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BIOS Demographic Form

522 Shared Subjects

N/A
Clinical Assessments
Demographics
06/09/2017
bios_dem01
06/13/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY adate
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query visit String 60 Recommended Visit name tpoint
ethnicity String 30 Recommended Ethnicity of participant Hispanic or Latino; Not Hispanic or Latino; Unknown ethnic
race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
grade String 50 Recommended Current Grade
grade2 Integer Recommended School placement - Current grade 0::15 0=kindergarten
osig Integer Recommended If offspring is under 18: Lives with other significant caretaker? 0; 1 0 = No; 1 = Yes
osigrel Integer Recommended If offspring is under 18 and lives with other significant caretaker: Caretaker's relationship to subject 1::7 1 = Foster Mother; 2 = Foster Father; 3 = Grandmother; 4 = Grandfather; 5 = Aunt; 6 = Uncle; 7 = Other
ocreloth String 50 Recommended OTHER SIGNIFICANT CARETAKER (lives with subject, if applicable)
osigyear Integer Recommended If offspring is under 18 and lives with other significant caretaker: How long has subject lived with caretaker? Years
osigmo Integer Recommended If offspring is under 18 and lives with other significant caretaker: How long has subject lived with caretaker? Months
bios_livewith Integer Recommended If offspring is under 18: With whom is subject currectly living (choose one)? 1::20; 88 1 = Both natural parents; 2 = natural parents, but joint custody; 3 = Natural mother and stepfather; 4 = Natural father and stepmother; 5 = Natural mother and boyfriend/girlfriend; 6 = Natural father and boyfriend/girlfriend; 7 = Natural mother only; 8 = Natural father only; 9 = Stepmother only; 10 = Stepfather only; 11 = Grandparent; 12 = Adoptive parent; 13 = Other relative/friend; 14 = Foster home; 15 = Group home; 16 = Residential institution; 17 = Boarding home; 18 = Runaway; 19 = College student; 20 = Lives independently; 88 = Other livewith
livewith2 String 100 Recommended If other (88) from livewith; specify
marital Integer Recommended What is your current marital status 1::9 1= never married; 2= living with someone; 3= married; 4= separated; 5=divorced; 6=widowed; 7= engaged; 8= lived with, but now single; 9= other
supt Integer Recommended Receives support if parent's divorced or separated? 0; 1 0 = No; 1 = Yes
occusame Integer Recommended Proband Only: Proband occupational info has changed since last interview? 0;1 0 = No; 1 = Yes
bios_employ Integer Recommended Proband Only: Presently employed: 0::3; 7 0 = No; 1 = Yes - part time; 2 = Yes - full time; 3 = Disability; 7 = Retired
bios_job String 25 Recommended Proband Only: Proband New Job Title
gradepro Integer Recommended Proband Only: Highest Grade Completed 12 = GED or 12th grade, 13 = College Freshmen; 14 = College Sophomore; 15 = College Junior; 16 = College Senior; 17 = Graduate work; 18 = Graduate degree (Ph.D., M.D., J.D.)
spoccusame Integer Recommended Proband Only: About Spouse (Live-in partner, or person providing support) - occupational info has changed since last interview? 0;1 0 = No; 1 = Yes
employsp Integer Recommended Proband Only: About Spouse (Live-in partner, or person providing support) - Presently emplyed? 0::3; 7 0 = No; 1 = Yes - part time; 2 = Yes - full time; 3 = Disability; 7 = Retired
jobsp String 25 Recommended Proband Only: About Spouse (Live-in partner, or person providing support) - Spouse New Job Title
gradesp Integer Recommended Proband Only: About Spouse (Live-in partner, or person providing support) - Highest Grade completed 12 = GED or 12th grade, 13 = College Freshmen; 14 = College Sophomore; 15 = College Junior; 16 = College Senior; 17 = Graduate work; 18 = Graduate degree (Ph.D., M.D., J.D.)
sesabout Integer Recommended Proband Only: SES is being completed about: 1::3 1 = Proband; 2 = Spouse/Domestic Partner/Person Providing Support; 3 = Both
bios_ses Integer Recommended Proband Only: SES of Head of Household OR Add both totals and divide by 2 8::66
sestotal Integer Recommended Proband Only: SES Total 1::5 1 = 8-19; 2 = 20 - 29; 3 = 30-39; 4 = 40-54; 5 = 55-66
adis_interviewformat Integer Recommended Interview Format 1;2; 999 1=On Phone; 2=In Person; 999 = Missing phone
livewith18 Integer Recommended Offspring over 18: With whom are you currently living (choose one)? 1::13 1 = Self; 2 = Spouse/Partner; 3 = Spouse/Partner and Children; 4 = Parent(s); 5 = Other; 6 = Other Family Members (Siblings, Grandparents, aunts, uncles - 1st and 2nd degree relatives); 7 = College/Graduate School; 8 = Post College Roomate(s) or Non-School Related Roommate(s); 9 = Residential Treatment Facility; 10 = Children Only; 11 = Military; 12 = Jail; 13 = Homeless
live18other String 100 Recommended Offspring over 18: With whom are you currently living - Specify
mstat18 Integer Recommended Offspring over 18: Marital Status: 1::6 1 = Married, living with spouse; 2 = Single, never married; 3 = Divorced; 4 = Separated; 5 = Widow(er); 6 = Domestic Partner
supt18 Integer Recommended Offspring over 18: If divorced, separated, or not living with other parent of children, receiving support? 0;1 0 = No; 1 = Yes
numchild Integer Recommended number of children
reside Integer Recommended Offsprnig over 18: Children reside with you? 0;1 0 = No; 1 = Yes
resideother String 100 Recommended Offspring over 18: If no, where do they reside?
child1age Integer Recommended Offspring over 18: Child 1 age
child2age Integer Recommended Offspring over 18: Child 2 age
child3age Integer Recommended Offspring over 18: Child 3 age
child4age Integer Recommended Offspring over 18: Child 4 age
child5age Integer Recommended Offspring over 18: Child 5 age
child6age Integer Recommended Offspring over 18: Child 6 age
emply18 Integer Recommended Offspring over 18: Are you presently employed? 0::2; 7 0 = No; 1 = Yes - part time; 2 = Yes - full time; 3 = Disability; 7 = Retired
job18 String 25 Recommended Offspring over 18: Your Job Title
grade18 Integer Recommended Offspring over 18: Highest grade completed 12 = GED or 12th grade, 13 = College Freshmen; 14 = College Sophomore; 15 = College Junior; 16 = College Senior; 17 = Graduate work; 18 = Graduate degree (Ph.D., M.D., J.D.)
spemply18 Integer Recommended Offspring over 18: Spouse/Partner presently employed? 0::2; 7 0 = No; 1 = Yes - part time; 2 = Yes - full time; 3 = Disability; 7 = Retired
jobsp18 String 25 Recommended Offspring over 18: Spouse/Partner Job Title
gradesp18 Integer Recommended Offspring over 18: Spouse/Partner Highest grade completed 12 = GED or 12th grade, 13 = College Freshmen; 14 = College Sophomore; 15 = College Junior; 16 = College Senior; 17 = Graduate work; 18 = Graduate degree (Ph.D., M.D., J.D.)
ses18 Integer Recommended Offsrping over 18: SES of Head of Household OR Add both totals and divide by 2 8::66
sestot18 Integer Recommended Offspring over 18: SES Total 1::5 1 = 8-19; 2 = 20 - 29; 3 = 30-39; 4 = 40-54; 5 = 55-66
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.