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Frequently Asked Questions


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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Cornell Services Index

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Clinical Assessments
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Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field interview_date_csi
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
csi_sf1 Integer Recommended Which of the following services have you used in the past 3 months? 1::15 1= Inpatient Hospital; 2= Nursing Home/Other Residential Facility; 3= Emergency Room; 4= Urgent Care Outpatient Service; 5= Outpatient Medical (PCP or Specialist) | 6, Psych. Medication Management (Only) | 7= Psychotherapy or Counseling; 8= Treatment for Alcohol or Substance Abuse; 9= Home Nursing Home; 10= Personal Home Aide Service; 11= Home Meal Delivery Service; 12= Transportation Assistance; 13= Physical/Occupational Therapy; 14= Laboratory, X-Rays, and Other Tests; 15= Other Service
csi_sf1a String 150 Recommended Enter the other service
csi_sf2 Integer Recommended Type of provider 1::11;77;88 1= Primary care physician; 2= Specialist physician (not psychiatrist); 3= Psychiatrist (MD); 4= Psychologist (PhD); 5= Nurse 6= Social Worker or other therapist; 7= Occupational/Physical therapist; 8= Religious Leader (priest, minister, rabbi); 9= Peer Supporter (sponsor, congregational member); 10= Alternative Medicine Provider; 11= Other; 77= DK; 88= Refusal
csi_sf2a String 25 Recommended Enter the other type of provider
csi_sf3 Integer Recommended Site for service 1::8;77;88 1= General Hospital; 2= Psychiatric Hospital; 3= Outpatient Medical Clinic or Office; 4= Outpatient Mental Health Clinic or Office; 5= Outpatient Substance Abuse Treatment Facility; 6= Family/Social Service Agency; 7= Home; 8= Other; 77= DK; 88= Refusal
csi_sf3a String 25 Recommended Enter the other site of service
csi_sf4 String 50 Recommended Frequency of service
csi_sf5 Integer Recommended Did insurance pay for the service? 0::2 0= No; 1= Some of it; 2= All of it
csi_sf6 String 25 Recommended How much did you have to pay for this service
study String 100 Recommended Study
c_oth Integer Recommended Indicator of whether patient used other services during the stage. 1 1 = Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.