|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
memory_score |
Float |
|
Recommended |
Dementia Rating Memory |
0; 0.5; 1; 2; 3
|
0 = None; 0.5 = Questionable; 1 = Mild; 2 = Moderate; 3 = Severe
|
memory_recall_score |
|
orientation_score |
Float |
|
Recommended |
Dementia Rating Orientation |
0; 0.5; 1; 2; 3
|
0 = None; 0.5 = Questionable; 1 = Mild; 2 = Moderate; 3 = Severe
|
|
|
judgment_problem_solving_score |
Float |
|
Recommended |
Dementia Rating Problem Solving |
0; 0.5; 1; 2; 3
|
0 = None; 0.5 = Questionable; 1 = Mild; 2 = Moderate; 3 = Severe
|
decision_making_problem_solving_score |
|
community_affairs_score |
Float |
|
Recommended |
Dementia Rating Community Affairs |
0; 0.5; 1; 2; 3
|
0 = None; 0.5 = Questionable; 1 = Mild; 2 = Moderate; 3 = Severe
|
|
|
home_hobby_score |
Float |
|
Recommended |
Dementia Rating Home Hobby |
0; 0.5; 1; 2; 3
|
0 = None; 0.5 = Questionable; 1 = Mild; 2 = Moderate; 3 = Severe
|
|
|
personal_care_score |
Float |
|
Recommended |
Dementia Rating Personal Care |
0; 0.5; 1; 2; 3
|
0 and 0.5 = None; 1 = Mild; 2 = Moderate; 3 = Severe
|
|
|
cdr_sum_of_boxes |
Float |
|
Recommended |
Dementia Rating Sum of Boxes Score |
|
|
|
|
global_cdr_score |
Float |
|
Recommended |
Dementia Rating (CDR) Global score |
0 :: 3
|
0.0 = No Impairment; 0.5 = Questionable impairment; 1.0 = Mild impairment; 2.0 = Moderate impairment; 3.0 = Severe Impairment
|
qdrstotal |
|
aoh_score |
Float |
|
Recommended |
Dementia Rating Activities Outside Home |
0; 0.5; 1; 2; 3
|
0 = None; 0.5 = Questionable; 1 = Mild; 2 = Moderate; 3 = Severe
|
activities_outside_home_score |
|
tph_score |
Float |
|
Recommended |
Dementia Rating Toileting Personal Hygiene |
0; 0.5; 1; 2; 3
|
0 = None; 0.5 = Questionable; 1 = Mild; 2 = Moderate; 3 = Severe
|
toileting_personal_hygiene_score |
|
bpc_score |
Float |
|
Recommended |
Dementia Rating Behavior Personality Changes |
0; 0.5; 1; 2; 3
|
0 = None; 0.5 = Questionable; 1 = Mild; 2 = Moderate; 3 = Severe
|
behavior_personality_changes_score |
|
lca_score |
Float |
|
Recommended |
Dementia Rating Language Communication Abilities |
0; 0.5; 1; 2; 3
|
0 = None; 0.5 = Questionable; 1 = Mild; 2 = Moderate; 3 = Severe
|
language_communication_abilities_score |
|
mood_score |
Float |
|
Recommended |
Dementia Rating Mood Changes |
0; 0.5; 1; 2; 3
|
0 = None; 0.5 = Questionable; 1 = Mild; 2 = Moderate; 3 = Severe
|
|
|
attconc_score |
Float |
|
Recommended |
Dementia Rating Attention Concentration |
0; 0.5; 1; 2; 3
|
0 = None; 0.5 = Questionable; 1 = Mild; 2 = Moderate; 3 = Severe
|
attention_concentration_score |
|
cdritem1_1 |
Integer |
|
Recommended |
Does the subject have a problem with memory and/ or thinking? |
0; 1
|
0= No; 1= Yes; 9= Unknown
|
|
|
cdritem1_1a |
Integer |
|
Recommended |
Does the subject have a problem with memory and/ or thinking? Is this a consistent problem? |
0; 1
|
0= No; 1= Yes; 9= Unknown
|
|
|
cdritem1_1b |
Integer |
|
Recommended |
Does the subject have a problem with memory and/ or thinking? Is this a consistent problem? What was the onset of the problem like? |
1;2;8;9
|
1= Sudden; 2= Gradual; 9= Unknown; 8= NA
|
|
|
cdritem1_1c |
Integer |
|
Recommended |
Does the subject have a problem with memory and/ or thinking? Is this a consistent problem? What was the onset of the problem like? Since onset, how have the problems changed? |
1;2;3;8;9
|
1= Worse; 2= Better; 3= Stable; 9= Unknown; 8= NA
|
|
|
cdritem1_1d |
Integer |
|
Recommended |
Does the subject have a problem with memory and/ or thinking? Is this a consistent problem? What was the onset of the problem like? Since onset, how have the problems changed? If worse, progression has been: |
1;2;3;4;8
|
1= Rapid; 2= Steady; 3= Stepwise; 4= Variable; 8= NA
|
|
|
cdritem1_2 |
