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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Demographics and Socioeconomic Status

demoses

01

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Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectparticipantid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age
sexString20RequiredSex of the subject
M;F
M = Male; F = Femalebirth.sex, gender
demoses01aIntegerRecommendedIn what ways do you regularly have access to the internet?: Smart Phone0;10= Unchecked; 1= Checked
demoses01bIntegerRecommendedIn what ways do you regularly have access to the internet?: Home computer, laptop, tablet, etc.0;10= Unchecked; 1= Checkedinternet_1
demoses01cIntegerRecommendedIn what ways do you regularly have access to the internet?: Work computer, laptop, tablet, etc0;10= Unchecked; 1= Checkedinternet_5
demoses01dIntegerRecommendedIn what ways do you regularly have access to the internet?: School computer, laptop, tablet, etc.0;10= Unchecked; 1= Checkedinternet_2
demoses01eIntegerRecommendedIn what ways do you regularly have access to the internet?: Friend's computer, laptop, tablet, etc.0;10= Unchecked; 1= Checkedinternet_3
demoses01fIntegerRecommendedIn what ways do you regularly have access to the internet?: Family member's computer, laptop, tablet, etc.0;10= Unchecked; 1= Checked
demoses01gIntegerRecommendedIn what ways do you regularly have access to the internet?: Library or internet cafe computer, laptop, tablet, smart phone, etc.0;10= Unchecked; 1= Checkedinternet_4
demoses01hIntegerRecommendedIn what ways do you regularly have access to the internet?: I generally do not have access to the internet0;10= Unchecked; 1= Checkedinternet_6
demoses01iIntegerRecommendedIn what ways do you regularly have access to the internet?: Other, please specify0;10= Unchecked; 1= Checked
demoses01jString50RecommendedSpecify other way used to regularly access internet
fi06IntegerRecommended6. Are you Spanish/Hispanic/Latino?0;1;97;980 = No; 1 = Yes; 97 = Refused; 98 = Don't knowlatin
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
demoses04IntegerRecommendedWhich best describes how you identify your sexual orientation?1::81= Asexual; 2= Bisexual; 3= Heterosexual/Straight; 4= Gay; 5= Lesbian; 6= Pansexual; 7= Questioning; 8= Other (please indicate)sexual_orientation
demoses05aIntegerRecommendedWhat is your current gender identity?: Man0;10= Unchecked; 1= Checkedgender.ident_man
demoses05bIntegerRecommendedWhat is your current gender identity?: Woman0;10= Unchecked; 1= Checkedgender.ident_woman
demoses05cIntegerRecommendedWhat is your current gender identity?: Transgender Man (Female to Male)0;10= Unchecked; 1= Checkedgender.ident_ftm
demoses05dIntegerRecommendedWhat is your current gender identity?: Transgender Woman (Male to Female)0;10= Unchecked; 1= Checkedgender.ident_mtf
demoses05eIntegerRecommendedWhat is your current gender identity?: Gender Queer0;10= Unchecked; 1= Checkedgender.ident_genderqueer
demoses05fIntegerRecommendedWhat is your current gender identity?: Gender Non-Conforming/Non-Binary0;10= Unchecked; 1= Checkedgender.ident_gnc_nonbinary
demoses05gIntegerRecommendedWhat is your current gender identity?: Two-spirit0;10= Unchecked; 1= Checkedgender.ident_twospirit
demoses05hIntegerRecommendedWhat is your current gender identity?: Hijra0;10= Unchecked; 1= Checkedgender.ident_hijra
demoses05iIntegerRecommendedWhat is your current gender identity?: Other (Please Specify)0;10= Unchecked; 1= Checkedgender.ident_other
demoses05jString50RecommendedSpecify other Gender Identitygender.ident_other_text
demoses06IntegerRecommendedWhat is your HIV status?1::31= HIV Negative; 2= HIV Positive; 3= HIV-Unknown
demoses07IntegerRecommendedAre you currently taking antiretroviral medications to manage your HIV?0::20= No; 1= Yes; 2= I don't know
demoses08IntegerRecommendedIs your viral load currently undetectable?0::20= No; 1= Yes; 2= I don't know
