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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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NIMH Data Archive
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NDA Help Center

Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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955 Shared Subjects

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Clinical Assessments
Phys Exam
09/26/2016
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12/12/2017
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Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query abdomdistention Integer Recommended Abdominal distention 0::5 0=None; 1=Very Mild; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
Query abdomenabnormal String 100 Recommended Abdomen If abnormal briefly describe abnormalities
Query abdomenlist Integer Recommended Abdomen 0::3 1=Normal; 2=G-tube present and normal; 3=Abnormal (not including distention; recorded elsewhere); 0=Not done
Query actionposttremor Integer Recommended Action or postural tremor 0::4 0=Not present; 1=1 cm to <3 cm maximal amplitude; 2=3 cm to 10 cm maximal amplitude; 3=>10 cm maximal amplitude;4= <1 cm maximal amplitude
Query aggressivebehaviors Integer Recommended Aggressive behaviors towards others 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query airswallowing Integer Recommended Airswallowing 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query alertness_dx Integer Recommended Alertness 0::4 0=Not alert; 1=~25%;2= ~50%; 3=~75%;4= Alert entire visit (>90%) alertness
Query appendicrigidity Integer Recommended Appendicular Rigidity nonvelocity dependent stiffness 0::5 0=None; 1=Very Mild; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
Query appendictone Integer Recommended Overall tone choose one option onlyAppendicular 1::4 1=Normal; 2=Hypotonic; 3=Hypertonic;4= Mixed
Query ataxiaapraxia Integer Recommended Ataxiaapraxia of gait 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query axialrigidity Integer Recommended Axial Rigidity nonvelocity dependent stiffness 0::5 0=None; 1=Very Mild; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
Query axialtone Integer Recommended Overall tone choose one option onlyAxial 1::4 1=Normal; 2=Hypotonic; 3=Hypertonic;4= Mixed
Query bmicategorycss Integer Recommended BMI category for CSS 1::5 1=26%-50% or higher; 2=11-25%; 3=5-10%; 4=<5%; 5=<<5%
Query babinskinotpresent Integer Recommended BabinskiNotpresent 0;1 0 = unchecked box; 1 = checked box
Query birthmarkslocationsize String 150 Recommended Birth marks location and size
Query bradykinesia Integer Recommended Bradykinesia 0::4 0=Not present; 1=Deliberate movements with minimal slowness (<10% of time); 2=Mild paucity of movement or mild slowness (<50% of time); 3=Moderate paucity of movement with moderate slowness (50-90% of time); 4=Rarely moves or movements extremely slow (95-100% of time)
Query breasttannerstage Integer Recommended Breast Tanner stage for males indicate not done 0::5 1=I - no glandular tissue; areola follows the skin contours of the chest; 2=II - breast bud forms, with small area of surrounding glandular tissue; areola begins to widen; 3=III - breast more elevated, extends beyond areola border, areola continues to widen (in contour with breast); 4=IV - increased breast size and elevation; areola and papilla form a secondary mound; 5=V - breast final adult size; areola returns to contour of surrounding breast; projecting central papilla; 0=not done
Query breathholding Integer Recommended Breathholding of time of visit Hyperventilation and Breathholding cannot be 100 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query breathholdingcyanosis Integer Recommended If breathholding present level of cyanosis 0::3 0=No cyanosis; 1=Mild, peri-oral or acrocyanosis; 2=Moderate cyanosis; 3=Severe cyanosis with alteration of consciousness
Query breathholdingdisrupt Integer Recommended If breathholding present level of disruption 0::5 0=None; 1=Very Mild; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
Query bruxism_dx Integer Recommended Bruxism 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90% bruxism
Query cardiacabcomment String 100 Recommended Cardiac soundsComments if abnormal
Query cardiacsounds Integer Recommended Cardiac sounds 0::2 1=Normal; 2=Abnormal; 0=Not Done
Query chorea Integer Recommended Chorea 0::4 0=None; 1=25% of time; 2=50% of time; 3=75% of time; 4=100% of time
Query comestosit Integer Recommended Comes to sitting 0::3 1=On own; 2=With minimal assistance; 3=With maximal assistance; 0=No attempt
Query comestostand Integer Recommended Comes to standing 0::3 1=On own; 2=With minimal assistance; 3=With maximal assistance; 0=No attempt
Query commgenexam String 250 Recommended Optional comments on general exam
Query commnonverblang String 400 Recommended Optional comments on expressive nonverbal language
Query commentsreflex String 200 Recommended Optional comments on reflexes or pathological reflexes present
Query contractures_ankle Integer Recommended Contractures: Ankle 0;1 0 = unchecked box; 1 = checked box
Query contractures_elbow Integer Recommended Contractures: Elbow 0;1 0 = unchecked box; 1 = checked box
Query contractures_fingers Integer Recommended Contractures: Fingers 0;1 0 = unchecked box; 1 = checked box
Query contractures_hip Integer Recommended Contractures: Hip 0;1 0 = unchecked box; 1 = checked box
Query contractures_knee Integer Recommended Contractures: Knee 0;1 0 = unchecked box; 1 = checked box
Query contractures_none Integer Recommended Contractures: None 0;1 0 = unchecked box; 1 = checked box
Query contractures_wrist Integer Recommended Contractures: Wrist 0;1 0 = unchecked box; 1 = checked box
