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Demographics Assessment

703 Shared Subjects

Clinical Assessments
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Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project pid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query ethnicity String 30 Required Ethnicity of participant Hispanic or Latino; Not Hispanic or Latino; Unknown
Query race String 30 Required Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
Query group_dcf_c Integer Recommended Recruited for DCF or control group? 0; 1; 999 0= Control; 1= DCF; 999= Not Answered group
Query guardians Integer Recommended Child's current guardian(s) 0::5; 999 0= Birth parent; 1= Foster parent; 2= Grandparent; 3= Other relative, 4= Residential center; 5= Other; 999= Not Answered
Query guardians_other String 50 Recommended If "other" for previous question, please describe
Query income_level Integer Recommended Annual household income? 1::7; 999 1= <10,000; 2= 10-19,999; 3= 20-29,999; 4= 30-39,999; 5= 40-49,999; 6= >50,000; 7= Unknown; 999= Not Answered
Query ses_score Integer Recommended Social status code as calculated from Parent CARE form 1::5; 999 1= 8-19; 2= 20-29; 3= 30-39; 4= 40-54; 5= 55-66; 999= Not Answered
Query das1ms String 200 Recommended Marital status marital
Query educat Float Recommended Number of years in formal education 999=Unknown/Missing educyears
Query cbfmomedu_yr Integer Recommended Mother's Educational Level (Years of schooling) 888 = not applicable; 999 = missing momeducat
Query cbfdadedu_yr Integer Recommended Father's Educational Level (Years of schooling) 888 = not applicable; 999 = missing dadeducat
Query npread Integer Recommended Can participant read written material? 0;1 1 = Yes; 0 = No
Query clrblind Integer Recommended Is the participant colorblind 0;1 0=No; 1=Yes
Query handedness String 29 Recommended handedness R;L;B;999 R = Right; L = Left; B = Both
Query emplstat Integer Recommended employment in the past month 1::3 1=Unemployed (no school or work activity); on disability; homemaker w/ no dependent children (or other family member) in need of daily care-taking; or day program/day hospital attendance only; 2=Volunteer or temp job; sheltered or competitive part-time employment (<20 hrs/wk); full-time mother/father/caretaker of children (or other family member) in need of daily care-taking (e.g., a full-time stay-at-home mom); or part-time student; 3=Competitive employment (20+ hrs/wk); or multiple part-time jobs (20+ hrs/wk); or full-time student workscrn
Query curls Integer Recommended living situation 1::7 1=Correctional Facility; 2=Homeless Shelter; 3=Treatment Institution; 4=Supervised Facility; 5=Supervised Non-Facility; 6=Assisted/Supported; 7=Independent Living residscrn
Query tohenmod_loc Integer Recommended Tohen Modified Location Code Index. If multiple ratings possible, choose highest rating. 0::9 0 = Unknown or Missing; 1 = Head of household or functional household member; 2 = Alone or with peer; (also, living in a rented room); 3 = With family member under minimal supervision; 4 = Unsupervised boarding home; (also, college dorm or military barracks); 5 = Cooperative apartment; 6 = Halfway house; 7 = With family member under close supervision; 8 = Open quarter-way house OR transitional care unit on hospital grounds; 9 = Hospitalized OR Homeless
Query tohenmod_voc Integer Recommended Tohen Modified Vocational Status Index. If multiple ratings possible, choose highest rating 0::7 0 = Unknown or Missing; 1 = Full-time gainful employment; 2 = Full-time student OR homemaker OR mother/father/other caretaker of children (or other family member) in need of daily care-taking (e.g. full-time "stay-at-home mom"); 3 = Part-time student OR part-time gainful employment (30 hrs/wk or less); 4 = Retired; 5 = Full- or part-time volunteer; 6 = On medical or psychiatric leave of absence; 7 = Unemployed (whether or not expected to work)
birtharea Integer Recommended Birth Area 1::3 1=Town; 2=City; 3=Rural Area
educacat Integer Recommended Educational Level Catergory 1::10 1=Never Attended School (=0 years); 2=Some Grade School (=1-7 years); 3=Completed Grade School (=8 years); 4=Some High School (=9-11 years); 5=Completed High School (=12 years); 6=Completed Vocational / Trade / Technical School -OR- G.E.D. (=12 years, unless another # of years is specified); 7=Some College (=13-15 years); 8=Completed College (=16 years); 9=Some Graduate School (=17 years); 10=Completed Graduate School (=18+ years)
siblings Integer Recommended Does the child have any brothers and sisters with whom she/he does not live with? 0;1 0=No; 1=Yes
homeless Integer Recommended Homeless in past 6 months 0;1 0 = No; 1 = Yes
shelter Integer Recommended ever stay in shelter 0;1 0= no; 1= yes
caresetting Integer Recommended Participant's 'Current Care Setting,' At Time of Screening Visit 1::4 1=Inpatient (=inpatient hospitalization); 2=Outpatient (=rehabilitation program or PRP); 3=Day Hospital (=day hospital); 4=Other (=less level of care, i.e. an outpatient doctor)
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.