NIMH Data Archive - Data Dictionary: Data Structure

CSBS DP Caregiver Questionnaire

0 Shared Subjects

Description CSBS DP Caregiver Questionnaire. Provided by Dr. A.Thurm

Data type Clinical Assessments

Categories

Questionnaire

Date created 12/22/2011

Short name csbs_dp01

Most Recent Update 12/22/2011
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Version 01

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Definition

Submission Template

Query	Element Name	Data Type	Size	Required	Condition	Description	Value Range	Notes	Aliases
	subjectkey	GUID		Required		The NDAR Global Unique Identifier (GUID) for research subject	NDAR*
	src_subject_id	String	20	Required		Subject ID how it's defined in lab/project
	interview_date	Date		Required		Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
	interview_age	Integer		Required		Age in months at the time of the interview/test/sampling/imaging.	0 :: 1260	Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
	sex	String	20	Required		Sex of subject at birth	M;F; O; NR	M = Male; F = Female; O=Other; NR = Not reported	gender
Query	birth_premature	String	20	Recommended		Was birth premature?	Yes; No
Query	premature_weeks	Integer		Conditional	birth_premature == 'Yes'	Weeks premature		0 = Full term
Query	respond_detail	Integer		Recommended		Respondent detail	1::8;999	1 = Mother; 2 = Father; 3 = Other relative or custodial adult; 4 = Teacher or caregiver; 5 = Other specialist; 6 = Other; 7 = Child; 8= Spouse; 999 = Not available
Query	emotion_eyegaze_q2	String	50	Recommended		When your child is playing with a toy, does he/she look at you and then back at the toy?	Not yet; Sometimes; Often
Query	emotion_eyegaze_q3	String	50	Recommended		If you look at and point to a toy out of your child's reach, does your child look at the toy?	Not yet; Sometimes; Often
Query	emotion_eyegaze_q1	String	50	Recommended		When your child is happy, does he/she smile or laugh and look at you at the same time?	Not yet; Sometimes; Often
Query	emotion_eyegaze_q4	String	50	Recommended		When your child is upset or frustrated, does he/she express this clearly with facial expression, sounds, or words?	Not yet; Sometimes; Often
Query	emotion_eyegaze_q5	String	50	Recommended		How often does your child get upset or frustrated each day?	Not yet; Sometimes; Often
Query	emotion_eyegaze_q6	String	50	Recommended		When your child is upset, does he/she calm down easily (within a few minutes)?	Not yet; Sometimes; Often
Query	emotion_eyegaze_q7	String	50	Recommended		When you are with your child, is your child comfortable interacting with unfamiliar people or new situations?	Not yet; Sometimes; Often
Query	emotion_eyegaze_q8	String	50	Recommended		When your child is afraid, does he/she seek comfort from you?	Not yet; Sometimes; Often
Query	communicat_q9	String	50	Recommended		Does your child clearly let you know when he/she needs help (for example, wants you to open a container)?	Not yet; Sometimes; Often
Query	communicat_q10	String	50	Recommended		Does your child clearly let you know when he/she wants an object that is out of reach?	Not yet; Sometimes; Often
Query	communicat_q11	String	50	Recommended		Does your child let you know that he/she does not want something that you are offering him/her?	Not yet; Sometimes; Often
Query	communicat_q12	String	50	Recommended		Does your child greet you when you come in the room or leave?	Not yet; Sometimes; Often
Query	communicat_q13	String	50	Recommended		Does your child reach out to give you a hug or kiss?	Not yet; Sometimes; Often
Query	communicat_q14	String	50	Recommended		Does your child try to get your attention when you are busy doing something, such as when you are talking with an adult or preparing a meal?	Not yet; Sometimes; Often
Query	communicat_q15	String	50	Recommended		If your child does something that is funny and you laugh, does your child do it again for the attention?	Not yet; Sometimes; Often
Query	communicat_q16	String	50	Recommended		Does your child try to get you to notice interesting objects, not to get you to do anything with them, but just to get you to look at them (for example, show you an object or point to a picture in a book)?	Not yet; Sometimes; Often
Query	communicat_q17	String	50	Recommended		Does your child try to draw your attention to exciting or unexpected things, such as a pop-up toy or something falling down?	Not yet; Sometimes; Often
Query	communicat_q18	String	50	Recommended		If you can't figure out what your child is trying to communicate, does your child try again or use a different way to get his/her meaning across?	Not yet; Sometimes; Often
Query	gestures_q19	String	50	Recommended		Does your child use gestures that are easily understood by others, such as giving objects, showing objects, pointing, and waving?	Not yet; Sometimes; Often
Query	gestures_q20a	String	50	Recommended		Which of the following gestures have you seen your child use? give an object to you	Yes; No
Query	gestures_q20b	String	50	Recommended		Which of the following gestures have you seen your child use? show an object to you {i.e., by extending arm but not releasing object)	Yes; No
Query	gestures_q20c	String	50	Recommended		Which of the following gestures have you seen your child use? push an object away	Yes; No
Query	gestures_q20d	String	50	Recommended		Which of the following gestures have you seen your child use? raise arms to be picked up	Yes; No
