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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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CSBS DP Caregiver Questionnaire

64 Shared Subjects

CSBS DP Caregiver Questionnaire. Provided by Dr. A.Thurm
Clinical Assessments
Questionnaire
12/22/2011
csbs_dp01
12/22/2011
View Change History
01
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query birth_premature String 20 Recommended Was birth premature?
Yes; No
Query premature_weeks Integer Conditional birth_premature == 'Yes' Weeks premature 0 = Full term
Query respond_detail Integer Recommended Respondent detail 1::8;999 1 = Mother; 2 = Father; 3 = Other relative or custodial adult; 4 = Teacher or caregiver; 5 = Other specialist; 6 = Other; 7 = Child; 8= Spouse; 999 = Not available
Query emotion_eyegaze_q2 String 50 Recommended When your child is playing with a toy, does he/she look at you and then back at the toy? Not yet; Sometimes; Often
Query emotion_eyegaze_q3 String 50 Recommended If you look at and point to a toy out of your child's reach, does your child look at the toy? Not yet; Sometimes; Often
Query emotion_eyegaze_q1 String 50 Recommended When your child is happy, does he/she smile or laugh and look at you at the same time? Not yet; Sometimes; Often
Query emotion_eyegaze_q4 String 50 Recommended When your child is upset or frustrated, does he/she express this clearly with facial expression, sounds, or words? Not yet; Sometimes; Often
Query emotion_eyegaze_q5 String 50 Recommended How often does your child get upset or frustrated each day? Not yet; Sometimes; Often
Query emotion_eyegaze_q6 String 50 Recommended When your child is upset, does he/she calm down easily (within a few minutes)? Not yet; Sometimes; Often
Query emotion_eyegaze_q7 String 50 Recommended When you are with your child, is your child comfortable interacting with unfamiliar people or new situations? Not yet; Sometimes; Often
Query emotion_eyegaze_q8 String 50 Recommended When your child is afraid, does he/she seek comfort from you? Not yet; Sometimes; Often
Query communicat_q9 String 50 Recommended Does your child clearly let you know when he/she needs help (for example, wants you to open a container)? Not yet; Sometimes; Often
Query communicat_q10 String 50 Recommended Does your child clearly let you know when he/she wants an object that is out of reach? Not yet; Sometimes; Often
Query communicat_q11 String 50 Recommended Does your child let you know that he/she does not want something that you are offering him/her? Not yet; Sometimes; Often
Query communicat_q12 String 50 Recommended Does your child greet you when you come in the room or leave? Not yet; Sometimes; Often
Query communicat_q13 String 50 Recommended Does your child reach out to give you a hug or kiss? Not yet; Sometimes; Often
Query communicat_q14 String 50 Recommended Does your child try to get your attention when you are busy doing something, such as when you are talking with an adult or preparing a meal? Not yet; Sometimes; Often
Query communicat_q15 String 50 Recommended If your child does something that is funny and you laugh, does your child do it again for the attention? Not yet; Sometimes; Often
Query communicat_q16 String 50 Recommended Does your child try to get you to notice interesting objects, not to get you to do anything with them, but just to get you to look at them (for example, show you an object or point to a picture in a book)? Not yet; Sometimes; Often
Query communicat_q17 String 50 Recommended Does your child try to draw your attention to exciting or unexpected things, such as a pop-up toy or something falling down? Not yet; Sometimes; Often
Query communicat_q18 String 50 Recommended If you can't figure out what your child is trying to communicate, does your child try again or use a different way to get his/her meaning across? Not yet; Sometimes; Often
Query gestures_q19 String 50 Recommended Does your child use gestures that are easily understood by others, such as giving objects, showing objects, pointing, and waving? Not yet; Sometimes; Often
Query gestures_q20a String 50 Recommended Which of the following gestures have you seen your child use? give an object to you
Yes; No
Query gestures_q20b String 50 Recommended Which of the following gestures have you seen your child use? show an object to you {i.e., by extending arm but not releasing object) Yes; No
Query gestures_q20c String 50 Recommended Which of the following gestures have you seen your child use? push an object away
Yes; No
Query gestures_q20d String 50 Recommended Which of the following gestures have you seen your child use? raise arms to be picked up
Yes; No
Query gestures_q20e String 50 Recommended Which of the following gestures have you seen your child use? reach with an open hand toward an object Yes; No
Query gestures_q20f String 50 Recommended Which of the following gestures have you seen your child use? wave "hi" or "bye bye
Yes; No
Query gestures_q20g String 50 Recommended Which of the following gestures have you seen your child use? point to an object or a picture that is within reach
Yes; No
