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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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Classification of Seizures

564 Shared Subjects

Classification of Seizures
Clinical Assessments
Seizure
06/26/2013
class_seizure01
11/22/2021
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query seizures Integer Required Does (did) the subject have Seizures?
0;1;2;999
0 = No; 1 = Yes; 2 = Unknown; 999 =NA/missing
Query seizures_2a Integer Required Tonic clonic (in any combination) 0;1;999 0 = No; 1 = Yes tonicclonic
seizures_2a_date Date Recommended Tonic clonic onset date toniccloniconset
Query seizures_2b Integer Required Absence 0;1;999 0=No; 1=Yes absence
seizures_2b_date Date Recommended Absence onset date absenceonset
Query seizures_2b1 Integer Required Typical 0;1;999 0 = No; 1 = Yes
seizures_2b1_date Date Recommended Typical onset date
Query seizures_2b2 Integer Required Atypical 0;1;999 0 = No; 1 = Yes
seizures_2b2_date Date Recommended Atypical onset date
Query seizures_2b3 Integer Required Myoclonic absence 0;1;999 0 = No; 1 = Yes
seizures_2b3_date Date Recommended Myoclonic absence onset date
Query seizures_2b4 Integer Required Eylid myoclonia 0;1;999 0 = No; 1 = Yes
seizures_2b4_date Date Recommended Eylid myoclonia onset date
Query seizures_2c Integer Required Myoclonic 0;1;999 0 = No; 1 = Yes myoclonic
seizures_2c_date Date Recommended Myoclonic onset date myocloniconset
Query seizures_2c1 Integer Required Myoclonic atonic 0;1;999 0 = No; 1 = Yes
seizures_2c1_date Date Recommended Myoclonic atonic onset date
Query seizures_2c2 Integer Required Myoclonic tonic 0;1;999 0 = No; 1 = Yes
seizures_2c2_date Date Recommended Myoclonic tonic onset date
Query seizures_2d Integer Required Clonic 0;1;999 0 = No; 1 = Yes clonic
seizures_2d_date Date Recommended Clonic onset date cloniconset
Query seizures_2e Integer Required Tonic 0;1;999 0 = No; 1 = Yes tonic
seizures_2e_date Date Recommended Tonic onset date toniconset
Query seizures_2f Integer Required Atonic 0;1;999 0 = No; 1 = Yes atonic
seizures_2f_date Date Recommended Atonic onset date atoniconset
Query seizures_2g Integer Required Epileptic spasms (focal or generalized) 0;1;999 0 = No; 1 = Yes epilepticspasms
seizures_2g_date Date Recommended Epileptic spasms (focal or generalized) onset date epilepticspasmsonset
Query seizures_focal Integer Required Does patient have focal seizures? 0::2 0 = No; 1 = Yes; 2 = Unknown doesthepatienthavefocalseizure
Query seizures_3a Integer Recommended Without impairment of consciousness or responsiveness 0;1 0 = No; 1 = Yes withoutimpairmentofconsc, withoutimpairmentofconsciousne
seizures_3a_date Date Recommended Without impairment of consciousness or responsiveness; onset date withoutimpairmentonsetdd
Query seizures_3a1 Integer Recommended With observable motor or autonomic components (roughly corresponds to the concept of "simple partial seizure") 0;1 0 = No; 1 = Yes withobservablemotororautonomic
seizures_3a1_date Date Recommended With observable motor or autonomic components; onset date withobservableonset
Query seizures_3a2 Integer Recommended Involving subjective sensory or psychic phenomena only (corresponds to the concept of "aura") 0;1 0 = No; 1 = Yes involvingsubjectivesensoryorps
seizures_3a2_date Date Recommended Involving subjective sensory or psychic phenomena only; onset date involvingsubjectiveonset
Query seizures_3b Integer Recommended With impairment of consciousness or responsiveness (roughly corresponds to the concept of "complex partial seizure") 0;1 0 = No; 1 = Yes withimpairmentofconsciousness
seizures_3b_date Date Recommended With impairment of consciousness or responsiveness; onset date withimpairmentonset