Query	gestures_q20e	String	50	Recommended		Which of the following gestures have you seen your child use? reach with an open hand toward an object	Yes; No
Query	gestures_q20f	String	50	Recommended		Which of the following gestures have you seen your child use? wave "hi" or "bye bye	Yes; No
Query	gestures_q20g	String	50	Recommended		Which of the following gestures have you seen your child use? point to an object or a picture that is within reach	Yes; No
Query	gestures_q20h	String	50	Recommended		Which of the following gestures have you seen your child use? point to an object or a picture out of reach	Yes; No
Query	gestures_q20i	String	50	Recommended		Which of the following gestures have you seen your child use? shake head to indicate "no	Yes; No
Query	gestures_q20k	String	50	Recommended		Which of the following gestures have you seen your child use? nod head to indicate "yes	Yes; No
Query	sounds_q21	String	50	Recommended		Does your child use sounds to communicate both pleasure and discomfort?	Not yet; Sometimes; Often
Query	sounds_q22	String	50	Recommended		Children use sounds to communicate in vocal play before they use sounds in words. Does your child use a variety of different consonant sounds, such as ba, ga ta and da either in vocal play or in words?	Not yet; Sometimes; Often
	sounds_q23	String	425	Conditional	sounds_q22 != 'Not yet'	If so, which of the following sounds have you heard your child use, either in vocal play or in words?		/m/ as in "mamamama" or "mama" or "moo"; /n/ as in "nununu" or "no no"; /b/ as in "babababa" or "bibo" or "boo" or "bye bye"; /d/ as in "dodododo" or "daddy"; /g/ as in "googoo" or "gone gone"; /w/ as in "woowoo" or "weewee" or "wagon"; /I/ as in "lalala" or "balloon" or "little"; /y/ as in "yayaya" or "yum yum" or "you"; /s/as in "sasasa" or "sock" or "kiss"; /sh/ as in "shashasha" or "hush" or "shoe
Query	sounds_q24	String	50	Recommended		Does your child put sounds together, either in vocal play or words (for example, "baba", "mamama", "dada","bye bye")?	Not yet; Sometimes; Often
Query	words_q25	String	50	Recommended		Does your child use words to communicate that are understandable to you?	Not yet; Sometimes; Often
	words_q26	String	350	Conditional	words_q25 != 'Not yet'	If so, which of the following words have you heard your child use (include approximations that you recognize, such as "nana" for banana or "baba" for bottle)?		mommy; daddy; baby; dog; kitty; bird; duck; eye; nose; moo; woof; grr (animal noise); peekaboo; bye bye; no; hi; all gone; uhoh; night night; outside; yum yum; vroom; ouch; up; bottle; banana; ball; bath; book; car; cookie; juice; sock; keys; balloon; truck
Query	words_q27	String	50	Recommended		Does your child use words that are understandable to unfamiliar adults?	Not yet; Sometimes; Often
Query	words_q28	String	50	Recommended		Does your child put two or more words together (for example, more cookie, daddy car, bye bye kitty)?	Not yet; Sometimes; Often
Query	understanding_q29	String	50	Recommended		Does your child respond when you call his/her name (for example, by looking/turning head)?	Not yet; Sometimes; Often
Query	understanding_q30	String	50	Recommended		Does your child respond appropriately to gestures (for example, giving you an object when you say "give it to me" while holding out your hand or while pointing to the object)?	Not yet; Sometimes; Often
Query	understanding_q31	String	50	Recommended		Does your child understand words or short phrases when you use only words and do not use gestures?	Not yet; Sometimes; Often
	understanding_q32	String	350	Conditional	understanding_q31 != 'Not yet'	If so, which of the following words does your child understand without gestures (i.e., if you say the word, your child will find the object or carry out the action)?		mommy; daddy; child's name; baby; kitty; dog; bird; nose; eyes; tummy; foot; hair; peekaboo; bye bye; no; hi; all gone; uh oh; night night; outside; eat; drink; hug; bite; bottle; bath; ball; book; diaper; car; juice; shoe; cup; keys; ballon; trucks
Query	object_use_q33	String	50	Recommended		Does your child show interest in playing with a variety of objects?	Not yet; Sometimes; Often
Query	object_use_q34	String	50	Recommended		Does your child use a variety of common objects appropriately (for example, comb, spoon, toothbrush)?	Not yet; Sometimes; Often
Query	object_use_q35a	String	50	Conditional	object_use_q34 != 'Not yet'	If so, which of the following actions have you seen your child do with objects? drink with a cup or bottle	Yes; No
Query	object_use_q35b	String	50	Conditional	object_use_q34 != 'Not yet'	If so, which of the following actions have you seen your child do with objects? comb or brush hair	Yes; No
Query	object_use_q35c	String	50	Conditional	object_use_q34 != 'Not yet'	If so, which of the following actions have you seen your child do with objects? feed self with a spoon	Yes; No
Query	object_use_q35d	String	50	Conditional	object_use_q34 != 'Not yet'	If so, which of the following actions have you seen your child do with objects? stir with a spoon	Yes; No
Query	object_use_q35e	String	50	Conditional	object_use_q34 != 'Not yet'	If so, which of the following actions have you seen your child do with objects? pour with cup or bowl	Yes; No
Query	object_use_q35f	String	50	Conditional	object_use_q34 != 'Not yet'	If so, which of the following actions have you seen your child do with objects? brush teeth	Yes; No
