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subjectkey |
GUID |
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Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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ADOS_DATE_STD |
| Query
|
cycle |
Integer |
|
Recommended |
Timepoint information |
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-1 = Screener; 0 = Baseline; 97 = Taper; 98 = Withdrawal; 99 = Interim contact; Otherwise: weeks since baseline
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patid |
String |
20
|
Recommended |
A Participant ID |
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| Query
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network |
String |
20
|
Recommended |
Network |
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CPEA or STAART Network
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| Query
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site |
String |
101
|
Recommended |
Site |
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Study Site
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| Query
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study |
String |
100
|
Recommended |
Study; The code for each individual study |
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| Query
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ados_alg_cmsit |
Integer |
|
Recommended |
Communication Social Interaction Total |
0 :: 24
|
MODULE 1: 7 = Autism spectrum cut-off; 12 = Autism cut-off. MODULE 2: 8 = Autism spectrum cut-off; 12 = Autism cut-off. MODULES 3 AND 4: 7 = Autism spectrum cut-off; 10 = Autism cut-off
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| Query
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ados_alg_commt |
Integer |
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Recommended |
Communication Total |
0 :: 10
|
MODULE 1: 2 = Autism spectrum cut-off; 4 = Autism cut-off. MODULE 2: 3 = Autism spectrum cut-off; 5 = Autism cut-off. MODULES 3 AND 4: 2 = Autism spectrum cut-off; 3 = Autism cut-off
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| Query
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ados_alg_imgcr |
Integer |
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Recommended |
Imagination Creativity |
0 :: 2
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| Query
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ados_alg_sbrit |
Integer |
|
Recommended |
Stereotyped Behaviors and Restricted Interests Total |
0 :: 6
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| Query
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ados_alg_sbrits |
Integer |
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Recommended |
ADOS: Stereotyped Behaviors-Restricted Interests Severity Score |
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| Query
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ados_alg_sclit |
Integer |
|
Recommended |
Social Interaction Total |
0 :: 14
|
MODULE 1: 4 = Autism spectrum cut-off; 7 = Autism cut-off. MODULE 2: 4 = Autism spectrum cut-off; 6 = Autism cut-off. MODULES 3 AND 4: 4 = Autism spectrum cut-off; 6 = Autism cut-off
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| Query
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ados_alg_sclits |
Integer |
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Recommended |
ADOS: Social Severity Score |
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| Query
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ados_date |
Integer |
|
Recommended |
ADOS Date |
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| Query
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ados_dia_class |
String |
50
|
Recommended |
ADOS Classification |
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ados_dia_diag |
String |
75
|
Recommended |
Overall Diagnosis |
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| Query
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ados_dx |
String |
15
|
Recommended |
ADOS Diagnosis |
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| Query
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ados_lac_afinf |
Integer |
|
Recommended |
Asks for Information |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Asks the examiner about his or her thoughts, feelings, or experiences on several occasions. 1 = Occasionally (at least one clear example) asks the examiner about his or her thoughts, feelings, or experiences. 2 = Responds appropriately to examiner's comments about his or her thoughts, feelings, and experiences, but does not spontaneously inquire about them. 3 = Rarely or never expresses interest in the examiner's thoughts, feelings, or experiences.
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| Query
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ados_lac_cnvst |
Integer |
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Recommended |
Conversation |
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Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Conversation flows, building on the examiner's dialogue. This rating requires that much of the child's speech provide both a response to the examiner's speech and some additional talking (not necessarily a question) that builds on what has just been said and allows a response from the examiner (i.e., sequences of at least four elements: examiner opens, child comments, examiner responds, child responds to response). 1 = Speech includes some spontaneous elaboration of the child's own responses for the examiner's benefit OR provides leads for the examiner to follow, but either this is less in amount than would be expected for the child's expressive language level or it is limited in flexibility. 2 = Little reciprocal conversation sustained by the child; may follow his or her own train of thought rather than participate in an interchange; may have some spontaneous offering of information or comments, but little sense of reciprocity. 3 = Little spontaneous communicative speech (although there may be much echoed or noncommunicative speech). This rating can be used to describe children who make some limited, but very few, responses to conversational initiations. by the examiner.
