= Don't know ; 12= Prefer not to answer ; 999= Missing data
strengths_1 Integer Recommended What particular abilities or strengths do you have because you are a person on the autism spectrum? Check all that apply or "none of the above" if none apply. 1::15;999 1= An ability to think in unusual, creative ways ; 2= An ability to focus intensely on certain topics ; 3= Honesty ; 4= A sense of justice ; 5= A different way of experiencing the world ; 6= Ability in mathematics, science, or computers ; 7= Ability in art or music ; 8= A very good memory for certain topics ; 9= An ability to focus on small details ; 10= An incredible imagination ; 11= Kindness ; 12= Other ; 13= None of the above ; 14= Don't know ; 15= Prefer not to answer; 999= missing data
special_interest_1 Integer Recommended Do you have a special interest or topic? (Often individuals with an ASD have an unusually intense area of interest or focus. This is what we mean by special topic.) ; Does the adult have a special interest or topic? (Often individuals with an ASD have an unusually intense area of interest or focus. This is what we mean by special interest or topic. 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
special_interest_2 Integer Recommended What type of special interest or topic do you have? Check all that apply if you have more than one. 1::19;999 1= Modes of transportation (such as trains, automobiles, aircraft) ; 2= History ; 3= Science (such as astronomy, geology) ; 4= Science fiction or fantasy (in books, films, video games) ; 5= Computers ; 6= Mathematics or numbers ; 7= Animals (such as dogs, fish, horses) ; 8= Movies ; 9= Cartoons or anime ; 10= Maps, calendars, or dates ; 11= Timetables or schedules ; 12= Dinosaurs, monsters, or fictional creatures ; 13= Music ; 14= Art ; 15= Sports ; 16= Sewing or crafts ; 17= Other ; 18= Don't know ; 19= Prefer not to answer; 999= Missing data
special_interest_3 Integer Recommended How does your special topic affect your life? Check all that apply or "none of the above" if none apply. 1::10;999 1= My job or career involves my special topic. ; 2= My studies in school or college are (or were) related to my special topic. ; 3= I have relationships based on my special topic. I make friends or join groups focused on the same interest. ; 4= I enjoy activities and hobbies relating to my special topic. ; 5= My special topic sometimes gets in the way of success at work, school, or in relationships. ; 6= The special topic has gotten me in trouble. (For example, it may have led to addictive behavior or breaking the law.) ; 7= Other ; 8= None of the above ;9= Don't know ; 10= Prefer not to answer; 999= Missing data
education_1 Integer Recommended What is the highest level of education you have completed? ; What is the highest level of education the adult has completed? 1::12;999 1= Less than high school ; 2= High school certificate of completion (special education alternative to diploma) ; 3= High school graduate or equivalent (GED) ; 4= Trade or vocational school (certificate or license but no degree) ; 5= Some college but no degree ; 6= Associate's degree in vocational or technical program ; 7= Associate's degree in academic program ; 8= Bachelor's degree ; 9= Master's degree ; 10= Ph.D. or Professional degree ; 11= Other ; 12= Prefer not to answer; 999= Missing data
education_2 Integer Recommended Are you currently attending school, such as high school, vocational or trade school, or college? ; Is the adult currently attending school, such as high school, vocational or trade school, or college? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
living_1 Integer Recommended In what type of housing do you currently live? ; In what type of housing does the adult currently live? 1::7;999 1= An apartment ; 2= A townhouse, condo, or duplex ; 3= A single-family home (a house not attached to other houses) ; 4= A college or other school dormitory ; 5= An intermediate-care facility, nursing home, or other institutional setting ; 6= Other ; 7= Prefer not to answer; 999= Missing data
living_2 Integer Recommended Do you live with any other people? ; Does the adult live with any other people? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
living_3a Integer Recommended Do you live with a spouse or other life partner? ; Does the adult live with a spouse or other life partner? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
living_3b Integer Recommended Do you live with your children? ; Does the adult live with their children? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
living_3c Integer Recommended Do you live with housemates or friends that you got to choose? ; Does the adult live with housemates or friends that they got to choose? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
living_3d Integer Recommended Do you live with housemates that you did not get to choose? ; Does the adult live with housemates that they did not get to choose? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
living_3e Integer Recommended Do you live with your parents? ; Does the adult live with their parents? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
living_3f Integer Recommended Do you live with one or more siblings? ; Does the adult live with one or more siblings? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
living_3g Integer Recommended Do you live with a relative other than parents, siblings, or children (such as a grandparent, aunt, or uncle)? ; Does the adult live with a relative other than parents, siblings, or children (such as a grandparent, aunt, or uncle)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
living_3h Integer Recommended Do you live with paid caregivers? ; Does the adult live with paid caregivers? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
living_3i Integer Recommended Do you live with someone other than the people mentioned in the previous questions? ; Does the adult live with someone other than the people mentioned in the previous questions? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
