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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Demographics and Socioeconomic Status

109 Shared Subjects

N/A
Clinical Assessments
Demographics
10/01/2018
demoses01
08/19/2019
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project participantid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age
sex String 20 Required Sex of the subject
M;F; O; NR
M = Male; F = Female; O=Other; NR = