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subjectkey |
GUID |
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Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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ADOS_DATE_STD |
| Query
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cycle |
Integer |
|
Recommended |
Timepoint information |
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-1 = Screener; 0 = Baseline; 97 = Taper; 98 = Withdrawal; 99 = Interim contact; Otherwise: weeks since baseline
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patid |
String |
20
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Recommended |
A Participant ID |
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| Query
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network |
String |
20
|
Recommended |
Network |
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CPEA or STAART Network
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| Query
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site |
String |
101
|
Recommended |
Site |
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Study Site
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| Query
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study |
String |
100
|
Recommended |
Study; The code for each individual study |
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| Query
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ados_alg_cmsit |
Integer |
|
Recommended |
Communication Social Interaction Total |
0 :: 24
|
MODULE 1: 7 = Autism spectrum cut-off; 12 = Autism cut-off. MODULE 2: 8 = Autism spectrum cut-off; 12 = Autism cut-off. MODULES 3 AND 4: 7 = Autism spectrum cut-off; 10 = Autism cut-off
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| Query
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ados_alg_cmsits |
Integer |
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Recommended |
ADOS: Social-Communication Severity Score |
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| Query
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ados_alg_commt |
Integer |
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Recommended |
Communication Total |
0 :: 10
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MODULE 1: 2 = Autism spectrum cut-off; 4 = Autism cut-off. MODULE 2: 3 = Autism spectrum cut-off; 5 = Autism cut-off. MODULES 3 AND 4: 2 = Autism spectrum cut-off; 3 = Autism cut-off
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| Query
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ados_alg_commts |
Integer |
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Recommended |
ADOS: Communication Severity Score |
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| Query
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ados_alg_imgcr |
Integer |
|
Recommended |
Imagination Creativity |
0 :: 2
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| Query
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ados_alg_playt |
Integer |
|
Recommended |
Play Total |
0 :: 4
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| Query
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ados_alg_playts |
Integer |
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Recommended |
ADOS: Play Severity Score |
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| Query
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ados_alg_sbrit |
Integer |
|
Recommended |
Stereotyped Behaviors and Restricted Interests Total |
0 :: 6
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| Query
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ados_alg_sbrits |
Integer |
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Recommended |
ADOS: Stereotyped Behaviors-Restricted Interests Severity Score |
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| Query
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ados_alg_sclit |
Integer |
|
Recommended |
Social Interaction Total |
0 :: 14
|
MODULE 1: 4 = Autism spectrum cut-off; 7 = Autism cut-off. MODULE 2: 4 = Autism spectrum cut-off; 6 = Autism cut-off. MODULES 3 AND 4: 4 = Autism spectrum cut-off; 6 = Autism cut-off
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| Query
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ados_alg_sclits |
Integer |
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Recommended |
ADOS: Social Severity Score |
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| Query
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ados_date |
Integer |
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Recommended |
ADOS Date |
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| Query
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ados_dia_class |
String |
50
|
Recommended |
ADOS Classification |
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ados_dia_diag |
String |
75
|
Recommended |
Overall Diagnosis |
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| Query
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ados_dx |
String |
15
|
Recommended |
ADOS Diagnosis |
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| Query
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ados_lac_asoma |
Integer |
|
Recommended |
Amount of Social Overtures/Maintenance of Attention |
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Nulled value range of: 0;1;2;7 to accept outlier data. 0 = Frequent attempts to get or maintain the examiner's attention AND/OR to direct the examiner's attention to objects or actions of interest to the child. 1 = Some attempts at getting, maintaining, or directing the examiner's attention as described above for a rating of 0, but reduced in frequency or the number of contexts used (e.g., only seeks attention to direct examiner's behavior). 2 = Shows relatively little concern as to whether the examiner is paying attention to him/her unless he/she needs help, AND/OR makes few attempts to get, maintain, or direct the examiner's attention. 7 = Unusually frequent, intense, or excessive demands for attention outside structured tasks or questions within the ADOS evaluation, regardless of the social appropriateness of individual behaviors.