employment_1 Integer Recommended Do you currently have paid employment? ; Does the adult currently have paid employment? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
employment_2 Integer Recommended On average, how many hours per week do you work? ; On average, how many hours per week does the adult work? 1::6;999 1= 1 - 9 hours ; 2= 10 - 19 hours; 3= 20 - 29 hours ; 4= 30 - 39 hours ; 5= 40 or more hours ; 6= Prefer not to answer ; 999= Missing data
employment_3 Integer Recommended Would you like to work more hours than you currently are able to get? ; Would the adult like to work more hours than he or she is currently able to get? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
employment_4 Integer Recommended Is you current work situation regular employment (with no help or support)? ; Is the adults current work situation regular employment (with no help or support)? 1::8;999 1= Regular employment (with no help or support) ; 2= Supported employment (you may have a job coach or other special help at work) ; 3= Sheltered workshop ; 4= Enclave employment (you may work in a business with a group of other people with special needs, all under supervision of an agency serving people with disabilities) ; 5= Day program that includes work or vocational activities ; 6= Internship or work study program ; 7= Other ; 8= Prefer not to answer; 999= Missing data
employment_5 Integer Recommended Is your current work situation supported employment (you may have a job coach or other special help at work)? ; Is the adults current work situation supported employment (they may have a job coach or other special help at work)? 1::7;999 1= Unemployed -- want to work but can't find work ; 2= Have tried to work but faced discrimination or other difficulties with employers because of ASD ; 3= Do not wish to work at present (may be in school, a stay-at-home parent, etc.) ; 4= Not able to work because it would interfere with federal or state benefits (such as disability payments) ; 5= Not able to work because the workplace would be too challenging (because of ASD or other health or mental health issues) ; 6= Other ; 7= Prefer not to answer; 999= Missing data
financial_1 Integer Recommended How much, if any, do you rely on your extended family (such as parents and siblings) for financial support? ; How much does the adult rely on his or her family for financial support? 1::7;999 1= My family does not provide any financial support for me at all / The family does not provide any financial support for him or her; 2= My family provides less than half of my financial support. They help me financially sometimes / The family provides less than half of his or her financial support, but does help financially sometimes. ; 3= My family provides about half of my financial support / The family provides about half of his or her financial support ; 4= My family provides more than half (but not all) of my financial support / The family provides more than half (but not all) of his or her financial support ; 5= My family provides all of my financial support / The family provides all of his or her financial support ;6= Dont know ; 7= Prefer not to answer; 999= Missing data
financial_2 Integer Recommended Do you currently receive any federal or state benefits, such as Social Security Disability Insurance (SSDI) or Medicaid? ; Does the adult receive any federal or state benefits, such as Social Security Disability Insurance (SSDI) or Medicaid? 0::3;999 1= Yes ; 0= No ; 2= Not sure; 3= Prefer not to answer; 999= Missing data
financial_3 Integer Recommended Do you currently receive Social Security Disability Insurance (SSDI)? ; Does the adult currently receive Social Security Disability Insurance (SSDI)? 1::12;999 1= Social Security Disability Insurance (SSDI) ; 2= Supplemental Security Income (SSI) ; 3= State disability programs that use only state and/or local funds ; 4= Medicaid (for health insurance) ; 5= Medicare ; 6= Medicaid HCBS (Home and Community Based Services) waiver or Developmental Disability waiver ; 7= Employment assistance or job support (sometimes called "Vocational Rehabilitation" or "VR") ; 8= Section 8 Housing ; 9= Transportation services for people with disabilities ; 10= Other ; 11= None ;12= Prefer not to answer; 999= Missing data
health_1 Integer Recommended Do you have gastrointestinal issues (such as chronic diarrhea, constipation, nausea, vomiting, acid reflux, etc.)? ; Does the adult have gastrointestinal issues (such as chronic diarrhea, constipation, nausea, vomiting, acid reflux, etc.) 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_2 Integer Recommended Do you have allergies? ; Does the adult have allergies? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_3 Integer Recommended Do you have sleep issues (such as problems going to sleep or staying asleep)? ; Does the adult have sleep issues (such as problems going to sleep or staying asleep)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_4 Integer Recommended Do you have skin conditions (such as psoriasis or eczema)? ; Does the adult have skin conditions (such as psoriasis or eczema)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_5 Integer Recommended Do you have a seizure disorder or epilepsy? ; Does the adult have a seizure disorder or epilepsy? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_6 Integer Recommended Do you have asthma? ; Does the adult have asthma? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_7 Integer Recommended Do you have diabetes? ; Does the adult have diabetes? