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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Child Information Sheet

637 Shared Subjects

Child Information Sheet as defined by Sally Rogers' lab at the University of California, Davis
Clinical Assessments
Demographics
05/24/2012
child_info_sheet01
05/24/2012
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field Addate
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. ADagemos
Query interview_chrono_age Integer Recommended Interview Chronological Age 0 :: 1200
Query interview_adj_age Integer Recommended Interview Adjusted Age 0 :: 1200
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported SEX, gender
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
Query respondent String 20 Recommended Respondent
Mother;Father;Both;Other;Parent;Teacher;Child
Query african String 5 Recommended Ethnicity: African to American
Yes;No
Query asian String 5 Recommended Ethnicity: Asian
Yes;No; 999
999= missing
Query pacific String 5 Recommended Ethnicity: Pacific
Yes;No; 999
999= missing
Query caucasian String 5 Recommended Ethnicity: Caucasian
Yes;No
Query amindian String 5 Recommended Ethnicity: American Indian
Yes;No
Query indian String 5 Recommended Ethnicity: Indian
Yes;No
Query hispanic Integer Recommended Is subject of Hispanic, Latino, or Spanish origin? 0; 1; 999 0 = No; 1 = Yes; 999= missing
otherrace String 100 Recommended specify other race The following questions are about you or the child's family.
Query multiplerace String 5 Recommended multiple ethnicity
Yes;No
Query primaryrace String 50 Recommended primary ethnic identification
Query liveswith String 100 Recommended child lives with
Both biological mother and father;Biological mother only;Biological father only;Biological mother and stepfather;Biological father and stepmother;Adoptive parents;Foster parents;Relatives;Other
Query liveswithother String 50 Recommended Child lives with other, specify
Query familystatus String 100 Recommended family status Married;Separated;Divorced;Widow/widower;Divorced and remarried;Widow/widower and remarried;Living with a partner without marriage;Single
Query momedu Integer Recommended mother's education 1::12; 999 1=some elementary school; 2=completed elementary school; 3=some junior-high school; 4=completed junior-high school; 5=some high school; 6=high school diploma; 7=trade or vocational school; 8=some college; 9=college degree; 10=some graduate school; 11=graduate school degree;other; 999=missing/NA; 12=less than 8th grade
Query momeduo String 50 Recommended mother's education, specify other
Query momoccu String 100 Recommended mother's occupation unemployed; employed part-time; employed full-time; employed full-time and a second job; N/A; missing
momoccuc String 100 Recommended mother's current occupation
Query spsedu String 100 Recommended spouse's education less than 8th grade;some high school;high school diploma;some college;college degree;some graduate school;graduate school degree;other;missing;N/A
Query spseduo String 50 Recommended spouse's education, specify other
Query spsoccu String 100 Recommended spouse's occupation unemployed; employed part-time; employed full-time; employed full-time and a second job; N/A; missing
spsoccuc String 50 Recommended spouse's current occupation
Query fmincome String 100 Recommended family income under 10,000; under 25,000; between 10,000 and 25,000;25,000 to 49,999;50,000 to 74,999;75,000 to 99,999; above 100,000; 100,000 to 124,999;125,000 and above;not provided
Query refnewsl String 5 Recommended Referral source: newsletter
Yes;No
Query refweb String 5 Recommended Referral source: website
Yes;No
Query refclinic String 5 Recommended Referral source: clinic
Yes;No
Query refmd String 5 Recommended Referral source: doctor
Yes;No
Query refmdname String 50 Recommended Referral source: doctor, specify name
Query refcharge String 5 Recommended Referral source: CHARGE
Yes;No
Query refstudy String 5 Recommended Referral source: another study
Yes;No
Query refstudyname String 50 Recommended Referral source: another study, specify
Query refbroch String 5 Recommended Referral source: brochure
Yes;No
Query refword String 5 Recommended Referral source: word of mouth
Yes;No
Query refcall String 5 Recommended Referral source: a call from researchers
Yes;No
Query refother String 1,000 Recommended Referral source: other referral source
Yes;No
refothers String 50 Recommended Referral source: specify
Query fhxbirdefect String 5 Required Family medical History: Family Med Hx: birth defect
Yes;No;999
999=NA/missing
Query fhxcp String 5 Required Cerebral Palsy
Yes;No; NK
NK = Not known
Query fhxkidney String 5 Recommended Family medical History: kidney disease
Yes;No
Query fhxhandicap String 5 Recommended Family medical History: physical handicap
Yes;No
Query fhxscleroderma String 5 Recommended Family medical History: scleroderma
Yes;No
Query fhxhuntington String 5 Recommended Family medical History: Huntington's chorea
Yes;No
Query fhxsickle String 5 Recommended Family medical History: sickle to cell anemia
Yes;No
Query fhxdm String 5 Required Family medical History: diabetes
Yes;No;999
999=NA/missing
Query fhxallergy String 5 Required Family medical History: other allergies
Yes;No;999
999=NA/missing
Query fhxasthma String 5 Required Family medical History: asthma
Yes;No;999
999=NA/missing
Query fhxamyotrophic String 5 Recommended Family medical History: amyotrophic lateral sclerosis
Yes;No
Query fhxhyperthyroid String 5 Recommended Family medical History: hyperthyrodism
Yes;No
Query fhxrheumatoid String 5 Recommended Family medical History: rheumatoid arthritis
Yes;No
Query fhxspondylitis String 5 Recommended Family medical History: ankylosing spondylitis
Yes;No
Query fhxtaysachs String 5 Recommended Family medical History: Tay to Sachs Disease
Yes;No
