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COVID-19 Exposure and Family Impact Scales

0 Shared Subjects

The COVID-19 Exposure and Family Impact Scales (CEFIS) has strong factors assessing Exposure to events related to COVID-19, and the Impact of these events on families of children in pediatric healthcare. Participants reported a range of COVID-19-related events on the bidirectional 4-point impact scale. Factor analysis identified six factors for Exposure (COVID-19 experiences, Access to essentials, Disruptions to living conditions, Loss of income, Family caregiving and activities, and Designation as an essential worker). There were three factors for Impact (Personal well-being, Family interactions, and Distress). https://doi.org/10.1093%2Fjpepsy%2Fjsab026
Clinical Assessments
Coping; Family; Life Events; Quality of Life; Questionnaire; Stress
03/21/2023
cefis01
03/23/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
part1_stay_home Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: We had a 'stay at home' order 0;1 0 = No; 1 = Yes
cefis_01_duration Integer Recommended For how long? Stay at home order Number of weeks
cefis_01_ongoing Integer Recommended Is this currently ongoing? Stay at home order 0;1 0= No; 1= Yes
cefis_01_stress Integer Recommended How much did this impact your stress level at the time? Stay at home order -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_school_closed Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Our schools / child care centers were closed 0;1 0 = No; 1 = Yes
cefis_02_duration Integer Recommended For how long? Schools/childcare closed Number of weeks
cefis_02_ongoing Integer Recommended Is this currently ongoing? Schools/childcare closed 0;1 0= No; 1= Yes
cefis_02_stress Integer Recommended How much did this impact your stress level at the time? Schools/childcare closed -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_ed_disrupt Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Our child/ren's education was disrupted 0;1 0 = No; 1 = Yes
cefis_03_duration Integer Recommended For how long? Child(ren)'s education was disrupted Number of weeks
cefis_03_ongoing Integer Recommended Is this currently ongoing? Child(ren)'s education was disrupted 0;1 0= No; 1= Yes
cefis_03_stress Integer Recommended How much did this impact your stress level at the time? Child(ren)'s education was disrupted -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_unable_visit Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: We were unable to visit or care for a family member 0;1 0 = No; 1 = Yes
cefis_04_duration Integer Recommended For how long? Unable to care for or visit a family member Number of weeks
cefis_04_ongoing Integer Recommended Is this currently ongoing? Unable to care for or visit a family member 0;1 0= No; 1= Yes
cefis_04_stress Integer Recommended How much did this impact your stress level at the time? Unable to care for or visit a family member -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_lived_sep Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Our family lived separately for health, safety or job demands 0;1 0 = No; 1 = Yes
cefis_05_duration Integer Recommended For how long? Family lived separately for health, safety, or job demands Number of weeks
cefis_05_ongoing Integer Recommended Is this currently ongoing? Family lived separately for health, safety, or job demands 0;1 0= No; 1= Yes
cefis_05_stress Integer Recommended How much did this impact your stress level at the time? Family lived separately for health, safety, or job demands -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_move_home Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Someone moved into (or back into) our home 0;1 0 = No; 1 = Yes
cefis_06_duration Integer Recommended For how long? Someone moved into/back into my home Number of weeks
cefis_06_ongoing Integer Recommended Is this currently ongoing? Someone moved into/back into my home 0;1 0= No; 1= Yes
cefis_06_stress Integer Recommended How much did this impact your stress level at the time? Someone moved into/back into my home -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_move_out Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: We had to move out of our home 0;1 0 = No; 1 = Yes
cefis_07_duration Integer Recommended For how long? Had to move out of our home Number of weeks
cefis_07_ongoing Integer Recommended Is this currently ongoing? Had to move out of our home 0;1 0= No; 1= Yes
cefis_07_stress Integer Recommended How much did this impact your stress level at the time? Had to move out of our home -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_essential Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Someone in the family kept working outside the home (essential personnel) 0;1 0 = No; 1 = Yes
cefis_08_severity Integer Recommended How many people? Someone in the family kept working outside the home (essential personnel) Number of people
cefis_08_ongoing Integer Recommended Is this currently ongoing? Someone in the family kept working outside the home (essential personnel) 0;1 0= No; 1= Yes
cefis_08_stress Integer Recommended How much did this impact your stress level at the time? Someone in the family kept working outside the home (essential personnel) -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_direct_care Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Someone in the family is a healthcare provider/first responder providing direct care 0;1 0 = No; 1 = Yes
