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Frequently Asked Questions


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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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An Interview with Collateral Informant About Offspring



Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fieldadate
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender
visitString50RecommendedVisit nametpoint
adis_interviewformatIntegerRecommendedInterview Format1;2; 9991=On Phone; 2=In Person; 999 = Missinginterview
ciao_refusedIntegerRecommendedChild refused us talking to informant0;10 = Did not refuse; 1 = Refusedrefused
ciao_phdateDateRecommendedDate of last phone call:phdate
ciao_probsString100RecommendedAny major problems?probs
ciao_depIntegerRecommendedHas he/ she been frequently sad, down/ depressed, irritable? Has he/she lost interest in things he/she normally enjoys or has he/she had recurrent thoughts of death?0;10 = No; 1 = Yesdep
ciao_moodIntegerRecommendedDepression Questions: Depressed Mood0;10 = No; 1 = Yesmood
ciao_sleepIntegerRecommendedDepression Questions: Sleep (Insomnia or hyersomnia)0;10 = No; 1 = Yessleep
ciao_appIntegerRecommendedDepression Questions: Appetite (decrease or increase)0;10 = No; 1 = Yesapp
ciao_concenIntegerRecommendedDepression Questions: Concentration0;10 = No; 1 = Yesconcen
ciao_agitationIntegerRecommendedDepression Questions: Psychomotor agitation/pacing restless movement0;10 = No; 1 = Yesagitation
ciao_slowIntegerRecommendedDepression Questions: Slowed thinking or movement0;10 = No; 1 = Yesslow
ciao_fatigueIntegerRecommendedDepression Questions: Fatigue/loss of energy0;10 = No; 1 = Yesfatigue
ciao_boredIntegerRecommendedDepression Questions: Loss of pleasure/not interested in activities0;10 = No; 1 = Yesbored
ciao_guiltIntegerRecommendedDepression Questions: Worhtlessness or inappropriate excessive guilt0;10 = No; 1 = Yesguilt
ciao_deathIntegerRecommendedDepression Questions: Recurrent thoughts of death0;10 = No; 1 = Yesdeath
ciao_suicIntegerRecommendedDepression Questions: Suicidal Thoughts0;10 = No; 1 = Yessuic
ciao_suicattIntegerRecommendedDepression Questions: Suicidal Attempts0;10 = No; 1 = Yessuicatt
ciao_dfunctIntegerRecommendedDid depression affect functioning?1::31= At home; 2= At school/ work; 3= With peersdfunct
ciao_depstartDateRecommendedFor depression symptoms; When did they start:MM/DD/YYYYdepstart
ciao_depdurIntegerRecommendedFor depression symptoms; How many days did they last:depdur
ciao_depbadIntegerRecommendedFor depression symptoms; How bad were they:1::31 = Mild; 2 = Moderate; 3 = Severedepbad
ciao_depmore1IntegerRecommendedFor depression symptoms; Was there more than one episode:0;10 = No; 1 = Yesdepmore1
ciao_depnumIntegerRecommendedFor depression symptoms; How many:depnum
ciao_depsxString255RecommendedFor depression symptoms; Please describe:depsx
ciao_manicIntegerRecommendedHas this participant had any times when he/she felt super-happy, high or super-silly, super-irritable, needed less sleep, had racing thoughts or increased energy?0;10 = No; 1 = Yesmanic
ciao_elatedIntegerRecommendedMania Questions: Elated related mood0;10 = No; 1 = Yeselated
ciao_mirritIntegerRecommendedMania Questions: Increased irritability/anger0;10 = No; 1 = Yesmirrit
ciao_energyIntegerRecommendedMania Questions: Increased energy level0;10 = No; 1 = Yesenergy
ciao_goalIntegerRecommendedMania Questions: Goal directed activity0;10 = No; 1 = Yesgoal
ciao_nosleepIntegerRecommendedMania Questions: Decreased need for sleep0;10 = No; 1 = Yesnosleep
ciao_speechIntegerRecommendedMania Questions: More talkative than usual/pressured speech0;10 = No; 1 = Yesspeech
ciao_racingIntegerRecommendedMania Questions: Racing thoughts or flight of ideas0;10 = No; 1 = Yesracing