Query seizures_3c Integer Recommended Evolving to a bilateral, convulsive seizure (involving tonic, clonic, or tonic and clonic components; replaces the term "secondarily generalized seizure") 0;1 0 = No; 1 = Yes evolvingtoabilateralconvulsive
seizures_3c_date Date Recommended Evolving to a bilateral, convulsive seizure; onset date bilateralconvulsiveonset
Query seizures_unclass Integer Required Does patient have an unclassified seizure type? 0::2 0 = No; 1 = Yes; 2 = Unknown haveanunclassifiedseizuretype
Query seizures_4a Integer Required Unclassified epileptic event 0;1;999 0 = No; 1 = Yes unclassifiedepilepticevent
seizures_4a_date Date Recommended Unclassified epileptic event; onset date epilepticeventonset
Query seizures_4b Integer Recommended Nonepileptic event 0;1 0 = No; 1 = Yes nonepilepticevent
seizures_4b_date Date Recommended Nonepileptic event; onset date nonepilepticeventonset
Query seizures_2_og Integer Recommended Absence ongoing 0;1 0=No;1=Yes absenceongoing
Query seizures_2f_og Integer Recommended Atonic ongoing 0;1 0=No;1=Yes atonicongoing
Query seizures_2d_og Integer Recommended Clonic ongoing 0;1 0=No;1=Yes clonicongoing
Query seizures_general Integer Recommended Does the patient have generalized seizures 0;1 0=No;1=Yes doesthepatienthavegeneralizeds
Query seizures_2g_og Integer Recommended Epileptic spasms ongoing 0;1 0=No;1=Yes epilepticspasmsongoing
Query seizures_3c_og Integer Recommended Evolving to a bilateral convulsive seizure replaced term secondarily generalized seizure ongoing 0;1 0=No;1=Yes evolvingtoabilateralconvulsive2
Query seizures_3a2_og Integer Recommended Involving subjective sensory or psychic phenomena only ie aura ongoing 0;1 0=No;1=Yes involvingsubjectivesensoryorps2
Query seizures_2c_og Integer Recommended Myoclonic ongoing 0;1 0=No;1=Yes myoclonicongoing
Query seizures_4b_og Integer Recommended Nonepileptic event ongoing 0;1 0=No;1=Yes nonepilepticeventongoing
Query seizures_2a_og Integer Recommended Tonic clonic ongoing 0;1 0=No;1=Yes tonicclonicongoing
Query seizures_2e_og Integer Recommended Tonic ongoing 0;1 0=No;1=Yes tonicongoing
Query seizures_4a_og Integer Recommended Unclassified epileptic event ongoing 0;1 0=No;1=Yes unclassifiedepilepticeventongo
Query seizures_3b_og Integer Recommended With impairment of consciousness or responsiveness similar to concept of complex partial seizure ongoing 0;1 0=No;1=Yes withimpairmentofconsciousnesso
Query seizures_3a1_og Integer Recommended With observable motor or autonomic components similar to the concept of simple partial seizures ongoing 0;1 0=No;1=Yes withobservablemotororautonomic2
Query seizures_3a_og Integer Recommended Without impairment of consciousness or responsiveness ongoing 0;1 0=No;1=Yes withoutimpairmentofconsciousne2, withoutimpairmentofconscongoin
absencemm Date Recommended Absence No to Ongoing end date
atonicmm Date Recommended Atonic No to Ongoing end date
clonicmm Date Recommended ClonicNo to Ongoing end date
complexpartialseizuremm Date Recommended complex partial seizure end date
epilepticspasmsmm Date Recommended Epileptic spasms No to Ongoing end date
involvingsubjectivemm Date Recommended Involving subjective end date
myoclonicmm Date Recommended Myoclonic No to Ongoing end date
nonepilepticeventmm Date Recommended Nonepileptic event end date
observablemotormm Date Recommended Observable Motor end date
secondarilygeneralizedseizurem Date Recommended secondarily generalized seizure end date
tonicclonicmm Date Recommended Tonic clonic No to Ongoing end date
tonicmm Date Recommended Tonic No to Ongoing end date
unclassifiedepilepticeventmm Date Recommended Unclassified epileptic event end date
withoutimpairmentofconscmm Date Recommended Without impairment of consciousness or responsiveness end date
custom_src_id String 30 Recommended Subject ID how it's defined in lab/project (used for source IDs that change depending on timepoint/visit/etc.)
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.