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| Query
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ados_lac_dciig |
Integer |
|
Recommended |
Descriptive, Conventional, Instrumental, or Informational Gestures |
|
Nulled value range of: 0;1;2;3;8 to accept outlier data. 0 = Spontaneous use of several descriptive gestures. These gestures may be typical or idiosyncratic, but must be communicative. May also use conventional or instrumental gestures. 1 = Some spontaneous use of descriptive gestures, but exaggerated or limited in range and/or contexts (e.g., occur only during "Demonstration Task"), OR frequent use of conventional or instrumental gestures, but rare or no use of descriptive gestures. 2 = Some spontaneous use of informational, conventional, or instrumental gestures, but rare or no use of descriptive gestures. 3 = No or very limited spontaneous use of conventional, instrumental, informational, or descriptive gestures. Grabbing and communicative reaching are coded here. 8 = N/A (e.g., limited by physical disability).
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| Query
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ados_lac_eoegt |
Integer |
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Recommended |
Emphatic or Emotional Gestures |
|
Nulled value range of: 0;1;2;3;8 to accept outlier data. 0 = Variety of appropriate emphatic and/or emotional gestures that are well-integrated with speech. 1 = Some emphatic or emotional gestures, but exaggerated, OR limited in frequency, appropriateness, integration, or style. 2 = Odd, excessive, or definitely awkwardly integrated emphatic or emotional gestures. 3 = No or very limited emphatic or emotional gestures. 8 = N/A (e.g., limited by physical disability).
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| Query
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ados_lac_imech |
Integer |
|
Recommended |
Immediate Echolalia |
|
Nulled value range of: 0;1;2;3;8 to accept outlier data. 0 = Does not repeat others' speech. (Note: Requires at least five words to code 0 rather than 8.) 1 = Occasional echoing. 2 = Echoing words and phrases regularly, but some spontaneous language, which can be stereotyped. 3 = Speech largely consists of immediate echolalia. 8 = No echolalia noted, but language too limited to judge.
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| Query
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ados_lac_offrs |
Integer |
|
Recommended |
Offers Information |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = Spontaneously offers information about his/her own thoughts, feelings, or experiences on several occasions. 1 = Occasionally offers information spontaneously about his or her own thoughts, feelings, or experiences. 2 = Rarely or never offers information spontaneously, except about circumscribed interests or preoccupations, OR offers information about facts or general knowledge, including preoccupations or circumscribed interests.
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| Query
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ados_lac_olnel34 |
Integer |
|
Recommended |
Overall Level of Non-Echoed Language |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Uses sentences in a largely correct fashion (must use some complex utterances with two or more clauses). 1 =Some relatively complex speech (occasional utterances with two or more clauses), but with recurrent grammatical errors. 2 = Non-echoed speech is mostly utterances of at least three words, but non-elliptical simple phrases. 3 = Non-echoed language is mostly simple phrases.
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| Query
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ados_lac_rptev |
Integer |
|
Recommended |
Reporting of Events |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Reports a specific nonroutine event (e.g., a holiday, a vacation, a shopping trip) that is not part of any preoccupations or intense interests and seems likely to be real. Gives a reasonable account without specific probes, but may need to be asked a general question to get started. 1 = Gives a reasonable account of a routine event (e.g., playing a favorite game, usual routine when he or she arrives home from school) that is not part of a preoccupation or intense interest and seems likely to be real. Gives the account without specific probes, but initially may need to be asked to describe the event. Include accounts from the "Demonstration Task" here. 2 = Provides an account of routine or non routine events, but dependent on specific probes, OR only describes an event that seems unlikely to have been real. 3 = Inconsistent or insufficient responses, even to specific probes. 9 = Cannot be rated for some reason other than that listed above, such as if an examiner makes an error and does not administer a particular ADOS activity.