Query pe_9 Integer Recommended Cranial Nerves 0::2 1=Normal;2=Abnormal; 0=Not done cranialnerves
Query degreehyperreflexia Integer Recommended Degree of Hyperreflexia 1::5 1=4+ with spread or clonus; 2=4+ with spread and clonus; 3=Normal; 4=4+ ankles or knees; 5=4+ ankles and knees
Query descriptabnormalother String 150 Recommended Description of abnormalityIf other please specify
Query da_doesnotalerttos Integer Recommended DescriptAbnormal: Does not alert to sounds 0;1 0 = unchecked box; 1 = checked box descriptabnormal_doesnotalerttos
Query da_doesnotfixvisua Integer Recommended DescriptAbnormal: Does not fix visually 0;1 0 = unchecked box; 1 = checked box descriptabnormal_doesnotfixvisua
Query da_doesnotfollowok Integer Recommended DescriptAbnormal: Does not follow OKN tape/test 0;1 0 = unchecked box; 1 = checked box descriptabnormal_doesnotfollowok
Query da_doesnotfollowvi Integer Recommended DescriptAbnormal: Does not follow visually 0;1 0 = unchecked box; 1 = checked box descriptabnormal_doesnotfollowvi
Query da_dysconjugategaz Integer Recommended DescriptAbnormal: Dysconjugate gaze 0;1 0 = unchecked box; 1 = checked box descriptabnormal_dysconjugategaz
Query da_facialnervepals Integer Recommended DescriptAbnormal: Facial nerve palsy, peripheral or central 0;1 0 = unchecked box; 1 = checked box descriptabnormal_facialnervepals
Query da_lateralgazepals Integer Recommended DescriptAbnormal: Lateral gaze palsy 0;1 0 = unchecked box; 1 = checked box descriptabnormal_lateralgazepals
Query da_nystagmus Integer Recommended DescriptAbnormal: Nystagmus 0;1 0 = unchecked box; 1 = checked box descriptabnormal_nystagmus
Query da_other Integer Recommended DescriptAbnormal: Other 0;1 0 = unchecked box; 1 = checked box descriptabnormal_other
Query da_sialorrhea Integer Recommended DescriptAbnormal: Sialorrhea 0;1 0 = unchecked box; 1 = checked box descriptabnormal_sialorrhea
Query da_verticalgazepal Integer Recommended DescriptAbnormal: Vertical gaze palsy 0;1 0 = unchecked box; 1 = checked box descriptabnormal_verticalgazepal
Query da_appearsanxiousorf Integer Recommended Descript Affect: Appears anxious or fearful 0;1 0 = unchecked box; 1 = checked box descriptaffect_appearsanxiousorf
Query descriptaffect_calm Integer Recommended Descript Affect: Calm 0;1 0 = unchecked box; 1 = checked box
Query descriptaffect_crying Integer Recommended Descript Affect: Crying 0;1 0 = unchecked box; 1 = checked box
Query descriptaffect_frowningorsad Integer Recommended Descript Affect: Frowning or sad 0;1 0 = unchecked box; 1 = checked box
Query descriptaffect_irritable Integer Recommended Descript Affect: Irritable 0;1 0 = unchecked box; 1 = checked box
Query da_laughingorgigglin Integer Recommended Descript Affect: Laughing or giggling 0;1 0 = unchecked box; 1 = checked box descriptaffect_laughingorgigglin
Query descriptaffect_screaming Integer Recommended Descript Affect: Screaming 0;1 0 = unchecked box; 1 = checked box
Query descriptaffect_smiling Integer Recommended Descript Affect: Smiling 0;1 0 = unchecked box; 1 = checked box
Query drooling_dx Integer Recommended Drooling of time of visit Drooling and PuffingBlowing Raspberries cant be 100 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90% drooling
Query durationeyecont Integer Recommended Duration of eye contact 0::4 1=Preserved and propositive; 2=Good eye contact (>30 seconds); 3=Intermittent eye contact (5 to <30 seconds); 4=Infrequent eye contact (<5 seconds); 0=None
Query dysmextremother String 150 Recommended Dysmorphic features of extremitiesIf other please specify
Query d_abnormalnailbeds Integer Recommended DysmExtrem: abnormal nail beds 0;1 0 = unchecked box; 1 = checked box dysmextrem_abnormalnailbeds
Query de_none Integer Recommended DysmExtrem: none 0;1 0 = unchecked box; 1 = checked box dysmextrem_none
Query de_other Integer Recommended DysmExtrem: other 0;1 0 = unchecked box; 1 = checked box dysmextrem_other
Query d_polydactyly Integer Recommended DysmExtrem: polydactyly 0;1 0 = unchecked box; 1 = checked box dysmextrem_polydactyly
Query d_syndactyly Integer Recommended DysmExtrem: syndactyly 0;1 0 = unchecked box; 1 = checked box dysmextrem_syndactyly
Query d_antevertednares Integer Recommended DysmorphicCB: anteverted nares 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_antevertednares
Query d_archedeyebrows Integer Recommended DysmorphicCB: arched eyebrows 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_archedeyebrows
Query d_broadforehead Integer Recommended DysmorphicCB: broad forehead 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_broadforehead
Query d_broadnasalbridge Integer Recommended DysmorphicCB: broad nasal bridge 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_broadnasalbridge
Query d_bulbousnose Integer Recommended DysmorphicCB: bulbous nose 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_bulbousnose
Query d_deepseteyes Integer Recommended DysmorphicCB: deep-set eyes 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_deepseteyes
Query d_depressednasalbridg Integer Recommended DysmorphicCB: depressed nasal bridge 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_depressednasalbridg
Query d_downslantingpalpebr Integer Recommended DysmorphicCB: downslanting palpebral fissues 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_downslantingpalpebr
Query d_epicanthalfolds Integer Recommended DysmorphicCB: epicanthal folds 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_epicanthalfolds
Query d_higharchedpalate Integer Recommended DysmorphicCB: high arched palate 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_higharchedpalate
Query d_highforehead Integer Recommended DysmorphicCB: high forehead 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_highforehead
