|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
demo_guid, guid |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
Participant_ID, record_id, subject, subject_id |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
DEMDate, date_demo, demo_doa, intake_date, intvdate, np_fact_doa |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
AGE, Pt_Baseline_Age, age_months, demo_age_study_entry, intvage, np_fact_age |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
|
M = Male; F = Female; O=Other; NR = Not reported
|
Pt_Gender, SEX, dem001, demo_current_sex, gender, np_fact_sex |
Query
|
study_id |
Integer |
|
Recommended |
Study ID number |
|
46=Acute Phase; 47=Stabilization Phase
|
|
Query
|
study_condition |
Integer |
|
Recommended |
Study condition to which participant was assigned |
1::7
|
1 = Cognitive remediation; 2 = Comparison condition; 3 = Other; 4= treatment as usual; 5= Computers first; 6= CRT first; 7=SCIT
|
condition |
Query
|
day_cat |
Integer |
|
Recommended |
Method for calculating days since baseline |
1::3
|
1 = calculated from visit dates when provided in data; 2 = calculated from target dates when visit dates not provided; 3 = missing visit
|
|
Query
|
ethnicity |
String |
30
|
Recommended |
Ethnicity of participant |
|
|
Pt_Hispanic, dem003, ethnic |
Query
|
race |
String |
30
|
Recommended |
Race of study subject |
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
|
|
Pt_Race, dem004a-dem004g, demo_race, np_fact_race |
Query
|
pt_race_orig |
String |
30
|
Recommended |
Original Study Text: Race |
|
|
|
Query
|
das1ms |
String |
200
|
Recommended |
Marital status |
|
|
MARSTAT, Pt_Marital |
Query
|
dem_marital_mother |
String |
255
|
Recommended |
What is the marital status of subject's biological mother? |
Married/ Domestic partners; Single; Divorced; Widowed
|
|
Mother_Marital |
Query
|
dem_marital_father |
String |
255
|
Recommended |
What is the marital status of subject's biological father? |
Married/ Domestic partners; Single; Divorced; Widowed
|
|
Father_Marital |
Query
|
pt_marital_orig |
String |
30
|
Recommended |
Original Study Text: Participants marital status |
|
|
|
|
mother_marital_orig |
String |
30
|
Recommended |
Original Study Text: Mother's marital status |
|
|
|
|
father_marital_orig |
String |
30
|
Recommended |
Original Study Text: Father's marital status |
|
|
|
Query
|
pt_edu_years |
Float |
|
Recommended |
Participant's years of education |
|
101=Missing
|
demo_highest_grade_self, education |
Query
|
mother_edu_years |
Float |
|
Recommended |
Mother's years of education |
|
101=Missing
|
8demo_highest_grade_mom, demo_highest_grade_mom, mother_education |
Query
|
father_edu_years |
Float |
|
Recommended |
Father's years of education |
|
101=Missing
|
demo_highest_grade_dad, father_education |
Query
|
pt_edu_cat |
Integer |
|
Recommended |
Participant's highest educational level category completed |
0::26
|
0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing
|
|
Query
|
mother_edu_cat |
Integer |
|
Recommended |
Mother's highest educational level category completed |
0::26;98
|
0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 98 = Refused to answer
|
|
Query
|
father_edu_cat |
Integer |
|
Recommended |
Father's highest educational level category completed |
0::26;98
|
0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 98 = Refused to answer
|
|
Query
|
pt_edu_cat_orig |
Integer |
|
Recommended |
Original text: Participant's highest educational level category completed |
0::30
|
0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 27=College; 28=No College; 29=postcollege; 30=less than 13
|
|
Query
|
mother_edu_cat_orig |
Integer |
|
Recommended |
Original text: Mother's highest educational level category completed |
0::30
|
0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 27=College; 28=No College; 29=postcollege; 30=less than 13
|
|
Query
|
father_edu_cat_orig |
Integer |
|
Recommended |
Original text: Father's highest educational level category completed |
0::30
|
0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 27=College; 28=No College; 29=postcollege; 30=less than 13
|
|
Query
|
dsm_icd_code |
Integer |
|
Recommended |
Primary Psychiatric Diagnosis Diagnostic System |
1::4
|