demoses09IntegerRecommendedHave you ever taken PrEP (pre-exposure prophylaxis) to reduce the likelihood of getting HIV1::41= Yes, I am currently taking HIV PrEP; 2= I am not currently taking HIV PrEP, but I have taken PrEP within the past 3 months; 3= I am not currently taking PrEP, but I have taken PrEP more than 3 months ago; 4= No; I have never taken HIV PrEP
demoses10IntegerRecommendedAbout how often do you take PrEP1::61= About 1-2 times per week; 2= About 3 times per week; 3= About 4 times per week; 4= About 5-6 times per week; 5= 7 times per week; 6= I don't take PrEP regularly enough to know
grade_highedString50RecommendedGrade/Highest education1 = Less than 6th grade; 2 = Some high school; 3 = High school diploma or GED; 4 = Some college, no degree; 5 = Associate's degree; 6 = Bachelor's degree; 7 = Some graduate school; 8 = Master's degree and above; 9=Some post-graduate training, no degree; 10=Completed 8th grade, no high school; 99=Information not available; 11= High schoo;l 12= College or University; 13= Graduate school; 14= Other; 15 = Less than high schoolgrade.level_self
demoses12IntegerRecommendedWhat is the highest grade of school your mother ( or primary female guardian growing up) completed?1::91= Less than High School; 2= Some High School; 3= High School diploma or GED; 4= Some college without obtaining a degree; 5= An Associate's degree; 6= 4-Year college degree; 7= Some Graduate degree school without obtaining a degree; 8= Master's degree; 9= Advanced graduate school degree (Ph.D, M.D., J.D.)grade.level_mother
demoses13IntegerRecommendedWhat is the highest grade of school your father ( or primary male guardian growing up) completed?1::91= Less than High School; 2= Some High School; 3= High School diploma or GED; 4= Some college without obtaining a degree; 5= An Associate's degree; 6= 4-Year college degree; 7= Some Graduate degree school without obtaining a degree; 8= Master's degree; 9= Advanced graduate school degree (Ph.D, M.D., J.D.)grade.level_father
demoses14IntegerRecommendedWhich of the following best describes your current employment status?1::81= Full-Time (40 hours per week); 2= Part-Time (Less than 40 hours per week); 3= Full-Time Student; 4= Temporary/Occasional work; 5= Permanently or temporarily disabled and not working; 6= Permanently or temporarily disabled but working off the books; 7= Unemployed- Student; 8= Unemployed-Otheremployment.status
demoses15IntegerRecommendedDo you receive income from a source other than work?0;10= No; 1= Yesalt.income
demoses16aIntegerRecommendedFrom what other sources do you receive income?: Retirement account0;10= Unchecked; 1= Checkedalt.income.source_retirement
demoses16bIntegerRecommendedFrom what other sources do you receive income?: Federal or State Aid0;10= Unchecked; 1= Checkedalt.income.source_fed.state.aid
demoses16cIntegerRecommendedFrom what other sources do you receive income?: Disability Insurance0;10= Unchecked; 1= Checkedalt.income.source_disability
demoses16dIntegerRecommendedFrom what other sources do you receive income?: Investment Income0;10= Unchecked; 1= Checkedalt.income.source_investments
demoses16eIntegerRecommendedFrom what other sources do you receive income?: Personal savings0;10= Unchecked; 1= Checkedalt.income.source_savings
demoses16fIntegerRecommendedFrom what other sources do you receive income?: Family Financial Support0;10= Unchecked; 1= Checkedalt.income.source_family
demoses16gIntegerRecommendedFrom what other sources do you receive income?: Academic Financial support (e.g. work-study, student loans, scholarships)0;10= Unchecked; 1= Checkedalt.income.source_academic
demoses16hIntegerRecommendedFrom what other sources do you receive income?: Inheritance0;10= Unchecked; 1= Checkedalt.income.source_inheritance
demoses16iIntegerRecommendedFrom what other sources do you receive income?: Other, please specify0;10= Unchecked; 1= Checkedalt.income.source_other
demoses16jString50RecommendedPleasee specify other source of incomealt.income.source_specify