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| Query
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ados_lac_saawa |
Integer |
|
Recommended |
Speech Abnormalities Associated with Autism (Intonation/Volumen/Rhythm/Rate) |
|
Nulled value range of: 0;1;2;7;8 to accept outlier data. 0 = Appropriately varying intonation, reasonable volume, and normal rate of speech, with regular rhythm coordinated with breathing. 1 = Little variation in pitch and tone; rather flat or exaggerated intonation, but not obviously peculiar, OR slightly unusual volume, AND/OR speech that tends to be somewhat unusually slow, fast, or jerky. 2 = Speech that is clearly abnormal for ANY of the following reasons: slow and halting; inappropriately rapid; jerky and irregular in rhythm (other than ordinary stutter/stammer); odd intonation or inappropriate pitch and stress; markedly flat and toneless ("mechanical"); consistently abnormal volume. 7 = Stutter or stammer or other fluency disorder (if odd intonation is also present, code 1 or 2 accordingly). 8 = Phrase speech inadequate in frequency or complexity for assessment of intonation/rhythm/rate.
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| Query
|
ados_lac_stidw234 |
Integer |
|
Recommended |
Stereotyped/Idiosyncratic Use of Words (or Phrases) |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Rarely or never uses stereotyped or idiosyncratic words or phrases. 1 = Use of words or phrases tends to be more repetitive than that of most individuals at the same level of complexity, but not obviously odd, OR occasional stereotyped utterances or use of odd words, OR use of phrases in an unusual way, with other flexible spontaneous language, as well. 2 = Often uses stereotyped utterances or odd words or phrases with some other language. 3 = Phrases almost exclusively odd or stereotyped utterances.
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| Query
|
ados_module |
Integer |
|
Recommended |
ADOS Module |
|
|
|
| Query
|
ados_oab_anxty |
Integer |
|
Recommended |
Anxiety |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = No obvious anxiety (e.g., trembling or jumpiness). 1 = Mild signs of anxiety, especially at the beginning of the ADOS session, OR marked anxiety only in response to a specific request or to one particular toy or task. 2 = Marked anxiety in response to more than one toy or task or several times during the ADOS evaluation.
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|
| Query
|
ados_oab_ovrat |
Integer |
|
Recommended |
Overactivity |
|
Nulled value range of: 0;1;2;7 to accept outlier data. 0 = Sits or stands still appropriately when expected to do so during the assessment. 1 = Sits briefly or stands still when expected to do so (e.g., during the symbolic imitation task, the birthday party) for activities besides the snack. Often fidgets, moves about, or gets up out of his/her seat, but is not obviously restless or unusually fidgety. Difficulties in the assessment are not principally due to overactivity. 2 = Hardly remains still at all (not counting the snack). May move around the room in a way that is difficult to interrupt; the level of activity disrupts the assessment. 7 = Underactive.
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|
| Query
|
ados_oab_tandb |
Integer |
|
Recommended |
Tantrums, Aggression, Negative or Disruptive Behavior |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = Not upset, disruptive, negative, destructive, or aggressive during ADOS. 1 = Occasional display of mild upset, anger, aggression, negativism, or disruptive behavior to the parent/caregiver or the examiner. 2 = Shows marked or repeated negativism, temper tantrums, or more significant aggression (e.g., hitting, biting others). Loud screaming is included here.
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| Query
|
ados_ply_imgcr34 |
Integer |
|
Recommended |
Imagination/Creativity |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Several different spontaneous, inventive, creative activities or comments in conversation. 1 = Some creative or make-believe actions, but limited in range or occurring only in response to one structured situation (e.g., creating a story). 2 = Little spontaneous creative or make-believe actions, OR only actions that are repetitive OR stereotyped in quality. 3 = No creative or inventive actions (not even stereotyped or repetitive).
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| Query
|
ados_rsi_arscm |
Integer |
|
Recommended |
Amount of Reciprocal Social Communication |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Extensive use of verbal or nonverbal behaviors (at whatever level attained) for social interchange (i.e., chat, comments, remarks, or nonverbal behaviors that appear to have reciprocal intent). 1 = Some reciprocal social communication (as described above for a rating of 0 ), but reduced in frequency or amount, or in the number of contexts in which such behaviors occur (regardless of amount of nonsocial talk). 2 = Most communication is either object-oriented (i.e., to ask for things), OR response to questions, OR echolalic, OR concerned with particular preoccupations; little or no social chat or give-and-take. 3 = Little or no communication with examiner or parent/caregiver.
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| Query
|
ados_rsi_cmooa |
Integer |
|
Recommended |
Communication of Own Affect |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Effective communication of a range of emotions that he/she is feeling or has felt. 1 = Some description of experiencing several emotions, but limited in range or effectiveness of communication (may communicate one emotion effectively). 2 = Communicates about one emotion only, with minimal description of others. 3 = Minimal or no communication of his/her own affect.
