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Description
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Data Structures with shared data
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Demographics and Socioeconomic Status

109 Shared Subjects

N/A
Clinical Assessments
Demographics
10/01/2018
demoses01
11/15/2022
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project participantid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age
sex String 20 Required Sex of subject at birth
M;F; O; NR
M = Male; F = Female; O=Other; NR = Not reported birth.sex, gender
demoses01a Integer Recommended In what ways do you regularly have access to the internet?: Smart Phone 0;1 0= Unchecked; 1= Checked
demoses01b Integer Recommended In what ways do you regularly have access to the internet?: Home computer, laptop, tablet, etc. 0;1 0= Unchecked; 1= Checked internet_1
demoses01c Integer Recommended In what ways do you regularly have access to the internet?: Work computer, laptop, tablet, etc 0;1 0= Unchecked; 1= Checked internet_5
demoses01d Integer Recommended In what ways do you regularly have access to the internet?: School computer, laptop, tablet, etc. 0;1 0= Unchecked; 1= Checked internet_2
demoses01e Integer Recommended In what ways do you regularly have access to the internet?: Friend's computer, laptop, tablet, etc. 0;1 0= Unchecked; 1= Checked internet_3
demoses01f Integer Recommended In what ways do you regularly have access to the internet?: Family member's computer, laptop, tablet, etc. 0;1 0= Unchecked; 1= Checked
demoses01g Integer Recommended In what ways do you regularly have access to the internet?: Library or internet cafe computer, laptop, tablet, smart phone, etc. 0;1 0= Unchecked; 1= Checked internet_4
demoses01h Integer Recommended In what ways do you regularly have access to the internet?: I generally do not have access to the internet 0;1 0= Unchecked; 1= Checked internet_6
demoses01i Integer Recommended In what ways do you regularly have access to the internet?: Other, please specify 0;1 0= Unchecked; 1= Checked
demoses01j String 50 Recommended Specify other way used to regularly access internet
fi06 Integer Recommended 6. Are you Spanish/Hispanic/Latino? 0;1;97;98 0 = No; 1 = Yes; 97 = Refused; 98 = Don't know latin
race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
demoses04 Integer Recommended Which best describes how you identify your sexual orientation? 1::8 1= Asexual; 2= Bisexual; 3= Heterosexual/Straight; 4= Gay; 5= Lesbian; 6= Pansexual; 7= Questioning; 8= Other (please indicate) sexual_orientation
demoses05a Integer Recommended What is your current gender identity?: Man 0;1 0= Unchecked; 1= Checked gender.ident_man
demoses05b Integer Recommended What is your current gender identity?: Woman 0;1 0= Unchecked; 1= Checked gender.ident_woman
demoses05c Integer Recommended What is your current gender identity?: Transgender Man (Female to Male) 0;1 0= Unchecked; 1= Checked gender.ident_ftm
demoses05d Integer Recommended What is your current gender identity?: Transgender Woman (Male to Female) 0;1 0= Unchecked; 1= Checked gender.ident_mtf
demoses05e Integer Recommended What is your current gender identity?: Gender Queer 0;1 0= Unchecked; 1= Checked gender.ident_genderqueer
demoses05f Integer Recommended What is your current gender identity?: Gender Non-Conforming/Non-Binary 0;1 0= Unchecked; 1= Checked gender.ident_gnc_nonbinary
demoses05g Integer Recommended What is your current gender identity?: Two-spirit 0;1 0= Unchecked; 1= Checked gender.ident_twospirit
demoses05h Integer Recommended What is your current gender identity?: Hijra 0;1 0= Unchecked; 1= Checked gender.ident_hijra
demoses05i Integer Recommended What is your current gender identity?: Other (Please Specify) 0;1 0= Unchecked; 1= Checked gender.ident_other
demoses05j String 50 Recommended Specify other Gender Identity gender.ident_other_text
demoses06 Integer Recommended What is your HIV status? 1::3 1= HIV Negative; 2= HIV Positive; 3= HIV-Unknown
demoses07 Integer Recommended Are you currently taking antiretroviral medications to manage your HIV? 0::2 0= No; 1= Yes; 2= I don't know
demoses08 Integer Recommended Is your viral load currently undetectable? 0::2 0= No; 1= Yes; 2= I don't know
demoses09 Integer Recommended Have you ever taken PrEP (pre-exposure prophylaxis) to reduce the likelihood of getting HIV 1::4 1= Yes, I am currently taking HIV PrEP; 2= I am not currently taking HIV PrEP, but I have taken PrEP within the past 3 months; 3= I am not currently taking PrEP, but I have taken PrEP more than 3 months ago; 4= No; I have never taken HIV PrEP