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| Query
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ados_lac_cnvst |
Integer |
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Recommended |
Conversation |
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Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Conversation flows, building on the examiner's dialogue. This rating requires that much of the child's speech provide both a response to the examiner's speech and some additional talking (not necessarily a question) that builds on what has just been said and allows a response from the examiner (i.e., sequences of at least four elements: examiner opens, child comments, examiner responds, child responds to response). 1 = Speech includes some spontaneous elaboration of the child's own responses for the examiner's benefit OR provides leads for the examiner to follow, but either this is less in amount than would be expected for the child's expressive language level or it is limited in flexibility. 2 = Little reciprocal conversation sustained by the child; may follow his or her own train of thought rather than participate in an interchange; may have some spontaneous offering of information or comments, but little sense of reciprocity. 3 = Little spontaneous communicative speech (although there may be much echoed or noncommunicative speech). This rating can be used to describe children who make some limited, but very few, responses to conversational initiations. by the examiner.
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| Query
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ados_lac_dciig |
Integer |
|
Recommended |
Descriptive, Conventional, Instrumental, or Informational Gestures |
|
Nulled value range of: 0;1;2;3;8 to accept outlier data. 0 = Spontaneous use of several descriptive gestures. These gestures may be typical or idiosyncratic, but must be communicative. May also use conventional or instrumental gestures. 1 = Some spontaneous use of descriptive gestures, but exaggerated or limited in range and/or contexts (e.g., occur only during "Demonstration Task"), OR frequent use of conventional or instrumental gestures, but rare or no use of descriptive gestures. 2 = Some spontaneous use of informational, conventional, or instrumental gestures, but rare or no use of descriptive gestures. 3 = No or very limited spontaneous use of conventional, instrumental, informational, or descriptive gestures. Grabbing and communicative reaching are coded here. 8 = N/A (e.g., limited by physical disability).
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| Query
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ados_lac_imech |
Integer |
|
Recommended |
Immediate Echolalia |
|
Nulled value range of: 0;1;2;3;8 to accept outlier data. 0 = Does not repeat others' speech. (Note: Requires at least five words to code 0 rather than 8.) 1 = Occasional echoing. 2 = Echoing words and phrases regularly, but some spontaneous language, which can be stereotyped. 3 = Speech largely consists of immediate echolalia. 8 = No echolalia noted, but language too limited to judge.
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| Query
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ados_lac_olnel2 |
Integer |
|
Recommended |
Overall Level of Non-Echoed Language |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Non-echoed phrase speech of three or more words per utterance; some grammatical markings, such as plurals or tense. 1 = Speech is primarily two- or three-word utterances, with minimal or no grammatical markings. 2 = Occasional phrases; mostly single words. 3 = Single words only, or no spoken language. 7 = All speech is echoed (immediate or delayed), with or without communicative intent.
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| Query
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ados_lac_point2 |
Integer |
|
Recommended |
Pointing/Pointing to Express Interest |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Points with index finger to show visually-directed referencing (i.e., coordinated gaze to object and person) of distal object to express interest. 1 = Uses pointing to reference objects to express interest, but without sufficient flexibility to meet criteria for a rating of 0 (e.g., absence of coordinated gaze, though the child may vocalize); OR produces an approximation of pointing rather than an index finger point; OR coordinates only pointing that includes touching a picture or other nearby objects with gaze or vocalization; OR points to request only; OR points to a person only. 2 = Points only when close to or actually touching an object, without coordinated gaze. 3 = Does not point to objects in any way.
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| Query
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ados_lac_saawa |
Integer |
|
Recommended |
Speech Abnormalities Associated with Autism (Intonation/Volumen/Rhythm/Rate) |
|
Nulled value range of: 0;1;2;7;8 to accept outlier data. 0 = Appropriately varying intonation, reasonable volume, and normal rate of speech, with regular rhythm coordinated with breathing. 1 = Little variation in pitch and tone; rather flat or exaggerated intonation, but not obviously peculiar, OR slightly unusual volume, AND/OR speech that tends to be somewhat unusually slow, fast, or jerky. 2 = Speech that is clearly abnormal for ANY of the following reasons: slow and halting; inappropriately rapid; jerky and irregular in rhythm (other than ordinary stutter/stammer); odd intonation or inappropriate pitch and stress; markedly flat and toneless ("mechanical"); consistently abnormal volume. 7 = Stutter or stammer or other fluency disorder (if odd intonation is also present, code 1 or 2 accordingly). 8 = Phrase speech inadequate in frequency or complexity for assessment of intonation/rhythm/rate.