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_8 Integer Recommended Do you have Attention Deficit Hyperactivity Disorder (ADHD) or Attention Deficit Disorder (ADD)? ; Does the adult have Attention Deficity Hyperactivity Disorder (ADHD) or Attention Deficit Disorder (ADD)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_9 Integer Recommended Do you have Oppositional Defiant Disorder (ODD)? ; Does the adult have Oppositional Defiant Disorder (ODD)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_10 Integer Recommended Do you have Obsessive Compulsive Disorder (OCD)? ; Does the adult have Obsessive Compulsive Disorder (OCD)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_11 Integer Recommended Do you have anxiety (such as social phobia, generalized anxiety disorder, panic disorder, or some other kind of anxiety)? ; Does the adult have anxiety (such as social phobia, generalized anxiety disorder, panic disorder, or some other kind of anxiety)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_12 Integer Recommended Do you have depression (such as major depressive disorder, seasonal affective disorder, postpartum depression, or some other kind of depression)? ; Does the adult have depression (such as major depressive disorder, seasonal affective disorder, postpartum depression, or some other kind of depression)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_13 Integer Recommended Do you have bipolar disorder? ; Does the adult have bipolar disorder? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_14 Integer Recommended Do you have schizophrenia? ; Does the adult have schizophrenia? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
health_15 Integer Recommended Do you have some other medical condition not mentioned in the previous questions? ; Does the adult have some other medical condition not mentioned in the previous questions? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
therapy_1 Integer Recommended What treatments or interventions are you currently using to help with ASD or other conditions you might have, such as attention deficit hyperactivity disorder (ADHD) or anxiety? Check all that apply or "none" if none apply. 1::19;999 1= Medication ; 2= Alternative Medicine (herbs, homeopathic remedies, acupuncture, vitamins, etc.) ; 3= Individual Therapy or Counseling (for example, talk therapy or cognitive behavioral therapy) ; 4= Group Therapy ; 5= Marital or Family Therapy ; 6= Support Group, in person ; 7= Support Group, online ; 8= Spiritual practice (such as prayer or meditation) ; 9= Speaking with a pastor, rabbi, etc. ; 10= Self-help books ; 11= Applied Behavior Analysis (ABA) ; 12= Physical Therapy ; 13= Occupational Therapy ; 14= Speech and Language Therapy ; 15= Social Skills Training or a Social Skills Group ; 16= Life-Skills or Self-Care Training ; 17= Other ; 18= None ; 19= Prefer not to answer; 999= Missing data
learn_1 Integer Recommended Understanding and Accepting Children with ASD (This research will answer questions about how to teach other people, like educators and employers, how children with ASD experience the world, how they feel, why they behave the way they do, and what they need.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_2 Integer Recommended Employment and Children with ASD (This research will answer questions about whether children with ASD are succeeding in the workplace, what kind of help they need at work, and whether they have faced discrimination at work.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_3 Integer Recommended Education and Children with ASD (This research will answer questions about whether children with ASD are succeeding at college or in other educational programs, what kind of help they need, and whether or not they are getting the help they need.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_4 Integer Recommended Federal and State Assistance for Children with ASD (This research will answer questions about whether children with ASD need and are receiving government help such as supplemental security income [SSI], social security disability insurance [SSDI], or medicaid.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_5 Integer Recommended Financial Issues and Children with ASD (This research will answer questions about how children with ASD pay for food, housing, and health care, and if they can afford what they need.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_6 Integer Recommended Living Situation and Children with ASD (This research will answer questions about where children with ASD are living, who they are living with, and if they are happy with their living situation.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_7 Integer Recommended Transportation and Children with ASD (This research will answer questions about whether children with ASD have a way to travel to school, work, or other activities, and if problems with transportation are preventing them from living the life they want.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_8 Integer Recommended Health Conditions and Children with ASD (This research will answer questions about how many adults with ASD are coping with medical conditions or mental health issues.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_9 Integer Recommended Health Care Access and Children with ASD (This research will answer questions about how many children with ASD have health insurance and can get the medical care, dental care, or mental health care they need.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_10 Integer Recommended Current Treatments and Children with ASD (This research will answer questions about what treatments children with ASD are using to help them with any medical or mental health issues, and what treatments are the most helpful.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_11 Integer Recommended Daily Life and Children with ASD (This research will answer questions about how children with ASD spend their time= and whether they are satified with their lives.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_12 Integer Recommended Friendships and Children with ASD (this research will answer questions about children with ASD and their social relationships, including whether they are satisfied with their ability to make friends and with the friendships they have.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_13 Integer Recommended Romantic Relationships and Children with ASD (This research will answer questions about children with ASD and their romantic relationships, including whether they are satisfied with their ability to find a romantic partner, and with the romantic relationships they have.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_14 Integer Recommended Sexuality and Sexual Health and Children with ASD (This research will answer questions about children with ASD, their knowledge about sex, their sexual experiences, and their sexual health and safety.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