ciao_distractIntegerRecommendedMania Questions: Distractibility0;10 = No; 1 = Yesdistract
ciao_jdgmtIntegerRecommendedMania Questions: Poor judgement/engaging in risky, pleasureable behavior0;10 = No; 1 = Yesjdgmt
ciao_mfunctIntegerRecommendedDid mania affect functioning?1::31 = Mild; 2 = Moderate; 3 = Severemfunct
ciao_manstartDateRecommendedFor mania symptoms; When did they start:MM/DD/YYYYmanstart
ciao_mandurIntegerRecommendedFor mania symptoms; How many days did they last:mandur
ciao_manbadIntegerRecommendedFor mania symptoms; How bad were they:1::31 = Mild; 2 = Moderate; 3 = Severemanbad
ciao_manmore1IntegerRecommendedFor mania symptoms; Was there more than one episode:0;10 = No; 1 = Yesmanmore1
ciao_mannumIntegerRecommendedFor mania symptoms; How many:mannum
ciao_maniasxString255RecommendedFor mania symptoms; Please describe symptoms:maniasx
ciao_hallsIntegerRecommendedHallucinations or delusions1; 21= hallucinations; 2= delusionshalls
ciao_delsIntegerRecommendedAny Delusional thinking?0;10 = No; 1 = Yesdels
ciao_psychtxIntegerRecommendedWhat type of psychiatric treatment? Outpatient Psychotherapy:1; 21= Inpatient hopsitalization; 2= Outpatient hospitalizationpsychtx
ciao_inptnumIntegerRecommendedNumber of Inpatient Hospitalizations:inptnum
ciao_inpmanIntegerRecommendedReason for Psychiatric Hospitalization: (Check all that apply) - Mania0; 10 = No; 1 = Yesinpman
ciao_inpdepIntegerRecommendedReason for Psychiatric Hospitalization: (Check all that apply) - Depression0; 10 = No; 1 = Yesinpdep
ciao_inppsyIntegerRecommendedReason for Psychiatric Hospitalization: (Check all that apply) - Hallucinations/Delusions/Psychosis0; 10 = No; 1 = Yesinppsy
ciao_inpsaIntegerRecommendedReason for Psychiatric Hospitalization: (Check all that apply) - Suicide Attempt0; 10 = No; 1 = Yesinpsa
ciao_inpsiIntegerRecommendedReason for Psychiatric Hospitalization: (Check all that apply) - Suicidal Ideation0; 10 = No; 1 = Yesinpsi
ciao_inpaggIntegerRecommendedReason for Psychiatric Hospitalization: (Check all that apply) - Agression Towards Others0; 10 = No; 1 = Yesinpagg
ciao_inpothIntegerRecommendedReason for Psychiatric Hospitalization: (Check all that apply) - Other0; 10 = No; 1 = Yesinpoth
ciao_inptspecString100RecommendedOther reasons for psychiatric hospitalizationinptspec
ciao_medsIntegerRecommendedPsychiatric Medication:0;10 = No; 1 = Yesmeds
medication1_nameString500RecommendedName first medication that the participant has taken0 = No medication; 999= Legitimately skippedmed1
medication2_nameString200RecommendedName second medication that the participant has taken0 = No medication; 999= Legitimately skippedmed2
medication3_nameString150RecommendedName third medication that the participant has taken0 = No medication; 999= Legitimately skippedmed3
medication4_nameString100RecommendedName fourth medication that the participant has taken0 = No medication; 999= Legitimately skippedmed4
medication5_nameString500RecommendedName fifth medication that the participant has taken0 = No medication; 999= Legitimately skippedmed5
medication6_nameString500RecommendedName sixth medication that the participant has taken0 = No medication; 999= Legitimately skippedmed6
medication7_nameString100RecommendedName seventh medication that the participant has taken0 = No medication; 999= Legitimately skippedmed7
medication8_nameString100RecommendedName eighth medication that the participant has taken0 = No medication; 999= Legitimately skippedmed8
medication1_pastString10RecommendedFirst medication took in the past?Yes;Nomed1p
medication2_pastString10Recommendedsecond medication took in the past?Yes;Nomed2p
medication3_pastString10Recommendedthird medication took in the past?Yes;Nomed3p
medication4_pastString10Recommendedfourth medication took in the past?Yes;Nomed4p
