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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Consumer Satisfaction Survey

csqa

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectnewid, patid, pid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fieldclient_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender
asstypIntegerRecommendedAssessment type1::201=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
stageIntegerRecommendedStudy stage
0::5; 51::53; 67; -888; -999
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
bsit0FloatRecommendedWeeks from Time 0/baseline to assessmentcsqat0, csqpt0
dsmversString10Recommendedversion/name of assessment
csqa1IntegerRecommendedQuestion 1: The interest and concern that my doctor has shown for me/my child has been:1::71 = Poor 2 = Fair 3 = Slightly Below Average 4 = Average 5 = Slightly Above Average 6 = High 7 = Superiorcsqp1
csqa2IntegerRecommendedQuestion 2: Thinking about the quality of care, how well has your/your child doctor been in treating you/your child?1::71 = Poor 2 = Fair 3 = Slightly Below Average 4 = Average 5 = Slightly Above Average 6 = High 7 = Superiorcsqp2
csqa3IntegerRecommendedQuestion 3: How hard was it to do the questionnaires and interviews for the study?1::71 = Very Hard 2 = Hard 3 = A Little Hard 4 = Neutral 5 = Slightly Easy 6 = Easy 7 = Very Easycsqp3
csqa4IntegerRecommendedQuestion 4: How hard was it to do the tasks the therapist/doctor asked you to do?1::71 = Very Hard 2 = Hard 3 = A Little Hard 4 = Neutral 5 = Slightly Easy 6 = Easy 7 = Very Easycsqp4
csqp5IntegerRecommendedQuestion 5: The length or duration of the treatment program that my child received was:1::71 = Much Too Short 2 = Too Short 3 = Slightly Too Short 4 = Appropriate 5 = Slightly Too Long 6 = Too Long 7 = Much Too Long
csqa5aIntegerRecommendedQuestion 5a: Were the individual treatment sessions:1::71 = Much Too Short 2 = Too Short 3 = Slightly Too Short 4 = Appropriate 5 = Slightly Too Long 6 = Too Long 7 = Much Too Longcsqp7
csqa5bIntegerRecommendedQuestion 5b: Was the total length of the treatment you received:1::71 = Much Too Short 2 = Too Short 3 = Slightly Too Short 4 = Appropriate 5 = Slightly Too Long 6 = Too Long 7 = Much Too Longcsqp6
csqa6IntegerRecommendedQuestion 6: Do you think other patients who are depressed should get this treatment?1::71 = Definitely Not 2 = Probably Not 3 = Maybe Not 4 = Neutral 5 = Maybe 6 = Probably 7 = Definitelycsqp8
csqa7IntegerRecommendedQuestion 7: How happy are you with the treatment you/your child received?1::71 = Very Unhappy 2 = Unhappy 3 = Slightly Unhappy 4 = Neutral 5 = Slightly Happy 6 = Happy 7 = Very Happycsqp9
csqa8IntegerRecommendedQuestion 8: The problems that made me/my child want to start treatment are now:1::71 = Much Worse 2 = Worse 3 = Slightly Worse 4 = The Same 5 = A Little Better 6 = Better 7 = A Lot Bettercsqp10
csqa9IntegerRecommendedQuestion 9: How happy are you with how much treatment helped you/your child?1::71 = Very Unhappy 2 = Unhappy 3 = Slightly Unhappy 4 = Neutral 5 = Slightly Happy 6 = Happy 7 = Very Happycsqp11
csqa10IntegerRecommendedQuestion 10: Before starting treatment, the way I thought about my future/my child future was:1::71 = Very Negative 2 = Negative 3 = Slightly Negative 4 = Neutral 5 = Slightly Positive 6 = Positive 7 = Very Positivecsqp12
csqa11IntegerRecommendedQuestion 11: Now, the way I think about my future/my child future is:1::71 = Very Negative 2 = Negative 3 = Slightly Negative 4 = Neutral 5 = Slightly Positive 6 = Positive 7 = Very Positivecsqp13
visitString50RecommendedVisit nametimept
visdayIntegerRecommendedNumber of days from study baseline to date of visitcsdays, daypsq
truncvisIntegerRecommendedTruncated Visit NumberCreated variable: provides a numeric visit number for all visits, including unscheduled and end of phase
psq1IntegerRecommendedC: How would you rate the quality of care you have received? P: How would you rate the quality of care your child has received?1::41 = Poor; 2 = Fair; 3 = Good; 4 = Excellenteos_1
psq2IntegerRecommendedC: Did you get the kind of help you wanted? P: Did you get the kind of help you wanted for your child?1::41 = No, definitely not; 2 = No, not really; 3 = Yes, generally; 4 = Yes, definitely;eos_2