cefis_09_severity Integer Recommended How many people? Someone in the family is a healthcare provider/first responder providing direct care
cefis_09_ongoing Integer Recommended Is this currently ongoing? Someone in the family is a healthcare provider/first responder providing direct care 0;1 0= No; 1= Yes
cefis_09_stress Integer Recommended How much did this impact your stress level at the time? Someone in the family is a healthcare provider/first responder providing direct care -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_diff_food Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: We had difficulty getting food 0;1 0 = No; 1 = Yes
cefis_10_duration Integer Recommended For how long? Difficulty getting food Number of weeks
cefis_10_ongoing Integer Recommended Is this currently ongoing? Difficulty getting food 0;1 0= No; 1= Yes
cefis_10_stress Integer Recommended How much did this impact your stress level at the time? Difficulty getting food -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_diff_med Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: We had difficulty getting medicine 0;1 0 = No; 1 = Yes
cefis_11_duration Integer Recommended For how long? Ddifficulty getting medicine Number of weeks
cefis_11_ongoing Integer Recommended Is this currently ongoing? Difficulty getting medicine 0;1 0= No; 1= Yes
cefis_11_stress Integer Recommended How much did this impact your stress level at the time? Ddifficulty getting medicine -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_diff_care Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: We had difficulty getting health care when we needed it 0;1 0 = No; 1 = Yes
cefis_12_duration Integer Recommended For how long? Difficulty getting health care when needed Number of weeks
cefis_12_ongoing Integer Recommended Is this currently ongoing? Difficulty getting health care when needed 0;1 0= No; 1= Yes
cefis_12_stress Integer Recommended How much did this impact your stress level at the time? Difficulty getting health care when needed -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_diff_essentials Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: We had difficulty getting other essentials 0;1 0 = No; 1 = Yes
part1_essentials_specify String 100 Recommended If Yes to [part1_diff_essentials], specify 0 = No; 1 = Yes
cefis_13_duration Integer Recommended For how long? Difficulty getting other essentials Number of weeks
cefis_13_ongoing Integer Recommended Is this currently ongoing? Difficulty getting other essentials 0;1 0= No; 1= Yes
cefis_13_stress Integer Recommended How much did this impact your stress level at the time? Difficulty getting other essentials -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_quarantine Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: We self-quarantined due to travel or possible exposure 0;1 0 = No; 1 = Yes
cefis_14_duration Integer Recommended For how long? Self-quarantined due to travel or possible exposure Number of weeks
cefis_14_ongoing Integer Recommended Is this currently ongoing? Self-quarantined due to travel or possible exposure 0;1 0= No; 1= Yes
cefis_14_stress Integer Recommended How much did this impact your stress level at the time? Self-quarantined due to travel or possible exposure -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_income Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Our family income decreased 0;1 0 = No; 1 = Yes
cefis_15_severity Float Recommended By about how much did your family income decrease? (percent) 0::100 Percent
cefis_15_ongoing Integer Recommended Is this currently ongoing? Family income decreased 0;1 0= No; 1= Yes
cefis_15_stress Integer Recommended How much did this impact your stress level at the time? Family income decreased -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_cut_work Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: A member of the family had to cut back hours at work 0;1 0 = No; 1 = Yes
cefis_16_severity Integer Recommended By how many hours per week did a family member have to cut down hours? Hours
cefis_16_ongoing Integer Recommended Is this currently ongoing? A member of the family had to cut back hours at work 0;1 0= No; 1= Yes
cefis_16_stress Integer Recommended How much did this impact your stress level at the time? A member of the family had to cut back hours at work -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_stop_work_temp Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: A member of the family was required to stop working (expect to be called back) 0;1 0 = No; 1 = Yes
cefis_17_duration Integer Recommended For how long? A member of the family was required to stop working (expect to be called back) Number of weeks
cefis_17_ongoing Integer Recommended Is this currently ongoing? A member of the family was required to stop working (expect to be called back) 0;1 0= No; 1= Yes
cefis_17_stress Integer Recommended How much did this impact your stress level at the time? A member of the family was required to stop working (expect to be called back) -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_stop_work_perm Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: A member of the family lost their job permanently 0;1 0 = No; 1 = Yes
cefis_18_severity Integer Recommended How many people lost their job permanently?