1 = Diagnostic and Statistical Manual of Mental Disorders (2000-2012) DSM-IV-TR; 2 = Diagnostic and Statistical Manual of Mental Disorders (2013-current) DSM-5; 3 = International Classification of Diseases (1990-current) ICD-10; 4 = International Classification of Diseases (under development) ICD-11
|
|
Query
|
primary_dx |
Integer |
|
Recommended |
Primary psychiatric diagnosis |
1::15 ;98;99
|
1 = Schizophrenia, Unspecified type; 2 = Schizophrenia, Disorganized type; 3 = Schizophrenia, Paranoid type; 4 = Schizophrenia, Residual type; 5 = Schizophrenia, Undifferentiated type; 6 = Schizophreniform disorder; 7 = Schizoaffective disorder; 8 = Dysthymia/Persistent Depressive Disorder; 9 = Major Depressive Disorder; 10 = Bipolar Disorder; 11 =
|
|
Query
|
other_dx1 |
Integer |
|
Recommended |
Additional psychiatric diagnosis |
1::15 ;98;99
|
1 = Schizophrenia, Unspecified type; 2 = Schizophrenia, Disorganized type; 3 = Schizophrenia, Paranoid type; 4 = Schizophrenia, Residual type; 5 = Schizophrenia, Undifferentiated type; 6 = Schizophreniform disorder; 7 = Schizoaffective disorder; 8 = Dysthymia/Persistent Depressive Disorder; 9 = Major Depressive Disorder; 10 = Bipolar Disorder; 11 =
|
|
Query
|
other_dx2 |
Integer |
|
Recommended |
Additional psychiatric diagnosis 2 |
1::15 ;98;99
|
1 = Schizophrenia, Unspecified type; 2 = Schizophrenia, Disorganized type; 3 = Schizophrenia, Paranoid type; 4 = Schizophrenia, Residual type; 5 = Schizophrenia, Undifferentiated type; 6 = Schizophreniform disorder; 7 = Schizoaffective disorder; 8 = Dysthymia/Persistent Depressive Disorder; 9 = Major Depressive Disorder; 10 = Bipolar Disorder; 11 =
|
|
Query
|
age_1st_sx |
Integer |
|
Recommended |
Age of onset of psychiatric symptoms (years) |
|
|
age_onset |
Query
|
age_1st_txcontact |
Integer |
|
Recommended |
Age of first treatment for psychiatric symptoms |
|
|
|
Query
|
age_1st_hosp |
Integer |
|
Recommended |
Age at first psychiatric hospitalization (years) |
|
|
|
Query
|
psych_hosp_total |
Integer |
|
Recommended |
Total number of psychiatric hospitalizations |
|
|
num_hosp |
Query
|
psych_hosp_year |
Integer |
|
Recommended |
Number of psychiatric hospitalizations in last year |
|
|
|
Query
|
num_sessions |
Integer |
|
Recommended |
Number of sessions completed |
|
|
number_sessions |
Query
|
percent_sessions |
Float |
|
Recommended |
Percentage of sessions completed |
|
|
|
Query
|
completer_status |
Integer |
|
Recommended |
Study completion status |
1::3
|
1 = Complete; 2 = Randomized but did not complete any sessions; 3 = Non-Complete
|
|
Query
|
aescode |
Integer |
|
Recommended |
Staff code number of person completing this form |
|
999= Missing Data
|
demcode |
Query
|
asian |
String |
5
|
Recommended |
Ethnicity: Asian |
|
999= missing
|
racea |
Query
|
bafinfo |
Integer |
|
Recommended |
Check if the Assessment was not done. |
0::2
|
0=No; 1=Yes; 2=Unverified
|
deminfo |
Query
|
black |
Integer |
|
Recommended |
Black or African-American |
0;1; 999
|
1=yes; 0=no;999= missing
|
raceb |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
demcom, demo_notes1, np_fact_comments |
Query
|
curlivg |
Integer |
|
Recommended |
Living status |
1::5
|
1=Independent Living; 2=Minimally Structured Residence; 3=Moderately Restrictive Residence; 4=Extremely Restrictive Residence; 5=Homeless
|
|
Query
|
edutot |
Float |
|
Recommended |
Total years of education |
|
|
|
Query
|
ged |
Integer |
|
Recommended |
Did you receive a GED |
0;1
|
0 = No; 1 = Yes
|
highgrad |
Query
|
hispanic |
Integer |
|
Recommended |
Is subject of Hispanic, Latino, or Spanish origin? |
0; 1; 999
|
0 = No; 1 = Yes; 999= missing
|
hisp |
Query
|
native |
Integer |
|
Recommended |
American Indian or Alaska Native |
0;1; 999
|
1=yes; 0=no; 999= missing
|
raceai |
Query
|
pacific |
String |
5
|
Recommended |
Ethnicity: Pacific |
|
999= missing
|
racenh |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
Query
|
white |
Integer |
|
Recommended |
5. Race |
0;1
|
1=yes, 0=no
|
racew |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
np_fact_where_test_done |
Query
|
completed |
Integer |
|
Recommended |
Checks if completed |
0::3
|
0=No; 1=Yes; 2=Yes, lost; 3=Unverified
|
|
Query
|
schizophrenia_diagnosis |
String |
10
|
Recommended |
Schizophrenia (N=no diagnosis for any first degree relative; Y=positive lifetime diagnosis for one or more first degree relatives) |
|