Query d_highfrontalhairline Integer Recommended DysmorphicCB: high frontal hairline 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_highfrontalhairline
Query d_hypertelorism Integer Recommended DysmorphicCB: hypertelorism 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_hypertelorism
Query d_hypotelorism Integer Recommended DysmorphicCB: hypotelorism 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_hypotelorism
Query d_largemouth Integer Recommended DysmorphicCB: large mouth 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_largemouth
Query d_longeyelashes Integer Recommended DysmorphicCB: long eyelashes 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_longeyelashes
Query d_lowsetears Integer Recommended DysmorphicCB: low set ears 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_lowsetears
Query d_micrognathia Integer Recommended DysmorphicCB: micrognathia 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_micrognathia
Query dy_none Integer Recommended DysmorphicCB: none 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_none
Query dy_other Integer Recommended DysmorphicCB: other 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_other
Query d_pointedchin Integer Recommended DysmorphicCB: pointed chin 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_pointedchin
Query d_posteriorlyrotatede Integer Recommended DysmorphicCB: posteriorly rotated ears 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_posteriorlyrotatede
Query d_retrognathia Integer Recommended DysmorphicCB: retrognathia 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_retrognathia
Query d_smoothphiltrum Integer Recommended DysmorphicCB: smooth philtrum 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_smoothphiltrum
Query d_synophrys Integer Recommended DysmorphicCB: synophrys 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_synophrys
Query d_thinupperlip Integer Recommended DysmorphicCB: thin upper lip 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_thinupperlip
Query d_triangularface Integer Recommended DysmorphicCB: triangular face 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_triangularface
Query d_upslantingpalpebral Integer Recommended DysmorphicCB: upslanting palpebral fissures 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_upslantingpalpebral
Query d_widelyspacedteeth Integer Recommended DysmorphicCB: widely spaced teeth 0;1 0 = unchecked box; 1 = checked box dysmorphiccb_widelyspacedteeth
Query dysmorphicother String 200 Recommended Dysmorphic featuresIf other please specify
Query dystonia Integer Recommended Dystonia 0::5 0=None; 1=Focal dystonia (more than one joint); 2=Segmental dystonia (two extremities); 3=Generalized dystonia (>2 extremities); 4=None; 5=Focal dystonia (one joint)
Query facialflush Integer Recommended Facial flushing 0;1 0=Absent; 1=Present
Query fathercircumnotdone Integer Recommended Birth Fathers head circumference not done 0;1 0 = unchecked box; 1 = checked box
Query pda_s2q3_percentile_head_fa Float Recommended Bio father head circumference percentile fathercircumpercent
pda_s2q3_head_circumference_fa String 50 Recommended Bio father head circumference (cm) fatherheadcircum
Query feetcb Integer Recommended Feet choose one from each column 1::4 1=Pink; 2=Mottled; 3=Cyanotic; 4=Red
Query freqhandmouthing Integer Recommended Frequency of hand mouthing hands or objects 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query freqhandstereotypies Integer Recommended Frequency of hand stereotypies 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query gp_broadbased Integer Recommended GaitPattern: Broad based 0;1 0 = unchecked box; 1 = checked box gaitpattern_broadbased
Query gp_dyspraxic Integer Recommended GaitPattern: Dyspraxic 0;1 0 = unchecked box; 1 = checked box gaitpattern_dyspraxic
Query gp_normal Integer Recommended GaitPattern: Normal 0;1 0 = unchecked box; 1 = checked box gaitpattern_normal
Query gp_retropulsion Integer Recommended GaitPattern: Retropulsion 0;1 0 = unchecked box; 1 = checked box gaitpattern_retropulsion
Query gp_rockingsidetoside Integer Recommended GaitPattern: Rocking side-to-side 0;1 0 = unchecked box; 1 = checked box gaitpattern_rockingsidetoside
Query gp_toewalking Integer Recommended GaitPattern: Toe walking 0;1 0 = unchecked box; 1 = checked box gaitpattern_toewalking
Query gesturevisualcue Integer Recommended Place toyfood on table and after participant is distracted using only a gesture or visual cue eg pointing and looking at item indicate the toy food and record response 0::5 1=Looks at item immediately; 2=After a delay of greater than 5 seconds, looks at item; 3=Turns and looks somewhere else; 4=Regards examiner but does not perform any action; 5=Ignores examiner completely; 0=Unable to perform
Query gaother String 150 Recommended If participant cannot walk independently describe some of the ways heshe gets aroundIf other specify getsaroundother
Query ga_crawls Integer Recommended GetsAround: Crawls 0;1 0 = unchecked box; 1 = checked box getsaround_crawls
Query ga_creepsonbellypullssel Integer Recommended GetsAround: Creeps on belly (pulls self) 0;1 0 = unchecked box; 1 = checked box getsaround_creepsonbellypullssel
Query ga_other Integer Recommended GetsAround: Other 0;1 0 = unchecked box; 1 = checked box getsaround_other
Query ga_rolls Integer Recommended GetsAround: Rolls 0;1 0 = unchecked box; 1 = checked box getsaround_rolls
Query ga_scootsonbottom Integer Recommended GetsAround: Scoots on bottom 0;1 0 = unchecked box; 1 = checked box getsaround_scootsonbottom
Query ga_unabletogetaround Integer Recommended GetsAround: Unable to get around 0;1 0 = unchecked box; 1 = checked box getsaround_unabletogetaround
Query ga_walkswithassistance Integer Recommended GetsAround: Walks with assistance 0;1 0 = unchecked box; 1 = checked box getsaround_walkswithassistance