Query fhxheadinjury String 5 Required Family medical History: severe head injury Yes;No;999 999=NA/missing
Query fhxmigraine String 5 Recommended Family medical History: migraine headache
Yes;No
Query fhxlupus String 5 Required Family medical History: lupus
Yes;No;999
999=NA/missing
Query fhxalzheimer String 5 Recommended Family medical History: Alzheimer's disease
Yes;No
Query fhxmusdys String 5 Recommended Family medical History: muscular dystrophy Yes;No
Query fhxcancer String 5 Recommended Family medical History: cancer
Yes;No
Query fhxseasonal String 5 Required Family medical History: seasonal allergy
Yes;No;999
999=NA/missing
Query fhxheart String 5 Required Family medical History: heart disease
Yes;No;999
999=NA/missing
Query fhxceliac String 5 Required Family medical History: Celiac disease
Yes;No;999
999=NA/missing
Query fhxhemolytic String 5 Recommended Family medical History: aplastic or hemolytic anemia
Yes;No
Query fhxaddison String 5 Recommended Family medical History: Addison's disease Yes;No
Query fhximmdis String 5 Recommended Family medical History: immune dysfunction/disorder
Yes;No
Query fhxraynaud String 5 Recommended Family medical History: Raynaud's syndrome
Yes;No
Query fhxcystic String 5 Recommended Family medical History: Cystic fibrosis Yes;No
Query fhxhbp String 5 Recommended Family medical History: high blood pressure
Yes;No
Query fhxms String 5 Recommended Family medical History: multiple sclerosis
Yes;No
Query fhxstroke String 5 Recommended Family medical History: stroke Yes;No
Query fhxhemophilia String 5 Recommended Family medical History: hemophilia
Yes;No
Query fhxparkinson String 5 Recommended Family medical History: Parkinson's disease
Yes;No
Query fhxseizure String 5 Required Family medical History: seizure or epilepsy Yes;No;999 999=NA/missing
Query fhxfood String 5 Recommended Family medical History: food allergy
Yes;No
Query fhxmyasthenia String 5 Recommended Family medical History: Myasthenia Gravis
Yes;No
Query fhxcrohn String 5 Required Family medical History: Crohn's Disease Yes;No;999 999=NA/missing
Query fhxhypothyroid String 5 Recommended Family medical History: hypothyroidism
Yes;No
Query fhxguillain String 5 Recommended Family medical History: Guillain to barre syndrome
Yes;No
Query fhxsydenham String 5 Recommended Family medical History: Sydenham's chorea
Yes;No
Query fhxother String 5 Recommended Family medical History: other
Yes;No
Query fhxothers String 255 Recommended Family medical History: other, specify
fhxfamily String 150 Recommended Family medical History: if yes, specify which family member, maternal/paternal, has each condition
Query momconcern String 5 Recommended do you have concerns about your child's development?
Yes;No
momconcerns String 255 Recommended specify concerns about your child's development
Query anyconcern String 5 Recommended does anyone else have concerns about your child's development? Yes;No
anyconcerns String 255 Recommended specify else's concerns about your child's development
Query momcomment String 255 Recommended specify anything else about your child you would like us to know
Query referral_by Integer Recommended Who made your child's referral to the developmental clinic? 1::4 1=Self-referral; 2=Pediatrician; 3=Recommendation by friend or family member; 4=Other
Query ref_other String 200 Recommended If other, please specify:
Query why_referred Integer Recommended Why was your child referred to the developmental clinic? 1::5 1=Autism (ASD); 2=Speech/Communication delay; 3=Developmental Delay; 4=Motor delay concerns; 5=Other
Query referred_other String 200 Recommended If other, please specify:
Query prior_da1 Integer Recommended Has your child ever been referred for a developmental assessment before? 1::3 1=Yes, but he/she did not complete the assessment; 2=Yes, an assessment was completed with normal results; 3=No, this is his/her first referral for a development assessment
other_appts String 200 Recommended What other appointments, if any, has your child had that are associated with the developmental assessment process? (For example, your child's pediatrician may have referred him/her to audiology, neurology, or other specialists for different types of assessments.)
Query da_difficulty Integer Recommended Knowing that the developmental assessment involves multiple appointments, and considering things that might affect your ability to complete this process such as transportation, time off of work, and childcare, on a scale of 0-10, how hard do you think it will be to complete the developmental assessment process on your own in the next 3 months?
Query da_confidence Integer Recommended On a scale of 0-10, how confident are you that you will be able to complete the developmental assessment process on your own in the next 3 months?
Query da_worried Integer Recommended On a scale of 0-10, how worried are you about how your child is developing?
worried_why String 200 Recommended Explain worried: Can you tell me why you answered a [insert number from previous answer]? ei_pt
Query da_important Integer Recommended On a scale of 0-10, how important is it for your child to complete the developmental assessment?
Query home_with_child Integer Recommended Are you home with your child full-time during the work week? 0;1 0=No; 1=Yes
Query who_watches_child Integer Recommended If no, who watches your child during the work week? 1::4 1=In home care from family member or babysitter; 2=Out of home care from family member or babysitter; 3=Out of home care at childcare center; 4=Other
who_watches_child_other String 100 Recommended If other, please specify:
Query childcare_how_often Integer Recommended During the work week, how frequently is your child cared for by someone other than yourself? 0;1 0=Fulltime (>30 hours); 1=Part-time (<30 hours)
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.