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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Demographics Data

4,655 Shared Subjects

Database of Cognitive Training and Remediation: Demographics (DEMO)
Clinical Assessments
Demographics
06/10/2014
demod01
06/10/2014
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* demo_guid, guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project Participant_ID, record_id, subject, subject_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field DEMDate, date_demo, demo_doa, intake_date, intvdate, np_fact_doa
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. AGE, Pt_Baseline_Age, age_months, demo_age_study_entry, intvage, np_fact_age
sex String 20 Required Sex of the subject
M;F
M = Male; F = Female Pt_Gender, SEX, dem001, demo_current_sex, gender, np_fact_sex
Query study_id Integer Recommended Study ID number 46=Acute Phase; 47=Stabilization Phase
Query study_condition Integer Recommended Study condition to which participant was assigned 1::7 1 = Cognitive remediation; 2 = Comparison condition; 3 = Other; 4= treatment as usual; 5= Computers first; 6= CRT first; 7=SCIT condition
Query day_cat Integer Recommended Method for calculating days since baseline 1::3 1 = calculated from visit dates when provided in data; 2 = calculated from target dates when visit dates not provided; 3 = missing visit
Query ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
Pt_Hispanic, dem003, ethnic
Query race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported Pt_Race, dem004a-dem004g, demo_race, np_fact_race
Query pt_race_orig String 30 Recommended Original Study Text: Race
Query das1ms String 200 Recommended Marital status MARSTAT, Pt_Marital
Query dem_marital_mother String 255 Recommended What is the marital status of subject's biological mother? Married/ Domestic partners; Single; Divorced; Widowed Mother_Marital
Query dem_marital_father String 255 Recommended What is the marital status of subject's biological father? Married/ Domestic partners; Single; Divorced; Widowed Father_Marital
Query pt_marital_orig String 30 Recommended Original Study Text: Participants marital status
mother_marital_orig String 30 Recommended Original Study Text: Mother's marital status
father_marital_orig String 30 Recommended Original Study Text: Father's marital status
Query pt_edu_years Float Recommended Participant's years of education 101=Missing demo_highest_grade_self, education
Query mother_edu_years Float Recommended Mother's years of education 101=Missing 8demo_highest_grade_mom, demo_highest_grade_mom, mother_education
Query father_edu_years Float Recommended Father's years of education 101=Missing demo_highest_grade_dad, father_education
Query pt_edu_cat Integer Recommended Participant's highest educational level category completed 0::26 0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing
Query mother_edu_cat Integer Recommended Mother's highest educational level category completed 0::26;98 0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 98 = Refused to answer
Query father_edu_cat Integer Recommended Father's highest educational level category completed 0::26;98 0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 98 = Refused to answer
Query pt_edu_cat_orig Integer Recommended Original text: Participant's highest educational level category completed 0::30 0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 27=College; 28=No College; 29=postcollege; 30=less than 13
Query mother_edu_cat_orig Integer Recommended Original text: Mother's highest educational level category completed 0::30 0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 27=College; 28=No College; 29=postcollege; 30=less than 13
Query father_edu_cat_orig Integer Recommended Original text: Father's highest educational level category completed 0::30 0 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 27=College; 28=No College; 29=postcollege; 30=less than 13
Query dsm_icd_code Integer Recommended Primary Psychiatric Diagnosis Diagnostic System 1::4 1 = Diagnostic and Statistical Manual of Mental Disorders (2000-2012) DSM-IV-TR; 2 = Diagnostic and Statistical Manual of Mental Disorders (2013-current) DSM-5; 3 = International Classification of Diseases (1990-current) ICD-10; 4 = International Classification of Diseases (under development) ICD-11
Query primary_dx Integer Recommended Primary psychiatric diagnosis 1::15 ;98;99 1 = Schizophrenia, Unspecified type; 2 = Schizophrenia, Disorganized type; 3 = Schizophrenia, Paranoid type; 4 = Schizophrenia, Residual type; 5 = Schizophrenia, Undifferentiated type; 6 = Schizophreniform disorder; 7 = Schizoaffective disorder; 8 = Dysthymia/Persistent Depressive Disorder; 9 = Major Depressive Disorder; 10 = Bipolar Disorder; 11 =
