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Data Structures with shared data
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Demographics

54 Shared Subjects

General demographics data structure
Clinical Assessments
Demographics
06/02/2010
demographics01
06/23/2022
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
Query bio_mother_education String 75 Recommended Biological Mother Highest level of education Less than High School;High School Degree;GED; Less than 7th Grade; Jr. High School; Some High School; Some College;Associates Degree;Bachelors Degree;Some Graduate Work;Graduate Degree; Never attended school ; Primary/all age/ Jnr. Secondary ; Secondary/High/Technical ; H.E.A.R.T/ Vocational ; Tertiary College/University ; Other tertiary- specify ; Other education-specify;99= D/K ; 77= N/A; 999= Missing
Query bio_mother_ethnicity String 50 Recommended Biological Mother Ethnicity
Hispanic or Latino;Not Hispanic or Latino; No Answer
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
Query bio_mother_race String 150 Recommended Biological Mother Race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query bio_mother_marital_status String 50 Recommended Biological Mother Marital Status Single;Married;Divorced;Divorced and Remarried;Widowed;Separated; Never Married; Other
Query bio_mother_number_children Integer Recommended Biological Mother Number of Children
Query bio_mother_employed String 5 Recommended Biological Mother Employed?
Yes;No
Query bio_mother_type_employment String 15 Recommended Biological Mother Type of Employment Full time;Part time; Not Employed; Retired
bio_mother_occupation String 100 Recommended Biological Mother Occupation
Query bio_mother_income Integer Recommended Biological Mother: income (1=$0-$5,000; 2=$5,001-$10,000; 3=$10,001-$15,000; 4=$15,001-$25,000; 5=$25,001-$35,000; 6=$35,001-$50,000; 7=$50,001-$75,000; 8=$75,001-$100,000; 9=$100,001-$150,000; 10=over $150,000) 1 :: 10 1 = $0-$5,000; 2 = $5,001-$10,000; 3 = $10,001-$15,000; 4 = $15,001-$25,000; 5 = $25,001-$35,000; 6 = $35,001-$50,000; 7 = $50,001-$75,000; 8 = $75,001-$100,000; 9 = $100,001-$150,000; 10 = Over $150,000
Query bio_mother_writing_hand String 5 Recommended Biological Mother: Hand used to write with R;L;B R = Right; L = Left; B = Both
Query bio_father_education String 75 Recommended Biological Father Highest level of education Less than High School;High School Degree;GED; Less than 7th Grade; Jr. High School; Some High School; Some College;Associates Degree;Bachelors Degree;Some Graduate Work;Graduate Degree; Never attended school ; Primary/all age/ Jnr. Secondary ; Secondary/High/Technical ; H.E.A.R.T/ Vocational ; Tertiary College/University ; Other tertiary- specify ; Other education-specify;99= D/K ; 77= N/A; 999= Missing
Query bio_father_ethnicity String 50 Recommended Biological Father ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer)
Hispanic or Latino; Not Hispanic or Latino; No Answer
Query bio_father_race String 150 Recommended Biological Father Race American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query bio_father_marital_status String 50 Recommended Biological Father Marital Status Single;Married;Divorced;Divorced and Remarried;Widowed;Separated; Never Married; Other
Query bio_father_number_children Integer Recommended Biological Father Number of Children
Query bio_father_employed String 5 Recommended Biological Father Employed?
Yes;No
Query bio_father_type_employment String 15 Recommended Biological Father Type of Employment Full time;Part time; Not Employed; Retired
bio_father_occupation String 100 Recommended Biological Father Occupation
Query bio_father_income Integer Recommended Biological Father: income (1=$0-$5,000; 2=$5,001-$10,000; 3=$10,001-$15,000; 4=$15,001-$25,000; 5=$25,001-$35,000; 6=$35,001-$50,000; 7=$50,001-$75,000; 8=$75,001-$100,000; 9=$100,001-$150,000; 10=over $150,000) 1 :: 10 1 = $0-$5,000; 2 = $5,001-$10,000; 3 = $10,001-$15,000; 4 = $15,001-$25,000; 5 = $25,001-$35,000; 6 = $35,001-$50,000; 7 = $50,001-$75,000; 8 = $75,001-$100,000; 9 = $100,001-$150,000; 10 = Over $150,000
Query bio_father_writing_hand String 5 Recommended Biological Father: Hand used to write with R;L;B R = Right; L = Left; B = Both
Query household_where_child_lives String 50 Recommended Child (subject/proband) with ASD currently lives with Both Parents;Biological Mother Only;Biological Father Only;Biological Mother and Step Father;Biological Father and Step Mother;Foster Parents;Other Relatives;Other;Adoptive Parents
Query household_physical_custody String 50 Recommended Physical Custody situation if mother and father are divorced or separated Joint;Mother has sole custody;Father has sole custody
Query household_visitation String 5 Recommended If either parent has sole custody based on the previous question, does the other parent have visitation?