N = No diagnosis for any first degree relative; Y = Positive lifetime diagnosis for one or more first degree relatives; NK=not known
|
dem005 |
Query
|
fh07 |
Integer |
|
Recommended |
7. Subject adopted |
0;1;9
|
|
demo_adopted_yn |
Query
|
demosam_012 |
Integer |
|
Recommended |
Do you have any biological children? |
0;1;-999; 9
|
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
|
demo_offspring |
Query
|
demo_siblings |
Integer |
|
Recommended |
Do you have siblings? |
1;2;9
|
1=Yes; 2=No; 9=Unknown/Missing
|
|
Query
|
demo_related_schizo |
Integer |
|
Recommended |
Are you related to someone who has Schizophrenia? |
1;2;9
|
1=Yes; 2=No; 9=Unknown/Missing
|
|
Query
|
relative_type1 |
Integer |
|
Recommended |
Is your relative... |
1::3
|
1=A 1st degree relative, which would include parents, full siblings, or children; 2=A 2nd degree relative, which would include grandparents, grandchildren, aunts, uncles, nephews, nieces, or half-siblings; 3=A 3rd degree relative, which would include first-cousins, great-grandparents or great grandchildren
|
demo_related_schizo_relationship |
Query
|
demo_related_bpd |
Integer |
|
Recommended |
Are you related to someone who has bipolar or depressive disorder with psychotic features? |
1;2;9
|
1=Yes; 2=No; 9=Unknown/Missing
|
|
Query
|
relative_type2 |
Integer |
|
Recommended |
Is your relative... |
1::3
|
1=A 1st degree relative, which would include parents, full siblings, or children; 2=A 2nd degree relative, which would include grandparents, grandchildren, aunts, uncles, nephews, nieces, or half-siblings; 3=A 3rd degree relative, which would include first-cousins, great-grandparents or great grandchildren
|
demo_related_bpd_relationship |
Query
|
demo_spec_ed_self |
Integer |
|
Recommended |
Special Education, self |
1;2;9
|
1=Yes; 2=No; 9=Unknown/Missing
|
|
Query
|
demo_spec_ed_mom |
Integer |
|
Recommended |
Special Education, mother |
1;2;9
|
1=Yes; 2=No; 9=Unknown/Missing
|
|
Query
|
demo_spec_ed_dad |
Integer |
|
Recommended |
Special Education, father |
1;2;9
|
1=Yes; 2=No; 9=Unknown/Missing
|
|
Query
|
ccc2english |
Integer |
|
Recommended |
Does the subject speak English as a primary language? |
0;1;-9
|
0 = No; 1 = Yes; -9 = Missing value
|
demo_eng_prim_lang, np_fact_eng_native_lang |
Query
|
marital_status |
Integer |
|
Recommended |
Marital status of adult subject |
1::6; 9
|
1 = Married; 2 = Divorced; 3 = Single or never married; 4 = Widow or widower; 5=Remarried; 6=Separated 9 = Unknown
|
demo_marital_status |
Query
|
sexdesc |
String |
60
|
Recommended |
Participant sex at birth |
M;F;888
|
M = Male; F = Female; 888 = Choose not to respond
|
demo_sex_birth |
Query
|
demo_current_sex_different |
Integer |
|
Recommended |
Is the current sex different than the sex at birth? |
0;1
|
0=No; 1=Yes
|
|
|
doa_futdt |
String |
20
|
Recommended |
Future date entered (Assessment) |
|
|
demo_doa_futdt |
|
dode |
String |
10
|
Recommended |
Date of Data Entry |
|
|
demo_dode |
|
dode_futdt |
String |
20
|
Recommended |
Future date entered (Data Entry) |
|
|
demo_dode_futdt |
Query
|
form_completed |
Integer |
|
Recommended |
Was the form completed? |
1::4
|
1=Yes; 2=No; 3=Unverified; 4 = N/A-Not in age range
|
demo_form_complete |
Query
|
form_explain |
Integer |
|
Recommended |
Why was this form not completed? |
86::99
|
99=Participant unable to complete due to cognitive impairment; 98=Participant unable to complete due to physical impairment; 97=Participant refused to begin/finish; 96=Participant completed but with less than best effort; 95=Participant unable to be contacted; 94=Participant deceased; 93=Participant withdrew consent; 92=Time constraints; 91=Rater forgot to administer; 90=Missed appointment; 89=Participant was terminated from study; 88=Other;87 = Not Done (reason unspecified); 86 = Not Applicable
|
demo_explain |
|
other_reason_nc |
String |
100
|
Recommended |
Other reason form was not completed |
|
|
demo_other_reason_nc |
Query
|
assessment_complete |
Integer |
|
Recommended |
Complete? |
0::2
|
0=Incomplete; 1=Unverified; 2=Complete
|
demographics_complete, neuropsych_fact_sheet_complete, participant_id_complete |
|
notes |
String |
200
|
Recommended |
Any additional notes |
|
|
demo_notes2 |
|
otherrace |
String |
100
|
Recommended |
specify other race |
|
The following questions are about you or the child's family.