Query grimace Integer Recommended Grimace or sharp contortion of face 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query handdominance Integer Recommended Hand Dominance 1::4 1=Left; 2=Variable; 3=Right; 4=Unable to determine
Query handuseimpression Integer Recommended Hand use Impression 1::6 1=Holds object when placed in hand; 2=Normal; 3=Plays with toys or activates switches purposefully; 4=Uses utensils; 5=Finger feeds only or picks up toys; 6=No purposeful hand use
Query handscb Integer Recommended Hands choose one from each column 1::4 1=Pink; 2=Mottled; 3=Cyanotic; 4=Red
Query headcircumnotdone Integer Recommended Head circumference not done 0;1 0 = unchecked box; 1 = checked box
Query pda_s3q4_headcirc_percentile Float Recommended Head circumference percentile headcircumpercent
Query head_circum Float Recommended Head Circumference (in cm) -1 = Not known headcircumference
Query heightmeasurement Integer Recommended Height measurement way 1::4 1=Standing; 2=Recumbent; 3=Segmental; 4=Calculated
Query heightnotdone Integer Recommended Height not done 0;1 0 = unchecked box; 1 = checked box
Query neuro_007_height_cm Float Recommended Neurological Exam (4:6+ y:m): Measured height (cm) heighttextbox
Query hyperactivity Integer Recommended Hyperactivity of time of visit Hypo and Hyperactivity cant be 100 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query hyperventleveldisrupt Integer Recommended If hyperventilation present level of disruption 0::5 0=None; 1=Very Mild; 2=Mild; 3=Moderate; 4=Severe; 5=Very Severe
Query hyperventilation Integer Recommended Hyperventilation of time of visit Hyperventilation and Breathholding cannot be 100 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query hypoactivity Integer Recommended Hypoactivity of time of visit Hypo and Hyperactivity cant be 100 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query interaction Integer Recommended Interaction with examiner 1::5 1=~25%; 2=Not interactive; 3=Interactive entire visit (>90%); 4=~75%; 5=~50%
Query irritability_dx Integer Recommended Irritability 0::4 0=None; 1=25% of time; 2=50% of time; 3=75% of time; 4=100% of time irritability
Query lefthandother String 100 Recommended Hand use mark all observedLeft hand if other specify
Query lh_copiescircle Integer Recommended LeftHandUse: Copies circle 0;1 0 = unchecked box; 1 = checked box lefthanduse_copiescircle
Query lh_copiesdrawnlineverti Integer Recommended LeftHandUse: Copies drawn line vertically 0;1 0 = unchecked box; 1 = checked box lefthanduse_copiesdrawnlineverti
Query lh_copieslinedrawnhoriz Integer Recommended LeftHandUse: Copies line drawn horizontally 0;1 0 = unchecked box; 1 = checked box lefthanduse_copieslinedrawnhoriz
Query lh_drawsonpaperwithoutc Integer Recommended LeftHandUse: Draws on paper without copying 0;1 0 = unchecked box; 1 = checked box lefthanduse_drawsonpaperwithoutc
Query lh_foldspaperinhalf Integer Recommended LeftHandUse: Folds paper in half 0;1 0 = unchecked box; 1 = checked box lefthanduse_foldspaperinhalf
Query lh_graspstoyfoodwpinche Integer Recommended LeftHandUse: Grasps toy/food w/pincher 0;1 0 = unchecked box; 1 = checked box lefthanduse_graspstoyfoodwpinche
Query lh_holdscup Integer Recommended LeftHandUse: Holds cup 0;1 0 = unchecked box; 1 = checked box lefthanduse_holdscup
Query lh_holdsobject Integer Recommended LeftHandUse: Holds object 0;1 0 = unchecked box; 1 = checked box lefthanduse_holdsobject
Query lh_manipulatesobject Integer Recommended LeftHandUse: Manipulates object 0;1 0 = unchecked box; 1 = checked box lefthanduse_manipulatesobject
Query lh_noneobserved Integer Recommended LeftHandUse: None observed 0;1 0 = unchecked box; 1 = checked box lefthanduse_noneobserved
Query lh_other Integer Recommended LeftHandUse: Other 0;1 0 = unchecked box; 1 = checked box lefthanduse_other
Query lh_reachesfortoyfood Integer Recommended LeftHandUse: Reaches for toy/food 0;1 0 = unchecked box; 1 = checked box lefthanduse_reachesfortoyfood
Query lh_throwsobject Integer Recommended LeftHandUse: Throws object 0;1 0 = unchecked box; 1 = checked box lefthanduse_throwsobject
Query lh_transfersobject Integer Recommended LeftHandUse: Transfers object 0;1 0 = unchecked box; 1 = checked box lefthanduse_transfersobject
Query lh_turnspageinbook Integer Recommended LeftHandUse: Turns page in book 0;1 0 = unchecked box; 1 = checked box lefthanduse_turnspageinbook
Query lh_usesutensilmaybeadap Integer Recommended LeftHandUse: Uses utensil (may be adaptive) 0;1 0 = unchecked box; 1 = checked box lefthanduse_usesutensilmaybeadap
Query lh_writesletters Integer Recommended LeftHandUse: Writes letters 0;1 0 = unchecked box; 1 = checked box lefthanduse_writesletters
Query lighttouch Integer Recommended Light touch 1::3 1=Normal or apparently normal; 2=No clear response to light touch in specific region; 3=No clear response to light touch throughout
Query lsa_banginghead Integer Recommended ListSelfAbusive: Banging head 0;1 0 = unchecked box; 1 = checked box listselfabusive_banginghead
Query lsa_bitingchewingsel Integer Recommended ListSelfAbusive: Biting/chewing self 0;1 0 = unchecked box; 1 = checked box listselfabusive_bitingchewingsel
Query lsa_hittingslapping1 Integer Recommended ListSelfAbusive: Hitting/slapping other parts of head 0;1 0 = unchecked box; 1 = checked box listselfabusive_hittingslapping1
Query lsa_hittingslapping2 Integer Recommended ListSelfAbusive: Hitting/slapping other body parts 0;1 0 = unchecked box; 1 = checked box listselfabusive_hittingslapping2
Query lsa_none Integer Recommended ListSelfAbusive: None 0;1 0 = unchecked box; 1 = checked box listselfabusive_none