earningsIntegerRecommendedannual personal income earning1::9;-71=less than $10,000; 2=$10,000-$19,999; 3=$20,000-$29,999; 4-$30,000-$39,999; 5=$40,000-$49,999; 6=$50,000-$74,999; 7=$75,000-$99,999; 8=$100,000-$149,999; 9=$150,000 or more; -7=Refusedpersonal.income
demoses18IntegerRecommendedWhat do you consider your parents' (or legal guaridans') class background?1::61= Poor; 2= Working Class; 3= Lower Middle Class; 4= Middle Class; 5= Upper Middle Class; 6= Richfamily.class.background
demo_8IntegerRecommendedWhat is the best estimate of the total income of ALL family members from all sources, before taxes, in the last calendar year? (Please choose)1::11; 99991= $0 - $10,000; 2= $10,000 - $20,0000; 3= $20,000 - $30,000; 4= $30,000 - $40,000; 5= $40,000 - $50,000; 6= $50,000 - $60,000; 7= $60,000 - $70,000; 8= $70,000 - $80,000; 9= $80,000 - $90,000; 10= $90,000 - $100, 000; 11= Greater than $100,000; 9999= no data
demoses20IntegerRecommendedWhen you were a child, how hard was it for your family to pay for the very basics, like food, housing, medical care, and utilities?1::31= Very Hard; 2= Somewhat hard; 3= Not very hardfamily.ses
demoses21IntegerRecommendedOn a scale of 1 to 5; how do you feel about your current financial situation?1::51= Always worry about it; 5= Never worry about itfinances.worry
demoses22aIntegerRecommendedWhich of the following best describes your current living situation?1::181= Alone in a house/ apartment that I own; 2= Alone in a house/ apartment that I rent; 3= With parents or guardians in a house/ apartment they own; 4= With parents or guardians in a house/ apartment they rent; 5= With other relatives in a house/ apartment they own; 6= With other relatives in a house/ apartment they rent; 7= With friends in a house/ apartment they own; 8= With friends in a house/ apartment they rent; 9= With domestic partner/ lover in a house/ apartment we own; 10= With domestic partner/ lover in a house/ apartment we rent; 11= In a school dormitory alone; 12= In a school dormitory with roommates; 13= In a shelter/ halfway home; 14= In a rehabilitation facility; 15= In a residential hotel; 16= Homeless/ Unstably housed; 17= Other (Please specify)living.situation.current
currestxString100RecommendedOther living situation, describedemoses22b, living.situation.current_text
demoses23IntegerRecommendedHow long has this been your living situation1::71= Less than six months; 2= Six months to a year; 3= One to two years; 4= Two to four years; 5= Four to eight years; 6= Eight to ten years; 7= More than Ten yearsliving.situation.time
demoses24aIntegerRecommendedWhich best describes your current access to transportation?1::71= I own my own vehicle; 2= I lease a vehicle; 3= I share a vehicle with a family member or partner; 4= I use public transportation; 5= I rely on a family member or friend for transportation; 6= 6= I do not have access to transportation; 7= Other, please specifytransport.access
demoses24bString50RecommendedSpecify other access to transportationtransport.access_text
demoses25IntegerRecommendedIn the past twelve months, did you delay receiving medical care because of cost?0;10= No; 1= Yesses_healthcare.delay
demoses26IntegerRecommendedAbout how long has it been since you last saw or talked to a doctor or other health care professional about your own health? Include doctors while seen as a patient at a hospital1::71= Never; 2= 6 months or less; 3= More than 6 months, but no more than 1 year ago; 4= More than 1 year , but no more than 2 years ago; 5= More than 2 years, but not more than 5 years ago; 6= More than 5 years ago; 7= Don't knowses_healthcare.lastcheck
demoses27IntegerRecommendedDuring the past 3 years, did you try to purchase health insurance directly, that is, not through any employer, union or government programs0;10= No; 1= Yesses_healthcare.insurance
food_lastingIntegerRecommendedThe food that we bought just didn't last, and we didn't have money to get more0::40=Never True; 2=Sometimes True; 4=Often Truedemoses28, ses_food.secure_1