demoses10 Integer Recommended About how often do you take PrEP 1::6 1= About 1-2 times per week; 2= About 3 times per week; 3= About 4 times per week; 4= About 5-6 times per week; 5= 7 times per week; 6= I don't take PrEP regularly enough to know
grade_highed String 50 Recommended Grade/Highest education 1 = Less than 6th grade; 2 = Some high school; 3 = High school diploma or GED; 4 = Some college, no degree; 5 = Associate's degree; 6 = Bachelor's degree; 7 = Some graduate school; 8 = Master's degree and above; 9=Some post-graduate training, no degree; 10=Completed 8th grade, no high school; 99=Information not available; 11= High schoo;l 12= College or University; 13= Graduate school; 14= Other; 15 = Less than high school grade.level_self
demoses12 Integer Recommended What is the highest grade of school your mother ( or primary female guardian growing up) completed? 1::9 1= Less than High School; 2= Some High School; 3= High School diploma or GED; 4= Some college without obtaining a degree; 5= An Associate's degree; 6= 4-Year college degree; 7= Some Graduate degree school without obtaining a degree; 8= Master's degree; 9= Advanced graduate school degree (Ph.D, M.D., J.D.) grade.level_mother
demoses13 Integer Recommended What is the highest grade of school your father ( or primary male guardian growing up) completed? 1::9 1= Less than High School; 2= Some High School; 3= High School diploma or GED; 4= Some college without obtaining a degree; 5= An Associate's degree; 6= 4-Year college degree; 7= Some Graduate degree school without obtaining a degree; 8= Master's degree; 9= Advanced graduate school degree (Ph.D, M.D., J.D.) grade.level_father
demoses14 Integer Recommended Which of the following best describes your current employment status? 1::8 1= Full-Time (40 hours per week); 2= Part-Time (Less than 40 hours per week); 3= Full-Time Student; 4= Temporary/Occasional work; 5= Permanently or temporarily disabled and not working; 6= Permanently or temporarily disabled but working off the books; 7= Unemployed- Student; 8= Unemployed-Other employment.status
demoses15 Integer Recommended Do you receive income from a source other than work? 0;1 0= No; 1= Yes alt.income
demoses16a Integer Recommended From what other sources do you receive income?: Retirement account 0;1 0= Unchecked; 1= Checked alt.income.source_retirement
demoses16b Integer Recommended From what other sources do you receive income?: Federal or State Aid 0;1 0= Unchecked; 1= Checked alt.income.source_fed.state.aid
demoses16c Integer Recommended From what other sources do you receive income?: Disability Insurance 0;1 0= Unchecked; 1= Checked alt.income.source_disability
demoses16d Integer Recommended From what other sources do you receive income?: Investment Income 0;1 0= Unchecked; 1= Checked alt.income.source_investments
demoses16e Integer Recommended From what other sources do you receive income?: Personal savings 0;1 0= Unchecked; 1= Checked alt.income.source_savings
demoses16f Integer Recommended From what other sources do you receive income?: Family Financial Support 0;1 0= Unchecked; 1= Checked alt.income.source_family
demoses16g Integer Recommended From what other sources do you receive income?: Academic Financial support (e.g. work-study, student loans, scholarships) 0;1 0= Unchecked; 1= Checked alt.income.source_academic
demoses16h Integer Recommended From what other sources do you receive income?: Inheritance 0;1 0= Unchecked; 1= Checked alt.income.source_inheritance
demoses16i Integer Recommended From what other sources do you receive income?: Other, please specify 0;1 0= Unchecked; 1= Checked alt.income.source_other
demoses16j String 50 Recommended Pleasee specify other source of income alt.income.source_specify
earnings Integer Recommended annual personal income earning 1::9;-7 1=less than $10,000; 2=$10,000-$19,999; 3=$20,000-$29,999; 4-$30,000-$39,999; 5=$40,000-$49,999; 6=$50,000-$74,999; 7=$75,000-$99,999; 8=$100,000-$149,999; 9=$150,000 or more; -7=Refused personal.income
demoses18 Integer Recommended What do you consider your parents' (or legal guaridans') class background? 1::6 1= Poor; 2= Working Class; 3= Lower Middle Class; 4= Middle Class; 5= Upper Middle Class; 6= Rich family.class.background
demo_8 Integer Recommended What is the best estimate of the total income of ALL family members from all sources, before taxes, in the last calendar year? (Please choose) 1::11; 9999 1= $0 - $10,000; 2= $10,000 - $20,0000; 3= $20,000 - $30,000; 4= $30,000 - $40,000; 5= $40,000 - $50,000; 6= $50,000 - $60,000; 7= $60,000 - $70,000; 8= $70,000 - $80,000; 9= $80,000 - $90,000; 10= $90,000 - $100, 000; 11= Greater than $100,000; 9999= no data