Query lsa_pickingself Integer Recommended ListSelfAbusive: Picking self 0;1 0 = unchecked box; 1 = checked box listselfabusive_pickingself
Query lsa_pullinghair Integer Recommended ListSelfAbusive: Pulling hair 0;1 0 = unchecked box; 1 = checked box listselfabusive_pullinghair
Query lsa_rubbingorpinchin Integer Recommended ListSelfAbusive: Rubbing or pinching self 0;1 0 = unchecked box; 1 = checked box listselfabusive_rubbingorpinchin
Query lsa_scratchingdiggin Integer Recommended ListSelfAbusive: Scratching/digging self 0;1 0 = unchecked box; 1 = checked box listselfabusive_scratchingdiggin
Query lsa_slappingface Integer Recommended ListSelfAbusive: Slapping face 0;1 0 = unchecked box; 1 = checked box listselfabusive_slappingface
Query miduppercircnotdone Integer Recommended Midupper arm circ not done 0;1 0 = unchecked box; 1 = checked box
Query mothercircumnotdone Integer Recommended Birth Mothers head circumference not done 0;1 0 = unchecked box; 1 = checked box
pda_s2q2_head_circumference String 50 Recommended Bio mother Head circumference (cm) motherheadcircum
pda_s2q2_percentile_head_mthr String 50 Recommended Bio mother Head circumference percentile mothercircumpercent
Query musclemass Integer Recommended Muscle mass 1;2 1=Normal to increased; 2=Decreased
Query neuroexamcomm String 300 Recommended Optional comments on general neurological exam
Query nonvclearmeaning Integer Recommended When using nonverbal communication how clear is meaning without coaching 1::6 1=Meaning is always clear; 2=Meaning is clear most of the time (>90%);3= Meaning is clear more than half the time (50-90%); 4=Meaning is clear less than half the time (10-<50%); 5=Meaning is rarely clear (<10% of time); 6=No communication (0%)
nonverbattemptsgest String 100 Recommended List all nonverbal ways child attempts to communicateIf hand gestures example
nonverbattemptsother String 150 Recommended List all nonverbal ways child attempts to communicateIf other example
Query nonverbattemptssign String 75 Recommended List all nonverbal ways child attempts to communicateIf sign language example
Query nva_expressionofange Integer Recommended NonverbAttempts: Expression of anger 0;1 0 = unchecked box; 1 = checked box nonverbattempts_expressionofange
Query nva_expressionoffear Integer Recommended NonverbAttempts: Expression of fear or anxiety 0;1 0 = unchecked box; 1 = checked box nonverbattempts_expressionoffear
Query nva_expressionofsadn Integer Recommended NonverbAttempts: Expression of sadness 0;1 0 = unchecked box; 1 = checked box nonverbattempts_expressionofsadn
Query nva_expressionofsurp Integer Recommended NonverbAttempts: Expression of surprise 0;1 0 = unchecked box; 1 = checked box nonverbattempts_expressionofsurp
Query nva_frowning Integer Recommended NonverbAttempts: Frowning 0;1 0 = unchecked box; 1 = checked box nonverbattempts_frowning
Query nva_handgestures Integer Recommended NonverbAttempts: Hand gestures 0;1 0 = unchecked box; 1 = checked box nonverbattempts_handgestures
Query nva_noattempt Integer Recommended NonverbAttempts: No attempt 0;1 0 = unchecked box; 1 = checked box nonverbattempts_noattempt
Query nva_othercues Integer Recommended NonverbAttempts: Other cues 0;1 0 = unchecked box; 1 = checked box nonverbattempts_othercues
Query nva_pointing Integer Recommended NonverbAttempts: Pointing 0;1 0 = unchecked box; 1 = checked box nonverbattempts_pointing
Query nva_signlanguage Integer Recommended NonverbAttempts: Sign Language 0;1 0 = unchecked box; 1 = checked box nonverbattempts_signlanguage
Query nva_smilingsocially Integer Recommended NonverbAttempts: Smiling (socially) 0;1 0 = unchecked box; 1 = checked box nonverbattempts_smilingsocially
Query nva_waving Integer Recommended NonverbAttempts: Waving 0;1 0 = unchecked box; 1 = checked box nonverbattempts_waving
Query nonverbchoice Integer Recommended When shown 2 items use favorite toys if present or food items how does participant choose nonverbally If participant indicated want clearly verbally to provoke nonverbal response ask participant to show me which one 0::5 1=Points with a single finger to the item she/he wants; 2=Gestures with several fingers or hand to the item she/he wants; 3=Indicates want using other gesture; 4=Turns towards the item she/he wants but does not gesture; 5=Does not indicate want nonverbally; 0=Unable to perform
Query nystagmustype Integer Recommended Description of abnormalityIf Nystagmus what type 1::3 1=Vertical; 2=Horizontal; 3=Rotator
Query oromotordyskinesia Integer Recommended Oromotor dyskinesia tongue protrusion smacking lips sidetoside jaw movements 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query othermovements Integer Recommended Other movements mark all that apply 0::4 0=None; 1=25% of time; 2=50% of time; 3=75% of time; 4=100% of time
Query or_babinskipresent Integer Recommended OtherReflexes: Babinski present 0;1 0 = unchecked box; 1 = checked box otherreflexes_babinskipresent
Query otherreflexes_none Integer Recommended OtherReflexes: None 0;1 0 = unchecked box; 1 = checked box
Query or_palmomentalpresent Integer Recommended OtherReflexes: Palmomental present 0;1 0 = unchecked box; 1 = checked box otherreflexes_palmomentalpresent
Query ors_snoutpresent Integer Recommended OtherReflexes: Snout present 0;1 0 = unchecked box; 1 = checked box otherreflexes_snoutpresent
Query overallhypertonia Integer Recommended Overall hypertonia choose one option only 0::4 0=None; 1=Ankle hypertonia; 2=Upper or lower limb hypertonia; 3=Generalized no contractures; 4=Generalized with contractures
Query overallreflexes Integer Recommended Overall reflexes choose one option only 1::3 1=Normal throughout (include hyporeflexia); 2=Some Hyperreflexia; 3=Global Hyperreflexia
