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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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Demographics NeuroMAP

0 Shared Subjects

N/A
Clinical Assessments
Demographics
12/23/2019
demg01
07/08/2021
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
ethnicity String 30 Recommended Ethnicity of participant Hispanic or Latino; Not Hispanic or Latino; Unknown
race String 30 Recommended Race of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
dem_relationship Integer Recommended Current Relationship Status
1::7
7 = Living together as married
srdemo05 Integer Recommended People are different in their sexual attraction to other people. Which best describes your feelings?
1::6
1= Only attracted to males; 2= Mostly attracted to males; 3= Equally attracted to males and females; 4= Mostly attracted to females; 5= Only attracted to females; 6= Not sure
psych_p52 Integer Recommended Primary sexual orientation
1::13
1=Heterosexual; 2=Homosexual; 3=Bisexual; 4=Mostly heterosexual; 5=Mostly homosexual; 6=Pansexual; 7=Pansexual; 8=Asexual; 9=Other; 10=Demisexual; 11=Queer; 12=Unlabeled; 13=Not sure
demg_07 String 50 Recommended How long have you been in a romantic relationship with your current romantic partner? (Please include the years and months or say "NA" if not in a relationship)
live2 Integer Recommended Live with romantic partner 0;1 0=No; 1=Yes
cadri_currentlength Integer Recommended How long have you been in your current dating relationship? 1::7 1= One month or less; 2= 2-3 months; 3= 3-6 months; 4= 6-9 months; 5= 9-12 months; 6= 1-2 years; 7= More than 2 years
demg_10 Float Recommended Total number of marital relationships (married or lived as married):
employcur Integer Recommended current employment status 1::12;-7 1=Full time; 2=Part time for pay; 3=Homemaker; 4=Incarcerated; 5=Disabled; 6=Leave of absence; 7=Unemployed; 8=Retired; 9=Other; 10=Student; 11=Volunteer; -7=Refused; 12 = Maternity leave
everwrked Integer Recommended How many years of education have you completed? 1::9 1= Did not go to school; 2= Some Grade school (1-5 years); 3= Middle school (6-8 years); 4= Some high school (9-11 years); 5= High school diploma (12 years); 6= Associate Degree (14 years); 7= Bachelor's degree (16 years); 8= Master's degree (18 years); 9= Doctoral degree (JD, PhD, MD) (20 years)
house_income Integer Recommended Household income (based on last year) 1::21 1=Less than 5,000; 2=Between 5,000-9,999; 3= Between 10,000-14,999; 4 =Between 15,000-19,999; 5= Between 20,000-24,999; 6=Between 25,000-29,999; 7=Between 30,000-34,999; 8=Between 35,000-39,999; 9 =Between 40,000-44,999; 10 =Between 45,000-49,999; 11= Between 50,000-54,999; 12= Between 55,000-59,999; 13 =Between 60,000-64,999; 14= Between 65,000-69,999; 15= Between 70,000-74,999; 16 =Between 75,000-79,999; 17 =Between 80,000-84,999; 18 =Between 85,000-89,999; 19 =Between 90,000-94,999; 20 =Between 95,000-99,999; 21= More than 100,000
pincome Integer Recommended annual personal income 1::9;-7 1=less than $10,000; 2=$10,000-$19,999; 3=$20,000-$29,999; 4-$30,000-$39,999; 5=$40,000-$49,999; 6=$50,000-$74,999; 7=$75,000-$99,999; 8=$100,000-$149,999; 9=$150,000 or more; -7=Refused
demg_15 String 225 Recommended Who lives in your home (do not include yourself)? List (8 people max) First Name, Age, Gender, Relationship
demg_16 Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition. 1::16 1 = circulatory/vascular disorders: (e.g., phlebitis, blood disorder, anemia, hardening of arteries, stroke, aneurysm, poor circulation); 2 = breath/respiratory disorders: (e.g., lung or airway disease, asthma, bronchitis, emphysema, lung infections, collapsed lung, history of tuberculosis); 3 = heart disorders: (e.g., angina, irregular heartbeat, history of heart attack, organic heart disease, heart valves, murmur, pacemaker, heart surgery); 4 = cancer; 5 = hormone /endocrine disorders: (e.g., hormones, diabetes, thyroid, pituitary gland); 6 = musculoskeletal disorders: (e.g., muscle or bone disease, arthritis, chronic back pain, back injury); 7 = mental health/ behavioral disorders: (e.g., psychiatric or mental health problems such as depression, anxiety, substance abuse or dependence, ADD, ADHD, phobia, PTSD); 8 = neurological disorders: (any neurological disease, tremors/shakiness, seizures, spinal cord injury, head/spine surgery, history of head trauma, migraines, MS); 9 = digestive/gastrointestinal disorders: (e.g., stomach or intestinal disease, colostomy, persistent stomach/abdominal pain or heartburn, ulcers, irritable bowel syndrome); 10 = reproductive and sexual health disorders: (e.g., infertility, sexual dysfunction, sexually transmitted diseases); 11 = chronic infectious disorders: (e.g., HIV, hepatitis); 12 = urinary disorders: (e.g., disease of the urinary system, kidney stones); 13. vision or hearing disorders: (e.g., glaucoma, cataracts, tinnitis, hearing loss); 14. dental, mouth, nose, and ear disorders: (e.g., gum disease, gingivitis, chronic sinus or ear infections); 15 = skin, hair, and nail disorders: (e.g., psoriasis, eczema, alopecia, fungal infections, rosacea); 16 = other disorders: please specify
dem_56_b Integer Recommended Have you ever been treated for an emotional or psychological problem? 0;1 1=Yes; 0=No
tts_8 String 60 Recommended What type of Psychiatric Illness? (With reference to previous question):
su2a_11 Integer Recommended Drug or alcohol treatment program? 0;1 0= No; 1= Yes
figs_40 Integer Recommended (Was anyone) hospitalized for psychiatric problems, or for drug or alcohol problems 0;1;9 0=No; 1=Yes; 9=NK
demg_21 String 50 Recommended What was the reason for being admitted as a patient in a psychiatric hospital? How many times were you hospitalized?
