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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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BU Demographics

256 Shared Subjects

BU Demographics
Clinical Assessments
Demographics
06/28/2013
bu_demographics01
06/28/2013
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query relationship Integer Recommended Relationship of respondent to individual
1::93;-999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = 90=Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent
Query race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
Query part_education String 100 Recommended Participant's Current Education Level Day care;Nursery;Preschool;Kindergarten;Elementary School;Secondary School;Other
Query child_edu_other String 50 Recommended Specify child educational situation if not any of the above
Query household_number_in_house Integer Recommended Number of people living in primary residence for subject (proband)
Query num_in_house_adults Integer Recommended Number of Individuals in Household Adults
Query num_in_house_kids Integer Recommended Number of Individuals in Household Children
Query demo_siblingscount Integer Recommended Number of siblings 888 = not applicable; 999 = missing
Query sibling1_diag String 20 Recommended sibling 1 diagnosis None; ASD; Other/specify
Query sibling2_diag String 20 Recommended sibling 2 diagnosis None; ASD; Other/specify
Query sibling3_diag String 20 Recommended sibling 3 diagnosis None; ASD; Other/specify
Query sibling4_diag String 20 Recommended sibling 4 diagnosis None; ASD; Other/specify
Query sibling5_diag String 20 Recommended sibling 5 diagnosis None; ASD; Other/specify
Query demo_resp_status Integer Recommended respondent's marital status 1::12 1 = Married; 2 = Remarried; 3 = Live with partner (not married); 4 = Separated; 5 = Divorced; 6 = Single (never married); 7 = Widowed; 8=Married or Living Together;9 = Missing/Not Applicable; 10 = Other; 11=Refused to answer; 12= Engaged
Query liveswith String 100 Recommended child lives with
Both biological mother and father;Biological mother only;Biological father only;Biological mother and stepfather;Biological father and stepmother;Adoptive parents;Foster parents;Relatives;Other
Query bio_mother_ethnicity String 50 Recommended Biological Mother Ethnicity
Hispanic or Latino;Not Hispanic or Latino; No Answer
Query bio_mother_race String 150 Recommended Biological Mother Race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query mother_education String 30 Recommended Mother education level Less Than 6th Grade;Less Than High School;High School;Some College;College;Some Graduate Level;Graduate Level;NA NA = Not available
Query demo_momwork Integer Recommended Does the mother work outside the home?: 0;1;2 0 = No; 1 = Part-time; 2 = Full-time
bio_mother_occupation String 100 Recommended Biological Mother Occupation
Query partner_resp_relationship String 100 Recommended Respondent's partner/spouse relationship to child 1 = Biological mom; 2 = Stepmom; 3 = Adoptive mom; 4 = Grandmother; 5 = Foster mother; 6 = Biological dad; 7 = Stepdad; 8 = Adoptive dad; 9 = Grandfather; 10 = Other
Query bio_father_ethnicity String 50 Recommended Biological Father ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer)
Hispanic or Latino; Not Hispanic or Latino; No Answer
Query bio_father_race String 150 Recommended Biological Father Race American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query demo_partner_emp_status String 100 Recommended Spouse/partner employment status
Not employed; Employed part-time; Employed full-time; Full-time student;Part-time student; Other
NYU DEMOGRAPHICS: Full-time working is 35 or more hours a week. Part-time working is less than 35 hours a week. Full-time student is 3 or more classes per semester. Part-time student is 1 or 2 classes per semester.
Query demo_partner_edu String 100 Recommended Spouse/partner highest education level
Less than 8th grade; 9th grade to 11th grade; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelor degree; Master degree; Professional degree (MD, PhD, JD)
demo_partner_occupation String 100 Recommended Spouse/partner Occupation
Query partner_involvem Integer Recommended How involved is your partner in caring for your child 0 :: 3 0 = Not at all involved; 1 = Somewhat involved; 2 = Very involved; 3 = Extremely involved
Query demo_income String 2 Recommended What is the family income per year: a;b;c;d;e;f;g;h;i;j; k; l; m;n;-7; 1;2;3;4; a = Less than $10,000; b = $10,000-$20,000; c = $20,000-$30,000; d = $30,000-$40,000; e = $40,000-$50,000; f = $50,000-$60,000; g = $60,000-$80,000; h = $80,000-$100,000; i = Above $100,000; j=$50,000-$74,999; k=$75,000-$99,999; l=$100,000-$149,999; m=$150,000-$199,999; n=$200,000 or more; -7=Refused;1=under 25,000; 2=$25,000 - $49,999; 3=$100,000 - $124,999; 4=$125,000 and above
Query child_residence String 55 Recommended Child lives with 1. Both biological mother and father;2. Biological mother only;3. Biological father only;4. Biological mother and stepfather;5. Biological father and stepmother;6. Adoptive parents;7. Foster parents;8. Relatives;9. Other please specify; 10. Refused; Both natural parents; Natural father only; Natural father and stepmother; Natural mother only; Natural mother and stepfather; Adoptive or foster parents; Relatives - please specify; Institution - please specify
Query current_lang String 10 Recommended Current speech/language. Verbal? Yes; No; NK NK = Not known
Query language_spoken String 255 Recommended Language Spoken at Home
Query demo_othlanguage Integer Recommended Does your child hear any other language at home?
0;1
0 = No; 1 = Yes
demo_othlangdesc String 150 Recommended If yes, specify the language(s):
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.