psq3IntegerRecommendedC: To what extent has the program met your needs? P: To what extent has the program met your child's needs?1::41 = None of my (child's) needs have been met; 2 = Only a few of my (child's) needs have been met; 3 = Most of my (child's) needs have been met; 4 = Almost all of my (child's) needs have been metcs1, eos_3
psq4IntegerRecommendedC: If a friend were in need of similar help, would you recommend the program to him her? P: If a friend's child were in need of similar help, would you recommend the program to him her?1::41 = No, definitely not; 2 = No, not really; 3 = Yes, generally; 4 = Yes, definitelyeos_4
psq5IntegerRecommendedC: How satisfied are you with the amount of help you have received? P: How satisfied are you with the amount of help your child has received?1::41 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfiedeos_5
psq6IntegerRecommendedC: Has the help you have received helped you to deal more effectively with your problems? P: Has the help your child received helped your child to deal more effectively with his her problems?1::41 = No, they seemed to make things worse; 2 = No, they really didn't help; 3 = Yes, they helped somewhat; 4 = Yes, they helped a great dealeos_6
psq7IntegerRecommendedC: In an overall, general sense, how satisfied are you with the help you have received? P: In an overall, general sense, how satisfied are you with the help your child has received?1::41 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfiedcs2, csq_2, eos_7
psq8IntegerRecommendedC: If you were to seek help again, would you come back to our program? P: If you were to seek help again for your child, would you come back to our program?1::41 = No, definitely not; 2 = No, I don't think so; 3 = Yes, I think so; 4 = Yes, definitelycs3, eos_8
respondentString20RecommendedRespondent
Mother;Father;Both; Child; Other; Parent
respondent_otherString50RecommendedFIGS Y1: Respondent other than mother or father
respondent_other_specifyString50RecommendedRespondent: Other (specify)
siteString101RecommendedSiteStudy Site
meancsFloatRecommendedMean of Consumer Satisfaction
aescodeIntegerRecommendedStaff code number of person completing this formassigned_counselor, client_interviewer
icfwothsString250RecommendedReason ICF Withdrawn: Other textwithdraw_reason
i_groupString3RecommendedTreatment AssignmentCET; EST; TAU; SPITAU = Treatment As Usual; SPI = Suicide Prevention Interventioncondition
withdrawalIntegerRecommendedWithdrawal by participant post-randomization1::31 = stopped treatment but continued assessments & chart reviews ; 2 = stopped assessments but continued chart reviews ; 3 = stopped assessments and chart reviews
withdrawn_typeIntegerRecommendedHas the participant withdrawn post-randomization from assessments? Chart review? Treatment?1::31 = assessments; 2 = chart review; 3 = treatmentwithdrawn
spi_sessionIntegerRecommendedIf withdrawn from study: immediate treatment history1;21 = Received in-jail session; 2 = Received at least ONE post-release SPI session
withdrawn___1IntegerRecommendedHas the participant withdrawn post-randomization from: Assessments?0;10 = No; 1 = Yes
withdrawn___2IntegerRecommendedHas the participant withdrawn post-randomization from: Chart Review?0;10 = No; 1 = Yes
withdrawn___3IntegerRecommendedHas the participant withdrawn post-randomization from: Treatment?0;10 = No; 1 = Yes
satis1IntegerRecommendedPlease rate how helpful you think the FER Assistant is for you personally1::101 = Not at all helpful; 5 = Somewhat helpful; 10 = Very helpful
satis2IntegerRecommendedDid you learn anything during the intervention?0;10 = No; 1 = Yes
satis2_describeString200RecommendedIf you have learned from the intervention, then briefly describe
satis3IntegerRecommendedHow easy was it to interact with the FER Assistant?1::101 = Not easy/Very hard; 5 = A little easy; 10 = Very easy
satis4IntegerRecommendedHow fun or enjoyable was your experience with the FER Assistant?1::101 = Not at all fun; 5 = Somewhat fun; 10 = Very fun
satis5_helpfulString500RecommendedPlease write down anything that you found especially useful or helpful from the program
satis5_unhelpfulString500RecommendedPlease write down anything that you found especially unhelpful from the program
