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Care Patient Feedback Measure

0 Shared Subjects

N/A
Clinical Assessments
Satisfaction
12/24/2019
care_q01
01/10/2020
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
care_q1 Integer Recommended Regarding today's consultation, how good was the practitioner at making you feel at ease (introducing themself, explaining their position, being friendly and warm towards you, treating you with respect; not cold or abrupt) 1::5; 99 1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
care_q2 Integer Recommended Regarding today's consultation, how good was the practitioner at letting you tell your "story" (giving you time to fully describe your condition in your own words; not interrupting, rushing or diverting you) 1::5; 99 1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
care_q3 Integer Recommended Regarding today's consultation, how good was the practitioner at really listening (paying close attention to what you were saying; not looking at the notes or computer as you were talking) 1::5; 99 1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
care_q4 Integer Recommended Regarding today's consultation, how good was the practitioner at being interested in you as a whole person (asking/knowing relevant details about your life, your situation; not treating you as "just a number") 1::5; 99 1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
care_q5 Integer Recommended Regarding today's consultation, how good was the practitioner at fully understanding your concerns (communicating that he/she had accurately understood your concerns and anxieties; not overlooking or dismissing anything) 1::5; 99 1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
care_q6 Integer Recommended Regarding today's consultation, how good was the practitioner at showing care and compassion (seeming genuinely concerned, connecting with you on a human level; not being indifferent or "detached") 1::5; 99 1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
care_q7 Integer Recommended Regarding today's consultation, how good was the practitioner at being positive (having a positive approach and a positive attitude; being honest but not negative about your problems) 1::5; 99 1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
care_q8 Integer Recommended Regarding today's consultation, how good was the practitioner at explaining things clearly (fully answering your questions; explaining clearly, giving you adequate information, not being vague) 1::5; 99 1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
care_q9 Integer Recommended Regarding today's consultation, how good was the practitioner at helping you to take control (exploring with you what you can do to improve your health yourself; encouraging rather than "lecturing" you) 1::5; 99 1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
care_q10 Integer Recommended Regarding today's consultation, how good was the practitioner at making a plan of action with you (discussing the options, involving you in decisions as much as you want to be involved; not ignoring your views) 1::5; 99 1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
care_q11 Integer Recommended Total CARE Measure Score from lowest to highest 10::50
Query visit String 60 Recommended Visit name
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.