Yes;No
Query household_number_in_house Integer Recommended Number of people living in primary residence for subject (proband)
Query household_dwelling_type String 25 Recommended Primary Residence Dwelling type Apartment;Attached House;Detached House
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query respondent String 20 Recommended Respondent
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
Query household_income_level Integer Recommended Combined income all adults in home 1::26;77 1 = $0-$5,000; 2 = $5,001-$10,000; 3 = $10,001-$15,000; 4 = $15,001-$25,000; 5 = $25,001-$35,000; 6 = $35,001-$50,000; 7 = $50,001-$75,000; 8 = $75,001-$100,000; 9 = $100,001-$150,000; 10 = Over $150,000; 11 = Less than $10,000; 12 = $15,000-$20,000; 13 = $20,000-$25,000; 14 = $25,000-$30,000; 15 = $30,000-$35,000; 16 = $35,000-$40,000; 17 = $40,000-$45,000; 18 = $45,000-$50,000; 19 = $50,000-$55,000; 20 = $55,000-$60,000; 21 = Above $60,000; 23=$60, 001 - $65, 000; 24=65, 001 - $70, 000 ;25=$70, 001 - $75, 000; 26=More than $75, 000; 77=Rather not say
agerange String 50 Recommended age range of subject during interview
subridedem_02 Integer Recommended What is your ethnicity? 1;2 1= Hispanic or Latino; 2= Not Hispanic or Latino
subridedem_03 Integer Recommended How tall are you without shoes? Number in Feet and Number in Inches
subridedem_04 Integer Recommended How much do you weigh in pounds? Weight in Pounds, lb
subridedem_05 Integer Recommended What is your current employment status? 1 :: 10 1= Employed full time (40 or more hours per week); 2= Employed part time (up to 39 hours per week); 3= Unemployed and currently looking for work; 4= Unemployed and not currently looking for work; 5= High school student; 6= College student; 7= Retired; 8= Homemaker; 9= Self employed; 10= Unable to work; IF Less than or equal to 2 OR [employment] greater than 8, SKIP to subridedem_07
subridedem_06 Integer Recommended What best describes the business or industry of your current occupation? 1 :: 21 1= Management; 2= Business and Financial Operations; 3= Computer and Mathematical; 4= Architecture and Engineering; 5= Life, Physical, and Social Science; 6= Community and Social Service; 7= Legal; 8= Educational Instruction and Library; 9= Art, Design, Entertainment, Sports, and Media; 10= Healthcare Practitioners and Technical; 11= Healthcare Support; 12= Protective Service; 13= Food Preparation and Serving; 14= Personal Care and Service; 15= Sales; 16= Office and Administrative Support; 17= Farming, Fishing, and Forestry; 18= Construction and Extraction; 19= Installation, Maintenance, and Repair; 20= Production; 21= Transportation and Material Moving
subridedem_07 Integer Recommended What is the highest degree or level of school you have completed? 0 :: 7 0= No high school; 1= Some high school, no diploma; 2= High school diploma or equivalent (for example: GED); 3= Some college credit, no degree; 4= Trade or technical degree; 5= Associate degree; 6= Bachelor/college degree; 7= Professional or graduate degree
subridedem_08 Integer Recommended What is the annual income of your household? 1 :: 7 1= Less than 10,000; 2= 10,000 to 14,999; 3= 15,000 to 24,999; 4= 25,000 to 34,999; 5= 35,000 to 49,999; 6= 50,000 to 74,999; 7= 75,000 to 99,999; 8= 100,000 to 149,999; 9= 150,000 to 199,999; 7= 200,000 or more
subridedem_09a Integer Recommended Do you currently receive benefits from any of the following programs? The Supplemental Nutrition Assistance Program (SNAP/food stamp program) 0;1 0= No; 1= Yes
subridedem_09b Integer Recommended Do you currently receive benefits from any of the following programs? Temporary Assistance for Needy Families (TANF) 0;1 0= No; 1= Yes
subridedem_09c Integer Recommended Do you currently receive benefits from any of the following programs? Housing subsidy (for example the housing choice voucher program, Section 8) 0;1 0= No; 1= Yes
subridedem_09d Integer Recommended Do you currently receive benefits from any of the following programs? Energy assistance (this includes any assistance to pay for electric, gas, heat, etc.) 0;1 0= No; 1= Yes
subriderace_01a Integer Recommended What is your race (select all that apply)? American Indian or Alaska Native 0;1 0= No; 1= Yes
subriderace_01b Integer Recommended What is your race (select all that apply)? Asian 0;1 0= No; 1= Yes
subriderace_01c Integer Recommended What is your race (select all that apply)? Black or African American 0;1 0= No; 1= Yes
subriderace_01d Integer Recommended What is your race (select all that apply)? Native Hawaiian or Other Pacific Islander 0;1 0= No; 1= Yes
subriderace_01e Integer Recommended What is your race (select all that apply)? White 0;1 0= No; 1= Yes
subriderace_01f Integer Recommended What is your race (select all that apply)? Other 0;1 0= No; 1= Yes
subriderace_01g String 50 Recommended If other: please specify
fis_gender Integer Recommended What is your gender? 1::3;9;99 1 = male; 2 = female; 3 = non-binary; 9 = prefer to self-describe; 99 = not reported
fis_genderdescribe String 100 Recommended What is your gender? Prefer to self-describe:
fis_participant_type Integer Recommended Type of participant 1::3 1 = Intermediary; 2 = Service agency rep; 3 = Funding agency rep
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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