NDA Help Center

Login Dialog

Frequently Asked Questions

Glossary

NDA Help Center

Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

Loading...

Login
Reset Password

NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
Filter Cart
No filters selected
Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
Switch User

Caregiver Strain Questionnaire

1,593 Shared Subjects

Caregiver Strain Questionnaire
Clinical Assessments
Questionnaire
05/09/2013
csq01
11/19/2018
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project case_id, patid, record_id
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age_a, bslage
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field pp_date
sex String 20 Required Sex of the subject
M;F
M = Male; F = Female gender, sex_a
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
Query csq_1 Integer Recommended How much of a problem were the following: Interruption of personal time resulting from your child's illness 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas2, cgsq_q1, csqinter, fmbd_q1a1
Query csq_2 Integer Recommended How much of a problem were the following: Your missing work or neglecting other duties because of child's illness 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas3, cgsq_q2, csqwork, fmbd_q1a2
Query csq_3 Integer Recommended How much of a problem were the following: Disruption of family routines due to your child's illness 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas4, cgsq_q3, csqdisrup, fmbd_q1a3
Query csq_4 Integer Recommended How much of a problem were the following: Any family member having to do without things because of your child's illness 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas5, cgsq_q4, csqprob, fmbd_q1a4
Query csq_5 Integer Recommended How much of a problem were the following: Any family member suffering negative mental or physical health effects as a result of your child's illness 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas6, cgsq_q5, csqhlth, fmbd_q1a5
Query csq_6 Integer Recommended How much of a problem were the following: Your child getting into trouble with the neighbors, community or law enforcement? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas7, cgsq_q6, csqtrbl, fmbd_q1a6
Query csq_7 Integer Recommended How much of a problem were the following: Financial strain for your family as a result of your child's illness 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas8, cgsq_q7, csqfinan, fmbd_q1a7
Query csq_8 Integer Recommended How much of a problem were the following: Less attention paid to any family member because of the attention given to your child 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas9, cgsq_q8, csqatten, fmbd_q1a8
Query csq_9 Integer Recommended How much of a problem were the following: Disruption or upset relationships within your family due to your child's illness 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas10, cgsq_q9, csqrelat, fmbd_q1a9
Query csq_10 Integer Recommended How much of a problem were the following: Disruption of your family's social activities resulting from your child's illness 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas11, cgsq_q10, csqsocial, fmbd_q1a10
Query csq_11 Integer Recommended How you felt about life in your household: How socially isolated did you feel as a result of your child's illness? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas12, cgsq_q11, csqisolated, fmbd_q2a1
Query csq_12 Integer Recommended How you felt about life in your household: How sad or unhappy did you feel as a result of your child's illness? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas13, cgsq_q12, csqsad, fmbd_q2a2
Query csq_13 Integer Recommended How you felt about life in your household: How embarrassed did you feel about your child's illness? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas14, cgsq_q13, csqembar, fmbd_q2a3
Query csq_14 Integer Recommended how you felt about life in your household: How well did you relate to your child? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas15, cgsq_q14, csqwell, fmbd_q2a4
Query csq_15 Integer Recommended How you felt about life in your household: How angry did you feel toward your child? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas16, cgsq_q15, csqangry, fmbd_q2a5
Query csq_16 Integer Recommended How you felt about life in your household: How worried did you feel about your child's future? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas17, cgsq_q16, csqchild, fmbd_q2a6
Query csq_17 Integer Recommended How you felt about life in your household: How worried did you feel about your family's future? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas18, cgsq_q17, csqfamily, fmbd_q2a7
Query csq_18 Integer Recommended How you felt about life in your household: How guilty did you feel about your child's illness? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas19, cgsq_q18, csqguilty, fmbd_q2a8
Query csq_19 Integer Recommended How you felt about life in your household: How resentful did you feel toward your child? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas20, cgsq_q19, csqresent, fmbd_q2a9
Query csq_20 Integer Recommended How you felt about life in your household: How tired or strained did you feel as a result of your child's illness? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas21, cgsq_q20, csqfatigue, fmbd_q2a10
Query csq_21 Integer Recommended How you felt about life in your household: In general, how much of a toll has your child's illness been on your family? 1::5; -7; -8; -9; 999 1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing bas22, cgsq_q21, csqtoll, fmbd_q2a11
Query site String 101 Recommended Site Study Site fmbd_site_x, site_no
Query trt_grp String 10 Recommended Treatment Group Assignment 1;1AO;1CT;2;3 1=Group 1 first 8 weeks; 1AO=Group 1 8 week add on; 1CT=Group 1 8 week cross taper; 2=Group 2; 3=Group 3
Query days_baseline Integer Recommended Days since baseline bsldays
Query etype String 10 Recommended Rating Period BSL;WK1;WK2;WK3;WK4;WK5;WK6;WK7;WK8;WK9;WK10;WK11;WK12;WK13;WK14;WK15;WK16 BSL=Baseline; WK1-WK16=Weeks 1-16
