Loading...

National Institute of Mental Health Data Archive (NDA) Sign In
NDA

Enter the email address associated with your existing NDA Account and click Continue Linking Process.

If you do not have an existing NDA account, click Go Back.

Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
National Institute of Mental Health Data Archive (NDA) Sign In
NDA

Success! An email is on its way!

Please check your email to complete the linking process. The link you receive is only valid for 30 minutes.

Check your spam or junk folder if you do not receive the email in the next few minutes.

Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
Create or Link an Existing NDA Account

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

NIMH Data Archive (NDA) Sign In or Create An Account
Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;
Update Password

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
Data Access Terms - Decline Terms

Are you sure you want to cancel? This will decline terms and you will not be authorized for access.

NIMH Data Archive
Filter Cart
No filters selected
Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
helpcenter.filter-cart

NDA Help Center

Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
Contact NDA Help Desk
Switch User

BIDD Demographics

1,423 Shared Subjects

Demographics Form for Behavioral Inflexibility in Intellectual and Developmental Disabilities (IDD) Project
Clinical Assessments
Demographics
01/15/2019
bidddemo01
01/17/2020
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project pid, userid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY date_of_form_completion, datecomp
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender, tcgender
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
respondent String 20 Recommended Respondent Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other informant
race String 30 Recommended Race of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
child_race
otherrace String 100 Recommended specify other race The following questions are about you or the child's family.
ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
child_hispanic
informant_gender String 5 Recommended Sex of the respondent M; F M = Male; F = Female caregiver_sex, pcgender
resp_race String 150 Recommended Respondent's race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
caregiver_race, informant_race, pcrace
fs_v1_q49a_resp_ethnicity String 30 Recommended Full Screener (Visit 1): Q49a respondent ethnicity (choices are Hispanic/Latino or Not Hispanic/Latino)
Hispanic or Latino;Not Hispanic or Latino;Not Provided
caregiver_hispanic, informant_ethnicity, pchispan
Query briefscreen_respondent_age_yrs Integer Recommended age of Respondent in years informant_age, pcage
Query mother_age Integer Recommended Mother's age 0 :: 1200 age_of_mother
Query father_age Integer Recommended Father's age 0 :: 1200 age_of_father
Query educational_placement Integer Recommended Type of educational placement
1::6;999
1= General Education; 2= Special Education; 3= General and Special Education; 4= Home Schooling; 5= None; 6= Other; 999=Missing tceduplace, type_of_educational_placement
child_school String 20 Recommended If child is currently in school, what grade is your child in? school_grade
Query informant_education_level Integer Recommended Highest education level of the respondent 1::6;999 1=Advanced graduate or professional degree; 2=College graduate; 3=Some college or post high school; 4=High school graduate; 5=Some high school; 6=Eighth grade or less pceduc
Query mother_education_level Integer Recommended Highest education level of mother 1::6;999 1=Advanced graduate or professional degree; 2=College graduate; 3=Some college or post high school; 4=High school graduate; 5=Some high school; 6=Eighth grade or less
Query father_education_level Integer Recommended Highest education level of father 1::6;999 1=Advanced graduate or professional degree; 2=College graduate; 3=Some college or post high school; 4=High school graduate; 5=Some high school; 6=Eighth grade or less