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| Query
|
ados_rsi_ecooe |
Integer |
|
Recommended |
Empathy/Comments on Others Emotions |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Communicates clear understanding and shared emotion with others for several different emotions. 1 = Communicates some degree of understanding and shared emotion with others for more than one emotion, OR communicates clear understanding and shared emotion of one emotion experienced by another individual. 2 = Communicates some understanding and/or shared emotion of at least one experience of another individual. 3 = No or minimal communication of emotional understanding or shared emotion.
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| Query
|
ados_rsi_fedto |
Integer |
|
Recommended |
Facial Expression Directed to Others |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = Directs a range of appropriate facial expressions to the examiner and/or parent/caregiver in order to communicate affective or cognitive states. 1 = Some direction of facial expressions to the examiner and/or parent/caregiver (e.g., directs only expressions indicating emotional extreme(s) to others, or occasionally directs wider range of expressions). A child who has a limited range of facial expressions, but who directs most of his or her facial expressions to another person, may be rated here. 2 = Does not direct appropriate facial expressions to others.
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| Query
|
ados_rsi_insgt |
Integer |
|
Recommended |
Insight |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Shows several examples of insight into the nature of typical social relationships, including his/her own role in at least one. 1 = Shows examples of insight into several typical social relationships, but not into his/her own role, OR into only one relationship including his/her own role. 2 = Shows some insight into one typical social relationship, though not necessarily about his/her own role in it. 3 = Shows no or limited insight into typical social relationships, with or without knowledge of his/her own role in them.
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| Query
|
ados_rsi_lplnc |
Integer |
|
Recommended |
Language Production and Linked Nonverbal Communication |
|
Nulled value range of: 0;1;2;7;8 to accept outlier data. 0 = Vocalization usually accompanied by subtle and socially appropriate changes in gesture, gaze, and facial expression. 1 = Vocalization accompanied by abnormal, limited, or less than usual frequency and/or range of gesture, gaze, and facial expression, OR use of one modality almost exclusively (e.g., frequent use of gaze, but very limited use of gesture and facial expression). 2 = Little or no nonverbal communication linked with vocalization. 7 = Some avoidance of direct eye gaze, particularly at ihe beginning of the interview, perhaps because of shyness, but shows some modulation and coordination of language and nonverbal behavior. 8 = N/A; no vocalization OR no or minimal use of gesture, facial expression, or socially directed gaze. This code should be assigned automatically if the absence of linking can be accounted for by the limited frequency of unusual eye contact, facial expressions, and/or gestures.
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| Query
|
ados_rsi_oqorp |
Integer |
|
Recommended |
Overall Quality of Rapport |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Comfortable interaction between the child and examiner that is appropriate to the context of the ADOS assessment. 1 = Interaction sometimes comfortable, but not sustained (e.g., sometimes feels awkward or stilted, or the child's behavior seems mechanical or slightly inappropriate). 2 = One-sided or unusual interaction resulting in a consistently mildly uncomfortable session or a session that would have been difficult if the examiner had not continuously modified the structure of the situation beyond the standard activities in the ADOS evaluation. 3 = The child shows minimal regard for the examiner, OR the session is markedly uncomfortable for a significant proportion of the time.
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| Query
|
ados_rsi_qsclo |
Integer |
|
Recommended |
Quality of Social Overtures |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Effectively uses nonverbal and verbal means to make clear social overtures to the examiner or the parent/caregiver. The overtures must be appropriate to immediate contexts. 1 = Slightly unusual quality of social overtures. Assign this rating if overtures are restricted to personal demands or related to strong interests, but with some attempt to involve the examiner or the parent/caregiver in those interests. 2 = Overtures often lack integration into context AND/OR social quality. Assign this rating if there are some clearly inappropriate overtures, even if there are other overtures. 3 = No social overtures of any kind.
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| Query
|
ados_rsi_qsclr |
Integer |
|
Recommended |
Quality of Social Response |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = Shows a range of appropriate responses that are varied according to immediate social situations and presses. 1 = Shows responsiveness to most social situations, but somewhat limited, socially awkward, inappropriate, inconsistent, or consistently negative. 2 = Odd, stereotyped responses, or responses that are restricted in range or inappropriate to the context. 3 = Minimal or no response to the examiner's attempts to engage the child.