demg_22 Integer Recommended Do you take any medications or vitamins? 0;1 0 = No; 1 = Yes
currentmed_prescription String 255 Recommended Prescription (Medication, Dose, Frequency, Reason)
demg_24 Integer Recommended In the past 30 days, how much has your physical health interfered with your ability to perform daily activities of living? 1::4 1 = not at all or rarely; 2 = some of the time; 3 = about half of the time; 4 = most of the time
demg_25 Integer Recommended In the past 30 days, how much has your mental health interfered with your ability to perform daily activities of living? 1::4 1 = not at all or rarely; 2 = some of the time; 3 = about half of the time; 4 = most of the time
ratehlth Integer Recommended rate overall health 1::8;-7 1=Excellent; 2=Very good; 3=Good; 4=Fair; 5=Poor; -7=Refused; 7=Bad; 8=Very Bad; 6=Moderate
demg_16h Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: neurological disorders: (any neurological disease, tremors/shakiness, seizures, spinal cord injury, head/spine surgery, history of head trauma, migraines, MS)? 0;1 0 = No; 1 = Yes
demg_16i Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: digestive/gastrointestinal disorders: (e.g., stomach or intestinal disease, colostomy, persistent stomach/abdominal pain or heartburn, ulcers, irritable bowel syndrome)? 0;1 0 = No; 1 = Yes
demg_16j Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: reproductive and sexual health disorders: (e.g., infertility, sexual dysfunction, sexually transmitted diseases)? 0;1 0 = No; 1 = Yes
demg_16k Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: chronic infectious disorders: (e.g., HIV, hepatitis)? 0;1 0 = No; 1 = Yes
demg_16l Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: urinary disorders: (e.g., disease of the urinary system, kidney stones)? 0;1 0 = No; 1 = Yes
demg_16m Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: vision or hearing disorders: (e.g., glaucoma, cataracts, tinnitis, hearing loss)? 0;1 0 = No; 1 = Yes
demg_16n Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: dental, mouth, nose, and ear disorders: (e.g., gum disease, gingivitis, chronic sinus or ear infections)? 0;1 0 = No; 1 = Yes
demg_16o Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: skin, hair, and nail disorders: (e.g., psoriasis, eczema, alopecia, fungal infections, rosacea)? 0;1 0 = No; 1 = Yes
demg_16p Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: other disorders? 0;1 0 = No; 1 = Yes
demg_16pother String 250 Recommended If you chose Other, please specify
demg_16a Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: circulatory/vascular disorders: (e.g., phlebitis, blood disorder, anemia, hardening of arteries, stroke, aneurysm, poor circulation) 0;1 0 = No; 1 = Yes
demg_16b Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: circulatory/vascular disorders: breath/respiratory disorders: (e.g., lung or airway disease, asthma, bronchitis, emphysema, lung infections, collapsed lung, history of tuberculosis)? 0;1 0 = No; 1 = Yes
demg_16c Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: circulatory/vascular disorders: heart disorders: (e.g., angina, irregular heartbeat, history of heart attack, organic heart disease, heart valves, murmur, pacemaker, heart surgery)? 0;1 0 = No; 1 = Yes
demg_16d Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: cancer? 0;1 0 = No; 1 = Yes
demg_16e Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: hormone /endocrine disorders: (e.g., hormones, diabetes, thyroid, pituitary gland)? 0;1 0 = No; 1 = Yes
demg_16f Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: musculoskeletal disorders: (e.g., muscle or bone disease, arthritis, chronic back pain, back injury)? 0;1 0 = No; 1 = Yes
demg_16g Integer Recommended Please place a checkmark inside the box beside any category in which you have a health condition: mental health/ behavioral disorders: (e.g., psychiatric or mental health problems such as depression, anxiety, substance abuse or dependence, ADD, ADHD, phobia, PTSD)? 0;1 0 = No; 1 = Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.