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Frequently Asked Questions

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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Concise Health Risk Tracking

1,289 Shared Subjects

N/A
Clinical Assessments
Questionnaire
02/11/2015
chrt01

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01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project id, subject_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
Query chrt_que_1a Integer Recommended 1. Suicide Ideation - Passive (i.e. wanting to be dead) and/or active (i.e. method, intent, plan) suicidal ideation present. 0;1 0=No; 1=Yes
Query chrt_que2 Integer Recommended Patient made a suicide attempt 0;1 0=No; 1=Yes
chrtc_que2a String 250 Recommended 2a Suicide Attempt - Patient made a suicide attempt - If yes, method:
Query chrt_que3 Integer Recommended 3. Self-injurious behavior - No Intent to Die - Purposeful self-injurious behavior with no intent to die. 0;1 0=No; 1=Yes
Query chrt_que4 Integer Recommended 6. Self-injurious behavior - Unknown Intent - Purposeful self-injurious behavior where associated intent to die is unknown and cannot be inferred. 0;1 0=No; 1=Yes
Query chrt_que5 Integer Recommended 8. Other injury - Other not purposeful injury (accidental, psychiatric, medical), no deliberate self-harm. 0;1 0=No; 1=Yes
Query chrt_que6 Integer Recommended 4. Preparatory Acts - Making preparatory acts toward imminent suicidal behavior 0;1 0=No; 1=Yes
Query chrt_que7 Integer Recommended 5. Completed Suicide - Confirmed (i.e. Coroner's report, suicide note, other collateral information). 0;1; -9 0=No; 1=Yes; -9=missing/NA/NK
Query chrt_que8 Integer Recommended 7. Death (not enough information to classify as suicide) 0;1 0=No; 1=Yes
Query chrt_que9 Integer Recommended 9. Nonfatal injury (not enough information to classify) 0;1 0=No; 1=Yes
Query chrt_01 Integer Recommended 1 I feel that things will never get better 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree better
Query chrt_02 Integer Recommended 2. I have no future. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree future
Query chrt_03 Integer Recommended 3. It seems as if I can do nothing right. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree cantdo
Query chrt_04 Integer Recommended 4. Everything I do turns out wrong. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree dowrong
Query chrt_05 Integer Recommended 5. There is no one I can depend on. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree noone
Query chrt_06 Integer Recommended 6. The people I care the most for are gone. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree care
Query chrt_07 Integer Recommended 7. I wish my suffering could just all be over. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree overs
Query chrt_08 Integer Recommended 8. I feel that there is no reason to live 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree live
Query chrt_09 Integer Recommended 9. I wish I could just go to sleep and not wake up. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree sleeps
Query chrt_10 Integer Recommended 10. I find myself saying or doing things without thinking. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree
Query chrt_11 Integer Recommended 11. I often make decisions quickly or "on impulse". 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree
Query chrt_12 Integer Recommended 12. I often feel irritable or easily angered. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree
Query chrt_13 Integer Recommended 13. I often overreact with anger or rage over minor things 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree
Query chrt_14 Integer Recommended 14. I have been having thoughts of killing myself. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree thoughts
Query chrt_15 Integer Recommended 15. I have thoughts about how I might kill myself. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree how
Query chrt_16 Integer Recommended 16. I have a plan to kill myself. 0::4 0=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree plans
Query chrtp_propensity_score Float Recommended Propensity score sums ques 1-13
Query chrtp_risk_score Float Recommended Risk score sums ques 14-16
subject_description String 4,000 Recommended Subject related information (e.g the affection, phenotype, disease information, etc.).
Query site String 101 Recommended Site Study Site
Query study String 100 Recommended Study
Query week Float Recommended Week in level/study 99=week 10-week 14 week1
Query vis_type Integer Recommended Visit type 0::2 1=Phone; 0=doctor's office; 2=No, not phone interview phone
Query days_baseline Integer Recommended Days since baseline date
Query srs_tot Integer Recommended Total Score Sum of all answers
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.