|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
guid_r03 |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
sid_r03 |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
bai1 |
Integer |
|
Recommended |
Numbness or tingling |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai01_r03, bai1_1, bai_1, baiq2_1, numbness, q67_1 |
Query
|
bai2 |
Integer |
|
Recommended |
Feeling hot |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai02_r03, bai1_2, bai_2, baiq2_2, feelhot, q67_2 |
Query
|
bai3 |
Integer |
|
Recommended |
Wobbliness in legs |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai03_r03, bai1_3, bai_3, baiq2_3, legs, q67_3 |
Query
|
bai4 |
Integer |
|
Recommended |
Unable to relax |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai04_r03, bai1_4, bai_4, baiq2_4, q67_4, relax |
Query
|
bai5 |
Integer |
|
Recommended |
Fear of worst happening |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai05_r03, bai1_5, bai_5, baiq2_5, q67_5, worsthappen |
Query
|
bai6 |
Integer |
|
Recommended |
Dizzy or lightheaded |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai06_r03, bai1_6, bai_6, baiq2_6, dizzy, q67_6 |
Query
|
bai7 |
Integer |
|
Recommended |
Heart pounding/racing |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai07_r03, bai2_7, bai_7, baiq2_7, heartrace, q67_7 |
Query
|
bai8 |
Integer |
|
Recommended |
Unsteady |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai08_r03, bai2_8, bai_8, baiq2_8, q67_8, unsteady |
Query
|
bai9 |
Integer |
|
Recommended |
Terrified or afraid |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai09_r03, bai2_9, bai_9, baiq2_9, q67_9, terrified |
Query
|
bai10 |
Integer |
|
Recommended |
Nervous |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai10_r03, bai2_10, bai_10, baiq2_10, nervous, q67_10 |
Query
|
bai11 |
Integer |
|
Recommended |
Feeling of choking |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai11_r03, bai2_11, bai_11, baiq2_11, choking, q67_11 |
Query
|
bai12 |
Integer |
|
Recommended |
Hands trembling |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai12_r03, bai3_12, bai_12, baiq2_12, q67_12, trembling |
Query
|
bai13 |
Integer |
|
Recommended |
Shaky/unsteady |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai13_r03, bai3_13, bai_13, baiq2_13, q67_13, shaky |
Query
|
bai14 |
Integer |
|
Recommended |
Fear of losing control |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai14_r03, bai3_14, bai_14, baiq2_14, losecontrol, q67_14 |
Query
|
bai15 |
Integer |
|
Recommended |
Difficulty in breathing |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai15_r03, bai3_15, bai_15, baiq2_15, diffbreathing, q67_15 |
Query
|
bai16 |
Integer |
|
Recommended |
Fear of dying |
0 :: 3; 77; 88; -999
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 77=Refused; 88=Missing; -99=NA
|
bai16_r03, bai3_16, bai_16, baiq2_16, dying, q67_16 |
Query
|
bai17 |
Integer |
|
Recommended |
Scared |
0::4;77;88;-99
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 4 = Always77=Refused; 88=Missing; -99=NA
|
bai17_r03, bai4_1, bai_17, baiq2_17, q67_17, scared |
Query
|
bai18 |
Integer |
|
Recommended |
Indigestion |
0::4;77;88;-99
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 4 = Always77=Refused; 88=Missing; -99=NA
|
bai18_r03, bai4_2, bai_18, baiq2_18, indigestion, q67_18 |
Query
|
bai19 |
Integer |
|
Recommended |
Faint/lightheaded |
0::4;77;88;-99
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 4 = Always77=Refused; 88=Missing; -99=NA
|
bai19_r03, bai4_3, bai_19, baiq2_19, faint, q67_19 |
Query
|
bai20 |
Integer |
|
Recommended |
Face flushed |
0::4;77;88;-99
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 4 = Always77=Refused; 88=Missing; -99=NA
|
bai20_r03, bai4_4, bai_20, baiq2_20, faceflush, q67_20 |
Query
|
bai21 |
Integer |
|