Query household_income Integer Recommended Household income 1 ::5; 999 1= >$90,000; 2=$60,001-$90,000; 3=$40,001-$60,000; 4=$20,000-$40,000; 5=Less than $20,000 hhincome
Query other_children_asd_diag Integer Recommended Parent has other children with ASD diagnosis
0::2
0= No; 1= Yes; 2= Not Applicable other_children_with_asd_diagnosis, pcothasdkids
Query autism_spectrum_disorder Integer Recommended Subject has autism spectrum disorder diagnosis
0;1
0= No; 1= Yes tcasd
Query verbal_ability Integer Recommended Subject level of verbal ability 1 :: 4; 999 1=My child has no meaningful words; 2=My child has at least 10 single words but does not often use 2-3 word phrases; 3=My child consistently uses 2-3 word phrases; 4=My child uses complete sentences most of the time; 999=Missing tcverbabil
Query iq_level Integer Recommended Subject IQ level 1 :: 4; 999 1=Below average IQ; 2=Average IQ; 3=Above average IQ; 4=Unknown; 999=Missing tciqlevel
Query diag_adhd Integer Recommended Subject diagnosed with Attention Deficit/Hyperactivity Disorder
0;1;999
0= No; 1= Yes; 999= Missing tcadhd
Query diag_opp_defiant Integer Recommended Subject diagnosed with Oppositional Defiant Disorder/Conduct Disorder
0;1;999
0= No; 1= Yes; 999= Missing tcoddcd
Query diag_anxiety Integer Recommended Subject diagnosed with Any Anxiety Disorder (separation anxiety, social phobia, generalized anxiety, etc)
0;1;999
0= No; 1= Yes; 999= Missing tcanxiety
Query diag_depression Integer Recommended Subject diagnosed with Depression
0;1;999
0= No; 1= Yes; 999= Missing tcdepress
Query diag_bipolar Integer Recommended Subject diagnosed with Bipolar Disorder/Manic Depression
0;1;999
0= No; 1= Yes; 999= Missing tcbipolar
Query diag_mental_ret Integer Recommended Subject diagnosed with Mental Retardation/Intellectual Disability
0;1;999
0= No; 1= Yes; 999= Missing tcmentalret
Query diag_none_of_the_above Integer Recommended Subject diagnosed with non of the above disorders
0;1;999
0= No; 1= Yes; 999= Missing tcdiagnone
diag_other_specify String 60 Recommended Subject diagnosed with Other specify diagoths
demo_resp_status Integer Recommended respondent's marital status 1::13 1 = Married; 2 = Remarried; 3 = Live with partner (not married); 4 = Separated; 5 = Divorced; 6 = Single (never married); 7 = Widowed; 8=Married or Living Together;9 = Missing/Not Applicable; 10 = Other; 11=Refused to answer; 12= Engaged; 13=Civil union resp_marital, rmarital
change_edu_placement Integer Recommended Change to educational placement 0;1 0= No; 1= Yes chgeduplc
medhx_abpain_other String 255 Recommended If diagnosed/suspected by other, specify:
health_probs_gi Integer Recommended Health problems - Gastrointestinal 0;1 0= No; 1= Yes hlthprobgi
health_probs_epi Integer Recommended Health problems - Epilepsy/Seizures 0;1 0= No; 1= Yes hlthprobes
health_probs_sleep Integer Recommended Health problems - Sleep disturbance 0;1 0= No; 1= Yes hlthprobsd
ph_14d String 100 Recommended Please describe your child's other health problem(s): Additional problems hlthprobss
change_health_probs Integer Recommended Change to health problems 0;1 0= No; 1= Yes chghealth
recent_injury_illness Integer Recommended Recent injury or illness 0;1 0= No; 1= Yes recentinj
injury_illness_describe String 200 Recommended Recent injury or illness -describe injlist
behavior_meds Integer Recommended Is your child taking any prescribed medication for issues related to behavior 0;1 0= No; 1= Yes takemeds
med_list String 200 Recommended List of prescribed medications for issues related to behavior medlist
change_meds Integer Recommended Change to behavioral medication 0;1 0= No; 1= Yes chgmeds
speech_therapy Integer Recommended Speech/language therapy outside of school 0;1 0= No; 1= Yes spchlang
speech_therapy_hours Float Recommended Speech/language therapy outside of school hours/month 0.5 :: 60 spchlanghrs
occup_therapy Integer Recommended Occupational therapy outside of school 0;1 0= No; 1= Yes occther
occup_therapy_hours Float Recommended Occupational therapy outside of school hours/month 0.5 :: 60 occtherhrs
physical_therapy Integer Recommended Physical therapy outside of school 0;1 0= No; 1= Yes physther
