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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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Binge Eating Scale

20 Shared Subjects

N/A
Clinical Assessments
Eating Disorder
06/02/2020
binge01
02/16/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
bingees01 Integer Recommended Eating Habit #1 0::3;-7 0=I don't feel self-conscious about my weight or body size when I'm with others or I feel concerned about how I look to others, but it normally does not make me feel disappointed with myself; 1=I do get self-conscious about my appearance and weight which makes me feel disappointed in myself; 3=I feel very self-conscious about my weight and frequently, I feel intense shame and disgust for myself. I try to avoid social contacts because of my self-consciousness; -7=missing bes1
bingees02 Integer Recommended Eating Habit #2 0::3;-7 0=I don't have any difficulty eating slowly in the proper manner; 1=Although I seem to "gobble down" foods, I don't end up feeling stuffed because of eating too much; 2=At times I tend to eat quickly and then I feel uncomfortably full afterwards; 3=I have the habit of bolting down my food without really chewing it. When this happens I usually feel uncomfortably stuffed because I've eaten too much; -7=missing bes2
bingees03 Integer Recommended Eating Habit #3 0::3;-7 0=I feel capable to control my eating urges when I want to; 1=I feel like I have failed to control my eating more than the average person; 3=I feel utterly helpless when it comes to feeling in control of my eating urges or Because I feel so helpless about controlling my eating I have become very desperate about trying to get it in control; -7=missing bes3
bingees04 Integer Recommended Eating Habit #4 0::2; -7 0=I don't have the habit of eating when I'm bored or I sometimes eat when I'm bored, but often I'm able to "get busy" and get my mind off food, or I have a regular habit of eating when I'm bored, but occasionally I can use some other activitiy to get my mind off eating; 2=I have a strong habit of eating when I'm bored and Nothing seems to help me break the habit; -7=missing bes4
bingees05 Integer Recommended Eating Habit #5 0::3;-7 0=I'm ususally physically hungry when I eat something; 1=Occasionally I eat something on impulse even though I really am not hungy; 2=I have the regular habit of eating foods that I might not really enjoy to satisfy a hungry feeling even though physically I don't need the food; 3=Even though I'm not physically hungry I get a hungry feeling in my mouth that only seems to be satisfied when I eat a food, like a sandwich, that fills my mouth. Sometimes when I eat the food to satisfy my mouth hunger, I then spit the food out so I won't gain weight; -7=missing bes5
bingees06 Integer Recommended Eating Habit #6 0::3;-7 0=I don't feel any guilt or self-hate after I overeat; 1=After I overeat, occasionally I feel gult or self-hate; 3=Almost all the time I experience strong guilt or self-hate after I overeat; -7=missing bes6
bingees07 Integer Recommended Eating Habit #7 0::3;-7 0=I don't lose total control of my eating when dieting even after periods when I overeat; 2=Sometimes when I eat a "forbidden food" on a diet, I feel like I "blew it" and eat even more; 3=Frequently, I have the habit of saying to myself, "I've blown it now, why not go all the way" when I overeat on a diet. When that happens I eat even more. or I have a regular habit of starting strict diets for myself, but I break the diets by going on an eating binge. My life seems to be either a "feast" or "famine"; -7=missing bes7
bingees08 Integer Recommended Eating Habit #8 0::3; -7 0=I rarely eat so much food that I feel uncomfortably stuffed afterwards; 1=Usually about once a month, I eat such a quantity of food, I end up feeling very stuffed; 2=I have regular periods during the month when I eat large amounts of food, either at mealtime or at snacks; 3=I eat so much food that I regularly feel quite uncomfortable after eating and sometimes a bit nauseous; -7=missing bes8
bingees09 Integer Recommended Eating Habit #9 0::3; -7 0=My level of calorie intake does not go up very high or go down very low on a regular basis; 1=Sometimes after I overeat, I will try to reduce my caloric intake to almost nothing to compensate for the excess calories I've eaten; 2=I have a regular habit of overeating during the night. It seems that my routine is not to be hungry in the morning but overeat in the evening; 3=In my adult years, I have had week-long periods where I practically starve myself. This follows periods when I overeat. It seems I live a life of either "feast or famine"; -7=missing bes9
bingees10 Integer Recommended Eating Habit #10 0::3; -7 0=I usually am able to stop eating when I want to. I know when "enough is enough"; 1=Every so often, I experience a compulsion to eat which I can't seem to control; 2=Frequently, I experience strong urges to eat which I seem unable to control, but at other times I can control my eating urges; 3=I feel incapable of controlling urges to eat. I have a fear of not being able to stop eating voluntarily; -7=missing bes10
bingees11 Integer Recommended Eating Habit #11 0::3; -7 0=I don't have any problem stopping eating when I feel full; 1=I usually can stop eating when I feel full but occasionally overeat leaving me feeling uncomfortably stuffed; 2=I have a problem stopping eating once I start and usually I feel uncomfortably stuffed after I eat a meal; 3=Because I have a problem not being able to stop eating when I want, I sometimes have to induce vomiting to relieve my stuffed feeling; -7=missing bes11
bingees12 Integer Recommended Eating Habit #12 0::3; -7 0=I seem to eat just as much when I'm with others (family, social gatherings) as when I'm by myself; 1=Sometimes, when I'm with other persons, I don't eat as much as I want to eat because I'm self-conscious about my eating; 2=Frequently, I eat only a small amount of food when others are present, because I'm embarrassed about my eating; 3=I feel so ashamed about overeating that I pick times to overeat when I know no one will see me. I feel like a "closet eater"; -7=missing bes12
bingees13 Integer Recommended Eating Habit #13 0::3;-7 0=I eat three meals a day with only an occasional between meal snack or I eat 3 meals a day, but I also normally snack between meals; 2=When I am snacking heavily, I get in the habit of skipping regular meals; 3=There are regular periods when I seem to be continually eating, with no planned meals; -7=missing bes13
bingees14 Integer Recommended Eating Habit #14 0::3; -7 0=I don't think much about trying to control unwanted eating urges; 1=At least some of the time, I feel my thoughts are pre-occupied with trying to control my eating urges; 2=I feel that frequently I spend much time thinking about how much I ate or about trying not to eat anymore; 3=It seems to me that most of my waking hours are pre-occupied by thoughts about eating or not eating. I feel like I'm constantly struggling not to eat; -7=missing bes14
bingees15 Integer Recommended Eating Habit #15 0::3; -7 0=I don't think about food a great deal; 1=I have strong cravings for food but they last only for brief periods of time; 2=I have days when I can't seem to think about anything else but food; 3=Most of my days seem to be pre-occupied with thoughts about food. I feel like I live to eat; -7=missing bes15
bingees16 Integer Recommended Eating Habit #16 0::2; -7 0=I usually know whether or not I'm physically hungry. I take the right portion of food to satisfy me; 1=Occasionally, I feel uncertain about knowing whether or not I'm physically hungry. At these times it's hard to know how much food I should take to satisfy me; 2=Even though I might know how many calories I should eat, I don't have any idea what is a "normal" amount of food for me; -7=missing bes16
bingees_sev Integer Recommended Binge Eating Scale Severity Score 1::3 1= None; 2= Moderate; 3= Severe
bingess_tot Integer Recommended Binge Eating Scale Total Score
visit String 60 Recommended Visit name
trtarm String 200 Recommended Treatment arm treatment
ptpr Integer Recommended Please indicate the status of the participant 1;2 1=Patient; 2=Partner
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.