medication5_pastString10Recommendedfifth medication took in the past?Yes;Nomed5p
medication6_pastString10Recommendedsixth medication took in the past?Yes;Nomed6p
medication7_pastString10Recommendedseventh medication took in the past?Yes;Nomed7p
medication8_pastString10Recommendedeighth medication took in the past?Yes;Nomed8p
ciao_famillIntegerRecommendedHas this participant had any stressful events in his/her life since we last talked? Events such as: Serious illness of a family member or friend0;10 = No; 1 = Yesfamill
ciao_famdieIntegerRecommendedHas this participant had any stressful events in his/her life since we last talked? Events such as: Death of a family member or friend0;10 = No; 1 = Yesfamdie
ciao_alcoholIntegerRecommendedHas this participant had any stressful events in his/her life since we last talked? Events such as: Problems due to alcohol0;10 = No; 1 = Yesalcohol
ciao_drugsIntegerRecommendedHas this participant had any stressful events in his/her life since we last talked? Events such as: Problems due to street drugs0;10 = No; 1 = Yesdrugs
ciao_brkupIntegerRecommendedHas this participant had any stressful events in his/her life since we last talked? Events such as: Major arguments/breakup with close friend, boy/girlfriend0;10 = No; 1 = Yesbrkup
ciao_failIntegerRecommendedHas this participant had any stressful events in his/her life since we last talked? Events such as: Failed out of school0;10 = No; 1 = Yesfail
ciao_dropoutIntegerRecommendedHas this participant had any stressful events in his/her life since we last talked? Events such as: Dropped out of school0;10 = No; 1 = Yesdropout
ciao_drop_specString20RecommendedDetails about dropping out of schooldrop_spec
ciao_firedIntegerRecommendedHas this participant had any stressful events in his/her life since we last talked? Events such as: Fired from job0;10 = No; 1 = Yesfired
ciao_fired_specString20RecommendedDetails about getting fired from jobfired_spec
ciao_legalIntegerRecommendedHas this participant had any stressful events in his/her life since we last talked? Events such as: Legal problems0;10 = No; 1 = Yeslegal
ciao_legal_specString20RecommendedDetails about legal problemslegal_spec
ciao_jailIntegerRecommendedHas this participant had any stressful events in his/her life since we last talked? Events such as: Went to jail0;10 = No; 1 = Yesjail
ciao_jail_specString20RecommendedDetails about going to jailjail_spec
ciao_othprobsIntegerRecommendedHas this participant had any stressful events in his/her life since we last talked? Events such as: Any other problems0;10 = No; 1 = Yesothprobs
ciao_othprob1String500RecommendedPlease specify other stressful events 1:othprob1
ciao_othprob2String20RecommendedPlease specify other stressful events 2:othprob2
ciao_othprob3String20RecommendedPlease specify other stressful events 3:othprob3
ciao_livhomeIntegerRecommendedIs this participant living with you?0;10 = No; 1 = Yeslivhome
ciao_contactIntegerRecommendedHow often do you have contact with the participant?0::50 = Rarely; 1 = Less Than Once a Month; 2 = Once A Month; 3 = Several Times A Month; 4 = Several Times A Week; 5 = Dailycontact
ciao_confidIntegerRecommendedHow confident are you in the information you have provided about this participant?0::30 = Not Confident; 1 = Somewhat Confident; 2 = Confident; 3 = Very Confidentconfid
relationshipIntegerRecommendedRelationship of respondent to individual1::93;-9991 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); 90=Other; -999=Missing; 89 = Biological parent; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parentinform
respondent_other_specifyString50RecommendedRespondent: Other (specify)inform_oth
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: ciao01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.