Query painfulstimulation Integer Recommended Painful stimulation apply firm pressure to base of finger nail bed using pen or examiners nail for 5 seconds 0::3 1=Immediate withdrawal and change in facial expression; 2=Immediate withdrawal without grimace or clear recognition; 3=Delayed withdrawal; 0=No response during 5 seconds of pressure
Query palmomentalnotpresent Integer Recommended Palmomental Not present 0;1 0 = unchecked box; 1 = checked box
Query predominantaffect Integer Recommended Description of affect Choose all that apply and choose one predominant affect 1::8 1=Calm; 2=Smiling; 3=Laughing or giggling; 4=Appears anxious or fearful; 5=Frowning or sad; 6=Crying; 7=Irritable; 8=Screaming
Query pubictannerstage Integer Recommended Pubic Tanner stage 0::5 1=I - No pubic hair; 2=II - Females: small amount of long, downy hair, slight pigmentation on labia majora; 3=III - Hair becomes more coarse and curly, and begins to extend laterally; 4=IV - Adult-like hair quality, extending across pubis but sparing medial thighs; 5=V - Hair extends to medial surface of the thighs; 0=Not done
Query puffblowrasp Integer Recommended Puffingblowing raspberries of time of visit Drooling and PuffingBlowing Raspberries cant be 100 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query pulmexam Integer Recommended Pulmonary exam 0::2 1=Normal; 2=Abnormal; 0=Not Done
Query pulmexamabcom String 100 Recommended Pulmonary examComments if abnormal
Query rm_chewinglicki Integer Recommended RepetitiveMovements: Chewing/licking 0;1 0 = unchecked box; 1 = checked box repetitivemovements_chewinglicki
Query rm_clapping Integer Recommended RepetitiveMovements: Clapping 0;1 0 = unchecked box; 1 = checked box repetitivemovements_clapping
Query rm_clasping Integer Recommended RepetitiveMovements: Clasping 0;1 0 = unchecked box; 1 = checked box repetitivemovements_clasping
Query rm_fingerrubbin Integer Recommended RepetitiveMovements: Finger rubbing 0;1 0 = unchecked box; 1 = checked box repetitivemovements_fingerrubbin
Query rm_flappinginfr Integer Recommended RepetitiveMovements: Flapping in front of body 0;1 0 = unchecked box; 1 = checked box repetitivemovements_flappinginfr
Query rm_flappingnext Integer Recommended RepetitiveMovements: Flapping next to body 0;1 0 = unchecked box; 1 = checked box repetitivemovements_flappingnext
Query rm_flickingfing Integer Recommended RepetitiveMovements: Flicking (fingers, lips, etc.) 0;1 0 = unchecked box; 1 = checked box repetitivemovements_flickingfing
Query rm_flippingpage Integer Recommended RepetitiveMovements: Flipping (pages, hands, objects) 0;1 0 = unchecked box; 1 = checked box repetitivemovements_flippingpage
Query rm_hairtwirling Integer Recommended RepetitiveMovements: Hair twirling/pulling 0;1 0 = unchecked box; 1 = checked box repetitivemovements_hairtwirling
Query rm_handmouthing Integer Recommended RepetitiveMovements: Hand mouthing 0;1 0 = unchecked box; 1 = checked box repetitivemovements_handmouthing
Query rm_handwringing Integer Recommended RepetitiveMovements: Hand wringing/washing 0;1 0 = unchecked box; 1 = checked box repetitivemovements_handwringing
Query rm_knittingtwis Integer Recommended RepetitiveMovements: Knitting/twisting fingers 0;1 0 = unchecked box; 1 = checked box repetitivemovements_knittingtwis
Query rm_none Integer Recommended RepetitiveMovements: None 0;1 0 = unchecked box; 1 = checked box repetitivemovements_none
Query rm_pickingcloth Integer Recommended RepetitiveMovements: Picking (clothes, body, arms, etc.) 0;1 0 = unchecked box; 1 = checked box repetitivemovements_pickingcloth
Query rm_pullinghair Integer Recommended RepetitiveMovements: Pulling hair 0;1 0 = unchecked box; 1 = checked box repetitivemovements_pullinghair
Query rm_rubbing Integer Recommended RepetitiveMovements: Rubbing 0;1 0 = unchecked box; 1 = checked box repetitivemovements_rubbing
Query rm_scratching Integer Recommended RepetitiveMovements: Scratching 0;1 0 = unchecked box; 1 = checked box repetitivemovements_scratching
Query rm_squeezinghan Integer Recommended RepetitiveMovements: Squeezing (hands, body, object) 0;1 0 = unchecked box; 1 = checked box repetitivemovements_squeezinghan
Query rm_tappinghitti Integer Recommended RepetitiveMovements: Tapping/hitting (hands, surfaces) 0;1 0 = unchecked box; 1 = checked box repetitivemovements_tappinghitti
Query resptospoken Integer Recommended Response to spoken word 0::4 0=None; 1=25% of time; 2=50% of time; 3=75% of time; 4=100% of time
Query restingtremor Integer Recommended Resting tremor 0::4 0=Not present; 1=<1 cm maximal amplitude; 2=1 cm to <2 cm maximal amplitude; 3=2 cm to 3 cm maximal amplitude;4= >3 cm maximal amplitude
Query righthandother String 150 Recommended Hand use mark all observedRight hand if other specify
Query rh_copiescircle Integer Recommended RightHandUse: Copies circle 0;1 0 = unchecked box; 1 = checked box righthanduse_copiescircle
Query rh_copiesdrawnlinevert Integer Recommended RightHandUse: Copies drawn line vertically 0;1 0 = unchecked box; 1 = checked box righthanduse_copiesdrawnlinevert
Query rh_copieslinedrawnhori Integer Recommended RightHandUse: Copies line drawn horizontally 0;1 0 = unchecked box; 1 = checked box righthanduse_copieslinedrawnhori
Query rh_drawsonpaperwithout Integer Recommended RightHandUse: Draws on paper without copying 0;1 0 = unchecked box; 1 = checked box righthanduse_drawsonpaperwithout
Query rh_foldspaperinhalf Integer Recommended RightHandUse: Folds paper in half 0;1 0 = unchecked box; 1 = checked box righthanduse_foldspaperinhalf
Query rh_graspstoyfoodwpinch Integer Recommended RightHandUse: Grasps toy/food w/pincher 0;1 0 = unchecked box; 1 = checked box righthanduse_graspstoyfoodwpinch
Query rh_holdscup Integer Recommended RightHandUse: Holds cup 0;1 0 = unchecked box; 1 = checked box righthanduse_holdscup