Integer |
|
Recommended |
Can they recall recent events? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_3 |
Integer |
|
Recommended |
Can they remember a short list of items (shopping list)? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_3a |
Integer |
|
Recommended |
Shopping list: Repeat questions/ statements |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_3b |
Integer |
|
Recommended |
Shopping list: Misplace items |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_3c |
Integer |
|
Recommended |
Shopping list: Forget events and/ or conversations |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_3d |
Integer |
|
Recommended |
Shopping list: Forget to complete tasks |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_3e |
Integer |
|
Recommended |
Shopping list: Have trouble finding words |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_3f |
Integer |
|
Recommended |
Shopping list: Trouble expressing self; broken/ nonsensical speech |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_3g |
Integer |
|
Recommended |
Shopping list: Have trouble concentrating or paying attention |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_4 |
Integer |
|
Recommended |
Has there been some decline in memory during the past year? |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem1_5 |
Integer |
|
Recommended |
Is their memory impaired to such a degree that it would have interfered with his/ her activities of daily life a few years ago (or pre-retirement activities)? |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem1_6 |
Integer |
|
Recommended |
Do they completely forget a major event (e.g., trip, party, family wedding) within a few weeks of the event? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_7 |
Integer |
|
Recommended |
Do they forget pertinent details of the major event? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_8 |
Integer |
|
Recommended |
Do they completely forget important information of the distant past (e.g., birth date, wedding date, place of employment)? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem1_9 |
String |
1,000
|
Recommended |
Tell me about some recent event in his/ her life that he/ she should remember. Within 1 week: |
|
|
|
|
cdritem1_9mnth |
String |
1,000
|
Recommended |
Tell me about some recent event in his/ her life that he/ she should remember. Within 1 month: |
|
|
|
|
cdritem1_13 |
String |
1,000
|
Recommended |
What was his/ her main occupation/ job? (or spouse's job if subject was not employed outside the home) |
|
|
|
|
cdritem1_14 |
String |
1,000
|
Recommended |
What was his/ her last major job (or spouse's job if subject was not employed)? |
|
|
|
|
cdritem1_15 |
String |
1,000
|
Recommended |
When did he/ she (or spouse) retire? |
|
|
|
|
cdritem1_15y |
String |
1,000
|
Recommended |
Why did he/ she (or spouse) retire? |
|
|
|
|
cdritem2_1 |
Integer |
|
Recommended |
How often does the subject know of the exact: Date of the Month |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem2_2 |
Integer |
|
Recommended |
How often does the subject know of the exact: Month |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem2_3 |
Integer |
|
Recommended |
How often does the subject know of the exact: Year |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem2_4 |
Integer |
|
Recommended |
How often does the subject know of the exact: Day of the Week |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem2_5 |
Integer |
|
Recommended |
How often does the subject know of the exact: Does the subject have difficulty with time relationships (when events happened in relation to each other)? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem2_6 |
Integer |
|
Recommended |