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| Query
|
ados_rsi_rspbt |
Integer |
|
Recommended |
Responsibility |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = Sees himself/herself as responsible for his/her own actions in several contexts, including dealing with minor problems in daily living. 1 = Provides at least one clear indication of seeing himself/herself as responsible for his/her own actions. May show no more than one clear lack of responsibility, but not consistent across contexts or consistently less straightforward than what is described above or a rating of 0. 2 = Shows limited indication of a sense of responsibility for his/her own actions or shows several clear examples of lack of responsibility that would be appropriate for his/her chronological age.
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| Query
|
ados_rsi_uneyc |
Integer |
|
Recommended |
Unusual Eye Contact |
|
0 = Appropriate gaze with subtle changes meshed with other communication. 2 = Uses poorly modulated eye contact to initiate, terminate, or regulate social interaction. 3 = Uses poorly modulated eye contact to initiate, terminate, or regulate social interaction AND frequently actively avoids eye contact (e.g., by turning away, pushing away, closing eyes).
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| Query
|
ados_sar_bhvir |
Integer |
|
Recommended |
ADOS: Stereotyped Behaviors and Restricted Interests: Behavior When Interrupted |
|
|
|
| Query
|
ados_sar_cmrtl |
Integer |
|
Recommended |
Compulsions or Rituals |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = No obvious activities or verbal routines that must be completed in full or according to a sequence that is not part of the task. 1 = Unusually routinized in speech or activities (includes insistence on finishing the book or providing a list that is not relevant to the conversation), but no behavior that appears clearly compulsive in quality. 2 = One or more activities or verbal routines that the participant has to perform or say in a special way. The participant appears under pressure or becomes anxious if an activity is disrupted (i.e., compulsive quality is present). Include the recitation of lists that must be completed or that the examiner is asked to record (e.g., friends, favorite foods) or insistence that the examiner respond verbally in a highly specific way.
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| Query
|
ados_sar_erust |
Integer |
|
Recommended |
Excessive Interest in or References to Unusual or Highly Specific Topics or Objects or Repetitive Behaviors |
|
Nulled value range of: 0;1;2;3 to accept outlier data. 0 = No excessive interest in or references to unusual or highly specific or restricted topics or objects. 1 = Occasional references to unusual or highly specific topics or patterns of interest, occurring to an unusual degree. 2 = Definite, stereotyped, or unusual patterns of interest that may or may not intrude and/or interfere with social communication. 3 = Definite preoccupation(s) to a degree that interferes with the assessment.
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| Query
|
ados_sar_hfocm |
Integer |
|
Recommended |
Hand and Finger and Other Complex Mannerisms |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = None. 1 = Very brief or rare hand and finger mannerisms or complex mannerisms, OR mannerisms not as clear as specified below for a rating of 2. 2 = Definite finger flicking or twisting, ANP/OR, hand or other mannerisms or stereotypes.
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|
| Query
|
ados_sar_sfijb |
Integer |
|
Recommended |
Self-Injurious Behavior |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = No attempts to harm self. 1 = Dubious or possible self-injury, and/or rare but clear self-injury (e.g., one clear example of biting at own hand or arm, pulling own hair, slapping own face, or banging own head). 2 = More than one clear example of self-injury, such as head banging, face slapping, hair pulling, or self-biting.
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|
| Query
|
ados_sar_usipm |
Integer |
|
Recommended |
Unusual Sensory Interest in Play Material Person |
|
Nulled value range of: 0;1;2 to accept outlier data. 0 = No sniffing, repetitive touching, feeling of texture, licking or biting (not mouthing), interest in the repetition of or unusually strong reactions to certain sounds, or unusual or prolonged visual examination. 1 = Occasional unusual sensory interests or responses, OR not as clear as specified below for a rating of 2. 2 = Definite interest in nonfunctional elements of play materials, OR sensory examination of himself/herself or others on more than one occasion, OR persistent unusual sensory response to several materials or events.
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|
|
|
ados_version |
String |
35
|
Recommended |
ADOS Version |
|
|
|