Query rh_holdsobject Integer Recommended RightHandUse: Holds object 0;1 0 = unchecked box; 1 = checked box righthanduse_holdsobject
Query rh_manipulatesobject Integer Recommended RightHandUse: Manipulates object 0;1 0 = unchecked box; 1 = checked box righthanduse_manipulatesobject
Query rh_noneobserved Integer Recommended RightHandUse: None observed 0;1 0 = unchecked box; 1 = checked box righthanduse_noneobserved
Query rh_other Integer Recommended RightHandUse: Other 0;1 0 = unchecked box; 1 = checked box righthanduse_other
Query rh_reachesfortoyfood Integer Recommended RightHandUse: Reaches for toy/food 0;1 0 = unchecked box; 1 = checked box righthanduse_reachesfortoyfood
Query rh_throwsobject Integer Recommended RightHandUse: Throws object 0;1 0 = unchecked box; 1 = checked box righthanduse_throwsobject
Query rh_transfersobject Integer Recommended RightHandUse: Transfers object 0;1 0 = unchecked box; 1 = checked box righthanduse_transfersobject
Query rh_turnspageinbook Integer Recommended RightHandUse: Turns page in book 0;1 0 = unchecked box; 1 = checked box righthanduse_turnspageinbook
Query rh_usesutensilmaybeada Integer Recommended RightHandUse: Uses utensil (may be adaptive) 0;1 0 = unchecked box; 1 = checked box righthanduse_usesutensilmaybeada
Query rh_writesletters Integer Recommended RightHandUse: Writes letters 0;1 0 = unchecked box; 1 = checked box righthanduse_writesletters
Query scoliosis_dx Integer Recommended Scoliosis choose only one option 0::5 0=None; 1=< 10 degrees; 2=10-<20 degrees; 3=20-<40 degrees; 4=40-<60 degrees; 5=60 degrees or greater scoliosis
Query scoliosissurgyn Integer Recommended Scoliosis surgery performed 0;1 1=Yes; 0=No
Query selfabusive Integer Recommended Selfabusive behaviors 1::5 1=Absent 0%; 2=Rare ~25%; 3=Occasional ~50%; 4=Frequent ~75%; 5=Almost constant >90%
Query sitting Integer Recommended Sitting 1::4 1=Sits unaided; 2=Sits with minimal support; 3=Sits with maximal support; 4=Unable to sit
Query sittingduration Integer Recommended SittingIf sits unaided duration 1::3 1=5-30 seconds; 2=>5 seconds; 3=>30 seconds
Query sea_birthmarks Integer Recommended SkinExamAbnormal: Birth marks 0;1 0 = unchecked box; 1 = checked box skinexamabnormal_birthmarks
Query sea_cracksanderythe Integer Recommended SkinExamAbnormal: Cracks and erythema on hands 0;1 0 = unchecked box; 1 = checked box skinexamabnormal_cracksanderythe
Query sea_erythemaonhands Integer Recommended SkinExamAbnormal: Erythema on hands 0;1 0 = unchecked box; 1 = checked box skinexamabnormal_erythemaonhands
Query sea_other Integer Recommended SkinExamAbnormal: Other 0;1 0 = unchecked box; 1 = checked box skinexamabnormal_other
Query sea_skinbreakdownon Integer Recommended SkinExamAbnormal: Skin breakdown on hands 0;1 0 = unchecked box; 1 = checked box skinexamabnormal_skinbreakdownon
Query skin Integer Recommended Skin exam 0::5 1=Wide range of normal variability; 2=Abnormal by exam; 3=Abnormal by history only; 0=Not done; 4=Normal; 5=Abnormal skinexamlist
skinexamother String 300 Recommended Skin examIf other please specify
Query snoutnotpresent Integer Recommended Snout Not present 0;1 0 = unchecked box; 1 = checked box
Query socialreaction Integer Recommended Social reaction when examiner engages with them mark single most characteristic 1::5 1=Responds normally (100%); 2=Regards examiner for most of the time (75%); 3=Regards examiner for some of the time (50%); 4=Regards examiner for a little of the time (25%); 5=Ignores examiner completely (0%)
Query standing Integer Recommended Standing 1::4 1=Stands unaided; 2=Stands (minimal support); 3=Stands (maximal support); 4=Unable to stand
Query standingduration Integer Recommended StandingIf stands unaided duration 1::3 1=5-30 seconds; 2=>5 seconds; 3=>30 seconds
Query strength Integer Recommended Strength 1;2 1=Normal throughout; 2=Any weakness
Query totalclinicexp Integer Recommended Considering your total clinical experience with this population how impaired is participant now USE CGIS SCALE BELOW 1::7 1=Normal, not at all impaired; 2=Borderline impaired; 3=Mildly impaired; 4=Moderately impaired; 5=Markedly impaired; 6=Severely impaired; 7=The most impaired
Query tricepfoldcircumnotdone Integer Recommended Tricep skin fold not done 0;1 0 = unchecked box; 1 = checked box
Query truncalrocking Integer Recommended Truncal rocking voluntary 0::4 0=None; 1=25% of time; 2=50% of time; 3=75% of time; 4=100% of time
Query truncaltitubation Integer Recommended Truncal titubation 0::4 0=None; 1=25% of time; 2=50% of time; 3=75% of time; 4=100% of time
Query verbclearmeaning Integer Recommended When using vocal or verbal communication how clear is meaning without coaching from parents 1::6 1=Meaning is always clear; 2=Meaning is clear most of the time (>90%); 3=Meaning is clear more than half the time (>50%); 4=Meaning is clear less than half the time (<50%); 5=Vocalizes or verbalizes, but meaning is never clear; 6=Never vocalizes or verbalizes
Query verblangnumbsent Integer Recommended Verbal language output during visitIf uses complete sentences estimate total number of sentences used during visit 1::6 1; 2; 3; 4; 5; 6=>6
Query verblangnumbwords Integer Recommended Verbal language output during visitIf uses single words estimate total number of words used during visit 1::6 1=1; 2=2; 3=3 to 5; 4=6-10; 5=11-20; 6=>20
Query verblangoutput Integer Recommended Verbal language output during visit best function 0::8 0=None, except crying, screaming; 1=Babbles/vocalizes; 2=Uses sounds that have meaning ( I need the bathroom ); 3 =;Echoes words; 4=Uses single words that have meaning 5=; Use phrases (>2 words, but not complete sentence); 6=Uses isolated sentences (>2 words; subject and verb are present); 7=Uses complete sentences linked together in context; 8=Fluent, normal speech (may include occasional errors.)