satis5_recommendString500RecommendedTo improve the FER Assistant, I would recommend [please let us know if there is anything we should change or do more/less of]
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datacsq_comments
dodeString10RecommendedDate of Data Entryclient_entered
csq01IntegerRecommendedTo what extent has the study therapist met your needs?1::41 = None of my needs have been met ; 2 = Some of my needs have been met ; 3 = Most of my needs have been met ; 4 = Almost all of my needs have been metcsq_1
csq03IntegerRecommendedIf you were to seek help again, would you come back to the study therapist you are currently seeing?1::41 = No, Definitely not ; 2 = No, I don't think so ; 3 = Yes, I think so ; 4 = Yes, Definitelycsq_3
intent_1IntegerRecommendedHow likely is it that you will attend the next assessment session?0::100=Not at all;1-3=Mildly;4-6=Moderately;7-9=Markedly;10=Extremely
csq04IntegerRecommendedIf a friend were in need of similar help, would you recommend your therapist to him or her?1::41 = No, definitely not; 2 = No, I don't think so; 3 = Yes, I think so; 4 = Yes, definitely
casq_1IntegerRecommendedThe MAIN problems that I wanted help with have improved. / Parent: The MAIN problems that I wanted my child treated for have improved1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_2IntegerRecommendedOTHER problems that I had before coming here for therapy have improved. / Parent: OTHER problems that my child had have improved1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_3IntegerRecommendedI am happy with what I have learned and my progress in therapy. / Parent: I am happy with my child's progress in treatment1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_4IntegerRecommendedMy treatment has improved other parts of my life (e.g. family relationships, my relationships with my friends, my own mood). / Parent: My child's treatment has improved other parts of my life (e.g., family relationships, my own mood)1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_5IntegerRecommendedI know what to do if my problems get worse or bother me again. / Parent: I know what to do if my child's problems get worse or come back again1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_6IntegerRecommendedMy therapist has explained what we are doing in counseling. / Parent: My child's therapist has explained Trauma Focused Cognitive Behavioral Therapy to me.1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_7IntegerRecommendedI understand how Trauma-Focused Cognitive Behavioral Therapy works. / Parent: I understand how Trauma Focused Cognitive Behavioral Therapy works1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_8IntegerRecommendedMy parents have been included in counseling. They talk with the therapist and have sessions with me. / Parent: I have felt included in my child's treatment.1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_9IntegerRecommendedMy therapist has listened to my thoughts, worries, and concerns. / Parent: My therapist has listened to my thoughts and concerns about my child.1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_10IntegerRecommendedMy therapist knows how to help me. / Parent: My child's therapist knows how to help my child.1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_11IntegerRecommendedIf a friend needed the same kind of help, I would tell them to come here. / Parent: I would recommend this treatment to a friend who had a child in the same situtation.1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_12IntegerRecommendedOverall, I am happy with the therapy I got here. / Parent: Overall, I am satisfied with my child's treatment1::51 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
casq_13String300RecommendedWhat were the MOST HELPFUL parts of your therapy? / Parent: What were the MOST HELPFUL parts of your child's treatment?
casq_14String100RecommendedWhat were the parts of counseling you liked the LEAST? / Parent: What were the LEAST HELPFUL parts of your child's treatment?
casq_15String300RecommendedHow could we make the counseling experience better? Please list your suggestions/thoughts: / Parent: Do you have any suggestions about improving this treatment? If so, please describe.
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: csqa01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.