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subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
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gender |
|
care_q1 |
Integer |
|
Recommended |
Regarding today's consultation, how good was the practitioner at making you feel at ease (introducing themself, explaining their position, being friendly and warm towards you, treating you with respect; not cold or abrupt) |
1::5; 99
|
1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
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care_q2 |
Integer |
|
Recommended |
Regarding today's consultation, how good was the practitioner at letting you tell your "story" (giving you time to fully describe your condition in your own words; not interrupting, rushing or diverting you) |
1::5; 99
|
1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
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care_q3 |
Integer |
|
Recommended |
Regarding today's consultation, how good was the practitioner at really listening (paying close attention to what you were saying; not looking at the notes or computer as you were talking) |
1::5; 99
|
1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
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care_q4 |
Integer |
|
Recommended |
Regarding today's consultation, how good was the practitioner at being interested in you as a whole person (asking/knowing relevant details about your life, your situation; not treating you as "just a number") |
1::5; 99
|
1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
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care_q5 |
Integer |
|
Recommended |
Regarding today's consultation, how good was the practitioner at fully understanding your concerns (communicating that he/she had accurately understood your concerns and anxieties; not overlooking or dismissing anything) |
1::5; 99
|
1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
|
|
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care_q6 |
Integer |
|
Recommended |
Regarding today's consultation, how good was the practitioner at showing care and compassion (seeming genuinely concerned, connecting with you on a human level; not being indifferent or "detached") |
1::5; 99
|
1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
|
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care_q7 |
Integer |
|
Recommended |
Regarding today's consultation, how good was the practitioner at being positive (having a positive approach and a positive attitude; being honest but not negative about your problems) |
1::5; 99
|
1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
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care_q8 |
Integer |
|
Recommended |
Regarding today's consultation, how good was the practitioner at explaining things clearly (fully answering your questions; explaining clearly, giving you adequate information, not being vague) |
1::5; 99
|
1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
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care_q9 |
Integer |
|
Recommended |
Regarding today's consultation, how good was the practitioner at helping you to take control (exploring with you what you can do to improve your health yourself; encouraging rather than "lecturing" you) |
1::5; 99
|
1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
|
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care_q10 |
Integer |
|
Recommended |
Regarding today's consultation, how good was the practitioner at making a plan of action with you (discussing the options, involving you in decisions as much as you want to be involved; not ignoring your views) |
1::5; 99
|
1= Poor ; 2= Fair ; 3= Good ; 4= Very Good ; 5= Excellent ; 99= Does not apply
|
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care_q11 |
Integer |
|
Recommended |
Total CARE Measure Score from lowest to highest |
10::50
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Query
|
visit |
String |
60
|
Recommended |
Visit name |
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