Query verbalchoice Integer Recommended When shown 2 items use favorite toys if present or food how does participant choose vocally or verbally If participant indicated want clearly nonverbally to provoke verbal response ask participant to tell me which one 1::4 1=Names the item she/he wants; 2=Indicates want using words ('that') but does not name item; 3=Indicates want using non-specific verbalization; 4=Does not indicate want verbally
Query c_waist Float Recommended Waist (cm) waistcircum
Query waistcircumnotdone Integer Recommended Waist circumference not done 0;1 0 = unchecked box; 1 = checked box
Query walkstamina Integer Recommended Walking stamina 1::5 1=Walks distance from waiting room to interview room (>10 feet) easily; 2=Walks distance from waiting room to interview room (>10 feet) with difficulty; 3=Walks across room; 4=Takes a few steps; 5=Stands but does not walk
Query walking Integer Recommended Walking 1::5 1=Walks unaided at normal pace for age; 2=Walks unaided at reduced pace for age; 3=Walks with minimal support; 4=Walks with maximum support; 5=Unable to walk
Query weightnotdone Integer Recommended Weight not done 0;1 0 = unchecked box; 1 = checked box
Query weight_met Float Recommended Weight - Metric Unit 999 = Missing weighttextbox
Query wristcircumnotdone Integer Recommended Wrist circumference not done 0;1 0 = unchecked box; 1 = checked box
Query u5211cababinskinottested Integer Recommended Babinski not tested 0;1 0 = unchecked box; 1 = checked box
Query u5211cafeetgroup2 Integer Recommended Feet Column 2 1::4 1=Warm; 2=Cool; 3=Cold; 4=Hot
Query u5211cafeetgroup3 Integer Recommended Feet Column 3 1;2 1=Dry;2= Sweaty
Query u5211cahandsgroup2 Integer Recommended Hands Column 2 1::4 1=Warm; 2=Cool; 3=Cold; 4=Hot
Query u5211cahandsgroup3 Integer Recommended Hands Column 3 1;2 1=Dry;2= Sweaty
Query u5211capalmomentalint Integer Recommended Palmomentali Not Tested 0;1 0 = unchecked box; 1 = checked box u5211capalmomentalinottested
u5211caresponsetlt String 50 Recommended Specify response to light touch u5211caresponsetolighttouch
Query u5211casnoutnottested Integer Recommended Snout Not Tested 0;1 0 = unchecked box; 1 = checked box
Query mostsevereabusive Integer Recommended List all selfabusive behaviors and fill in O next to the single most severeproblematic of these movements 0::9 1=Slapping face; 2=Biting/chewing self; 3=Banging head; 4=Pulling hair; 5=Picking self; 6=Hitting/slapping other parts of head; 7=Hitting/slapping other body parts; 8=Scratching/digging self;9= Rubbing or pinching self; 0=None
Query mostsevererepmove Integer Recommended List all repetitive movements and fill in O next to the single most severeproblematic of these movements 0::18 1=Clasping; 2=Hand wringing/washing; 3=Clapping; 4=Tapping/hitting (hands, surfaces); 5=Squeezing (hands, body, object); 6=Flicking (fingers, lips, etc.); 7=Scratching; 8=Hand mouthing; 9=Pulling hair; 10=Finger rubbing; 11=Picking (clothes, body, arms, etc.); 12=Hair twirling/pulling;13= Knitting/twisting fingers;14= Flipping (pages, hands, objects); 15=Rubbing; 16=Chewing/licking;17= Flapping next to body; 18=Flapping in front of body; 0=None
Query u5211caemaffectpr Integer Recommended D1 Description of Affect Predominant 1::8 1=Calm; 2=Smiling; 3=Laughing or giggling; 4=Appears anxious or fearful; 5=Frowning or sad; 6=Crying; 7=Irritable; 8=Screaming u5211caemotionalaffectpredomin
Query midupperarmcircum Float Recommended Midupper arm circ cm
Query tricepfoldcircum Float Recommended Tricep skin fold mm
Query wristcircum Float Recommended Wrist circumference cm
Query bmibycalc Float Recommended BMI by calculation
Query nystagmustype_horizontal Integer Recommended If Mystagmus selected, specify type: horizontal 0;1 0 = unchecked box; 1 = checked box
Query nystagmustype_rotator Integer Recommended If Mystagmus selected, specify type: rotator 0;1 0 = unchecked box; 1 = checked box
Query nystagmustype_vertical Integer Recommended If Mystagmus selected, specify type: vertical 0;1 0 = unchecked box; 1 = checked box
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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