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Frequently Asked Questions

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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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25-year Carpenter Prognostic Update

0 Shared Subjects

N/A
Clinical Assessments
Psychosis
09/13/2017
carpenter01
09/15/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
version_form String 100 Recommended Form used/assessment name
carp1 Integer Recommended Assessment done later than 300 months? 0;1 0 = No; 1 = Yes
carp2 Float Recommended If assessment done later than 300 months: number of months beyond 300
carp3 Integer Recommended Assessment done prior to 300 months? 0;1 0 = No; 1 = Yes
carp4 Float Recommended If assessment done prior to 300 months: number of months before 300
carp5 Float Recommended In past 6 months: Number of months employed full-time
carp6 Float Recommended In past 6 months: Number of months employed part-time
carp7 Float Recommended In past 6 months: Number of months not working
carp8 Integer Recommended In past 6 months: Primary role 0::9 0 = Other; 1 = Leave of absence (holding job, plans to return); 2 = Student part time (<9 credit hours); 3 = Student full time (9+ credit hours); 4 = Homemaker; 5 = Retired; 6 = Unemployed but not expected to work (e.g., physically disabled or hospitalized); 7 = Unemployed but expected to work; 8 = Employed part time; 9 = Employed full time
carp9 String 15 Recommended In past 6 months: Role pattern (select up to 3 categories) 0 = Other; 1 = Leave of absence (holding job, plans to return); 2 = Student part time (<9 credit hours); 3 = Student full time (9+ credit hours); 4 = Homemaker; 5 = Retired; 6 = Unemployed but not expected to work (e.g., physically disabled or hospitalized); 7 = Unemployed but expected to work; 8 = Employed part time; 9 = Employed full time
carp10 String 100 Recommended In past 6 months: Role pattern, specify
carp11 String 100 Recommended In past 6 months: Usual occupation
carp12 Integer Recommended Participant disability status 0::3 0 = Not disabled; 1 = Disabled medically; 2 = Disabled psychiatrically; 3 = Disabled medically & psychiatrically
carp13 Integer Recommended In past 6 months: Number of different employers 999 = N/A
carp14 Integer Recommended In past 6 months: Employed by >1 employer simultaneously 0;1 0 = No; 1 = Yes
carp15 Integer Recommended Psychiatric status rating 1::5; 7 1 = Full remission: No psychotic symptoms, no impairment; 2 = Full remission: No psychotic symptoms, minor impairment; 3 = Partial remission; 4 = Full relapse/episode; 5 = Partial relapse/episode; 7 = Don't know/Can't determine
carp16 Integer Recommended Psychotic symptoms 0::3; 7 0 = Not present; 1 = Subthreshold or transient; 2 = Definite, mild or encapsulated - no effect on functioning; 3 = Definite, moderate to severe - functioning affected; 7 = Don't know/can't determine
carp17 Integer Recommended Mood symptoms 0::5; 7 0 = Not present; 1 = Manic syndrome; 2 = Hypomania; 3 = Major depressive syndrome definite or probable; 4 = Dysthymia or subthreshold depressive symptoms; 5 = Mixed - concurrent (hypo)manic/depressive symptoms or rapid cycling; 7 = Don't know/can't determine
carp18 Integer Recommended Negative symptoms 0::2; 7 0 = Not present; 1 = Mild; 2 = Severe; 7 = Don't know/can't determine
carp19 Integer Recommended In past 6 months: Rate level of stressful events, using Severity of Psychosocial Stressors scale (DSM-III-R) 0::6 0 = Inadequate information; 1 = None; 2 = Mild; 3 = Moderate; 4 = Severe; 5 = Extreme; 6 = Catastrophic
carp20 Float Recommended In past 6 months: Length of time (in weeks) in the community
carp21 Integer Recommended In past 6 months: Extent of outpatient treatment 1::4; 999 1 = Continuous treatment; 2 = Several brief periods; 3 = Consultation or brief period of treatment; 4 = None; 999 = N/A (patient hospitalized throughout follow-up)
carp22 Integer Recommended In past 6 months: nature of treatment = drug or alcohol tx 0;1;888 0 = No; 1 = Yes; 888 = DK
carp23 Integer Recommended In past 6 months: nature of treatment = psychotherapy 0;1;888 0 = No; 1 = Yes; 888 = DK
carp24 Integer Recommended In past 6 months: nature of treatment = antipsychotic meds 0;1;888 0 = No; 1 = Yes; 888 = DK
carp25 Integer Recommended In past 6 months: nature of treatment = non-antipsychotic meds 0;1;888 0 = No; 1 = Yes; 888 = DK
carp26 Integer Recommended In past 6 months: nature of treatment = unknown psychiatric meds 0;1;888 0 = No; 1 = Yes; 888 = DK
carp27 Integer Recommended In past 6 months: Predominant patient status 1::7; 888 1 = Outpatient, regular attendance (at least bimonthly); 2 = Outpatient, rarely seen; 3 = Day or Partial hospital patient; 4 = Inpatient; 5 = Institutionalized, other; 6 = Other (specify); 7 = Not in treatment; 888 = DK
casa15y String 40 Recommended Specify: Other services from other sources for emotional, behavioral, or substance use problems (past 6 months)
carp29 Integer Recommended In past 6 months: Other interim non-psychiatric hospitalizations 0::2 0 = None; 1 = Medical, not psychiatric; 2 = Alcohol or drug
carp30 String 33 Recommended Items rater did NOT feel confident rating 1-11
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.