Recommended |
Hot/cold sweats |
0::4;77;88;-99
|
0= Not at all; 1= Mildly but it didn't bother me much; 2= Moderately- it wasn't pleasant at times; 3= Severely- it bothered me a lot; 4 = Always77=Refused; 88=Missing; -99=NA
|
bai21_r03, bai4_5, bai_21, baiq2_21, q67_21, sweats |
Query
|
bai_total |
Float |
|
Required |
BAI total score |
0::63; 999
|
0-7=Minimal; 8-15= Mild; 16-25=Moderate; 26-63=Severe; 999=missing/NK/NA
|
bai_sum |
Query
|
days_baseline |
Integer |
|
Recommended |
Days since baseline |
|
|
daybai |
Query
|
assbdic |
String |
5
|
Recommended |
Assessment Point |
D;14;E;24;LB;36;72;96;120; 9; B; 3; 7; 144; 168;192; C
|
D=MTA baseline assessment; 14=MTA 14 month assessment; E=MTA early termination assessment; B = MTA Pre-Baseline Screening Assessment (579/579); 09 = MTA 9 Month Assessment (530/530); 24=MTA 24 month assessment; LB=LNCG baseline assessment; 36=MTA and LNCG 3 year assessment; 72=MTA and LNCG 6 year assessment; 96=MTA and LNCG 8 year assessment; 03 = MTA 3 Month Assessment (438/687);120=MTA and LNCG 10 year assessment; 7= 7th Grade Assessment (221/276); 144 = MTA & LNCG 12 Month Assessment (578/578); 168 = MTA & LNCG 14 Month Assessment (585/585); 192 = MTA & LNCG 16 Month Assessment (505/505); C = MTA Pre-Baseline Screening Assessment (78/78)
|
assbai |
Query
|
relationship |
Integer |
|
Recommended |
Relationship of respondent to individual |
|
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
|
relbai |
Query
|
actbdic |
Integer |
|
Recommended |
Active status |
0::5
|
0=Inactive-Data collected after the 14 month treatment phase/after early termination from treatment phase/prior to treatment phase; 1=Active-Data collected during the 14 month treatment phase while subject received originally assigned treatment regardless of degree of compliance; 2=Active-This is the last active assessment for subjects who were about to violate treatment arm by receiving alternate treatment; 3=Active-This is the last active assessment for subjects who were about to leave the study by moving away;4=Yes, Active; 5=No, Not Active
|
actbai |
Query
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
sitenum |
Query
|
sjtyp |
Integer |
|
Recommended |
Subject type |
1;2
|
1=MTA randomized trial subject; 2=Local normative comparison group (LNCG) subject
|
|
Query
|
baitotx |
Float |
|
Recommended |
Total score (mean score) |
|
Includes items 1-21
|
|
Query
|
week |
Float |
|
Recommended |
Week in level/study |
|
99=week 10-week 14
|
|
Query
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
assessment.c |
Query
|
baina |
Integer |
|
Recommended |
Number of valid answers |
|
|
|
|
condition_c |
Integer |
|
Recommended |
Patient Condition |
0::2
|
0 = Control; 1 = Self-Affirmation; 2 = Expressive Writing
|
condition.c |
|
primary_language |
String |
255
|
Recommended |
Subject's Primary Language |
|
|
userlanguage |
|
ihend |
Date |
|
Recommended |
date ended (today's date if still in progress) |
|
|
enddate |
|
restype |
Integer |
|
Recommended |
Response Type |
|
0 = IP Address; 1 = Survey Preview; 2 = Survey Test; 4 = Imported; 8 = Spam; 9 = Survey Preview Spam; 12 = Imported Spam; 16 = Offline; 17 = Offline Survey Preview; 32 = EX; 40 = EX Spam; 48 = EX Offline;
|
|
|
prog |
Integer |
|
Recommended |
Progress |
|
|
progress |
|
gml_dur |
Integer |
|
Recommended |
Trial 1 duration of task, seconds |
|
|
duration__in_seconds_ |
|
completed |
Integer |
|
Recommended |
Checks if completed |
0::3
|
0=No; 1=Yes; 2=Yes, lost; 3=Unverified
|
finished |
|
date_updated |
Date |
|
Recommended |
Date record updated |
|
|
recordeddate |
|
externalreference |
String |
255
|
Recommended |
External Data Reference |
|
|
|
|
bai_cat |
String |
10
|
Recommended |
Category based on Total score |
Minimal; Mild; Moderate; Severe
|
0-7=Minimal; 8-15= Mild; 16-25=Moderate; 26-63=Severe