Query gestures_q20h String 50 Recommended Which of the following gestures have you seen your child use? point to an object or a picture out of reach Yes; No
Query gestures_q20i String 50 Recommended Which of the following gestures have you seen your child use? shake head to indicate "no
Yes; No
Query gestures_q20k String 50 Recommended Which of the following gestures have you seen your child use? nod head to indicate "yes
Yes; No
Query sounds_q21 String 50 Recommended Does your child use sounds to communicate both pleasure and discomfort? Not yet; Sometimes; Often
Query sounds_q22 String 50 Recommended Children use sounds to communicate in vocal play before they use sounds in words. Does your child use a variety of different consonant sounds, such as ba, ga ta and da either in vocal play or in words? Not yet; Sometimes; Often
sounds_q23 String 425 Conditional sounds_q22 != 'Not yet' If so, which of the following sounds have you heard your child use, either in vocal play or in words? /m/ as in "mamamama" or "mama" or "moo"; /n/ as in "nununu" or "no no"; /b/ as in "babababa" or "bibo" or "boo" or "bye bye"; /d/ as in "dodododo" or "daddy"; /g/ as in "googoo" or "gone gone"; /w/ as in "woowoo" or "weewee" or "wagon"; /I/ as in "lalala" or "balloon" or "little"; /y/ as in "yayaya" or "yum yum" or "you"; /s/as in "sasasa" or "sock" or "kiss"; /sh/ as in "shashasha" or "hush" or "shoe
Query sounds_q24 String 50 Recommended Does your child put sounds together, either in vocal play or words (for example, "baba", "mamama", "dada","bye bye")? Not yet; Sometimes; Often
Query words_q25 String 50 Recommended Does your child use words to communicate that are understandable to you? Not yet; Sometimes; Often
words_q26 String 350 Conditional words_q25 != 'Not yet' If so, which of the following words have you heard your child use (include approximations that you recognize, such as "nana" for banana or "baba" for bottle)? mommy; daddy; baby; dog; kitty; bird; duck; eye; nose; moo; woof; grr (animal noise); peekaboo; bye bye; no; hi; all gone; uhoh; night night; outside; yum yum; vroom; ouch; up; bottle; banana; ball; bath; book; car; cookie; juice; sock; keys; balloon; truck
Query words_q27 String 50 Recommended Does your child use words that are understandable to unfamiliar adults? Not yet; Sometimes; Often
Query words_q28 String 50 Recommended Does your child put two or more words together (for example, more cookie, daddy car, bye bye kitty)? Not yet; Sometimes; Often
Query understanding_q29 String 50 Recommended Does your child respond when you call his/her name (for example, by looking/turning head)? Not yet; Sometimes; Often
Query understanding_q30 String 50 Recommended Does your child respond appropriately to gestures (for example, giving you an object when you say "give it to me" while holding out your hand or while pointing to the object)? Not yet; Sometimes; Often
Query understanding_q31 String 50 Recommended Does your child understand words or short phrases when you use only words and do not use gestures? Not yet; Sometimes; Often
understanding_q32 String 350 Conditional understanding_q31 != 'Not yet' If so, which of the following words does your child understand without gestures (i.e., if you say the word, your child will find the object or carry out the action)? mommy; daddy; child's name; baby; kitty; dog; bird; nose; eyes; tummy; foot; hair; peekaboo; bye bye; no; hi; all gone; uh oh; night night; outside; eat; drink; hug; bite; bottle; bath; ball; book; diaper; car; juice; shoe; cup; keys; ballon; trucks
Query object_use_q33 String 50 Recommended Does your child show interest in playing with a variety of objects? Not yet; Sometimes; Often
Query object_use_q34 String 50 Recommended Does your child use a variety of common objects appropriately (for example, comb, spoon, toothbrush)? Not yet; Sometimes; Often
Query object_use_q35a String 50 Conditional object_use_q34 != 'Not yet' If so, which of the following actions have you seen your child do with objects? drink with a cup or bottle
Yes; No
Query object_use_q35b String 50 Conditional object_use_q34 != 'Not yet' If so, which of the following actions have you seen your child do with objects? comb or brush hair
Yes; No
Query object_use_q35c String 50 Conditional object_use_q34 != 'Not yet' If so, which of the following actions have you seen your child do with objects? feed self with a spoon
Yes; No
Query object_use_q35d String 50 Conditional object_use_q34 != 'Not yet' If so, which of the following actions have you seen your child do with objects? stir with a spoon
Yes; No
Query object_use_q35e String 50 Conditional object_use_q34 != 'Not yet' If so, which of the following actions have you seen your child do with objects? pour with cup or bowl
Yes; No
Query object_use_q35f String 50 Conditional object_use_q34 != 'Not yet' If so, which of the following actions have you seen your child do with objects? brush teeth
Yes; No
Query object_use_q35g String 50 Conditional object_use_q34 != 'Not yet' If so, which of the following actions have you seen your child do with objects? wash or wipe face with cloth
Yes; No
