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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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Brief COPE

34 Shared Subjects

These items deal with ways you've been coping with the stress in your life since you found out you were going to have to have this operation. Each item says something about a particular way of coping. I want to know to what extent you've been doing what the item says. How much or how frequently. Don't answer on the basis of whether it seems to be working or not—just whether or not you're doing it. Carver, C. S. (1997). You want to measure coping but your protocol’s too long: Consider the Brief COPE. International Journal of Behavioral Medicine, 4, 92-100.
Clinical Assessments
Coping
05/27/2021
briefcope01
03/13/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
bc_1 Integer Recommended I've been turning to work or other activities to take my mind off things. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope1, cope9
bc_2 Integer Recommended I've been concentrating my efforts on doing something about the situation I'm in. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope2, cope4
bc_3 Integer Recommended I've been saying to myself "this isn't real.". 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope3, cope5
bc_4 Integer Recommended I've been using alcohol or other drugs to make myself feel better. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope4, cope7
bc_5 Integer Recommended I've been getting emotional support from others. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope12, cope5
bc_6 Integer Recommended I've been giving up trying to deal with it. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope6
bc_7 Integer Recommended I've been taking action to try to make the situation better. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope14, cope7
bc_8 Integer Recommended I've been refusing to believe that it has happened. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope15, cope8
bc_9 Integer Recommended I've been saying things to let my unpleasant feelings escape. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope2, cope9
bc_10 Integer Recommended I've been getting help and advice from other people. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope10, cope3
bc_11 Integer Recommended I've been using alcohol or other drugs to help me get through it. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope11, cope23
bc_12 Integer Recommended I've been trying to see it in a different light, to make it seem more positive. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope12, cope16
bc_13 Integer Recommended I've been criticizing myself. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope13
bc_14 Integer Recommended I've been trying to come up with a strategy about what to do. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope14, cope18
bc_15 Integer Recommended I've been getting comfort and understanding from someone. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope15, cope19
bc_16 Integer Recommended I've been giving up the attempt to cope. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope13, cope16
bc_17 Integer Recommended I've been looking for something good in what is happening. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope17, cope22
bc_18 Integer Recommended I've been making jokes about it. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope11, cope18
bc_19 Integer Recommended I've been doing something to think about it less, such as going to movies, watching TV, reading, daydreaming, sleeping, or shopping. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope1, cope19
bc_20 Integer Recommended I've been accepting the reality of the fact that it has happened. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope20, cope8
bc_21 Integer Recommended I've been expressing my negative feelings. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope10, cope21
bc_22 Integer Recommended I've been trying to find comfort in my religion or spiritual beliefs. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope21, cope22
bc_23 Integer Recommended I've been trying to get advice or help from other people about what to do. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope17, cope23
bc_24 Integer Recommended I've been learning to live with it. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope24
bc_25 Integer Recommended I've been thinking hard about what steps to take. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope25, cope26
bc_26 Integer Recommended I've been blaming myself for things that happened. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope26
bc_27 Integer Recommended I've been praying or meditating. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope25, cope27
bc_28 Integer Recommended I've been making fun of the situation. 1::4 1 = I haven't been doing this at all; 2 = I've been doing this a little bit; 3 = I've been doing this a medium amount; 4 = I've been doing this a lot cope20, cope28
cope_vent Integer Recommended Venting Score 2::8 Sum of cope9 and cope21
cope_posreframe Integer Recommended Positive Reframing Score 2::8 Sum of cope12 and cope17
cope_plan Integer Recommended Planning Score 2::8 Sum of cope14 and cope25
cope_humor Integer Recommended Humor Score 2::8 Sum of cope18 and cope28
cope_acceptance Integer Recommended Acceptance Score 2::8 Sum of cope20 and cope24
cope_religion Integer Recommended Religion Score 2::8 Sum of cope22 and cope27
cope_selfblame Integer Recommended Self-Blame Score 2::8 Sum of cope13 and cope26
cope_selfdistract Integer Recommended Self-Distraction Score 2::8 Sum of cope1 and cope19
cope_activecope Integer Recommended Active Coping Score 2::8 Sum of cope2 and cope7
cope_denial Integer Recommended Denial Score 2::8 Sum of cope3 and cope8
cope_subuse Integer Recommended Substance Use Score 2::8 Sum of cope4 and cope11
cope_emosupport Integer Recommended Use of Emotional Support Score 2::8 Sum of cope5 and cope15
cope_instrusupport Integer Recommended Use of Instrumental Support Score 2::8 Sum of cope10 and cope23
cope_behdiseng Integer Recommended Behavioral Disengagement Score 2::8 Sum of cope6 and cope16
briefcope008 Integer Recommended I refuse to believe that it has happened. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope009 Integer Recommended I say things to let my unpleasant feelings escape. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope010 Integer Recommended I get help and advice from other people. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope011 Integer Recommended I use alcohol or other drugs to help me get through it. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope012 Integer Recommended I try to see it in a different light, to make it seem more positive. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope013 Integer Recommended I criticize myself. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope014 Integer Recommended I try to come up with a strategy about what to do. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope015 Integer Recommended I get comfort and understanding from someone. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope016 Integer Recommended I give up the attempt to cope. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope017 Integer Recommended I look for something good in what is happening. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope018 Integer Recommended I make jokes about it. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope019 Integer Recommended I do something to think about it less, such as going to movies, watching TV, reading, daydreaming, sleeping, or shopping. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope020 Integer Recommended I accept the reality of the fact that it has happened. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope021 Integer Recommended I express my negative feelings. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope022 Integer Recommended I try to find comfort in my religion or spiritual beliefs. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope023 Integer Recommended I try to get advice or help from other people about what to do. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope024 Integer Recommended I learn to live with it. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope025 Integer Recommended I think hard about what steps to take. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope026 Integer Recommended I blame myself for things that happened. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope027 Integer Recommended I pray or meditate. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope001 Integer Recommended I turn to work or other activities to take my mind off things. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope028 Integer Recommended I make fun of the situation. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope002 Integer Recommended I concentrate my efforts on doing something about the situation I'm in. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope003 Integer Recommended I say to myself this is not real. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope004 Integer Recommended I use alcohol or other drugs to make myself feel better. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope005 Integer Recommended I get emotional support from others. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope006 Integer Recommended I give up trying to deal with it. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
briefcope007 Integer Recommended I take action to try to make the situation better. 1::5 1 = Not at all; 2 = A little bit; 3 = Medium amount; 4 = A lot; 5 = I prefer not to answer
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.