demoses29IntegerRecommendedI/we couldn't afford to eat balanced meals. Was that often, sometimes, or never true for you/your household1::31= Often True; 2= Sometimes true; 3= Never Trueses_food.secure_2
food_mealcutIntegerRecommendedIn the last 12 months, did you or other adults in your household ever cut the size of your meals or skip meals because there wasn't enough money for food?0;10=No; 1=Yesdemoses30, ses_food.secure_3
demoses31IntegerRecommendedHow often did you cut the size of your meals or skip meals because there wasn't enough money for food?1::41= Almost every month; 2= Some months but not every month; 3= Only 1 or 2 months; 4= I don't knowses_food.secure_3a
fseatfIntegerRecommendedIn the last 12 months, did you ever eat less than you felt you should because there wasn't enough money for food?1::31= Yes; 2= No; 3= Don't knowdemoses32, ses_food.secure_4
food_hungryIntegerRecommendedIn the last 12 months, were you ever hungry but didn't eat because there wasn't enough money for food?0=No; 1=Yesdemoses33, ses_food.secure_5
nimh_rv_dem_03IntegerRecommendedCurrent gender identity0::50=Male; 1=Female; 2=Trans male/Trans man; 3=Trans female/Trans woman; 4=Genderqueer/Gender non-conforming; 5=Different identity
online03IntegerRecommendedDo you have daily personal internet access0;10= No; 1= Yes
selfinj01IntegerRecommendedHow many times in the past 3 months/past week have you engaged in self-harm behavior (e.g., cutting, biting, burning, hitting self) with the intent of harming, but not killing, yourself?
rel_organizedString50RecommendedSpecify "other organized religionreligious.affiliation
hcae01String20RecommendedHow confident are you that you could find a LGBTQ-affirmative mental health care provider if you wanted to?1= Not Confident; 5= Very Confidenthc_1
hcae02IntegerRecommendedIn the past year, have you been discriminated against or treated poorly by a mental health care provider?0;10= No; 1= Yeshc_2
hcae03IntegerRecommendedIn your lifetime, has a mental health care provider ever refused to give you care because of your sexual orientation?0;10= No; 1= Yeshc_3
hcae04IntegerRecommendedWas there a time in the past 12 months when you needed to see a doctor but did not because you thought you would be disrespected or mistreated because of your sexual orientation?0;10= No; 1= Yeshc_4
hcae05IntegerRecommendedDid any professional (such as a psychologist, counselor, or religious advisor) ever try to change your sexual orientation or who you are attracted to (such as try to make you straight/heterosexual)?0;10= No; 1= Yeshc_5
timepoint_labelString5RecommendedTimepoint/visit labelassessment.c
self_sesIntegerRecommendedHow hard is it for you to pay for the very basics, like food, housing, medical care, and utilities now?1::31 = Very hard; 2 = Somewhat hard; 3 = Not very hardself.ses
geo_areaIntegerRecommendedWhich type of area did you grow up in?1::51 = Large central city (population over 250,000); 2 = Medium size city (population 50,000-250,000); 3 = Suburb of a large or medium size city; 4 = Small city (population 10,000-50,000); 5 = Town/village or unincorporated areageographic.area
sexual_or_descripString50RecommendedWhat is your sexual orientation?sexual_orientation_descrip, sexual_orientation_text
condition_cIntegerRecommendedPatient Condition0::20 = Control; 1 = Self-Affirmation; 2 = Expressive Writingcondition.c
rel_aff_toleranceIntegerRecommendedHow tolerant is your religion toward your sexual orientation?1::71 = Completely tolerant and accepting; 2 = Mostly tolerant and accepting; 3 = Somewhat tolerant and accepting; 4 = Neither accepting nor rejecting; 5 = Somewhat hostile and rejecting; 6 = Mostly hostile and rejecting; 7 = Completely hostile and rejectingreligion.affiliation_tolerance, religion_affiliation_tolerance
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: demoses01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.