Query other_dx1 Integer Recommended Additional psychiatric diagnosis 1::15 ;98;99 1 = Schizophrenia, Unspecified type; 2 = Schizophrenia, Disorganized type; 3 = Schizophrenia, Paranoid type; 4 = Schizophrenia, Residual type; 5 = Schizophrenia, Undifferentiated type; 6 = Schizophreniform disorder; 7 = Schizoaffective disorder; 8 = Dysthymia/Persistent Depressive Disorder; 9 = Major Depressive Disorder; 10 = Bipolar Disorder; 11 =
Query other_dx2 Integer Recommended Additional psychiatric diagnosis 2 1::15 ;98;99 1 = Schizophrenia, Unspecified type; 2 = Schizophrenia, Disorganized type; 3 = Schizophrenia, Paranoid type; 4 = Schizophrenia, Residual type; 5 = Schizophrenia, Undifferentiated type; 6 = Schizophreniform disorder; 7 = Schizoaffective disorder; 8 = Dysthymia/Persistent Depressive Disorder; 9 = Major Depressive Disorder; 10 = Bipolar Disorder; 11 =
Query age_1st_sx Integer Recommended Age of onset of psychiatric symptoms (years) age_onset
Query age_1st_txcontact Integer Recommended Age of first treatment for psychiatric symptoms
Query age_1st_hosp Integer Recommended Age at first psychiatric hospitalization (years)
Query psych_hosp_total Integer Recommended Total number of psychiatric hospitalizations num_hosp
Query psych_hosp_year Integer Recommended Number of psychiatric hospitalizations in last year
Query num_sessions Integer Recommended Number of sessions completed number_sessions
Query percent_sessions Float Recommended Percentage of sessions completed
Query completer_status Integer Recommended Study completion status 1::3 1 = Complete; 2 = Randomized but did not complete any sessions; 3 = Non-Complete
Query aescode Integer Recommended Staff code number of person completing this form demcode
Query asian String 5 Recommended Ethnicity: Asian
Yes;No; 999
999= missing racea
Query bafinfo Integer Recommended Check if the Assessment was not done. 0::2 0=No; 1=Yes; 2=Unverified deminfo
Query black Integer Recommended Black or African-American 0;1; 999 1=yes; 0=no;999= missing raceb
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data demcom, demo_notes1, np_fact_comments
Query curlivg Integer Recommended Living status 1::5 1=Independent Living; 2=Minimally Structured Residence; 3=Moderately Restrictive Residence; 4=Extremely Restrictive Residence; 5=Homeless
Query edutot Float Recommended Total years of education
Query ged Integer Recommended Did you receive a GED 0;1 0 = No; 1 = Yes highgrad
Query hispanic Integer Recommended Is subject of Hispanic, Latino, or Spanish origin? 0; 1; 999 0 = No; 1 = Yes; 999= missing hisp
Query native Integer Recommended American Indian or Alaska Native 0;1; 999 1=yes; 0=no; 999= missing raceai
Query pacific String 5 Recommended Ethnicity: Pacific
Yes;No; 999
999= missing racenh
Query visit String 50 Recommended Visit name
Query white Integer Recommended 5. Race 0;1 1=yes, 0=no racew
site String 101 Recommended Site Study Site np_fact_where_test_done
Query completed Integer Recommended Checks if completed 0::3 0=No; 1=Yes; 2=Yes, lost; 3=Unverified
Query schizophrenia_diagnosis String 10 Recommended Schizophrenia (N=no diagnosis for any first degree relative; Y=positive lifetime diagnosis for one or more first degree relatives)
N;Y; NK
N = No diagnosis for any first degree relative; Y = Positive lifetime diagnosis for one or more first degree relatives; NK=not known dem005
Query fh07 Integer Recommended 7. Subject adopted 0;1;9 demo_adopted_yn
Query demosam_012 Integer Recommended Do you have any biological children? 0;1;-999; 9 1=Yes; 0=No; -999=NA/Missing Data; 9=DK demo_offspring
Query demo_siblings Integer Recommended Do you have siblings? 1;2;9 1=Yes; 2=No; 9=Unknown/Missing
Query demo_related_schizo Integer Recommended Are you related to someone who has Schizophrenia? 1;2;9 1=Yes; 2=No; 9=Unknown/Missing
Query relative_type1 Integer Recommended Is your relative... 1::3 1=A 1st degree relative, which would include parents, full siblings, or children; 2=A 2nd degree relative, which would include grandparents, grandchildren, aunts, uncles, nephews, nieces, or half-siblings; 3=A 3rd degree relative, which would include first-cousins, great-grandparents or great grandchildren demo_related_schizo_relationship
Query demo_related_bpd Integer Recommended Are you related to someone who has bipolar or depressive disorder with psychotic features? 1;2;9 1=Yes; 2=No; 9=Unknown/Missing
Query relative_type2 Integer Recommended Is your relative... 1::3 1=A 1st degree relative, which would include parents, full siblings, or children; 2=A 2nd degree relative, which would include grandparents, grandchildren, aunts, uncles, nephews, nieces, or half-siblings; 3=A 3rd degree relative, which would include first-cousins, great-grandparents or great grandchildren demo_related_bpd_relationship
Query demo_spec_ed_self Integer Recommended Special Education, self 1;2;9 1=Yes; 2=No; 9=Unknown/Missing