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| Query
|
ados_lac_stidw234 |
Integer |
|
Recommended |
Stereotyped/Idiosyncratic Use of Words (or Phrases) |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Rarely or never uses stereotyped or idiosyncratic words or phrases. 1 = Use of words or phrases tends to be more repetitive than that of most individuals at the same level of complexity, but not obviously odd, OR occasional stereotyped utterances or use of odd words, OR use of phrases in an unusual way, with other flexible spontaneous language, as well. 2 = Often uses stereotyped utterances or odd words or phrases with some other language. 3 = Phrases almost exclusively odd or stereotyped utterances.
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| Query
|
ados_module |
Integer |
|
Recommended |
ADOS Module |
|
|
|
| Query
|
ados_oab_anxty |
Integer |
|
Recommended |
Anxiety |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = No obvious anxiety (e.g., trembling or jumpiness). 1 = Mild signs of anxiety, especially at the beginning of the ADOS session, OR marked anxiety only in response to a specific request or to one particular toy or task. 2 = Marked anxiety in response to more than one toy or task or several times during the ADOS evaluation.
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|
| Query
|
ados_oab_ovrat |
Integer |
|
Recommended |
Overactivity |
|
Nulled value range of: 0;1;2;7 to accept outlier data. 0 = Sits or stands still appropriately when expected to do so during the assessment. 1 = Sits briefly or stands still when expected to do so (e.g., during the symbolic imitation task, the birthday party) for activities besides the snack. Often fidgets, moves about, or gets up out of his/her seat, but is not obviously restless or unusually fidgety. Difficulties in the assessment are not principally due to overactivity. 2 = Hardly remains still at all (not counting the snack). May move around the room in a way that is difficult to interrupt; the level of activity disrupts the assessment. 7 = Underactive.
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|
| Query
|
ados_oab_tandb |
Integer |
|
Recommended |
Tantrums, Aggression, Negative or Disruptive Behavior |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = Not upset, disruptive, negative, destructive, or aggressive during ADOS. 1 = Occasional display of mild upset, anger, aggression, negativism, or disruptive behavior to the parent/caregiver or the examiner. 2 = Shows marked or repeated negativism, temper tantrums, or more significant aggression (e.g., hitting, biting others). Loud screaming is included here.
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|
| Query
|
ados_ply_fpwob |
Integer |
|
Recommended |
Functional Play with Objects |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Spontaneously plays with a variety of toys in a conventional manner, including appropriate play with several different miniatures/representational toys (e.g., telephone, truck, dishes, materials in the "Birthday Party" activity). Do not include imitations, prompted actions, or pushing the car. 1 = Some spontaneous functional play with at least one miniature/representational toy. Do not include imitations, responses to the examiner's or a parent/caregiver's direct requests (e.g., "Answer the phone"), pushing the car, or use of construction toys. 2 = Plays appropriately with cause-and-effect toys and/or construction toys only, AND/OR pushing the car. This may include imitating a demonstration or imitating more representational play with other toys. 3 = No play with toys or only stereotyped play.
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| Query
|
ados_ply_imgcr2 |
Integer |
|
Recommended |
Imagination/Creativity |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Variety of spontaneous, inventive, creative play or activities, including use of doll or figures as agents of action. 1 = Some spontaneous creative or make-believe play, but rather limited in range. May include some use of doll or figures as agents, but less flexible than what would qualify for a rating of 0. 2 = Little spontaneous creative or make-believe play, OR only play that is repetitive or stereotyped in quality. 3 = No creative or inventive play (not even stereotyped or repetitive play). 9 = Cannot be rated for some reason other than that listed above, such as if an examiner makes an error and does not administer a particular ADOS activity.
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| Query
|
ados_rsi_arscm |
Integer |
|
Recommended |
Amount of Reciprocal Social Communication |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Extensive use of verbal or nonverbal behaviors (at whatever level attained) for social interchange (i.e., chat, comments, remarks, or nonverbal behaviors that appear to have reciprocal intent). 1 = Some reciprocal social communication (as described above for a rating of 0 ), but reduced in frequency or amount, or in the number of contexts in which such behaviors occur (regardless of amount of nonsocial talk). 2 = Most communication is either object-oriented (i.e., to ask for things), OR response to questions, OR echolalic, OR concerned with particular preoccupations; little or no social chat or give-and-take. 3 = Little or no communication with examiner or parent/caregiver.