|
|
|
sample |
Integer |
|
Recommended |
Training or randomized case |
1::5
|
1 = randomized; 2 = training; 3=randomized-control; 4=randomized-intervention; 5=concurrent cohort-intervention
|
|
|
studynumber |
Integer |
|
Recommended |
IRB protocol number |
|
|
|
|
bai_t |
Integer |
|
Recommended |
T-score |
0::999
|
|
|
|
bai_p |
String |
20
|
Recommended |
Percentile score for bai |
|
|
|
|
bai_ci_low |
Integer |
|
Recommended |
CI Low Score |
0::999
|
|
|
|
bai_ci_high |
Integer |
|
Recommended |
CI High Score |
0::999
|
|
|
|
ref_child_id |
String |
50
|
Recommended |
Referencing Child ID how it is defined in lab/project |
|
|
|
|
trtarm |
String |
200
|
Recommended |
Treatment arm |
|
|
treatment |
|
ptpr |
Integer |
|
Recommended |
Please indicate the status of the participant |
1;2
|
1=Patient; 2=Partner
|
|
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
|
bai_youth8 |
Integer |
|
Recommended |
In the past two weeks... I''m afraid I might get hurt |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth9 |
Integer |
|
Recommended |
In the past two weeks... I worry I might get bad grades |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth10 |
Integer |
|
Recommended |
In the past two weeks... I worry about the future |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth11 |
Integer |
|
Recommended |
In the past two weeks... My hands shake |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth12 |
Integer |
|
Recommended |
In the past two weeks... I worry I might go crazy |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth13 |
Integer |
|
Recommended |
In the past two weeks... I worry people might get mad at me |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth14 |
Integer |
|
Recommended |
In the past two weeks... I worry I might lose control |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth15 |
Integer |
|
Recommended |
In the past two weeks... I worry |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth16 |
Integer |
|
Recommended |
In the past two weeks... I have problems sleeping |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth17 |
Integer |
|
Recommended |
In the past two weeks... My heart pounds |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth18 |
Integer |
|
Recommended |
In the past two weeks... I get shaky |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth19 |
Integer |
|
Recommended |
In the past two weeks... I''m afraid that something bad might happen to me |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth20 |
Integer |
|
Recommended |
In the past two weeks... I''m afraid that I might get sick |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth_tot |
Integer |
|
Recommended |
Beck Anxiety Inventory - Youth Total Score |
0::60;999
|
999= Missing/NA
|
|
|
bai_youth1 |
Integer |
|
Recommended |
In the past two weeks... I worry someone might hurt me at school |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth2 |
Integer |
|
Recommended |
In the past two weeks... My dreams scare me |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth3 |
Integer |
|
Recommended |
In the past two weeks... I worry when I''m at a school |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth4 |
Integer |
|
Recommended |
In the past two weeks... I think about scary things |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth5 |
Integer |
|
Recommended |
In the past two weeks... I worry people might tease me |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth6 |
Integer |
|
Recommended |
In the past two weeks... I''m afraid that I will make mistakes |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|
|
bai_youth7 |
Integer |
|
Recommended |
In the past two weeks... I get nervous |
0::3;999
|
0= Never; 1= Sometimes; 2= Often; 3= Always; 999= Missing/NA
|
|