|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
subject_id |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
|
bpi_q1 |
Integer |
|
Recommended |
Throughout our lives, most of us have had pain from time to time (such as minor headaches,sprains, and toothaches). Have you had pain other than these everyday kinds of pain today? |
|
0=No; 1=Yes
|
bpi_yn |
|
bpi_q2_regions |
Integer |
|
Recommended |
Select all regions the subject indicated to have pain |
1::16
|
1= Right Head; 2= Left Head; 3= Right Shoulder; 4= Left Shoulder; 5= Right Upper Arm; 6= Left Upper Arm; 7= Right Lower Arm; 8= Left Lower Arm; 9= Right Chest; 10= Left Chest; 11= Right Abdomen; 12= Left Abdomen; 13= Right Upper Leg; 14= Left Upper Leg; 15= Right Lower Leg; 16= Left Lower Leg
|
|
|
bpi_q2_regions_other |
String |
500
|
Recommended |
Other regions |
|
|
|
|
flash_pain_rateworst |
Integer |
|
Recommended |
Worst Rating in last 24 hours |
0 :: 10; -5
|
0=0=No Pain; 1=1; 2=2; 3=3; 4=4; 5=5; 6=6; 7=7; 8=8; 9=9; 10=10=Severe Pain; -5=SKIPPED
|
bpi_1, bpi_q3_worst |
|
bpi_q4_least |
Integer |
|
Recommended |
Rate your pain at its least in the last 24 hours. |
0::10
|
0= 0 None;10= Worst
|
bpi_2 |
|
flash_pain_rateavg |
Integer |
|
Recommended |
Average Rating in last 24 hours |
0 :: 10; -5
|
0=0=No Pain; 1=1; 2=2; 3=3; 4=4; 5=5; 6=6; 7=7; 8=8; 9=9; 10=10=Severe Pain; -5=SKIPPED
|
bpi_3, bpi_q5_average |
|
pssr13_17_01 |
Integer |
|
Recommended |
How would you rate your pain right now? |
|
|
bpi_4, bpi_q6_now |
|
bpi_q7_treatments |
String |
500
|
Recommended |
What treatments or medications are you receiving for your pain? |
|
|
|
|
bpi_q8_relief |
Integer |
|
Recommended |
In the last 24 hours, how much relief have pain treatments or medications provided? Please circle the one percentage that most shows how much relief you have received. |
0::10
|
0=0%; 10= 10%; 20= 20%; 30= 30%; 40= 40%; 50= 50%; 60= 60%; 70= 70%; 80= 80%; 90= 90%; 100= 100%
|
|
|
bpi_q9a_activity |
Integer |
|
Recommended |
How much does your pain interfere with: General Activity |
0::10
|
0=Does not Interfere; 10=Completely Interferes
|
bpi5a |
|
bpi_q9b_mood |
Integer |
|
Recommended |
How much does your pain interfere with: Mood |
0::10
|
0=Does not Interfere; 10=Completely Interferes
|
bpi5b |
|
bpi_q9c_walking |
Integer |
|
Recommended |
How much does your pain interfere with: Walking Ability |
0::10
|
0=Does not Interfere; 10=Completely Interferes
|
bpi5c |
|
bpi_q9d_work |
Integer |
|
Recommended |
How much does your pain interfere with: Normal Work (includes both work outside the home and housework) |
0::10
|
0=Does not Interfere; 10=Completely Interferes
|
bpi5d |
|
bpi_q9e_relations |
Integer |
|
Recommended |
How much does your pain interfere with: Relations with other people |
0::10
|
0=Does not Interfere; 10=Completely Interferes
|
bpi5e |
|
bpi_q9f_sleep |
Integer |
|
Recommended |
How much does your pain interfere with: Sleep |
0::10
|
0=Does not Interfere; 10=Completely Interferes
|
bpi5f |
|
bpi_q9g_life |
Integer |
|
Recommended |
How much does your pain interfere with: Enjoyment of life |
0::10
|
0=Does not Interfere; 10=Completely Interferes
|
bpi5g |
|
time_assess |
String |
20
|
Recommended |
Time of day the assessment was taken. Hour:minutes |
|
|
bpi_time |
|
psychosis_demo3 |
Integer |
|
Recommended |
Marital Status: What is your current marital status? |
1 :: 7
|
1= Presently Married (or in conjugal relationship) ; 2= Widowed ; 3= Divorced / Separated ; 4= Never Married/Single; 5= Separated; 6= Remarried; 7= Unknown
|
|
|
demo_p_part_grade_comp_2 |
String |
20
|
Recommended |
Respondent highest grade completed: |
|
|
|
|
degree_sp |
String |
20
|
Recommended |
