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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Caregiver Activity Survey

434 Shared Subjects

N/A
Clinical Assessments
Questionnaire
05/28/2015
cas01
08/21/2017
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project catieid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY caregiver_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query cas03a Integer Recommended I. Using transportation hours 0::24
Query cas03b Integer Recommended I. Using transportation minutes 0::59
Query cas04a Integer Recommended II. Dressing hours 0::24
Query cas04b Integer Recommended II. Dressing minutes 0::59
Query cas05a Integer Recommended III. Eating hours 0::24
Query cas05b Integer Recommended III. Eating minutes 0::59
Query cas06a Integer Recommended Looking after one's appearance hours 0::24
Query cas06b Integer Recommended IV. Looking after one's appearance minutes 0::59
Query cas07a Integer Recommended V. Supervising the person hours 0::24
Query cas07b Integer Recommended V. Supervising the person minutes 0::59
Query visit String 60 Recommended Visit name
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
Query visnum Float Recommended Numeric Visit Number -1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Query phase_ct String 20 Recommended Current Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase. Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1 phase
Query tr_ts Float Recommended Transportation Total Score (hrs) Created variable: Total transportation time, expressed in hours
Query dr_ts Float Recommended Dressing Total Score (hrs) Created variable: Total dressing time, expressed in hours
Query eat_ts Float Recommended Eating Total Score (hrs) Created variable: Total eating time, expressed in hours
Query app_ts Float Recommended Appearance Total Score (hrs) Created variable: Total looking after one's appearance time, expressed in hours
Query sup_ts Float Recommended Supervision Total Score (hrs) Created variable: Total supervision time, expressed in hours
Query cas_ts Float Recommended CAS Total Score (hrs) Created variable with modified 20% missing data rule applied: Total transportation, dressing, eating, appearance, and supervision time, expressed in hours Note: if 1 item is missing, it is assumed to be zero for the total calculation . If > 1 items are missing, the total score is set to mising
Query cas4_ts Float Recommended CAS Sub-Total Score (hrs) without Supervision Created variable with modified 20% missing data rule applied: Total transportation, dressing, eating and appearance time, expressed in hours Note: if any items are missing, the total score is set to mising
Query base1 Integer Recommended Flag Baseline Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query last1 Integer Recommended Flag Last Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query b1_ts Float Recommended Baseline CAS Total Score (hrs) Created variable: Score at Phase 1 baseline
Query b1_4ts Float Recommended Baseline CAS Sub-Total Score (hrs) Created variable: Score at Phase 1 baseline
Query b1_tr Float Recommended Baseline Transportation (hrs) Created variable: Score at Phase 1 baseline
Query b1_dr Float Recommended Baseline Dressing (hrs) Created variable: Score at Phase 1 baseline
Query b1_eat Float Recommended Baseline Eating (hrs) Created variable: Score at Phase 1 baseline
Query b1_app Float Recommended Baseline Appearance (hrs) Created variable: Score at Phase 1 baseline
Query b1_sup Float Recommended Baseline Supervision (hrs) Created variable: Score at Phase 1 baseline
Query c_ts Float Recommended Changed from Baseline ADAS Total Score Change from Phase 1 baseline
Query c_4ts Float Recommended CFB CAS Sub-Total Score (hrs) Created variable: Change from Phase 1 baseline
Query c_tr Float Recommended CFB Transportation (hrs) Created variable: Change from Phase 1 baseline
Query c_dr Float Recommended CFB Dressing (hrs) Created variable: Change from Phase 1 baseline
Query c_eat Float Recommended CFB Eating (hrs) Created variable: Change from Phase 1 baseline
Query c_app Float Recommended CFB Appearance (hrs) Created variable: Change from Phase 1 baseline
Query c_supvis Float Recommended CFB Supervision (hrs) Created variable: Change from Phase 1 baseline
Query saps_ad10 Integer Recommended Rater number therapist
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data caregiver_comments
dode String 10 Recommended Date of Data Entry caregiver_entered
Query cps01 Integer Recommended Is the caregiver involved in therapy? 0;1 0 = No; 1 = Yes cps_1
Query cps02 Integer Recommended How involved is the caregiver in therapy? 1::5 1 = Not at all ; 2 = Somewhat ; 3 = A moderate amount ; 4 = Very much ; 5 = Completely cps_2
Query cps03 Integer Recommended How long has the caregiver been involved in therapy (in weeks): cps_3
Query cps_4 Integer Recommended How successful was the caregiver's participation? 1::5 1 = Not at all ; 2 = Somewhat ; 3 = A moderate amount ; 4 = Very much ; 5 = Completely
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

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