physical_therapy_hours Float Recommended Physical therapy outside of school hours/month 0.5 :: 60 phystherhrs
pdd_autism Integer Recommended Pervasive Developmental Disorder -Autism 0;1 0= No; 1= Yes autism
counseling Integer Recommended Counseling outside of school 0;1 0= No; 1= Yes counsel
counseling_hours Float Recommended Counseling outside of school hours/month 0.5 :: 60 counselhrs
social_skills_group Integer Recommended Social skills group outside of school 0;1 0= No; 1= Yes socskill
social_skills_group_hours Float Recommended Social skills group outside of school hours/month 0.5 :: 60 socskillhrs
vocational_rehab Integer Recommended Vocational rehabilitation outside of school 0;1 0= No; 1= Yes vocrehab
vocational_rehab_hours Float Recommended Vocational rehabilitation outside of school hours/month 0.5 :: 60 vocrehabhrs
other_services Integer Recommended Other services outside of school 0;1 0= No; 1= Yes othsrvc
asap10jd String 300 Recommended outside clinicians/services: Other - specify other_services_specify, othsrvcot
other_services_hours Float Recommended Other services outside of school hours/month 0.5 :: 60 othsrvchrs
pdd_asperger Integer Recommended Pervasive Developmental Disorder -Asperger 0;1 0= No; 1= Yes asperger
pdd_nos Integer Recommended Pervasive Developmental Disorder -Not Otherwise Specified 0;1 0= No; 1= Yes pddnos
pdd_autism_age Integer Recommended Pervasive Developmental Disorder -Autism diagnosis age autismage
pdd_asperger_age Integer Recommended Pervasive Developmental Disorder -Asperger diagnosis age aspergerage
pdd_nos_age Integer Recommended Pervasive Developmental Disorder -Not Otherwise Specified diagnosis age pddnosage
diag_other Integer Recommended Subject diagnosed with Other 0;1;999 0= No; 1= Yes; 999= Missing diagoth
pdd_life Integer Recommended Lifetime diagnosis of Pervasive Developmental Disorder 1;0 1 = present;0 = absent pdd_asd
hup2cyr Float Recommended Pervasive developmental disorder - age when noticed or diagnosed pdd_asd_age
diag_praderwilli_how Integer Recommended How subject diagnosed with Prader Willi Syndrome 1::3 1= As a newborn; 2= Before 3 years of age (but after newborn period); 3= After 3 years of age
w1_m_cu_healthpx Integer Recommended health at interview - has a history of other health problems 0;1; -888; -999 0 = No; 1 = Yes; -999 = missing; -888 = not applicable health_probs_other
health_probs_nota Integer Recommended Health problems - None of the above 0;1 0= No; 1= Yes
demo_pri_employment Integer Recommended Is the Primary Reporter employed? 0;1 0= No; 1= Yes informant_employed
child_fxs String 25 Recommended Has child been diagnosed with or experiencing symptoms of fragile x syndrome?
No; Experiencing Symptoms; Diagnosed
Parent report diag_fragilex
child_ds String 25 Recommended Has child been diagnosed with or experiencing symptoms of Down syndrome?
No; Experiencing Symptoms; Diagnosed
Parent report diag_down
medprob_genprader String 50 Recommended Child have Prader Willi Syndrome?
Yes;No;999
999=NA/missing diag_praderwilli
diag_down_how Integer Recommended How subject diagnosed with Down Syndrome 1::8 1= Prenatal screening test - Blood test in 1st trimester; 2= Prenatal screening test - Ultrasound in 1st trimester; 3= Prenatal screening test - Blood test in 2nd trimester; 4= Prenatal screening test - Combined test (blood test and ultrasound in 1st trimester and blood test in 2nd trimester; 5= Prenatal diagnostic test - Amniocentesis; 6= Prenatal diagnostic test - Chorionic villus sampling (CVS); 7= Prenatal diagnostic test - Percutaneous umbilical blood sampling (PUBS); 8= After birth
type_down Integer Recommended Type of Down Syndrome 1::4 1= Trisomy 21; 2= Mosaicism; 3= Translocation; 4= Unknown
diag_fragilex_how Integer Recommended How subject diagnosed with Fragile X Syndrome 1::4 1= Prenatal testing - Amniocentesis; 2= Prenatal testing - Chorionic Villus Sampling (CVS); 3= After birth - Before 24 months of age; 4= After birth - After 24 months of age
session Integer Recommended Session
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.