|
dem004g, demo_race_other, np_fact_race_other |
Query
|
ca243 |
Integer |
|
Recommended |
What handedness do you consider yourself? |
1::3
|
1=Right; 2=Left; 3=Mixed
|
handedness, np_fact_handedness |
Query
|
curreduccompleted |
String |
50
|
Recommended |
Current grade education level completed |
|
|
np_fact_ed |
|
np_reason_not_continu |
String |
500
|
Recommended |
Reason for not continuing |
|
|
|
Query
|
demo_learn_eng_age |
Integer |
|
Recommended |
If English is not your first language, age that you learned English |
|
-9=N/A
|
np_fact_learn_eng |
Query
|
entry_status |
Integer |
|
Recommended |
Entry status |
1::10
|
1 = Inpatient; 2 = Outpatient; 3 = Nursing Home ; 4 = Partial Hospital ; 5 = Other; 6= Normal Control; 7= Chrono; 8= Senior Center; 9= Mistreatment Agency; 10= Primary Care
|
np_fact_participant_status |
Query
|
np_fact_hear_or_glasses |
Integer |
|
Recommended |
Does the participant wear a hearing aid or eyeglasses? |
0;1
|
0=No; 1=Yes
|
|
Query
|
np_fact_bring_today |
Integer |
|
Recommended |
Did the participant remember to bring them today? |
0;1
|
0=No; 1=Yes
|
|
Query
|
writeletter |
Integer |
|
Recommended |
Write a letter legibly |
-1;1
|
1=R; -1=L
|
tintq1aspecf |
Query
|
throwball |
Integer |
|
Recommended |
Throw a ball to hit a target |
-1;1
|
1=R; -1=L
|
pintq1b |
Query
|
dealcards |
Integer |
|
Recommended |
Deal a deck of playing cards |
-1;1
|
1=R; -1=L
|
pintq1c |
Query
|
hold |
Integer |
|
Recommended |
Hold a toothbrush while cleaning teeth |
-1;1
|
1=R; -1=L
|
pintq1cspecf |
Query
|
handed_sum |
Integer |
|
Recommended |
Total Score is Sum of (R * 1) + (L * -1) |
|
Handedness Categories: Left-handed: Handedness Index = -4 to -2 Right-handed: Handedness Index = 2 to 4 Ambidextrous (mixed laterality) = -1 to 1
|
pintq1d |
Query
|
num_psych_hosp_6_mth |
Integer |
|
Recommended |
Number of psychiatric hospitalizations in the past 6 months |
|
|
|
Query
|
num_indiv_sess_6_mth |
Integer |
|
Recommended |
Number of individual therapy sessions in the past 6 months |
|
|
|
Query
|
num_grp_sess_6_mth |
Integer |
|
Recommended |
Number of group sessions in the past 6 months |
|
|
|
Query
|
conserv |
Integer |
|
Recommended |
has conservator? |
0;1
|
0= no; 1= yes
|
conservator |
Query
|
num_jobs |
Integer |
|
Recommended |
How many full time jobs have you had that lasted one year or more? |
|
|
num_ft_jobs |
Query
|
lastjob |
Integer |
|
Recommended |
months since last full time job |
|
|
months_since_last |
Query
|
longest |
Integer |
|
Recommended |
longest lasting job in months |
|
|
longest_ft_job |
Query
|
psysoc_243 |
Float |
|
Recommended |
Total income for the last month (Your Income) |
0::9999999
|
|
income_last_month |
Query
|
psysoc_244 |
Integer |
|
Recommended |
Total income for the last month (Amt Available to You) |
0::9999999
|
|
income_available_last_month |
Query
|
cog_session |
Integer |
|
Recommended |
Number of CRT sessions attended |
|
|
num_1_on_1_sessions |
Query
|
comp_session |
Integer |
|
Recommended |
Number of Computer sessions attended |
|
|
num_comp_sessions |