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Frequently Asked Questions

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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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End of Treatment Debriefing Flow and Recommendations

433 Shared Subjects

N/A
Clinical Assessments
Exit Form
01/20/2015
debrief1401

View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
Query days_baseline Integer Recommended Days since baseline daydb14
Query assbdic String 5 Recommended Assessment Point D;14;E;24;LB;36;72;96;120; 9; B; 3; 7; 144; 168;192; C D=MTA baseline assessment; 14=MTA 14 month assessment; E=MTA early termination assessment; B = MTA Pre-Baseline Screening Assessment (579/579); 09 = MTA 9 Month Assessment (530/530); 24=MTA 24 month assessment; LB=LNCG baseline assessment; 36=MTA and LNCG 3 year assessment; 72=MTA and LNCG 6 year assessment; 96=MTA and LNCG 8 year assessment; 03 = MTA 3 Month Assessment (438/687);120=MTA and LNCG 10 year assessment; 7= 7th Grade Assessment (221/276); 144 = MTA & LNCG 12 Month Assessment (578/578); 168 = MTA & LNCG 14 Month Assessment (585/585); 192 = MTA & LNCG 16 Month Assessment (505/505); C = MTA Pre-Baseline Screening Assessment (78/78) assdb14
Query site String 101 Recommended Site Study Site sitenum
Query sjtyp Integer Recommended Subject type 1;2 1=MTA randomized trial subject; 2=Local normative comparison group (LNCG) subject
Query trtname String 10 Recommended Treatment group M;C;P; A; P; L M=Medication only; C=Combined medication and psychosocial; P=Psychosocial only; A = Assessment and Referral; L = LNCG (Local Normative Comparison Group)
Query eotcat Integer Recommended End of treatment category 1::3;99 1 = There has been improvement over time, and/or the child is now doing well generally (CGI's now no higher than 1 or 2); 2 = Child's progress and behavior has been "so-so," and some further improvement is needed (any most recent CGI of 3); or there is no clear pattern per se, but there have been some "ups and downs," suggesting child may benefit from some additional treatments; 3 = There has been some worsening or gradual deterioration over time, and/or the child is not doing well (defined as any most recent CGI of 4). More treatment is clearly needed, both clinically and ethically; 99 = No debriefing visit took place; no recommendations given
Query db1 Integer Recommended Local Attention Deficit/Hyperactivity Disorder Parent Group (e.g., ChADD., LDA) 1 1 = This service was selected as a recommendation for this child
Query db2 Integer Recommended Other Parent Support Group (e.g., AMI, MHA) 1 1 = This service was selected as a recommendation for this child
Query db3 Integer Recommended Parenting/Marriage Classes taught thru the community (church/synagogue, etc.) 1 1 = This service was selected as a recommendation for this child
Query db4 Integer Recommended Other Self-Help Groups, like AA or NA 1 1 = This service was selected as a recommendation for this child
Query db5 Integer Recommended Summer Treatment Program or Special Summer Camp for children with behavioral or attention problems 1 1 = This service was selected as a recommendation for this child
Query db6 Integer Recommended Weekend Treatment Program 1 1 = This service was selected as a recommendation for this child
Query db7 Integer Recommended Additional testing (specify purpose - pediatric, psychological, or educational) 1 1 = This service was selected as a recommendation for this child
Query db8 Integer Recommended Recreational and supportive activities for the child 1 1 = This service was selected as a recommendation for this child
Query db9 Integer Recommended Occupational/Physical Therapy 1 1 = This service was selected as a recommendation for this child
Query db10 Integer Recommended Parent Training (Group-based) 1 1 = This service was selected as a recommendation for this child
Query db11 Integer Recommended Parent Guidance or Training (Individual family-based) 1 1 = This service was selected as a recommendation for this child
Query db12 Integer Recommended Group Therapy or other Group Treatment for you/your spouse/the child 1 1 = This service was selected as a recommendation for this child
Query db13 Integer Recommended Individual Therapy/Counseling for you/your spouse/the child 1 1 = This service was selected as a recommendation for this child
Query db14 Integer Recommended Family Therapy 1 1 = This service was selected as a recommendation for this child
Query db15 Integer Recommended Special Teacher-Parent Meetings, School consultation, IEP/Special Educational Staffing meetings 1 1 = This service was selected as a recommendation for this child
Query db16 Integer Recommended 1-to-1 Tutoring (not done by the parent) 1 1 = This service was selected as a recommendation for this child
Query db17 Integer Recommended Speech and Language Therapy 1 1 = This service was selected as a recommendation for this child
Query db18 Integer Recommended Couples/Marital Therapy/Marriage Classes or Activities (e.g., Marriage Encounter) 1 1 = This service was selected as a recommendation for this child
Query db19 Integer Recommended Parent Training/Behavioral Therapy for any other child in the family 1 1 = This service was selected as a recommendation for this child
Query db20 Integer Recommended Psychiatric Hospitalization 1 1 = This service was selected as a recommendation for this child
Query db21 Integer Recommended Stimulant Medication Treatment 1 1 = This service was selected as a recommendation for this child
Query db22 Integer Recommended Other Medication Treatment 1 1 = This service was selected as a recommendation for this child
Query db23 Integer Recommended Other 1 1 = This service was selected as a recommendation for this child
Query dbnumrec Integer Recommended Number of recommendations given at debriefing
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.