Specify other type of college degree |
|
|
|
|
spc_ptcu |
String |
255
|
Recommended |
Specify Occupation and Size of Business- Patient current |
|
|
|
|
demo_partner_occupation |
String |
100
|
Recommended |
Spouse/partner Occupation |
|
|
|
|
employcur |
Integer |
|
Recommended |
current employment status |
1::12;-7
|
1=Full time; 2=Part time for pay; 3=Homemaker; 4=Incarcerated; 5=Disabled; 6=Leave of absence; 7=Unemployed; 8=Retired; 9=Other; 10=Student; 11=Volunteer; -7=Refused; 12 = Maternity leave
|
|
|
bpi_16 |
Integer |
|
Recommended |
How long has it been since you first learned your diagnosis? (in months) |
|
|
|
|
bpi_17 |
Integer |
|
Recommended |
Have you ever had pain due to your present disease? |
1::3
|
1= Yes; 2= No; 3= Uncertain
|
|
|
bpi_18 |
Integer |
|
Recommended |
When you first received your diagnosis, was pain one of your symptoms? |
1::3
|
1= Yes; 2= No; 3= Uncertain
|
|
|
mh_surg |
Integer |
|
Recommended |
Have you recently (within last month) had surgery |
0; 1
|
0=No; 1=Yes
|
|
|
bpi_20 |
String |
50
|
Recommended |
If you have had surgery in the past month, what kind? |
|
|
|
|
bpi_21 |
Integer |
|
Recommended |
Did you take pain medications in the last 7 days? |
1;2
|
1= Yes; 2= No
|
|
|
bpi_22 |
Integer |
|
Recommended |
I feel I have some form of pain now that requires medication each and every day |
1;2
|
1= Yes; 2= No
|
|
|
bpi_23 |
String |
20
|
Recommended |
On the diagram, put an x on the area that hurts the most |
|
|
|
|
bpi_24 |
String |
200
|
Recommended |
What kinds of things make your pain feel better? |
|
|
|
|
bpi_25 |
String |
200
|
Recommended |
What kinds of things make your pain feel worse? |
|
|
|
|
bpi_26 |
Integer |
|
Recommended |
In the last week, how much relief have pain treatments or medications provided? Please circle the one percentage that most shows how much relief you have received. |
0::10
|
0=0%; 10= 10%; 20= 20%; 30= 30%; 40= 40%; 50= 50%; 60= 60%; 70= 70%; 80= 80%; 90= 90%; 100= 100%
|
|
|
bpi_27 |
Integer |
|
Recommended |
If you take pain medication, how many hours does it take before the pain returns |
1::8
|
1= Pain medication doesn't help at all; 2= One hour; 3= Two hours; 4= Three hours; 5= Four Hours; 6= Five to Twelve Hours; 7= More than Twelve Hours; 8= I do not take pain medication
|
|
|
bpi_28 |
Integer |
|
Recommended |
I believe my pain is due to: The effects of treatment (for example, medication, surgery, radiation, prosthetic device). |
1;2
|
1= Yes; 2= No
|
|
|
bpi_29 |
Integer |
|
Recommended |
I believe my pain is due to: My primary disease (meaning the disease currently being treated and evaluated) |
1;2
|
1= Yes; 2= No
|
|
|
bpi_30 |
Integer |
|
Recommended |
I believe my pain is due to: A medical condition unrelated to my primary disease (for example, arthritis) |
1;2
|
1= Yes; 2= No
|
|
|
bpi_31 |
String |
200
|
Recommended |
Describe medical condition unrealted to primary disease |
|
|
|
|
bpi_32 |
Integer |
|
Recommended |
Type of Pain: Aching |
1;2
|
1= Yes; 2= No
|
|
|
bpi_33 |
Integer |
|
Recommended |
Type of Pain: Throbbing |
1;2
|
1= Yes; 2= No
|
|
|
bpi_34 |
Integer |
|
Recommended |
Type of Pain: Shooting |
1;2
|
1= Yes; 2= No
|
|
|
bpi_35 |
Integer |
|
Recommended |
Type of Pain: Stabbing |
1;2
|
1= Yes; 2= No
|
|
|
bpi_36 |
Integer |
|
Recommended |
Type of Pain: Gnawing |
1;2
|
1= Yes; 2= No
|
|
|
bpi_37 |
Integer |
|
Recommended |
Type of Pain: Sharp |
1;2
|
1= Yes; 2= No
|
|
|
bpi_38 |
Integer |
|
Recommended |
Type of Pain: Tender |
1;2
|
1= Yes; 2= No
|
|
|
bpi_39 |
Integer |
|
Recommended |
Type of Pain: Burning |
1;2
|
1= Yes; 2= No
|
|
|
bpi_40 |
Integer |
|
Recommended |
Type of Pain: Exhausting |
1;2
|
1= Yes; 2= No
|
|
|
bpi_41 |
Integer |
|
Recommended |