learn_15 Integer Recommended The Criminal Justice System and Children with ASD (This research will answer questions about what happens when children with ASD become involved with the criminal justice system whether they have been victims of a crime or accused of committing a crime.) 1::7;999 1= Extremely high priority ; 2= High priority ; 3= Medium priority ; 4= Low priority ; 5= Not a priority ; 6= Don't know ; 7= Prefer not to answer ; 999= Missing data
participation_1 Integer Recommended Have you ever participated in a RESEARCH STUDY about autism spectrum disorders (prior to this one)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
participation_2 Integer Recommended Have you ever participated in a RESEARCH STUDY about autism spectrum disorders (prior to this one)? ; Has the adult ever participated in a RESEARCH STUDY about autism spectrum disorders (prior to this one)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
participation_3 Integer Recommended Have you participated in a RESEARCH STUDY about autism spectrum disorders after you became an adult (18 years of age and older) prior to this one? ; Has the adult ever participated in a RESEARCH STUDY about autism spectrum disorders as an adult (age 18 and older)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
participation_4 Integer Recommended Have you ever participated in a RESEARCH STUDY about the GENETICS of autism spectrum disorders? ; Has the adult ever been in a RESEARCH STUDY about the GENETICS of autism spectrum disorders? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
participation_5 Integer Recommended Have you ever participated in a RESEARCH STUDY about the DRUGS/MEDICATIONS for treating autism spectrum disorders? ; Has the adult ever been in a RESEARCH STUDY about DRUGS/MEDICATIONS for treating autism spectrum disorders? 1::5;999 1= It was too short and did not ask all of the questions I would have expected. ; 2= It was too long. ; 3= It was just right.; 4= Don't know ; 5= Prefer not to answer ; 999= Missing data
diagnosis_10 Integer Recommended Does the adult use spoken language? 0;1 0 = No; 1 = Yes
diagnosis_11 Integer Recommended Describe the adult's use of spoken language 1::4 1 = Language use is completely typical; 2 = There are difficulties mainly with "pragmatic" or social language; 3 = There is difficulty expressing needs using spoken language; 4 = Other
diagnosis_11a String 50 Recommended If other was selected for the adult's use of spoken language, please explain
diagnosis_12a Integer Recommended Does the adult use sign language to help him or her communicate? 0;1 0 = No; 1 = Yes
diagnosis_12b Integer Recommended Does the adult use high-tech assistive technology (such a voice-output communication device, keyboard, etc.)? 0;1 0 = No; 1 = Yes
diagnosis_12c Integer Recommended Does the adult use low-tech assistive technology (such as Picture Exchange Communication system, Flip-and-Talk, etc.)? 0;1 0 = No; 1 = Yes
diagnosis_12d Integer Recommended Does the adult use communication by gesture or behavior? 0;1 0 = No; 1 = Yes
diagnosis_12e Integer Recommended Does the adult use some other method to help him or her communicate? 0;1 0 = No; 1 = Yes
diagnosis_12f String 50 Recommended If the adult uses some other method to help him or her communicate, please explain
diagnosis_13 Integer Recommended Is the adult able to take a shower or bath without assistance? 0;1 0 = No; 1 = Yes
diagnosis_14 Integer Recommended Is the adult able to go to the toilet, use the toilet, and return without assistance? 0;1 0 = No; 1 = Yes
diagnosis_15 Integer Recommended Is the adult able to dress him or herself without assistance (except for tying shoes)? 0;1 0 = No; 1 = Yes
diagnosis_16 Integer Recommended Is the adult able to tie his or her shoes? 0;1 0 = No; 1 = Yes
diagnosis_17 Integer Recommended Is the adult able to feed him or herself without assistance? 0;1 0 = No; 1 = Yes
diagnosis_18 Integer Recommended Is the adult able to shop for him or herself? 1::4 1 = Can shop for groceries, clothes, and other necessities independently; 2 = Can shop independently for small purchases, but needs assistance with more major purchases; 3 = Needs to be accompanied on all shopping trips; 4 = Is unable to shop
diagnosis_19 Integer Recommended Is the adult able to prepare food for him or herself? 1::4 1 = Can plan and prepare meals without assistance; 2 = Can prepare meals without assistance, but needs help with planning; 3 = Needs assistance to prepare meals; 4 = Is unable to participate in meal preparation
diagnosis_20 Integer Recommended Is the adult able to do housekeeping chores? 1::4 1 = Can maintain house alone or with very little assistance; 2 = Can't do major cleaning, but can do daily tasks like dish washing and bed making; 3 = Can participate, but needs assistance with all housekeeping tasks; 4 = Is unable to participate in housekeeping tasks
diagnosis_21 Integer Recommended Is the adult able to do laundry for him or herself? 1::3 1 = Can do laundry from start to finish without assistance; 2 = Can do laundry with some assistance; 3 = Is unable to do laundry
diagnosis_22 Integer Recommended Is the adult able to manage his or her own finances? 1::3 1 = Can independently manage finance-related tasks like going to the bank, writing checks, or paying bills; 2 = Can manage finance-related tasks with assistance; 3 = Is unable to participate in finance-related tasks
diagnosis_23 Integer Recommended Is the adult able to use the telephone independently? 1::4 1 = Can both make and take calls without assistance; 2 = Can take calls, but needs assistance to make calls; 3 = Is unable to use the telephone without assistance; 4 = Is unable to use the telephone at all