cefis_18_ongoing Integer Recommended Is this currently ongoing? A member of the family lost their job permanently 0;1 0= No; 1= Yes
cefis_18_stress Integer Recommended How much did this impact your stress level at the time? A member of the family lost their job permanently -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_benefits Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: We lost health insurance/benefits 0;1 0 = No; 1 = Yes
cefis_19_duration Integer Recommended For how long? Lost health insurance/benefits
cefis_19_ongoing Integer Recommended Is this currently ongoing? Lost health insurance/benefits 0;1 0= No; 1= Yes
cefis_19_stress Integer Recommended How much did this impact your stress level at the time? Lost health insurance/benefits -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_miss_event Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: We missed an important family event or it was canceled (e.g., wedding, graduation, birth, funeral, travel [including vacation], other) 0;1 0 = No; 1 = Yes
cefis_20_severity Integer Recommended How many family events did you miss?
cefis_20_ongoing Integer Recommended Is this currently ongoing? Missed an important family event or it was canceled 0;1 0= No; 1= Yes
cefis_20_stress Integer Recommended How much did this impact your stress level at the time? Missed an important family event or it was canceled -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_exposed Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Someone in the family was exposed to someone with COVID-19 0;1 0 = No; 1 = Yes
part1_exposed_who String 100 Recommended Someone in the family was exposed to someone with COVID-19. Who? (e.g. myself, my child, my spouse, my parent, etc) 0 = No; 1 = Yes
cefis_21_frequency Integer Recommended How many times was someone in the household exposed to COVID-19?
cefis_21_stress Integer Recommended How much did this impact your stress level at the time? Someone in the family was exposed to someone with COVID-19 -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_symptoms Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Someone in the family had symptoms or was diagnosed with COVID-19 0;1 0 = No; 1 = Yes
part1_symptoms_who String 100 Recommended Someone in the family had symptoms or was diagnosed with COVID-19. Who? (e.g. myself, my child, my spouse, my parent, etc) 0 = No; 1 = Yes
cefis_22_frequency Integer Recommended How many times did someone in the household have symptoms/was diagnosed with COVID-19?
cefis_22_ongoing Integer Recommended Is this currently ongoing? Someone in the family had symptoms or was diagnosed with COVID-19 0;1 0= No; 1= Yes
cefis_22_stress Integer Recommended How much did this impact your stress level at the time? Someone in the family had symptoms or was diagnosed with COVID-19 -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_hospital Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Someone in the family was hospitalized for COVID-19 0;1 0 = No; 1 = Yes
part1_hospital_who String 100 Recommended Someone in the family was hospitalized for COVID-19. Who? (e.g. myself, my child, my spouse, my parent, etc) 0 = No; 1 = Yes
cefis_23_duration Integer Recommended For how long? (total days) Someone in the family was hospitalized for COVID-19 Number of days
cefis_23_ongoing Integer Recommended Is this currently ongoing? Someone in the family was hospitalized for COVID-19 0;1 0= No; 1= Yes
cefis_23_stress Integer Recommended How much did this impact your stress level at the time? Someone in the family was hospitalized for COVID-19 -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_icu Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Someone in the family was in the Intensive Care Unit (ICU) for COVID-19 0;1 0 = No; 1 = Yes
part1_icu_who String 100 Recommended Someone in the family was in the Intensive Care Unit (ICU) for COVID-19. Who? (e.g. myself, my child, my spouse, my parent, etc) 0 = No; 1 = Yes
cefis_24_duration Integer Recommended For how long? (total days) Someone in the family was in the Intensive Care Unit (ICU) for COVID-19 Number of days
cefis_24_ongoing Integer Recommended Is this currently ongoing? Someone in the family was in the Intensive Care Unit (ICU) for COVID-19 0;1 0= No; 1= Yes
cefis_24_stress Integer Recommended How much did this impact your stress level at the time? Someone in the family was in the Intensive Care Unit (ICU) for COVID-19 -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part1_deceased Integer Recommended During the COVID-19 Pandemic (March 2020-present), did you/your family/your household experience: Someone in the family died from COVID-19 0;1 0 = No; 1 = Yes
part1_deceased_who String 100 Recommended Someone in the family died from COVID-19. Who? (e.g., my child, my spouse, my parent, etc) 0 = No; 1 = Yes
cefis_25_severity Integer Recommended How many people from your family died from COVID-19?