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| Query
|
ados_rsi_fedto |
Integer |
|
Recommended |
Facial Expression Directed to Others |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = Directs a range of appropriate facial expressions to the examiner and/or parent/caregiver in order to communicate affective or cognitive states. 1 = Some direction of facial expressions to the examiner and/or parent/caregiver (e.g., directs only expressions indicating emotional extreme(s) to others, or occasionally directs wider range of expressions). A child who has a limited range of facial expressions, but who directs most of his or her facial expressions to another person, may be rated here. 2 = Does not direct appropriate facial expressions to others.
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| Query
|
ados_rsi_oqorp |
Integer |
|
Recommended |
Overall Quality of Rapport |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Comfortable interaction between the child and examiner that is appropriate to the context of the ADOS assessment. 1 = Interaction sometimes comfortable, but not sustained (e.g., sometimes feels awkward or stilted, or the child's behavior seems mechanical or slightly inappropriate). 2 = One-sided or unusual interaction resulting in a consistently mildly uncomfortable session or a session that would have been difficult if the examiner had not continuously modified the structure of the situation beyond the standard activities in the ADOS evaluation. 3 = The child shows minimal regard for the examiner, OR the session is markedly uncomfortable for a significant proportion of the time.
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|
| Query
|
ados_rsi_qsclo |
Integer |
|
Recommended |
Quality of Social Overtures |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Effectively uses nonverbal and verbal means to make clear social overtures to the examiner or the parent/caregiver. The overtures must be appropriate to immediate contexts. 1 = Slightly unusual quality of social overtures. Assign this rating if overtures are restricted to personal demands or related to strong interests, but with some attempt to involve the examiner or the parent/caregiver in those interests. 2 = Overtures often lack integration into context AND/OR social quality. Assign this rating if there are some clearly inappropriate overtures, even if there are other overtures. 3 = No social overtures of any kind.
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|
| Query
|
ados_rsi_qsclr |
Integer |
|
Recommended |
Quality of Social Response |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Shows a range of appropriate responses that are varied according to immediate social situations and presses. 1 = Shows responsiveness to most social situations, but somewhat limited, socially awkward, inappropriate, inconsistent, or consistently negative. 2 = Odd, stereotyped responses, or responses that are restricted in range or inappropriate to the context. 3 = Minimal or no response to the examiner's attempts to engage the child.
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| Query
|
ados_rsi_rspja |
Integer |
|
Recommended |
Response to Joint Attention |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Uses the orientation of the examiner's eyes and face alone as a cue to look toward the target, without the need for pointing. The child must follow the examiner's gaze and turn his/her face or eyes in the direction of the target after watching the examiner do so; he/she does not actually have to catch sight of the target. 1 = Responds to the examiner's pointing by looking at or toward the target. 2 = Looks at the target when it is activated or placed directly in front of himlher, but does not make use of the examiner's gaze or pointing in order to locate the target from a distance. 3 = No interest or awareness of the target. If it is not possible to get the child's attention in order to direct it in five attempts, assign this rating.
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| Query
|
ados_rsi_rsptn2 |
Integer |
|
Recommended |
Response to name |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Looks toward the examiner and makes eye contact immediately on at least one of the first two clear presses made by the examiner (i.e., name only is called). 1 = Makes eye contact with the examiner immediately on the examiner's third or fourth press of name only OR looks toward the parent/caregiver and makes eye contact immediately for the first or second press of name only. 2 = Does not make eye contact with either the examiner or the parent/caregiver after his/her name is called in four attempts, but shifts gaze briefly (no eye contact), OR looks at least once when an interesting or familiar vocalization or verbalization is made (e.g., tongue clucking; I'm gonna get you"). 3 = Does not look toward either the examiner or the parent/caregiver after any purely verbal or vocal attempt to get attention.
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| Query
|
ados_rsi_seiit234 |
Integer |
|
Recommended |
Shared Enjoyment in Interaction |
|
Nulled value range of: 0;1;2;8 to accept outlier data. 0 = Shows definite and appropriate pleasure in interactive participation or conversation during more than one task or conversational topic. 1 = Shows some appropriate pleasure in the examiner's actions, OR shows definite pleasure during one interaction. 2 = Shows little or no expressed pleasure in interaction. May show pleasure in his/her own actions or part of the conversation, but not in the examiner's behavior or in interaction. 8 = Not scorable due to little or no interaction, or for other reasons.