diagnosis_24 Integer Recommended Does the adult currently harm him or herself? 1::4 1 = Often; 2 = Sometimes; 3 = Rarely; 4 = Never
diagnosis_25 Integer Recommended Is the adult currently aggressive to others? 1::4 1 = Often; 2 = Sometimes; 3 = Rarely; 4 = Never
diagnosis_26 Integer Recommended Is the adult currently destructive to property (at home or elsewhere)? 1::4 1 = Often; 2 = Sometimes; 3 = Rarely; 4 = Never
diagnosis_27 Integer Recommended Left unsupervised, does the adult ever wander from home such that you worry about his or her safety? 1::4 1 = Often; 2 = Sometimes; 3 = Rarely; 4 = Never
diagnosis_28 Integer Recommended Does the adult show affection to close family members? 1::4 1 = Often; 2 = Sometimes; 3 = Rarely; 4 = Never
diagnosis_29 Integer Recommended Does the adult show interest in social interaction with people outside the family? 1::4 1 = Often; 2 = Sometimes; 3 = Rarely; 4 = Never
diagnosis_30 Integer Recommended A person with ASD may have varied levels of ability across many areas of functioning. Still, it is helpful for researchers to have an overall assessment of functioning level. If you are willing, please indicate your average impression of the adult's overall level of intellectual functioning by choosing from the list below to fill in the blank. The adult functions intellectually at the level of a typical: 1::9 1 = Infant (younger than 12 months old); 2 = Toddler (1-3 years old); 3 = Pre-school or kindergarten child (4-5 years old); 4 = Early elementary school child (6-8 years old); 5 = Late elementary school child (9-11 years old); 6 = Middle school child (12-14 years old); 7 = High school child (15-18 years old); 8 = Young adult (19-25 years old); 9 = Mature adult (26 years and older)
diagnosis_31 Integer Recommended If you are willing, please indicate your average impression of the adult's overal level of social functioning by choosing from the list below to fill in the blank. The adult functions socially at the level of a typical: 1::9 1 = Infant (younger than 12 months old); 2 = Toddler (1-3 years old); 3 = Pre-school or kindergarten child (4-5 years old); 4 = Early elementary school child (6-8 years old); 5 = Late elementary school child (9-11 years old); 6 = Middle school child (12-14 years old); 7 = High school child (15-18 years old); 8 = Young adult (19-25 years old); 9 = Mature adult (26 years and older)
strengths_01 Integer Recommended Is an ability to think in unusual, creative ways a particular ability or strength you have because you are a person on the autism spectrum? ; Is an ability to think in unusual, creative ways a particular ability or strength the adult has because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_02 Integer Recommended Is an ability to focus intensely on certain topics a particular ability or strength you have because you are a person on the autism spectrum? ; Is an ability to focus intensely on certain topics a particular ability or strength the adult has because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_03 Integer Recommended Is honestly a particular ability or strength you have because you are a person on the autism spectrum? ; Is honesty a particular ability or strength the adult has because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_4 Integer Recommended Is a sense of justice a particular ability or strength you have because you are a person on the autism spectrum? ; Is a sense of justice a particular ability or strength the adult has because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_5 Integer Recommended Is a different way of experiencing the world a particular ability or strength you have because you are a person on the autism spectrum? ; Is a different way of experiencing the world a particular ability or strength the adult have because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_6 Integer Recommended Is an ability in mathematics, science, or computers a particular ability or strength you have because you are a person on the autism spectrum? ; Is an ability in mathematics, science, or computers a particular ability or strength the adult has because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_7 Integer Recommended Is an ability in art or music a particular ability or strength you have because you are a person on the autism spectrum? ; Is an ability in art or music a particular ability or strength the adult has because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_8 Integer Recommended Is a very good memory for certain topics a particular strength you have because you are a person on the autism spectrum? ; Is a very good memory for certain topics a particular ability or strength the adult has because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_9 Integer Recommended Is an ability to focus on small details a particular ability or strength you have because you are a person on the autism spectrum? ; Is an ability to focus on small details a particular ability or strength the adult has because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_10 Integer Recommended Is an incredible imagination a particular ability or strength you have because you are a person on the autism spectrum? ; Is an incredible imagination a particular ability or strength the adult has because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_11 Integer Recommended Is kindness a particular ability or strength you have because you are a person on the autism spectrum? ; Is kindness a particular ability or strength the adult has because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_12 Integer Recommended Is there some other ability or strength you have because you are a person on the autism spectrum? ; Is there some other abiltiy or strength the adult has because they are a person on the autism spectrum? 0;1 0 = No; 1 = Yes
strengths_13 String 50 Recommended If there is some other ability or strength you have because you are on the autism spectrum, please explain. ; If there is some other ability or strength the adult has because they are a person on the autism spectrum, please explain