cefis_25_stress Integer Recommended How much did this impact your stress level at the time? Someone in the family died from COVID-19 -3::3 -3= Greatly reduced my stress; 0= Did not impact my stress; 3= Greatly increased my stress
part2_parenting Integer Recommended In general, how has the COVID-19 pandemic affected each of the following? Parenting 1::4;99 1 = Made it a lot better; 2 = Made it a little better; 3 = Made it a little worse; 4 = Made it a lot worse; 99 = Not Applicable
part2_get_along Integer Recommended In general, how has the COVID-19 pandemic affected each of the following? How family members get along with each other 1::4;99 1 = Made it a lot better; 2 = Made it a little better; 3 = Made it a little worse; 4 = Made it a lot worse; 99 = Not Applicable
part2_child_illness Integer Recommended In general, how has the COVID-19 pandemic affected each of the following? Ability to care for your child with an illness/condition 1::4;99 1 = Made it a lot better; 2 = Made it a little better; 3 = Made it a little worse; 4 = Made it a lot worse; 99 = Not Applicable
part2_other_children Integer Recommended In general, how has the COVID-19 pandemic affected each of the following? Ability to care for other children in your family 1::4;99 1 = Made it a lot better; 2 = Made it a little better; 3 = Made it a little worse; 4 = Made it a lot worse; 99 = Not Applicable
part2_older_adults Integer Recommended In general, how has the COVID-19 pandemic affected each of the following? Ability to care for older adults or people with disabilities in your family 1::4;99 1 = Made it a lot better; 2 = Made it a little better; 3 = Made it a little worse; 4 = Made it a lot worse; 99 = Not Applicable
part2_exercise Integer Recommended In general, how has the COVID-19 pandemic affected each of the following? Your physical wellbeing - exercise 1::4;99 1 = Made it a lot better; 2 = Made it a little better; 3 = Made it a little worse; 4 = Made it a lot worse; 99 = Not Applicable
part2_eating Integer Recommended In general, how has the COVID-19 pandemic affected each of the following? Your physical wellbeing - eating 1::4;99 1 = Made it a lot better; 2 = Made it a little better; 3 = Made it a little worse; 4 = Made it a lot worse; 99 = Not Applicable
part2_sleeping Integer Recommended In general, how has the COVID-19 pandemic affected each of the following? Your physical wellbeing - sleeping 1::4;99 1 = Made it a lot better; 2 = Made it a little better; 3 = Made it a little worse; 4 = Made it a lot worse; 99 = Not Applicable
part2_anxiety Integer Recommended In general, how has the COVID-19 pandemic affected each of the following? Your emotional wellbeing - anxiety 1::4;99 1 = Made it a lot better; 2 = Made it a little better; 3 = Made it a little worse; 4 = Made it a lot worse; 99 = Not Applicable
part2_mood Integer Recommended In general, how has the COVID-19 pandemic affected each of the following? Your emotional wellbeing - mood 1::4;99 1 = Made it a lot better; 2 = Made it a little better; 3 = Made it a little worse; 4 = Made it a lot worse; 99 = Not Applicable
part2_distress_cg Integer Recommended Overall, how much distress have you experienced related to COVID-19? 1::10 1 = No distress; 10 = Extreme distress
part2_distress_child Integer Recommended In general, across all your children, how much distress have your children experienced related to COVID-19? 0::10 1 = No distress; 10 = Extreme distress; 0= Not applicable
part3_effects_covid String 100 Recommended Part 3. Please tell us about other effects of COVID-19 on your child/ren and your family, both negative and/or positive.
cefis_exposure_score Integer Recommended Exposure Score (summed values in Part 1, regardless of blank fields)
cefis_p2ttl_missing Integer Recommended CEFIS-Part 2 total number missing values
cefis_impact_score Float Recommended Impact Score (mean of Part 2: valid if missing < 4; invalid (-900) if missing > 3)
cefis_avg_distress Float Recommended Distress Score (average: family-level distress)
Data Structure

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