Type of Pain: Tiring |
1;2
|
1= Yes; 2= No
|
|
|
bpi_42 |
Integer |
|
Recommended |
Type of Pain: Penetrating |
1;2
|
1= Yes; 2= No
|
|
|
bpi_43 |
Integer |
|
Recommended |
Type of Pain: Nagging |
1;2
|
1= Yes; 2= No
|
|
|
bpi_44 |
Integer |
|
Recommended |
Type of Pain: Numb |
1;2
|
1= Yes; 2= No
|
|
|
bpi_45 |
Integer |
|
Recommended |
Type of Pain: Miserable |
1;2
|
1= Yes; 2= No
|
|
|
bpi_46 |
Integer |
|
Recommended |
Type of Pain: Unbearable |
1;2
|
1= Yes; 2= No
|
|
|
bpi_47 |
Integer |
|
Recommended |
I prefer to take my pain medicine |
1::3
|
1= On a regular basis; 2= Only when necessary; 3= Do not take pain medicine
|
|
|
bpi_48 |
Integer |
|
Recommended |
I take my pain medicine (in a 24 hour period): |
1::5
|
1= Not every day; 2= 1 to 2 times per day; 3= 3 to 4 times per day; 4= 5 to 6 times per day; 5= More than 6 times per day
|
|
|
bpi_49 |
Integer |
|
Recommended |
Do you feel you need a stronger type of pain medication? |
1::3
|
1= Yes; 2= No; 3= Uncertain
|
|
|
bpi_50 |
Integer |
|
Recommended |
Do you feel you need to take more of the pain medication than your doctor has prescribed? |
1::3
|
1= Yes; 2= No; 3= Uncertain
|
|
|
bpi_51 |
Integer |
|
Recommended |
Are you concerned that you use too much pain medicaiton? |
1::3
|
1= Yes; 2= No; 3= Uncertain
|
|
|
bpi_52 |
String |
200
|
Recommended |
If you are concerned, explain why |
|
|
|
|
bpi_53 |
Integer |
|
Recommended |
Are you having problems with side effects from your pain medication? |
1;2
|
1= Yes; 2= No
|
|
|
bpi_54 |
String |
50
|
Recommended |
Explain side effects from pain medication |
|
|
|
|
bpi_55 |
Integer |
|
Recommended |
Do you feel you need to receive further information about your pain medication |
1;2
|
1= Yes; 2= No
|
|
|
bpi_56 |
Integer |
|
Recommended |
Other methods I use to relieve my pain include: Warm Compress |
1;2
|
1= Yes; 2= No
|
|
|
bpi_57 |
Integer |
|
Recommended |
Other methods I use to relieve my pain include: Cold Compress |
1;2
|
1= Yes; 2= No
|
|
|
bpi_58 |
Integer |
|
Recommended |
Other methods I use to relieve my pain include: Distraction |
1;2
|
1= Yes; 2= No
|
|
|
bpi_59 |
Integer |
|
Recommended |
Other methods I use to relieve my pain include: Relaxation Techniques |
1;2
|
1= Yes; 2= No
|
|
|
bpi_60 |
Integer |
|
Recommended |
Other methods I use to relieve my pain include: Biofeedback |
1;2
|
1= Yes; 2= No
|
|
|
bpi_61 |
Integer |
|
Recommended |
Other methods I use to relieve my pain include: Hypnosis |
1;2
|
1= Yes; 2= No
|
|
|
bpi_62 |
Integer |
|
Recommended |
Other methods I use to relieve my pain include: Other |
1;2
|
1= Yes; 2= No
|
|
|
bpi_63 |
String |
50
|
Recommended |
Specify other method used to releive pain |
|
|
|
|
bpi_64 |
String |
200
|
Recommended |
Medications not prescribed by my doctor include: |
|
|
|
|
rateworst1wk |
Integer |
|
Recommended |
Worst Rating in last 1 week |
0 :: 10; -5
|
0 = No Pain; 10 = Severe Pain; -5=SKIPPED
|
|
|
bpi_q4_least1wk |
Integer |
|
Recommended |
Rate your pain at its least in the Last 1 week |
0::10
|
0= None; 10 = Worst
|
|
|
rateavg1wk |
Integer |
|
Recommended |
Average Rating in last 1 week |
0 :: 10; -5
|
0 = No Pain; 10 = Severe Pain; -5=SKIPPED
|
|
|
c_pain1 |
Integer |
|
Recommended |
What number best describes your pain, on average? |
0::10;888;999
|
0 = No Pain;1;2;3;4;5;6;7;8;9; 10 = Pain as bad as you can imagine; 888 = Don't Know; 999 = Refuse
|
pegavgpainpastweekscl |
|
c_pain2 |
Integer |
|
Recommended |
During the past 7 days, what number best describes how pain has interfered with your enjoyment of life? |
0::10;888;999
|
0 = Does not interfere;1;2;3;4;5;6;7;8;9; 10 = Completely interferes; 888 = Don't Know; 999 = Refuse
|
pegpainpastwkenjoylifescl |
|