Query object_use_q35h String 50 Conditional object_use_q34 != 'Not yet' If so, which of the following actions have you seen your child do with objects? roll or throw a ball
Yes; No
Query object_use_q35i String 50 Conditional object_use_q34 != 'Not yet' If so, which of the following actions have you seen your child do with objects? push a toy vehicle
Yes; No
Query object_use_q35k String 50 Conditional object_use_q34 != 'Not yet' If so, which of the following actions have you seen your child do with objects? put toy telephone to ear
Yes; No
Query object_use_q36 String 50 Recommended Does your child pretend to play with toys (for example, feed a stuffed animal, put a baby doll to sleep, put an animal figure in a vehicle)? Not yet; Sometimes; Often
Query object_use_q37a String 50 Conditional object_use_q36 != 'Not yet' If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? feed with a spoon
Yes; No
Query object_use_q37b String 50 Conditional object_use_q36 != 'Not yet' If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? drink with a cup or bottle
Yes; No
Query object_use_q37c String 50 Conditional object_use_q36 != 'Not yet' If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? comb or brush hair
Yes; No
Query object_use_q37d String 50 Conditional object_use_q36 != 'Not yet' If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? cover with blanket
Yes; No
Query object_use_q37e String 50 Conditional object_use_q36 != 'Not yet' If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? wash or wipe face with cloth
Yes; No
Query object_use_q37f String 50 Conditional object_use_q36 != 'Not yet' If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? brush teeth with toothbrush
Yes; No
Query object_use_q37g String 50 Conditional object_use_q36 != 'Not yet' If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? put on diaper
Yes; No
Query object_use_q37h String 50 Conditional object_use_q36 != 'Not yet' If so, which of the following actions have you seen your child do when playing with another person, a stuffed animal, or a doll? hug or kiss
Yes; No
Query object_use_q38 String 50 Recommended Does your child pretend by putting two or more actions together in a sequence, such as stirring food and feeding doll or washing doll's face and covering doll with a blanket? Not yet; Sometimes; Often
Query object_use_q39 String 50 Recommended Does your child build or arrange toy objects (for example, build a tower of blocks, stack rings, put puzzle pieces together)? Not yet; Sometimes; Often
Query object_use_q40a String 50 Recommended Which of these actions have you seen your child do? take blocks out of container
Yes; No
Query object_use_q40b String 50 Recommended Which of these actions have you seen your child do? put blocks in container
Yes; No
Query object_use_q40c String 50 Recommended Which of these actions have you seen your child do? build a tower of blocks
Yes; No
Query object_use_q40d String 50 Recommended Which of these actions have you seen your child do? put puzzle pieces together
Yes; No
Query object_use_q40e String 50 Recommended Which of these actions have you seen your child do? stack rings on ring stacker without regard for order
Yes; No
Query object_use_q40f String 50 Recommended Which of these actions have you seen your child do? put rings on ring stacker in order
Yes; No
Query object_use_q40g String 50 Recommended Which of these actions have you seen your child do? hold crayon or marker and scribble on paper
Yes; No
Query object_use_q40h String 50 Recommended Which of these actions have you seen your child do? draw shapes or patterns on paper
Yes; No
Query object_use_q40i String 50 Recommended Which of these actions have you seen your child do? squeeze and bang playdough
Yes; No
Query object_use_q40k String 50 Recommended Which of these actions have you seen your child do? make shapes with playdough, such as hot dogs or pancakes
Yes; No
Query object_use_q41a String 50 Recommended Which of these actions have you seen your child do with books? turn pages
Yes; No
Query object_use_q41b String 50 Recommended Which of these actions have you seen your child do with books? look at pictures
Yes; No
Query object_use_q41c String 50 Recommended Which of these actions have you seen your child do with books? look at pictures and then look at you
Yes; No
Query object_use_q41d String 50 Recommended Which of these actions have you seen your child do with books? point to pictures without being asked
Yes; No
Query object_use_q41e String 50 Recommended Which of these actions have you seen your child do with books? point to pictures when asked
Yes; No
Query object_use_q41g String 50 Recommended Which of these actions have you seen your child do with books? label pictures
Yes; No
additional_q42 String 255 Recommended How has your child's communication changed over the past few months?
additional_q43 String 255 Recommended List a few strengths or assets you observe in your child.
additional_q44 String 255 Recommended List any concerns you have about your child's development.
additional_q45 String 255 Recommended Is there anything else about your child that you think is important to share with us?
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.