respond_detail_oth_spec String 255 Recommended Respondent details informnt, nfobas
Query relationship Integer Recommended Relationship of respondent to individual
1::93;-999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); 90=Other; -999=Missing; 89 = Biological parent; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent infrmnt2, nfbas
Query basn Integer Recommended Number of Items 2 22 Completed
Query bassum Integer Recommended Sum Total of Items 2 22
Query bastot Integer Recommended CSQ Total Score
Query respondent_other_specify String 50 Recommended Respondent: Other (specify) nfbas_d
Query visit String 50 Recommended Visit name fmbd_interval
Query visday Integer Recommended Number of days from study baseline to date of visit fmbd_visitdat_x
Query bas1 Integer Recommended Do you feel that your child's problems have affected your family life? 0;1 0=No; 1=Yes
Query imputation Integer Recommended Indicator noting imputed data set number 1::20
Query csq_1_cng Integer Recommended More or Less problem since entering treatment: Interruption of personal time resulting from your child's illness 1::3 1= Less; 2= No change; 3= More; fmbd_q1b1
Query csq_2_cng Integer Recommended More or Less problem since entering treatment: Your missing work or neglecting other duties because of child's illness 1::3 1= Less; 2= No change; 3= More; fmbd_q1b2
Query csq_3_cng Integer Recommended More or Less problem since entering treatment: Disruption of family routines due to your child's illness 1::3 1= Less; 2= No change; 3= More; fmbd_q1b3
Query csq_4_cng Integer Recommended More or Less problem since entering treatment: Any family member having to do without things because of your child's illness 1::3 1= Less; 2= No change; 3= More; fmbd_q1b4
Query csq_5_cng Integer Recommended More or Less problem since entering treatment: Any family member suffering negative mental or physical health effects as a result of your child's illness 1::3 1= Less; 2= No change; 3= More; fmbd_q1b5
Query csq_6_cng Integer Recommended More or Less problem since entering treatment: Your child getting into trouble with the neighbors, community or law enforcement? 1::3 1= Less; 2= No change; 3= More; fmbd_q1b6
Query csq_7_cng Integer Recommended More or Less problem since entering treatment: Financial strain for your family as a result of your child's illness 1::3 1= Less; 2= No change; 3= More; fmbd_q1b7
Query csq_8_cng Integer Recommended More or Less problem since entering treatment: Less attention paid to any family member because of the attention given to your child 1::3 1= Less; 2= No change; 3= More; fmbd_q1b8
Query csq_9_cng Integer Recommended More or Less problem since entering treatment: Disruption or upset relationships within your family due to your child's illness 1::3 1= Less; 2= No change; 3= More; fmbd_q1b9
Query csq_10_cng Integer Recommended More or Less problem since entering treatment: Disruption of your family's social activities resulting from your child's illness 1::3 1= Less; 2= No change; 3= More; fmbd_q1b10
Query csq_11_cng Integer Recommended More or Less problem since entering treatment: How socially isolated did you feel as a result of your child's illness? 1::3 1= Less; 2= No change; 3= More; fmbd_q2b1
Query csq_12_cng Integer Recommended More or Less problem since entering treatment: How sad or unhappy did you feel as a result of your child's illness? 1::3 1= Less; 2= No change; 3= More; fmbd_q2b2
Query csq_13_cng Integer Recommended More or Less problem since entering treatment: How embarrassed did you feel about your child's illness? 1::3 1= Less; 2= No change; 3= More; fmbd_q2b3
Query q34_15_cng Integer Recommended More or Less problem since entering treatment: Did you have any problems relating to your child? 1::3 1= Less; 2= No change; 3= More; fmbd_q2b4
Query csq_15_cng Integer Recommended More or Less problem since entering treatment: How angry did you feel toward your child? 1::3 1= Less; 2= No change; 3= More; fmbd_q2b5
Query csq_16_cng Integer Recommended More or Less problem since entering treatment: How worried did you feel about your child's future? 1::3 1= Less; 2= No change; 3= More; fmbd_q2b6
Query csq_17_cng Integer Recommended More or Less problem since entering treatment: How worried did you feel about your family's future? 1::3 1= Less; 2= No change; 3= More; fmbd_q2b7
Query csq_18_cng Integer Recommended More or Less problem since entering treatment: How guilty did you feel about your child's illness? 1::3 1= Less; 2= No change; 3= More; fmbd_q2b8
Query csq_19_cng Integer Recommended More or Less problem since entering treatment: How resentful did you feel toward your child? 1::3 1= Less; 2= No change; 3= More; fmbd_q2b9
Query csq_20_cng Integer Recommended More or Less problem since entering treatment: How tired or strained did you feel as a result of your child's illness? 1::3 1= Less; 2= No change; 3= More; fmbd_q2b10
Query csq_21_cng Integer Recommended More or Less problem since entering treatment: In general, how much of a toll has your child's illness been on your family? 1::3 1= Less; 2= No change; 3= More; fmbd_q2b11
Query completed Integer Recommended Checks if completed 0::3 0=No; 1=Yes; 2=Yes, lost; 3=Unverified fmbd_frmcomp
study String 100 Recommended Study fmbd_studyid
Query trtgroup String 2 Recommended Treatment Group N1;N2;R1;R2;R3 N1=Non-Responder Entering Fluvoxamine; N2=Non-Responder Entering Fluoxetine; R1=Maintenance; R2=Responder Entering Fluvoxamine; R3=Responder Entering Fluoxetine
Query week Float Recommended Week in level/study 99=week 10-week 14
Query daysrz Integer Recommended days since randomization
Query rand_num Integer Recommended Randomization Number 0::2
Query csq_od_sub Integer Recommended Objective Dimension Sub-Scale 0::105
Query csq_is_sub Integer Recommended Internalized Dimension Sub-Scale 0::105
Query csq_es_sub Integer Recommended Externalized Dimension Sub-Scale 0::105
Query visnum Float Recommended Numeric Visit Number -1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Query aescode Integer Recommended Staff code number of person completing this form pi_staff
version_form String 100 Recommended Form used/assessment name
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.