demoses20 Integer Recommended When you were a child, how hard was it for your family to pay for the very basics, like food, housing, medical care, and utilities? 1::3 1= Very Hard; 2= Somewhat hard; 3= Not very hard family.ses
demoses21 Integer Recommended On a scale of 1 to 5; how do you feel about your current financial situation? 1::5 1= Always worry about it; 5= Never worry about it finances.worry
demoses22a Integer Recommended Which of the following best describes your current living situation? 1::18 1= Alone in a house/ apartment that I own; 2= Alone in a house/ apartment that I rent; 3= With parents or guardians in a house/ apartment they own; 4= With parents or guardians in a house/ apartment they rent; 5= With other relatives in a house/ apartment they own; 6= With other relatives in a house/ apartment they rent; 7= With friends in a house/ apartment they own; 8= With friends in a house/ apartment they rent; 9= With domestic partner/ lover in a house/ apartment we own; 10= With domestic partner/ lover in a house/ apartment we rent; 11= In a school dormitory alone; 12= In a school dormitory with roommates; 13= In a shelter/ halfway home; 14= In a rehabilitation facility; 15= In a residential hotel; 16= Homeless/ Unstably housed; 17= Other (Please specify) living.situation.current
currestx String 100 Recommended Other living situation, describe demoses22b, living.situation.current_text
demoses23 Integer Recommended How long has this been your living situation 1::7 1= Less than six months; 2= Six months to a year; 3= One to two years; 4= Two to four years; 5= Four to eight years; 6= Eight to ten years; 7= More than Ten years living.situation.time
demoses24a Integer Recommended Which best describes your current access to transportation? 1::7 1= I own my own vehicle; 2= I lease a vehicle; 3= I share a vehicle with a family member or partner; 4= I use public transportation; 5= I rely on a family member or friend for transportation; 6= 6= I do not have access to transportation; 7= Other, please specify transport.access
demoses24b String 50 Recommended Specify other access to transportation transport.access_text
demoses25 Integer Recommended In the past twelve months, did you delay receiving medical care because of cost? 0;1 0= No; 1= Yes ses_healthcare.delay
demoses26 Integer Recommended About how long has it been since you last saw or talked to a doctor or other health care professional about your own health? Include doctors while seen as a patient at a hospital 1::7 1= Never; 2= 6 months or less; 3= More than 6 months, but no more than 1 year ago; 4= More than 1 year , but no more than 2 years ago; 5= More than 2 years, but not more than 5 years ago; 6= More than 5 years ago; 7= Don't know ses_healthcare.lastcheck
demoses27 Integer Recommended During the past 3 years, did you try to purchase health insurance directly, that is, not through any employer, union or government programs 0;1 0= No; 1= Yes ses_healthcare.insurance
food_lasting Integer Recommended The food that we bought just didn't last, and we didn't have money to get more 0::4 0=Never True; 2=Sometimes True; 4=Often True demoses28, ses_food.secure_1
demoses29 Integer Recommended I/we couldn't afford to eat balanced meals. Was that often, sometimes, or never true for you/your household 1::3 1= Often True; 2= Sometimes true; 3= Never True ses_food.secure_2
food_mealcut Integer Recommended In the last 12 months, did you or other adults in your household ever cut the size of your meals or skip meals because there wasn't enough money for food? 0;1 0=No; 1=Yes demoses30, ses_food.secure_3
demoses31 Integer Recommended How often did you cut the size of your meals or skip meals because there wasn't enough money for food? 1::4 1= Almost every month; 2= Some months but not every month; 3= Only 1 or 2 months; 4= I don't know ses_food.secure_3a
fseatf Integer Recommended In the last 12 months, did you ever eat less than you felt you should because there wasn't enough money for food? 1::3 1= Yes; 2= No; 3= Don't know demoses32, ses_food.secure_4
food_hungry Integer Recommended In the last 12 months, were you ever hungry but didn't eat because there wasn't enough money for food? 0=No; 1=Yes demoses33, ses_food.secure_5
nimh_rv_dem_03 Integer Recommended Current gender identity 0::8 0=Male; 1=Female; 2=Trans male/Trans man; 3=Trans female/Trans woman; 4=Genderqueer or Gender non-conforming; 5=Different identity; 6 = Non-binary; 7 = Refused; 8 = Don't Know
online03 Integer Recommended Do you have daily personal internet access 0;1 0= No; 1= Yes
selfinj01 Integer Recommended How many times in the past 3 months/past week have you engaged in self-harm behavior (e.g., cutting, biting, burning, hitting self) with the intent of harming, but not killing, yourself?
