NDA Help Center

Login Dialog

Frequently Asked Questions

Glossary

NDA Help Center

Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

Loading...

Login
Reset Password

NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
Filter Cart
No filters selected
Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
Switch User

An Interview with Collateral Informant About Offspring

60 Shared Subjects

N/A
Clinical Assessments
Questionnaire
06/09/2017
ciao01
06/13/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field adate
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query visit String 60 Recommended Visit name tpoint
Query adis_interviewformat Integer Recommended Interview Format 1;2; 999 1=On Phone; 2=In Person; 999 = Missing interview
Query ciao_refused Integer Recommended Child refused us talking to informant 0;1 0 = Did not refuse; 1 = Refused refused
ciao_phdate Date Recommended Date of last phone call: phdate
ciao_probs String 100 Recommended Any major problems? probs
Query ciao_dep Integer Recommended Has he/ she been frequently sad, down/ depressed, irritable? Has he/she lost interest in things he/she normally enjoys or has he/she had recurrent thoughts of death? 0;1 0 = No; 1 = Yes dep
Query ciao_mood Integer Recommended Depression Questions: Depressed Mood 0;1 0 = No; 1 = Yes mood
Query ciao_sleep Integer Recommended Depression Questions: Sleep (Insomnia or hyersomnia) 0;1 0 = No; 1 = Yes sleep
Query ciao_app Integer Recommended Depression Questions: Appetite (decrease or increase) 0;1 0 = No; 1 = Yes app
Query ciao_concen Integer Recommended Depression Questions: Concentration 0;1 0 = No; 1 = Yes concen
Query ciao_agitation Integer Recommended Depression Questions: Psychomotor agitation/pacing restless movement 0;1 0 = No; 1 = Yes agitation
Query ciao_slow Integer Recommended Depression Questions: Slowed thinking or movement 0;1 0 = No; 1 = Yes slow
Query ciao_fatigue Integer Recommended Depression Questions: Fatigue/loss of energy 0;1 0 = No; 1 = Yes fatigue
Query ciao_bored Integer Recommended Depression Questions: Loss of pleasure/not interested in activities 0;1 0 = No; 1 = Yes bored
Query ciao_guilt Integer Recommended Depression Questions: Worhtlessness or inappropriate excessive guilt 0;1 0 = No; 1 = Yes guilt
Query ciao_death Integer Recommended Depression Questions: Recurrent thoughts of death 0;1 0 = No; 1 = Yes death
Query ciao_suic Integer Recommended Depression Questions: Suicidal Thoughts 0;1 0 = No; 1 = Yes suic
Query ciao_suicatt Integer Recommended Depression Questions: Suicidal Attempts 0;1 0 = No; 1 = Yes suicatt
Query ciao_dfunct Integer Recommended Did depression affect functioning? 1::3 1= At home; 2= At school/ work; 3= With peers dfunct
ciao_depstart Date Recommended For depression symptoms; When did they start: MM/DD/YYYY depstart
Query ciao_depdur Integer Recommended For depression symptoms; How many days did they last: depdur
Query ciao_depbad Integer Recommended For depression symptoms; How bad were they: 1::3 1 = Mild; 2 = Moderate; 3 = Severe depbad
Query ciao_depmore1 Integer Recommended For depression symptoms; Was there more than one episode: 0;1 0 = No; 1 = Yes depmore1
Query ciao_depnum Integer Recommended For depression symptoms; How many: depnum
ciao_depsx String 255 Recommended For depression symptoms; Please describe: depsx
Query ciao_manic Integer Recommended Has this participant had any times when he/she felt super-happy, high or super-silly, super-irritable, needed less sleep, had racing thoughts or increased energy? 0;1 0 = No; 1 = Yes manic
Query ciao_elated Integer Recommended Mania Questions: Elated related mood 0;1 0 = No; 1 = Yes elated
Query ciao_mirrit Integer Recommended Mania Questions: Increased irritability/anger 0;1 0 = No; 1 = Yes mirrit
Query ciao_energy Integer Recommended Mania Questions: Increased energy level 0;1 0 = No; 1 = Yes energy
Query ciao_goal Integer Recommended Mania Questions: Goal directed activity 0;1 0 = No; 1 = Yes goal
Query ciao_nosleep Integer Recommended Mania Questions: Decreased need for sleep 0;1 0 = No; 1 = Yes nosleep
