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Frequently Asked Questions


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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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25-year Carpenter Prognostic Update



Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender
version_formString100RecommendedForm used/assessment name
carp1IntegerRecommendedAssessment done later than 300 months?0;10 = No; 1 = Yes
carp2FloatRecommendedIf assessment done later than 300 months: number of months beyond 300
carp3IntegerRecommendedAssessment done prior to 300 months?0;10 = No; 1 = Yes
carp4FloatRecommendedIf assessment done prior to 300 months: number of months before 300
carp5FloatRecommendedIn past 6 months: Number of months employed full-time
carp6FloatRecommendedIn past 6 months: Number of months employed part-time
carp7FloatRecommendedIn past 6 months: Number of months not working
carp8IntegerRecommendedIn past 6 months: Primary role0::90 = Other; 1 = Leave of absence (holding job, plans to return); 2 = Student part time (<9 credit hours); 3 = Student full time (9+ credit hours); 4 = Homemaker; 5 = Retired; 6 = Unemployed but not expected to work (e.g., physically disabled or hospitalized); 7 = Unemployed but expected to work; 8 = Employed part time; 9 = Employed full time
carp9String15RecommendedIn past 6 months: Role pattern (select up to 3 categories)0 = Other; 1 = Leave of absence (holding job, plans to return); 2 = Student part time (<9 credit hours); 3 = Student full time (9+ credit hours); 4 = Homemaker; 5 = Retired; 6 = Unemployed but not expected to work (e.g., physically disabled or hospitalized); 7 = Unemployed but expected to work; 8 = Employed part time; 9 = Employed full time
carp10String100RecommendedIn past 6 months: Role pattern, specify
carp11String100RecommendedIn past 6 months: Usual occupation
carp12IntegerRecommendedParticipant disability status0::30 = Not disabled; 1 = Disabled medically; 2 = Disabled psychiatrically; 3 = Disabled medically & psychiatrically
carp13IntegerRecommendedIn past 6 months: Number of different employers999 = N/A
carp14IntegerRecommendedIn past 6 months: Employed by >1 employer simultaneously0;10 = No; 1 = Yes
carp15IntegerRecommendedPsychiatric status rating1::5; 71 = Full remission: No psychotic symptoms, no impairment; 2 = Full remission: No psychotic symptoms, minor impairment; 3 = Partial remission; 4 = Full relapse/episode; 5 = Partial relapse/episode; 7 = Don't know/Can't determine
carp16IntegerRecommendedPsychotic symptoms0::3; 70 = Not present; 1 = Subthreshold or transient; 2 = Definite, mild or encapsulated - no effect on functioning; 3 = Definite, moderate to severe - functioning affected; 7 = Don't know/can't determine
carp17IntegerRecommendedMood symptoms0::5; 70 = Not present; 1 = Manic syndrome; 2 = Hypomania; 3 = Major depressive syndrome definite or probable; 4 = Dysthymia or subthreshold depressive symptoms; 5 = Mixed - concurrent (hypo)manic/depressive symptoms or rapid cycling; 7 = Don't know/can't determine
carp18IntegerRecommendedNegative symptoms0::2; 70 = Not present; 1 = Mild; 2 = Severe; 7 = Don't know/can't determine
carp19IntegerRecommendedIn past 6 months: Rate level of stressful events, using Severity of Psychosocial Stressors scale (DSM-III-R)0::60 = Inadequate information; 1 = None; 2 = Mild; 3 = Moderate; 4 = Severe; 5 = Extreme; 6 = Catastrophic
carp20FloatRecommendedIn past 6 months: Length of time (in weeks) in the community
carp21IntegerRecommendedIn past 6 months: Extent of outpatient treatment1::4; 9991 = Continuous treatment; 2 = Several brief periods; 3 = Consultation or brief period of treatment; 4 = None; 999 = N/A (patient hospitalized throughout follow-up)
carp22IntegerRecommendedIn past 6 months: nature of treatment = drug or alcohol tx0;1;8880 = No; 1 = Yes; 888 = DK
carp23IntegerRecommendedIn past 6 months: nature of treatment = psychotherapy0;1;8880 = No; 1 = Yes; 888 = DK
carp24IntegerRecommendedIn past 6 months: nature of treatment = antipsychotic meds0;1;8880 = No; 1 = Yes; 888 = DK
carp25IntegerRecommendedIn past 6 months: nature of treatment = non-antipsychotic meds0;1;8880 = No; 1 = Yes; 888 = DK
carp26IntegerRecommendedIn past 6 months: nature of treatment = unknown psychiatric meds0;1;8880 = No; 1 = Yes; 888 = DK
carp27IntegerRecommendedIn past 6 months: Predominant patient status1::7; 8881 = Outpatient, regular attendance (at least bimonthly); 2 = Outpatient, rarely seen; 3 = Day or Partial hospital patient; 4 = Inpatient; 5 = Institutionalized, other; 6 = Other (specify); 7 = Not in treatment; 888 = DK
casa15yString40RecommendedSpecify: Other services from other sources for emotional, behavioral, or substance use problems (past 6 months)
carp29IntegerRecommendedIn past 6 months: Other interim non-psychiatric hospitalizations0::20 = None; 1 = Medical, not psychiatric; 2 = Alcohol or drug
carp30String33RecommendedItems rater did NOT feel confident rating1-11
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: carpenter01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.