Query demo_spec_ed_mom Integer Recommended Special Education, mother 1;2;9 1=Yes; 2=No; 9=Unknown/Missing
Query demo_spec_ed_dad Integer Recommended Special Education, father 1;2;9 1=Yes; 2=No; 9=Unknown/Missing
Query ccc2english Integer Recommended Does the subject speak English as a primary language? 0;1;-9 0 = No; 1 = Yes; -9 = Missing value demo_eng_prim_lang, np_fact_eng_native_lang
Query marital_status Integer Recommended Marital status of adult subject 1::5;9 1 = Married; 2 = Divorced; 3 = Single or never married; 4 = Widow or widower; 5=Remarried; 9 = Unknown add5=remarried, demo_marital_status
Query sexdesc String 60 Recommended Participant sex at birth M;F M = Male; F = Female demo_sex_birth
Query demo_current_sex_different Integer Recommended Is the current sex different than the sex at birth? 0;1 0=No; 1=Yes
doa_futdt String 20 Recommended Future date entered (Assessment) demo_doa_futdt
dode String 10 Recommended Date of Data Entry demo_dode
dode_futdt String 20 Recommended Future date entered (Data Entry) demo_dode_futdt
Query form_completed Integer Recommended Was the form completed? 1::4 1=Yes; 2=No; 3=Unverified; 4 = N/A-Not in age range demo_form_complete
Query form_explain Integer Recommended Why was this form not completed? 86::99 99=Participant unable to complete due to cognitive impairment; 98=Participant unable to complete due to physical impairment; 97=Participant refused to begin/finish; 96=Participant completed but with less than best effort; 95=Participant unable to be contacted; 94=Participant deceased; 93=Participant withdrew consent; 92=Time constraints; 91=Rater forgot to administer; 90=Missed appointment; 89=Participant was terminated from study; 88=Other;87 = Not Done (reason unspecified); 86 = Not Applicable demo_explain
other_reason_nc String 100 Recommended Other reason form was not completed demo_other_reason_nc
Query assessment_complete Integer Recommended Complete? 0::2 0=Incomplete; 1=Unverified; 2=Complete demographics_complete, neuropsych_fact_sheet_complete, participant_id_complete
notes String 200 Recommended Any additional notes demo_notes2
otherrace String 100 Recommended specify other race The following questions are about you or the child's family. dem004g, demo_race_other, np_fact_race_other
Query ca243 Integer Recommended What handedness do you consider yourself? 1::3 1=Right; 2=Left; 3=Mixed handedness, np_fact_handedness
Query curreduccompleted String 50 Recommended Current grade education level completed np_fact_ed
np_reason_not_continu String 500 Recommended Reason for not continuing
Query demo_learn_eng_age Integer Recommended If English is not your first language, age that you learned English -9=N/A np_fact_learn_eng
Query entry_status Integer Recommended Entry status 1::5 1 = Inpatient; 2 = Outpatient; 3 = Nursing Home ; 4 = Partial Hospital ; 5 = Other np_fact_participant_status
Query np_fact_hear_or_glasses Integer Recommended Does the participant wear a hearing aid or eyeglasses? 0;1 0=No; 1=Yes
Query np_fact_bring_today Integer Recommended Did the participant remember to bring them today? 0;1 0=No; 1=Yes
Query writeletter Integer Recommended Write a letter legibly -1;1 1=R; -1=L tintq1aspecf
Query throwball Integer Recommended Throw a ball to hit a target -1;1 1=R; -1=L pintq1b
Query dealcards Integer Recommended Deal a deck of playing cards -1;1 1=R; -1=L pintq1c
Query hold Integer Recommended Hold a toothbrush while cleaning teeth -1;1 1=R; -1=L pintq1cspecf
Query handed_sum Integer Recommended Total Score is Sum of (R * 1) + (L * -1) Handedness Categories: Left-handed: Handedness Index = -4 to -2 Right-handed: Handedness Index = 2 to 4 Ambidextrous (mixed laterality) = -1 to 1 pintq1d
Query num_psych_hosp_6_mth Integer Recommended Number of psychiatric hospitalizations in the past 6 months
Query num_indiv_sess_6_mth Integer Recommended Number of individual therapy sessions in the past 6 months
Query num_grp_sess_6_mth Integer Recommended Number of group sessions in the past 6 months
Query conserv Integer Recommended has conservator? 0;1 0= no; 1= yes conservator
Query num_jobs Integer Recommended How many full time jobs have you had that lasted one year or more? num_ft_jobs
Query lastjob Integer Recommended months since last full time job months_since_last
Query longest Integer Recommended longest lasting job in months longest_ft_job
Query psysoc_243 Float Recommended Total income for the last month (Your Income) 0::9999999 income_last_month
Query psysoc_244 Integer Recommended Total income for the last month (Amt Available to You) 0::9999999 income_available_last_month
Query cog_session Integer Recommended Number of CRT sessions attended num_1_on_1_sessions
Query comp_session Integer Recommended Number of Computer sessions attended num_comp_sessions
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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