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BU Demographics

285 Shared Subjects

BU Demographics
Clinical Assessments
Demographics
06/28/2013
bu_demographics01
06/28/2013
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query relationship Integer Recommended Relationship of respondent to individual
1::94;-999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
Query race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
Query ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
Query part_education String 100 Recommended Participant's Current Education Level Day care;Nursery;Preschool;Kindergarten;Elementary School;Secondary School;Other
Query child_edu_other String 50 Recommended Specify child educational situation if not any of the above
Query household_number_in_house Integer Recommended Number of people living in primary residence for subject (proband)
Query num_in_house_adults Integer Recommended Number of Individuals in Household Adults
Query num_in_house_kids Integer Recommended Number of Individuals in Household Children
Query demo_siblingscount Integer Recommended Number of siblings 888 = not applicable; 999 = missing
Query sibling1_diag String 20 Recommended sibling 1 diagnosis None; ASD; Other/specify
Query sibling2_diag String 20 Recommended sibling 2 diagnosis None; ASD; Other/specify
Query sibling3_diag String 20 Recommended sibling 3 diagnosis None; ASD; Other/specify
Query sibling4_diag String 20 Recommended sibling 4 diagnosis None; ASD; Other/specify
Query sibling5_diag String 20 Recommended sibling 5 diagnosis None; ASD; Other/specify
Query demo_resp_status Integer Recommended respondent's marital status 1::13 1 = Married; 2 = Remarried; 3 = Live with partner (not married); 4 = Separated; 5 = Divorced; 6 = Single (never married); 7 = Widowed; 8=Married or Living Together;9 = Missing/Not Applicable; 10 = Other; 11=Refused to answer; 12= Engaged; 13=Civil union
Query liveswith String 100 Recommended child lives with
Both biological mother and father;Biological mother only;Biological father only;Biological mother and stepfather;Biological father and stepmother;Adoptive parents;Foster parents;Relatives;Other
Query bio_mother_ethnicity String 50 Recommended Biological Mother Ethnicity
Hispanic or Latino;Not Hispanic or Latino; No Answer
Query bio_mother_race String 150 Recommended Biological Mother Race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query mother_education String 30 Recommended Mother education level Less Than 6th Grade;Less Than High School;High School;Some College;College;Some Graduate Level;Graduate Level;NA NA = Not available
Query demo_momwork Integer Recommended Does the mother work outside the home?: 0;1;2 0 = No; 1 = Part-time; 2 = Full-time
bio_mother_occupation String 100 Recommended Biological Mother Occupation
Query partner_resp_relationship String 100 Recommended Respondent's partner/spouse relationship to child 1 = Biological mom; 2 = Stepmom; 3 = Adoptive mom; 4 = Grandmother; 5 = Foster mother; 6 = Biological dad; 7 = Stepdad; 8 = Adoptive dad; 9 = Grandfather; 10 = Other
Query bio_father_ethnicity String 50 Recommended Biological Father ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer)
Hispanic or Latino; Not Hispanic or Latino; No Answer
Query bio_father_race String 150 Recommended Biological Father Race American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query demo_partner_emp_status String 100 Recommended Spouse/partner employment status
Not employed; Employed part-time; Employed full-time; Full-time student;Part-time student; Other
NYU DEMOGRAPHICS: Full-time working is 35 or more hours a week. Part-time working is less than 35 hours a week. Full-time student is 3 or more classes per semester. Part-time student is 1 or 2 classes per semester.
Query demo_partner_edu String 100 Recommended Spouse/partner highest education level
Less than 8th grade; 9th grade to 11th grade; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelor degree; Master degree; Professional degree (MD, PhD, JD)
demo_partner_occupation String 100 Recommended Spouse/partner Occupation
Query partner_involvem Integer Recommended How involved is your partner in caring for your child 0 :: 3 0 = Not at all involved; 1 = Somewhat involved; 2 = Very involved; 3 = Extremely involved
Query demo_income String 2 Recommended What is the family income per year: a;b;c;d;e;f;g;h;i;j; k; l; m;n;-7; 1;2;3;4; a = Less than $10,000; b = $10,000-$20,000; c = $20,000-$30,000; d = $30,000-$40,000; e = $40,000-$50,000; f = $50,000-$60,000; g = $60,000-$80,000; h = $80,000-$100,000; i = Above $100,000; j=$50,000-$74,999; k=$75,000-$99,999; l=$100,000-$149,999; m=$150,000-$199,999; n=$200,000 or more; -7=Refused;1=under 25,000; 2=$25,000 - $49,999; 3=$100,000 - $124,999; 4=$125,000 and above
Query child_residence String 55 Recommended Child lives with 1. Both biological mother and father;2. Biological mother only;3. Biological father only;4. Biological mother and stepfather;5. Biological father and stepmother;6. Adoptive parents;7. Foster parents;8. Relatives;9. Other please specify; 10. Refused; Both natural parents; Natural father only; Natural father and stepmother; Natural mother only; Natural mother and stepfather; Adoptive or foster parents; Relatives - please specify; Institution - please specify
Query current_lang String 10 Recommended Current speech/language. Verbal? Yes; No; NK NK = Not known
Query language_spoken String 255 Recommended Language Spoken at Home
Query demo_othlanguage Integer Recommended Does your child hear any other language at home?
0;1
0 = No; 1 = Yes
demo_othlangdesc String 150 Recommended If yes, specify the language(s):
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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