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Caregiver Activity Survey

434 Shared Subjects

N/A
Clinical Assessments
Questionnaire
05/28/2015
cas01
08/21/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project catieid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY caregiver_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query cas03a Integer Recommended I. Using transportation hours 0::24
Query cas03b Integer Recommended I. Using transportation minutes 0::59
Query cas04a Integer Recommended II. Dressing hours 0::24
Query cas04b Integer Recommended II. Dressing minutes 0::59
Query cas05a Integer Recommended III. Eating hours 0::24
Query cas05b Integer Recommended III. Eating minutes 0::59
Query cas06a Integer Recommended Looking after one's appearance hours 0::24
Query cas06b Integer Recommended IV. Looking after one's appearance minutes 0::59
Query cas07a Integer Recommended V. Supervising the person hours 0::24
Query cas07b Integer Recommended V. Supervising the person minutes 0::59
Query visit String 60 Recommended Visit name
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
Query visnum Float Recommended Numeric Visit Number -1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Query phase_ct String 20 Recommended Current Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase. Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1 phase
Query tr_ts Float Recommended Transportation Total Score (hrs) Created variable: Total transportation time, expressed in hours
Query dr_ts Float Recommended Dressing Total Score (hrs) Created variable: Total dressing time, expressed in hours
Query eat_ts Float Recommended Eating Total Score (hrs) Created variable: Total eating time, expressed in hours
Query app_ts Float Recommended Appearance Total Score (hrs) Created variable: Total looking after one's appearance time, expressed in hours
Query sup_ts Float Recommended Supervision Total Score (hrs) Created variable: Total supervision time, expressed in hours
Query cas_ts Float Recommended CAS Total Score (hrs) Created variable with modified 20% missing data rule applied: Total transportation, dressing, eating, appearance, and supervision time, expressed in hours Note: if 1 item is missing, it is assumed to be zero for the total calculation . If > 1 items are missing, the total score is set to mising
Query cas4_ts Float Recommended CAS Sub-Total Score (hrs) without Supervision Created variable with modified 20% missing data rule applied: Total transportation, dressing, eating and appearance time, expressed in hours Note: if any items are missing, the total score is set to mising
Query base1 Integer Recommended Flag Baseline Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query last1 Integer Recommended Flag Last Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query b1_ts Float Recommended Baseline CAS Total Score (hrs) Created variable: Score at Phase 1 baseline
Query b1_4ts Float Recommended Baseline CAS Sub-Total Score (hrs) Created variable: Score at Phase 1 baseline
Query b1_tr Float Recommended Baseline Transportation (hrs) Created variable: Score at Phase 1 baseline
Query b1_dr Float Recommended Baseline Dressing (hrs) Created variable: Score at Phase 1 baseline
Query b1_eat Float Recommended Baseline Eating (hrs) Created variable: Score at Phase 1 baseline
Query b1_app Float Recommended Baseline Appearance (hrs) Created variable: Score at Phase 1 baseline
Query b1_sup Float Recommended Baseline Supervision (hrs) Created variable: Score at Phase 1 baseline
Query c_ts Float Recommended Changed from Baseline ADAS Total Score Change from Phase 1 baseline
Query c_4ts Float Recommended CFB CAS Sub-Total Score (hrs) Created variable: Change from Phase 1 baseline
Query c_tr Float Recommended CFB Transportation (hrs) Created variable: Change from Phase 1 baseline
Query c_dr Float Recommended CFB Dressing (hrs) Created variable: Change from Phase 1 baseline
Query c_eat Float Recommended CFB Eating (hrs) Created variable: Change from Phase 1 baseline
Query c_app Float Recommended CFB Appearance (hrs) Created variable: Change from Phase 1 baseline
Query c_supvis Float Recommended CFB Supervision (hrs) Created variable: Change from Phase 1 baseline
Query saps_ad10 Integer Recommended Rater number therapist
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data caregiver_comments
dode String 10 Recommended Date of Data Entry caregiver_entered
Query cps01 Integer Recommended Is the caregiver involved in therapy? 0;1 0 = No; 1 = Yes cps_1
Query cps02 Integer Recommended How involved is the caregiver in therapy? 1::5 1 = Not at all ; 2 = Somewhat ; 3 = A moderate amount ; 4 = Very much ; 5 = Completely cps_2
Query cps03 Integer Recommended How long has the caregiver been involved in therapy (in weeks): cps_3
Query cps_4 Integer Recommended How successful was the caregiver's participation? 1::5 1 = Not at all ; 2 = Somewhat ; 3 = A moderate amount ; 4 = Very much ; 5 = Completely
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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