Query	object_use_q35g	String	50	Conditional	object_use_q34 != 'Not yet'	If so, which of the following actions have you seen your child do with objects? wash or wipe face with cloth	Yes; No
Query	object_use_q35h	String	50	Conditional	object_use_q34 != 'Not yet'	If so, which of the following actions have you seen your child do with objects? roll or throw a ball	Yes; No
Query	object_use_q35i	String	50	Conditional	object_use_q34 != 'Not yet'	If so, which of the following actions have you seen your child do with objects? push a toy vehicle	Yes; No
Query	object_use_q35k	String	50	Conditional	object_use_q34 != 'Not yet'	If so, which of the following actions have you seen your child do with objects? put toy telephone to ear	Yes; No
Query	object_use_q36	String	50	Recommended		Does your child pretend to play with toys (for example, feed a stuffed animal, put a baby doll to sleep, put an animal figure in a vehicle)?	Not yet; Sometimes; Often
Query	object_use_q37a	String	50	Conditional	object_use_q36 != 'Not yet'	If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? feed with a spoon	Yes; No
Query	object_use_q37b	String	50	Conditional	object_use_q36 != 'Not yet'	If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? drink with a cup or bottle	Yes; No
Query	object_use_q37c	String	50	Conditional	object_use_q36 != 'Not yet'	If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? comb or brush hair	Yes; No
Query	object_use_q37d	String	50	Conditional	object_use_q36 != 'Not yet'	If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? cover with blanket	Yes; No
Query	object_use_q37e	String	50	Conditional	object_use_q36 != 'Not yet'	If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? wash or wipe face with cloth	Yes; No
Query	object_use_q37f	String	50	Conditional	object_use_q36 != 'Not yet'	If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? brush teeth with toothbrush	Yes; No
Query	object_use_q37g	String	50	Conditional	object_use_q36 != 'Not yet'	If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? put on diaper	Yes; No
Query	object_use_q37h	String	50	Conditional	object_use_q36 != 'Not yet'	If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? hug or kiss	Yes; No
Query	object_use_q38	String	50	Recommended		Does your child pretend by putting two or more actions together in a sequence, such as stirring food and feeding doll or washing doll's face and covering doll with a blanket?	Not yet; Sometimes; Often
Query	object_use_q39	String	50	Recommended		Does your child build or arrange toy objects (for example, build a tower of blocks, stack rings, put puzzle pieces together)?	Not yet; Sometimes; Often
Query	object_use_q40a	String	50	Recommended		Which of these actions have you seen your child do? take blocks out of container	Yes; No
Query	object_use_q40b	String	50	Recommended		Which of these actions have you seen your child do? put blocks in container	Yes; No
Query	object_use_q40c	String	50	Recommended		Which of these actions have you seen your child do? build a tower of blocks	Yes; No
Query	object_use_q40d	String	50	Recommended		Which of these actions have you seen your child do? put puzzle pieces together	Yes; No
Query	object_use_q40e	String	50	Recommended		Which of these actions have you seen your child do? stack rings on ring stacker without regard for order	Yes; No
Query	object_use_q40f	String	50	Recommended		Which of these actions have you seen your child do? put rings on ring stacker in order	Yes; No
Query	object_use_q40g	String	50	Recommended		Which of these actions have you seen your child do? hold crayon or marker and scribble on paper	Yes; No
Query	object_use_q40h	String	50	Recommended		Which of these actions have you seen your child do? draw shapes or patterns on paper	Yes; No
Query	object_use_q40i	String	50	Recommended		Which of these actions have you seen your child do? squeeze and bang playdough	Yes; No
Query	object_use_q40k	String	50	Recommended		Which of these actions have you seen your child do? make shapes with playdough, such as hot dogs or pancakes	Yes; No
Query	object_use_q41a	String	50	Recommended		Which of these actions have you seen your child do with books? turn pages	Yes; No
Query	object_use_q41b	String	50	Recommended		Which of these actions have you seen your child do with books? look at pictures	Yes; No
Query	object_use_q41c	String	50	Recommended		Which of these actions have you seen your child do with books? look at pictures and then look at you	Yes; No
Query	object_use_q41d	String	50	Recommended		Which of these actions have you seen your child do with books? point to pictures without being asked	Yes; No
Query	object_use_q41e	String	50	Recommended		Which of these actions have you seen your child do with books? point to pictures when asked	Yes; No
Query	object_use_q41g	String	50	Recommended		Which of these actions have you seen your child do with books? label pictures	Yes; No
	additional_q42	String	255	Recommended		How has your child's communication changed over the past few months?
	additional_q43	String	255	Recommended		List a few strengths or assets you observe in your child.
	additional_q44	String	255	Recommended		List any concerns you have about your child's development.
	additional_q45	String	255	Recommended		Is there anything else about your child that you think is important to share with us?

Data Structure

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