strengths_14 Integer Recommended Do none of these abilities or strengths apply to you? ; Do none of these abilities or strengths apply to the adult? 0;1 0 = No; 1 = Yes
strengths_15 Integer Recommended Do you not know what abilities or strengths you have? ; Does the adult not know the particular abilities or strengths they have? 0;1 0 = No; 1 = Yes
strengths_16 Integer Recommended Do you prefer not to answer about your abilities or strengths? ; Does the adult prefer to not answer about the particular abilities or strengths? 0;1 0 = No; 1 = Yes
special_interest_02 Integer Recommended Are modes of transportation (such as trains, automobiles, aircraft) a special interest or topic for you? ; Are modes of transportation (such as trains, automobiles, aircraft) a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_03 Integer Recommended Is history a special interest or topic for you? ; Is history a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_4 Integer Recommended Is science (such as astronomy, geology) a special interest or topic for you? ; Is science (such as astronomy, geology) a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_5 Integer Recommended Is science fiction or fantasy (in books, films, video games) a special interest or topic for you? ; Is science fiction or fantasy (in books, films, video games) a special interset or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_6 Integer Recommended Are computers a special interest or topic for you? ; Are computers a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_7 Integer Recommended Are mathematics or numbers a special interest or topic for you? ; Are mathematics or numbers a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_8 Integer Recommended Are animals (such as dogs, fish, horses) a special interest or topic for you? ; Are animals (such as dogs, fish, horses) a special interset or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_9 Integer Recommended Are movies a special interest or topic for you? ; Are movies a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_10 Integer Recommended Are cartoons or anime a special interest or topic for you? ; Are cartoons or anime a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_11 Integer Recommended Are maps, calendars, or dates a special interest or topic for you? ; Are maps, calendars, or dates a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_12 Integer Recommended Are timetables or schedules a special interest or topic for you? ; Are timetables or schedules a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_13 Integer Recommended Are dinosaurs, monsters, or fictional characters a special interest or topic for you? ; Are dinosaurs, monsters, or fictional characters a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_14 Integer Recommended Is music a special interest or topic for you? ; Is music a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_15 Integer Recommended Is art a special interest or topic for you? ; Is art a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_16 Integer Recommended Are sports a special interest or topic for you? ; Are sports a special interest or topic for the adult? 0;1 0 = No; 1 = Yes
special_interest_17 Integer Recommended Is sewing or crafts a special interest or topic for you? ; Is sewing or crafts a special interest or topic for you? 0;1 0 = No; 1 = Yes
special_interest_18 Integer Recommended Do you have some other special interest or topic? ; Does the adult have some other special interest or topic? 0;1 0 = No; 1 = Yes
special_interest_19 String 50 Recommended If you do have some other special interest or topic, please explain. ; If the adult does have some other special interest or topic, please explain.
special_interest_20 Integer Recommended Do you not know your special interest or topic? ; Does the adult not know their special interest or topic? 0;1 0 = No; 1 = Yes
special_interest_21 Integer Recommended Do you not prefer to answer about your special interest or topic? ; Does the adult not prefer to answer about their special interest or topic? 0;1 0 = No; 1 = Yes
special_interest_22 Integer Recommended Does you job or career involve your special topic? ; Does the adult's job or career involve their special topic? 0;1 0 = No; 1 = Yes
special_interest_23 Integer Recommended Do your studies in school or college relate to your special topic? ; Do the adult's stuies in school or college relate to their special topic? 0;1 0 = No; 1 = Yes
special_interest_24 Integer Recommended Do you have relationships based on your special topic? You make friends or join groups focused on the same interest. ; Does the adult have relationships based on their special topic? They make friends or join groups focused on the same interest. 0;1 0 = No; 1 = Yes
special_interest_25 Integer Recommended Do you enjoy activities and hobbies relating to your special topic? ; Does the adult enjoy activities and hobbies relating to their special topic? 0;1 0 = No; 1 = Yes
special_interest_26 Integer Recommended Does your special topic sometimes get in the way of success at work, school, or in relationships? ; Does the adult's special topic sometimes get in the way of success at work, school, or in relationships? 0;1 0 = No; 1 = Yes
special_interest_27 Integer Recommended Has the special topic gotten you in trouble (for example, it may have led to addictive behavior or breaking the law)? ; Has the special topic gotten the adult in trouble (for example, it may have led to addictive behavior or breaking the law)? 0;1 0 = No; 1 = Yes
special_interest_28 Integer Recommended Has the special topic affected you in some other way? ; Has the special topic affected the adult in some other way? 0;1 0 = No; 1 = Yes
special_interest_29 String 50 Recommended If the special topic has affected you in some other way, please explain. ; If the special topic has affected the adult in some other way, please explain.