Query ciao_speech Integer Recommended Mania Questions: More talkative than usual/pressured speech 0;1 0 = No; 1 = Yes speech
Query ciao_racing Integer Recommended Mania Questions: Racing thoughts or flight of ideas 0;1 0 = No; 1 = Yes racing
Query ciao_distract Integer Recommended Mania Questions: Distractibility 0;1 0 = No; 1 = Yes distract
Query ciao_jdgmt Integer Recommended Mania Questions: Poor judgement/engaging in risky, pleasureable behavior 0;1 0 = No; 1 = Yes jdgmt
Query ciao_mfunct Integer Recommended Did mania affect functioning? 1::3 1 = Mild; 2 = Moderate; 3 = Severe mfunct
ciao_manstart Date Recommended For mania symptoms; When did they start: MM/DD/YYYY manstart
Query ciao_mandur Integer Recommended For mania symptoms; How many days did they last: mandur
Query ciao_manbad Integer Recommended For mania symptoms; How bad were they: 1::3 1 = Mild; 2 = Moderate; 3 = Severe manbad
Query ciao_manmore1 Integer Recommended For mania symptoms; Was there more than one episode: 0;1 0 = No; 1 = Yes manmore1
Query ciao_mannum Integer Recommended For mania symptoms; How many: mannum
ciao_maniasx String 255 Recommended For mania symptoms; Please describe symptoms: maniasx
Query ciao_halls Integer Recommended Hallucinations or delusions 1; 2 1= hallucinations; 2= delusions halls
Query ciao_dels Integer Recommended Any Delusional thinking? 0;1 0 = No; 1 = Yes dels
Query ciao_psychtx Integer Recommended What type of psychiatric treatment? Outpatient Psychotherapy: 1; 2 1= Inpatient hopsitalization; 2= Outpatient hospitalization psychtx
Query ciao_inptnum Integer Recommended Number of Inpatient Hospitalizations: inptnum
Query ciao_inpman Integer Recommended Reason for Psychiatric Hospitalization: (Check all that apply) - Mania 0; 1 0 = No; 1 = Yes inpman
Query ciao_inpdep Integer Recommended Reason for Psychiatric Hospitalization: (Check all that apply) - Depression 0; 1 0 = No; 1 = Yes inpdep
Query ciao_inppsy Integer Recommended Reason for Psychiatric Hospitalization: (Check all that apply) - Hallucinations/Delusions/Psychosis 0; 1 0 = No; 1 = Yes inppsy
Query ciao_inpsa Integer Recommended Reason for Psychiatric Hospitalization: (Check all that apply) - Suicide Attempt 0; 1 0 = No; 1 = Yes inpsa
Query ciao_inpsi Integer Recommended Reason for Psychiatric Hospitalization: (Check all that apply) - Suicidal Ideation 0; 1 0 = No; 1 = Yes inpsi
Query ciao_inpagg Integer Recommended Reason for Psychiatric Hospitalization: (Check all that apply) - Agression Towards Others 0; 1 0 = No; 1 = Yes inpagg
Query ciao_inpoth Integer Recommended Reason for Psychiatric Hospitalization: (Check all that apply) - Other 0; 1 0 = No; 1 = Yes inpoth
ciao_inptspec String 100 Recommended Other reasons for psychiatric hospitalization inptspec
Query ciao_meds Integer Recommended Psychiatric Medication: 0;1 0 = No; 1 = Yes meds
medication1_name String 500 Recommended Name first medication that the participant has taken 0 = No medication; 999= Legitimately skipped med1
medication2_name String 200 Recommended Name second medication that the participant has taken 0 = No medication; 999= Legitimately skipped med2
medication3_name String 150 Recommended Name third medication that the participant has taken 0 = No medication; 999= Legitimately skipped med3
medication4_name String 100 Recommended Name fourth medication that the participant has taken 0 = No medication; 999= Legitimately skipped med4
medication5_name String 500 Recommended Name fifth medication that the participant has taken 0 = No medication; 999= Legitimately skipped med5
medication6_name String 500 Recommended Name sixth medication that the participant has taken 0 = No medication; 999= Legitimately skipped med6
medication7_name String 100 Recommended Name seventh medication that the participant has taken 0 = No medication; 999= Legitimately skipped med7
medication8_name String 100 Recommended Name eighth medication that the participant has taken 0 = No medication; 999= Legitimately skipped med8
medication1_past String 10 Recommended First medication took in the past? Yes;No med1p
medication2_past String 10 Recommended second medication took in the past? Yes;No med2p