rel_organized String 50 Recommended Specify "other organized religion religious.affiliation
hcae01 String 20 Recommended How confident are you that you could find a LGBTQ-affirmative mental health care provider if you wanted to? 1= Not Confident; 5= Very Confident hc_1
hcae02 Integer Recommended In the past year, have you been discriminated against or treated poorly by a mental health care provider? 0;1 0= No; 1= Yes hc_2
hcae03 Integer Recommended In your lifetime, has a mental health care provider ever refused to give you care because of your sexual orientation? 0;1 0= No; 1= Yes hc_3
hcae04 Integer Recommended Was there a time in the past 12 months when you needed to see a doctor but did not because you thought you would be disrespected or mistreated because of your sexual orientation? 0;1 0= No; 1= Yes hc_4
hcae05 Integer Recommended Did any professional (such as a psychologist, counselor, or religious advisor) ever try to change your sexual orientation or who you are attracted to (such as try to make you straight/heterosexual)? 0;1 0= No; 1= Yes hc_5
timepoint_label String 50 Recommended Timepoint/visit label assessment.c
self_ses Integer Recommended How hard is it for you to pay for the very basics, like food, housing, medical care, and utilities now? 1::3 1 = Very hard; 2 = Somewhat hard; 3 = Not very hard self.ses
geo_area Integer Recommended Which type of area did you grow up in? 1::5 1 = Large central city (population over 250,000); 2 = Medium size city (population 50,000-250,000); 3 = Suburb of a large or medium size city; 4 = Small city (population 10,000-50,000); 5 = Town/village or unincorporated area geographic.area
sexual_or_descrip String 100 Recommended What is your sexual orientation? sexual_orientation_descrip, sexual_orientation_text
condition_c Integer Recommended Patient Condition 0::2 0 = Control; 1 = Self-Affirmation; 2 = Expressive Writing condition.c
rel_aff_tolerance Integer Recommended How tolerant is your religion toward your sexual orientation? 1::7 1 = Completely tolerant and accepting; 2 = Mostly tolerant and accepting; 3 = Somewhat tolerant and accepting; 4 = Neither accepting nor rejecting; 5 = Somewhat hostile and rejecting; 6 = Mostly hostile and rejecting; 7 = Completely hostile and rejecting religion.affiliation_tolerance, religion_affiliation_tolerance
ethnicity String 30 Recommended Ethnicity of participant Hispanic or Latino; Not Hispanic or Latino; Unknown
edutot Float Recommended Total years of education
mother_edu_years Float Recommended Mother's years of education 101=Missing
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
num_child Integer Recommended Do you have any children? Number of children (0 if none)
socdem_life07 Integer Recommended How long have you been staying in the United States? Number of Years
socdem_life08 Integer Recommended Do you consume any alcoholic beverages? 0 :: 2 0= Never; 1= Yes, Currently; 2= Yes, In the past
socdem_life09 Integer Recommended Do you smoke? 0 :: 2 0= Never; 1= Yes, Currently; 2= Yes, In the past
digs_mania_sev_sleep_hours Integer Recommended How many hours of sleep did you get per night? Hours
psychosis_demo3 Integer Recommended Marital Status: What is your current marital status? 1::4 1 = Presently Married (or in conjugal relationship) ; 2 = Widowed ; 3 = Divorced / Separated ; 4 = Never Married/Single
socdem_life01 Integer Recommended Education 1 :: 7 1= Illiterate; 2= Primary School Education; 3= Middle School Education; 4= High School Education; 5= Undergraduate; 6= Graduate; 7= Other
socdem_life02 String 50 Recommended Education: Specify
socdem_life03 Integer Recommended Occupation/Job 1 :: 3 1= Unemployed; 2= Employed (specify); 3= Other (specify)
socdem_life04 String 50 Recommended Occupation/Job: Specify
socdem_life05 Integer Recommended How many family members do you have at your residence?
socdem_life06 Integer Recommended Do you have any children? 0 :: 2 0= No; 1= Yes (specify); 3= NA/Unmarried
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

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  • Description: A basic description
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