special_interest_30 Integer Recommended Has the special topic affected you in none of the mentioned ways? ; Has the special topic affected the adult in none of the mentioned ways? 0;1 0 = No; 1 = Yes
special_interest_31 Integer Recommended Do you not know how the special topic has affected you? ; Does the adult not know how the special topic has affected them? 0;1 0 = No; 1 = Yes
special_interest_32 Integer Recommended Do you prefer not to answer about how the special topic has affected you? ; Does the adult prefer not to answer how the special topic has affected them? 0;1 0 = No; 1 = Yes
employment_02 Integer Recommended On average, how many hours per week do you work? ; On average, how many hours per week does the adult work? 1::6;999 1= 1 - 9 hours ; 2= 10 - 19 hours; 3= 20 - 29 hours ; 4= 30 - 39 hours ; 5= 40 or more hours ; 6= Prefer not to answer ; 999= Missing data
employment_03 Integer Recommended Would you like to work more hours than you currently are able to get? ; Would the adult like to work more hours than he or she is currently able to get? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
employment_04 Integer Recommended Is you current work situation regular employment (with no help or support)? ; Is the adult's current work situation regular employment (with no help or support)? 0;1 0 = No; 1 = Yes
employment_05 Integer Recommended Is your current work situation supported employment (you may have a job coach or other special help at work)? ; Is the adult's current work situation supported employment (they may have a job coach or other special help at work)? 0;1 0 = No; 1 = Yes
employment_6 Integer Recommended Is your current work situation a sheltered workshop? ; Is the adult's current work situation a sheltered workshop? 0;1 0 = No; 1 = Yes
employment_7 Integer Recommended Is your current work situation enclave employment (you may work in a business with a group of other people with special needs, all under supervision of an agency serving people with disabilities; Is the adult's current work situation enclave employment (you may work in a business with a group of other people with special needs, all under supervision of an agency serving people with special needs) 0;1 0 = No; 1 = Yes
employment_8 Integer Recommended Is your current work situation a day program that includes work or vocational activities? ; Is the adult's current work situation a day program that includes work or vocational activities? 0;1 0 = No; 1 = Yes
employment_9 Integer Recommended Is your current work situation an internship or work study program? ; Is the adult's current work situation an internship or work study program? 0;1 0 = No; 1 = Yes
employment_10 Integer Recommended Do you currently have some other work situation? ; Does the adult currently have some other work situation? 0;1 0 = No; 1 = Yes
employment_11 String 50 Recommended If you do have some other work situation, please explain. ; If the adult does have some other work situation, please explain.
employment_12 Integer Recommended Do you prefer to not answer about your current work situation? ; Does the adult prefer to not answer about their current work situation? 0;1 0 = No; 1 = Yes
employment_13 Integer Recommended You have told us you are not working. Are you unemployed -- want to work but can't find work? ; You have told us the adult is not working. Is the adult unemployed -- want to work but can't find work? 0;1 0 = No; 1 = Yes
employment_14 Integer Recommended You have told us you are not working. Have you tried to work but faced discrimination or other difficulties with employers because of ASD? ; You have told us the adult is not working. Has the adult tried to work but faced discrimination or other difficulties with employers because of ASD? 0;1 0 = No; 1 = Yes
employment_15 Integer Recommended You have told us you are not working. Do you wish to not be at work presently (may be in school, a stay-at-home parent, etc.)? ; You have told us the adult is not working. Does the adult not wish to work at present (may be in school, a stay-at-home parent, etc.)? 0;1 0 = No; 1 = Yes
employment_16 Integer Recommended You have told us you are not working. Are you not able to work because it would interfere with federal or state benefits (such as disability payments)? ; You have told us the adult is not working. Is the adult not able to work because it would interfere with federal or state benefits (such as disability payments)? 0;1 0 = No; 1 = Yes
employment_17 Integer Recommended You have told us you are not working. Are you not able to work because the workplace would be too challenging (because of ASD or other health or mental health issues)? ; You have told us the adult is not working. Is the adult not able to work because the workplace would be too challenging (because of ASD or other health or mental health issues)? 0;1 0 = No; 1 = Yes
employment_18 Integer Recommended You have told us you are not working. Is there some other reason why you are not working? ; You have told us the adult is not working. Is there some other reason why the adult is not working? 0;1 0 = No; 1 = Yes
employment_19 String 50 Recommended If there is some other reason why you are not working, please explain. ; If there is some other reason why the adult is not working, please explain.
financial_03 Integer Recommended Do you currently receive Social Security Disability Insurance (SSDI)? ; Does the adult currently receive Social Security Disability Insurance (SSDI)? 0;1 0 = No; 1 = Yes
financial_4 Integer Recommended Do you currently receive Supplemental Security Income (SSI)? ; Does the adult currently receive Supplemental Security Income (SSI)? 0;1 0 = No; 1 = Yes
financial_5 Integer Recommended Do you currently participate in state disability programs that use only state and/or local funds? ; Does the adult currently participate in state disability programs that use only state and/or local funds? 0;1 0 = No; 1 = Yes
financial_6 Integer Recommended Do you currently receive medicaid (for health insurance)? ; Does the adult currently receive medicaid (for health insurance)? 0;1 0 = No; 1 = Yes
financial_7 Integer Recommended Do you currently receive medicare? ; Does the adult currently receive medicare? 0;1 0 = No; 1 = Yes
financial_8 Integer Recommended Do you currently receive medicaid HCBS (Home and Community Based Services) waiver or Developmental Disability waiver? ; Does the adult currently receive medicaid HCBS (Home and Community Based Services) waiver or Developmental Disability waiver? 0;1 0 = No; 1 = Yes
financial_9 Integer Recommended Do you currently receive employment assistance or job support (sometimes called "Vocational Rehabilitation" or "VR")? ; Does the adult currently receive employment assistance or job support (sometimes called "Vocational Rehabilitation" or "VR")? 0;1 0 = No; 1 = Yes
financial_10 Integer Recommended Do you currently receive Section 8 Housing? ; Does the adult currently receive Section 8 Housing? 0;1 0 = No; 1 = Yes
financial_11 Integer Recommended Do you currently participate in transportation services for people with disabilities? ; Does the adult currently participate in transportation services for people with disabilities? 0;1 0 = No; 1 = Yes
financial_12 Integer Recommended Do you currently receive some other federal or state benefits? ; Does the adult currently receive some other federal or state benefits? 0;1 0 = No; 1 = Yes
financial_13 String 50 Recommended If you do currently receive some other federal or state benefits, please explain. ; If the adult currently receives some other federal or state benefits, please explain.