How often does the subject know of the exact: Can the subject find his/ her way about familiar streets? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem2_7 |
Integer |
|
Recommended |
How often does the subject know of the exact: How often does the subject know how to get from one place to another outside his/ her neighborhood? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem2_8 |
Integer |
|
Recommended |
How often does the subject know of the exact: How often can the subject find his/ her way about indoors? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem3_1 |
Integer |
|
Recommended |
In general, how would you rate the subject's abilities to: Solve problems at the present time? |
1;2;3;9
|
1= No loss; 2= Some loss; 3= Severe loss; 9= Unknown
|
|
|
cdritem3_2 |
Integer |
|
Recommended |
In general, how would you rate the subject's abilities to: Cope with small sums of money (e.g., make change, leave a small tip)? |
1;2;3;9
|
1= No loss; 2= Some loss; 3= Severe loss; 9= Unknown
|
|
|
cdritem3_3 |
Integer |
|
Recommended |
In general, how would you rate the subject's abilities to: Handle complicated financial or business transactions (e.g., balance check-book, pay bills)? |
1;2;3;9
|
1= No loss; 2= Some loss; 3= Severe loss; 9= Unknown
|
|
|
cdritem3_4 |
Integer |
|
Recommended |
In general, how would you rate the subject's abilities to: Handle a household emergency (e.g., plumbing leak, small fire)? |
1;2;3
|
1= As well as before; 2= Worse than before because of trouble thinking; 3= Worse than before (another reason)
|
|
|
cdritem3_4y |
String |
1,000
|
Recommended |
In general, how would you rate the subject's abilities to: Handle a household emergency (e.g., plumbing leak, small fire)? Worse than before, specify reason. |
|
|
|
|
cdritem3_5 |
Integer |
|
Recommended |
In general, how would you rate the subject's abilities to: Can the subject understand situations or explanations? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem3_6 |
Integer |
|
Recommended |
In general, how would you rate the subject's abilities to: Does the subject behave appropriately (i.e., in his/ her usual, premorbid manner) in social situations and interactions with other people? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
working |
Integer |
|
Recommended |
Are you working now |
1;2
|
1=Yes; 2=No
|
cdritem4_1 |
|
cdritem4_2 |
Integer |
|
Recommended |
Did memory or thinking problems contribute to the subject's decision to retire? |
0; 1; 8
|
0= No; 1= Yes; 8= NA
|
|
|
cdritem4_3 |
Integer |
|
Recommended |
Does the subject have significant difficulty in his/ her job because of problems with memory or thinking? |
1;2;3;8;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 8= NA; 9= Unknown
|
|
|
cdritem4_4 |
Integer |
|
Recommended |
Did the subject ever drive a car? |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem4_4a |
Integer |
|
Recommended |
Does the subject drive a car now? |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem4_4a1 |
Integer |
|
Recommended |
Does the subject drive a car now? If no, is it because of memory or thinking problems? |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem4_5 |
Integer |
|
Recommended |
If the subject is still driving, are there problems or risks because of poor thinking? |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem4_5_1 |
Integer |
|
Recommended |
In the past 12 months, has the subject experienced any of the following - Accidents |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem4_5_2 |
Integer |
|
Recommended |
In the past 12 months, has the subject experienced any of the following - Tickets |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem4_5_3 |
Integer |
|
Recommended |