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| Query
|
ados_rsi_showg |
Integer |
|
Recommended |
Showing |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = Spontaneously shows toys or objects throughout the ADOS evaluation by holding them up or placing them in front of others and using eye contact with or without vocalization. 1 = Shows toys or objects in a partial or inconsistent manner (e.g., holds them up and/or places them in front of others without coordinated eye contact, looks from an object in his/her hands to another person without clearly orienting it toward that person, or shows objects as described above for a rating of 0 on one occasion only). 2 = Does not show objects to another person.
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| Query
|
ados_rsi_spija |
Integer |
|
Recommended |
Spontaneous Initiation of Joint Attention |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = Uses clearly integrated eye contact to reference an object that is out of reach by looking at the object, then at the examiner or the parent/caregiver, and then back to the object. Eye contact may be coordinated with pointing and/or vocalization. One clear example of an attempt to draw another person's attention to an object (i.e., more than just referencing) is sufficient for this rating. 1 = Partially references an object that is clearly out of reach. May spontaneously look and point to the object and/or vocalize, but does not coordinate either of these with looking at another person, OR may look at an object and then look at or point to the examiner or the parent/caregiver, but not look back at the object. 2 = No approximation of spontaneous initiation of joint attention in order to reference an object that is out of reach.
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| Query
|
ados_rsi_uneyc |
Integer |
|
Recommended |
Unusual Eye Contact |
|
0 = Appropriate gaze with subtle changes meshed with other communication. 2 = Uses poorly modulated eye contact to initiate, terminate, or regulate social interaction. 3 = Uses poorly modulated eye contact to initiate, terminate, or regulate social interaction AND frequently actively avoids eye contact (e.g., by turning away, pushing away, closing eyes).
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|
| Query
|
ados_sar_hfocm |
Integer |
|
Recommended |
Hand and Finger and Other Complex Mannerisms |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = None. 1 = Very brief or rare hand and finger mannerisms or complex mannerisms, OR mannerisms not as clear as specified below for a rating of 2. 2 = Definite finger flicking or twisting, ANP/OR, hand or other mannerisms or stereotypes.
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| Query
|
ados_sar_sfijb |
Integer |
|
Recommended |
Self-Injurious Behavior |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = No attempts to harm self. 1 = Dubious or possible self-injury, and/or rare but clear self-injury (e.g., one clear example of biting at own hand or arm, pulling own hair, slapping own face, or banging own head). 2 = More than one clear example of self-injury, such as head banging, face slapping, hair pulling, or self-biting.
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|
| Query
|
ados_sar_urisb |
Integer |
|
Recommended |
Unusually Repetitive Interests or Stereotyped Behaviors |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = No repetitive or stereotyped behaviors during the ADOS evaluation. 1 = An interest or behavior that is repetitive or stereotyped to an unusual degree, including an intense interest in a particular toy or object, a definite interest in an unusual object or activity (odd for the child's level of motor skill), an unusually routinized activity, or a clear interest in a part of an object. This interest or behavior occurs in conjunction with several other activities and does not prevent the child from completing any ADOS activities. 2 = Clearly repetitive or stereotyped interests and/or behaviors, as described above. These behaviors may form a substantial minority of the child's interests and spontaneous behaviors and may interfere with the child's ability to complete ADOS activities, but it is possible for his or her attention to be directed to other objects or activities, at least momentarily. 3 = Repetitive or stereotyped interests and/or behaviors, as described above, form the majority of the child's interests, AND/OR attempts to direct his or her attention to other objects or activities are met with significant resistance and/or distress.
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|
| Query
|
ados_sar_usipm |
Integer |
|
Recommended |
Unusual Sensory Interest in Play Material Person |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = No sniffing, repetitive touching, feeling of texture, licking or biting (not mouthing), interest in the repetition of or unusually strong reactions to certain sounds, or unusual or prolonged visual examination. 1 = Occasional unusual sensory interests or responses, OR not as clear as specified below for a rating of 2. 2 = Definite interest in nonfunctional elements of play materials, OR sensory examination of himself/herself or others on more than one occasion, OR persistent unusual sensory response to several materials or events.
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|
|
|
ados_version |
String |
35
|
Recommended |
ADOS Version |
|
|
|