financial_14 Integer Recommended Are you unsure of the federal or state benefits you currently receive? ; Is the adult unsure of the federal or state benefits they currently receive? 0;1 0 = No; 1 = Yes
financial_15 Integer Recommended Do you prefer to not answer about the federal or state benefits you currently receive? ; Does the adult prefer to not answer about the federal or state benefits you currently receive? 0;1 0 = No; 1 = Yes
health_16 String 50 Recommended Please describe this other condition
therapy_01 Integer Recommended Are you currently using medication to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using mediation to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_2 Integer Recommended Are you currently using alternative medicine (herbs, homeopathic remedies, accupuncture, vitamins, etc.) to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using alternative medicine (herbs, homeopathic remedies, accupuncture, vitamins, etc.) to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_3 Integer Recommended Are you currently using individual therapy or counseling (for example, talk therapy or cognitive behavioral therapy) to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using individual therapy or counseling (for example, talk therapy or cognitive behavioral therapy) to help with other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_4 Integer Recommended Are you currently using group therapy to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using group therapy to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_5 Integer Recommended Are you currently using marital or family therapy to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using marital or family therapy to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_6 Integer Recommended Are you currently using a support group in person to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using a support group in person to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_7 Integer Recommended Are you currently using a support group online to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using a support group online to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_8 Integer Recommended Are you currently using spiritual practice (such as prayer or meditation) to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using spiritual practice (such as prayer or meditation) to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_9 Integer Recommended Are you currently speaking with a pastor, rabbi, etc. to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently speaking with a pastor, rabbi, etc. to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_10 Integer Recommended Are you currently using self-help books to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using self-help books to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_11 Integer Recommended Are you currently using Applied Behavior Analysis (ABA) to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using Applied Behavior Analysis (ABA) to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_12 Integer Recommended Are you currently using physical therapy to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using physical therapy to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_13 Integer Recommended Are you currently using occupational therapy to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using occupational therapy to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_14 Integer Recommended Are you currently using speech and language therapy to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using speech and language therapy to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_15 Integer Recommended Are you currently using social skills training or a social skills group to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using social skills training or a social skills group to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_16 Integer Recommended Are you currently using life-skills or self-care training to help with ASD or other conditions you might have such as ADHD or anxiety ; Is the adult currently using life-skills training or a social skills group to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_17 Integer Recommended Are you currently using some other treatment to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently using some other treatment to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_18 String 50 Recommended If you are using some other treatment, please explain. ; If the adult is using some other treatment, please explain.
therapy_19 Integer Recommended Are you currently not using a treatment to help with ASD or other conditions you might have such as ADHD or anxiety? ; Is the adult currently not using a treatment to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
therapy_20 Integer Recommended Do you prefer to not mention the treatment you are using to help with ASD or other conditions you might have such as ADHD or anxiety? ; Does the adult prefer to not mention the treatment they are using to help with ASD or other conditions they might have such as ADHD or anxiety? 0;1 0 = No; 1 = Yes
participation_01 Integer Recommended How much, if any, did the adult participate in the completion of this survey? 0::2;999 1 = He or she helped with none of the questions; 2 = He or she helped with less than half of the questions; 3 = He or she helped with about half of the questions; 4 = He or she helped with more than half (but not all) of the questions; 5 = He or she helped with all of the questions
participation_02 Integer Recommended Have you ever participated in a RESEARCH STUDY about autism spectrum disorders (prior to this one)? ; Has the adult ever participated in a RESEARCH STUDY about autism spectrum disorders (prior to this one)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
participation_03 Integer Recommended Have you participated in a RESEARCH STUDY about autism spectrum disorders after you became an adult (18 years of age and older) prior to this one? ; Has the adult ever participated in a RESEARCH STUDY about autism spectrum disorders as an adult (age 18 and older)? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
participation_04 Integer Recommended Have you ever participated in a RESEARCH STUDY about the GENETICS of autism spectrum disorders? ; Has the adult ever been in a RESEARCH STUDY about the GENETICS of autism spectrum disorders? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
participation_05 Integer Recommended Have you ever participated in a RESEARCH STUDY about the DRUGS/MEDICATIONS for treating autism spectrum disorders? ; Has the adult ever been in a RESEARCH STUDY about DRUGS/MEDICATIONS for treating autism spectrum disorders? 0::2;999 1= Yes ; 0= No ; 2= Prefer not to answer; 999= Missing data
participation_06 Integer Recommended What did you think about the length of this form? 1::5;999 1= It was too short and did not ask all of the questions I would have expected. ; 2= It was too long. ; 3= It was just right.; 4= Don't know ; 5= Prefer not to answer ; 999= Missing data
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.