In the past 12 months, has the subject experienced any of the following - Getting Lost |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem4_6 |
Integer |
|
Recommended |
Is the subject able to independently shop for their needs? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem4_7 |
Integer |
|
Recommended |
Is the subject able to independently carry out activities outside the home? |
1;2;3;9
|
1= Usually; 2= Sometimes; 3= Rarely or Never; 9= Unknown
|
|
|
cdritem4_8 |
Integer |
|
Recommended |
Is the subject taken to social functions outside of a family home? |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem4_8y |
String |
1,000
|
Recommended |
Is the subject taken to social functions outside of a family home? If no, why not? |
|
|
|
|
cdritem4_9 |
Integer |
|
Recommended |
Woulda casual observer of the subject's behavior think the subject was ill? |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem4_10 |
Integer |
|
Recommended |
If in nursing home, does the subject participate well in social functions (thinking)? |
0; 1
|
0= No; 1= Yes
|
|
|
cdritem1a |
String |
1,000
|
Recommended |
What changes have occurred in his/ her abilities to perform household chores? |
|
|
|
|
cdritem1b |
String |
1,000
|
Recommended |
What can he/she still do well? |
|
|
|
|
cdritem2a |
String |
1,000
|
Recommended |
What changes have occurred in his/ her abilities to perform hobbies? |
|
|
|
|
cdritem2b |
String |
1,000
|
Recommended |
What can he/ she still do well? |
|
|
|
|
cdritem3 |
String |
1,000
|
Recommended |
If in nursing home, what can he/ she no longer do well (H and H)? |
|
|
|
|
cdritem5_1 |
Integer |
|
Recommended |
Ability to perform household tasks |
0::1
|
0= No loss; 1= Severe Loss
|
|
|
cdritem5_1y |
String |
1,000
|
Recommended |
Ability to perform household tasks - please describe ability |
|
|
|
|
cdritem5_2 |
Integer |
|
Recommended |
Is the subject able to perform household chores at the level of (Informant does not need to be asked directly) |
0::4
|
0= Normal function in usual activities; 1= Functions in usual activities but not at usual level; 2= Functions independently in some activities (operates appliances, e.g., vacuum cleaner; prepares simple meals); 3= Functions in limited activities only (with some supervision, washes dishes with acceptable cleanliness; sets table); 4= No meaningful function (performs simple activities, such as making a bed, only with much supervision)
|
|
|
cdritem6_1 |
Integer |
|
Recommended |
What is your estimate of subject's mental ability in the following areas: Dressing (Blessed) |
0::3
|
0= Unaided; 1= Occasionally misplaced buttons, etc.; 2= Wrong sequence, commonly forgotten items; 3= Unable to dress
|
|
|
cdritem6_2 |
Integer |
|
Recommended |
What is your estimate of subject's mental ability in the following areas: Washing, grooming |
0::3
|
0= Unaided; 1= Needs prompting; 2= Sometimes needs help; 3= Always or nearly always needs help
|
|
|
cdritem6_3 |
Integer |
|
Recommended |
What is your estimate of subject's mental ability in the following areas: Eating habits |
0::3
|
0= Cleanly; proper utensils; 1= Messily; spoon; 2= Simple solids; 3= Has to be fed completely
|
|
|
cdritem6_4 |
Integer |
|
Recommended |
What is your estimate of subject's mental ability in the following areas: Sphincter control (Blessed) |
0::3
|
0= Normal, complete control; 1= Occasionaly wets bed / clothes; 2= Frequently wets bed / clothes; 3= Doubly incontinent
|
|
|
cdritem7_1 |
Integer |
|
Recommended |
Do you have problems with memory or thinking? |
0; 1; 9
|
0= No; 1= Yes; 9= Unknown
|
|
|
cdritem7_2_1 |
Float |
|
Recommended |
A few moments ago your (study partner) told me a few recent experiences you had. Will you tell me something about those? Within 1 week |
0::1
|