medication3_past String 10 Recommended third medication took in the past? Yes;No med3p
medication4_past String 10 Recommended fourth medication took in the past? Yes;No med4p
medication5_past String 10 Recommended fifth medication took in the past? Yes;No med5p
medication6_past String 10 Recommended sixth medication took in the past? Yes;No med6p
medication7_past String 10 Recommended seventh medication took in the past? Yes;No med7p
medication8_past String 10 Recommended eighth medication took in the past? Yes;No med8p
Query ciao_famill Integer Recommended Has this participant had any stressful events in his/her life since we last talked? Events such as: Serious illness of a family member or friend 0;1 0 = No; 1 = Yes famill
Query ciao_famdie Integer Recommended Has this participant had any stressful events in his/her life since we last talked? Events such as: Death of a family member or friend 0;1 0 = No; 1 = Yes famdie
Query ciao_alcohol Integer Recommended Has this participant had any stressful events in his/her life since we last talked? Events such as: Problems due to alcohol 0;1 0 = No; 1 = Yes alcohol
Query ciao_drugs Integer Recommended Has this participant had any stressful events in his/her life since we last talked? Events such as: Problems due to street drugs 0;1 0 = No; 1 = Yes drugs
Query ciao_brkup Integer Recommended Has this participant had any stressful events in his/her life since we last talked? Events such as: Major arguments/breakup with close friend, boy/girlfriend 0;1 0 = No; 1 = Yes brkup
Query ciao_fail Integer Recommended Has this participant had any stressful events in his/her life since we last talked? Events such as: Failed out of school 0;1 0 = No; 1 = Yes fail
Query ciao_dropout Integer Recommended Has this participant had any stressful events in his/her life since we last talked? Events such as: Dropped out of school 0;1 0 = No; 1 = Yes dropout
ciao_drop_spec String 20 Recommended Details about dropping out of school drop_spec
Query ciao_fired Integer Recommended Has this participant had any stressful events in his/her life since we last talked? Events such as: Fired from job 0;1 0 = No; 1 = Yes fired
ciao_fired_spec String 20 Recommended Details about getting fired from job fired_spec
Query ciao_legal Integer Recommended Has this participant had any stressful events in his/her life since we last talked? Events such as: Legal problems 0;1 0 = No; 1 = Yes legal
ciao_legal_spec String 20 Recommended Details about legal problems legal_spec
Query ciao_jail Integer Recommended Has this participant had any stressful events in his/her life since we last talked? Events such as: Went to jail 0;1 0 = No; 1 = Yes jail
ciao_jail_spec String 20 Recommended Details about going to jail jail_spec
Query ciao_othprobs Integer Recommended Has this participant had any stressful events in his/her life since we last talked? Events such as: Any other problems 0;1 0 = No; 1 = Yes othprobs
ciao_othprob1 String 500 Recommended Please specify other stressful events 1: othprob1
ciao_othprob2 String 20 Recommended Please specify other stressful events 2: othprob2
ciao_othprob3 String 20 Recommended Please specify other stressful events 3: othprob3
Query ciao_livhome Integer Recommended Is this participant living with you? 0;1 0 = No; 1 = Yes livhome
Query ciao_contact Integer Recommended How often do you have contact with the participant? 0::5 0 = Rarely; 1 = Less Than Once a Month; 2 = Once A Month; 3 = Several Times A Month; 4 = Several Times A Week; 5 = Daily contact
Query ciao_confid Integer Recommended How confident are you in the information you have provided about this participant? 0::3 0 = Not Confident; 1 = Somewhat Confident; 2 = Confident; 3 = Very Confident confid
Query relationship Integer Recommended Relationship of respondent to individual 1::93;-999 1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = 90=Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent inform
respondent_other_specify String 50 Recommended Respondent: Other (specify) inform_oth
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.