c_pain3 |
Integer |
|
Recommended |
During the past 7 days, what number best describes how pain has interfered with your general activity? |
0::10;888;999
|
0 = Does not interfere;1;2;3;4;5;6;7;8;9; 10 = Completely interferes; 888 = Don't Know; 999 = Refuse
|
pegpainpastwkgenrlactscl |
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|
|
cp_screener_1 |
Integer |
|
Recommended |
1. How long has pain been an ongoing problem for you? |
1 :: 6
|
1= Less than 1 month; 2= 1-3 months; 3= 3-6 months; 4= 6 months-1 year; 5= 1-5 years; 6= more than 5 years
|
|
|
cp_screener_2 |
Integer |
|
Recommended |
2. How often has pain been an ongoing problem for you over past 6 months? |
1 :: 3
|
1= Every day or nearly every day in the past 6 months; 2= At least half the days in the past 6 months; 3= Less than half the days in the past 6 months
|
|
|
cp_screener_threshold |
Integer |
|
Recommended |
Threshold Value: Ongoing pain problem for 3-6 month or greater and at least half the day in the past 6 month or greater |
0;1
|
(cp_screener_1 >= 3) or (cp_screener_2) <= 2)
|
|
|
pegoverallscore |
Integer |
|
Recommended |
PEG - overall score |
|
|
|
|
c_pain1_3months |
Integer |
|
Recommended |
Over the PAST 3 MONTHS, on a scale of 0 - 10, with 0 representing 'no pain' and 10 representing 'pain as bad as you can imagine' what number best describes your pain, on average? |
0::10;888;999
|
0 = No Pain;1;2;3;4;5;6;7;8;9; 10 = Pain as bad as you can imagine; 888 = Don't Know; 999 = Refuse
|
|
|
pi_short_7_2w |
Integer |
|
Recommended |
In the past 2 weeks: How much does pain interfere with your household chores? |
1::5
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much
|
|
|
pi_short_8_2w |
Integer |
|
Recommended |
In the past 2 weeks: How much does pain interfere with the things you usually do for fun? |
1::5
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much
|
|
|
pi_short_9_2w |
Integer |
|
Recommended |
In the past 2 weeks: How much does pain interfere with your enjoyment of social activities? |
1::5
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much
|
|
|
pi_short_10_2w |
Integer |
|
Recommended |
In the past 2 weeks: How much does pain interfere with your enjoyment of life? |
1::5
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much
|
|
|
pi_short_11_2w |
Integer |
|
Recommended |
In the past 2 weeks: How much does pain interfere with your family life? |
1::5
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much
|
|
|
pi_short_0_2w |
Integer |
|
Recommended |
Do you have pain? |
0;1
|
0 = No; 1 = Yes
|
|
|
pi_short_1_2w |
Integer |
|
Recommended |
In the past 2 weeks: How intense is your pain at its worst? |
1::5
|
1 = Had no pain; 2 = Mild; 3 = Moderate; 4 = Severe; 5 = Very Severe
|
|
|
pi_short_2_2w |
Integer |
|
Recommended |
In the past 2 weeks: How intense is your average pain? |
1::5
|
1 = Had no pain; 2 = Mild; 3 = Moderate; 4 = Severe; 5 = Very Severe
|
|
|
pi_short_3_2w |
Integer |
|
Recommended |
In the past 2 weeks: What is your pain level at right now? |
1::5
|
1 = Had no pain; 2 = Mild; 3 = Moderate; 4 = Severe; 5 = Very Severe
|
|
|
pi_short_4_2w |
Integer |
|
Recommended |
In the past 2 weeks: How much does pain interfere with your day to day activities? |
1::5
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much
|
|
|
pi_short_5_2w |
Integer |
|
Recommended |
In the past 2 weeks: How much does pain interfere with work around the home? |
1::5
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much
|
|
|
pi_short_6_2w |
Integer |
|
Recommended |
In the past 2 weeks: How much does pain interfere with your ability to participate in social activities? |
1::5
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much
|
|