0= Largely Incorrect; 1= Largely Correct
|
|
|
cdritem7_2_2 |
Float |
|
Recommended |
A few moments ago your (study partner) told me a few recent experiences you had. Will you tell me something about those? Within 1 month |
0::1
|
0= Largely Incorrect; 1= Largely Correct
|
|
|
cdritem7_3_1 |
Integer |
|
Recommended |
I will give you a name and address to remember for a few minutes. Repeat this name and address after me: (Repeat until the phrase is correctly repeated or to a maximum of three trials). Max number of elements repeated |
|
|
|
|
cdritem7_3_2 |
Integer |
|
Recommended |
I will give you a name and address to remember for a few minutes. Repeat this name and address after me: (Repeat until the phrase is correctly repeated or to a maximum of three trials). Number of trials required |
|
|
|
|
cdritem7_4 |
Integer |
|
Recommended |
Repeat the name and address I asked you to remember: Number of elements recalled |
|
|
|
|
mmse01 |
Integer |
|
Recommended |
What is today's date? |
0;1
|
0=Incorrect; 1=Correct
|
cdritem8_1 |
|
cdritem8_2 |
Integer |
|
Recommended |
What day of the week is it? |
0; 1
|
0= Incorrect; 1= Correct
|
|
|
cdritem8_3 |
Integer |
|
Recommended |
What is the month? |
0; 1
|
0= Incorrect; 1= Correct
|
|
|
cdritem8_4 |
Integer |
|
Recommended |
What is the year? |
0; 1
|
0= Incorrect; 1= Correct
|
|
|
mmse06 |
Integer |
|
Recommended |
What is the name of this hospital (clinic, place)? |
0;1
|
0=Incorrect; 1=Correct
|
cdritem8_5 |
|
mmse08 |
Integer |
|
Recommended |
What town or city are we in? |
0;1
|
0=Incorrect; 1=Correct
|
cdritem8_6 |
|
cdritem8_7 |
Integer |
|
Recommended |
What time is it? |
0; 1
|
0= Incorrect; 1= Correct
|
|
|
cdritem8_8 |
Integer |
|
Recommended |
Does the subject know who the informant is (in your judgment)? |
0; 1
|
0= Incorrect; 1= Correct
|
|
|
cdritem9_1 |
Integer |
|
Recommended |
How are these things alike? turnip.....cauliflower |
0::2
|
0= vegetables; 1= edible foods, living things, can be cooked, etc.; 2= answers not pertinent; differences; buy them
|
|
|
cdritem9_2 |
Integer |
|
Recommended |
How are these things alike? desk.....bookcase |
0::2
|
0= furniture, office furniture; both hold books; 1= wooden, legs; 2= not pertinent, differences
|
|
|
cdritem9_3 |
Integer |
|
Recommended |
What is the difference between these things? lie.....mistake |
0::2
|
0= one deliberate, one unintentional; 1= one bad the other good - or explains only one; 2= anything else, similarities
|
|
|
cdritem9_4 |
Integer |
|
Recommended |
What is the difference between these things? river.....canal |
0; 1
|
0= natural - artificial; 1= anything else
|
|
|
cdritem9_5 |
Integer |
|
Recommended |
How many nickels in a dollar? |
0; 1
|
0= Incorrect; 1= Correct
|
|
|
cdritem9_6 |
Integer |
|
Recommended |
How many quarters in $6.75? |
0; 1
|
0= Incorrect; 1= Correct
|
|
|
cdritem9_7 |
Integer |
|
Recommended |
Subtract 3 from 20 and keep subtracting 3 from each new number? |
0; 1
|
0= Incorrect; 1= Correct
|
|
|
cdritem9_8 |
Integer |
|
Recommended |
Upon arriving in a strange city, how would you locate a friend that you wished to see? |
0::2
|
0= try the telephone book, go to the courthouse for a directory; call a mutual friend; 1= call the police, call operator (usually will not give address); 2= no clear response
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cdritem9_9 |
Integer |
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Recommended |
Subject's assessment of disability and station in life and understanding of why she/ she is present at the examination (may have covered, but rate here) |
1::3
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1= Good Insight; 2= Partial Insight; 3= Little Insight
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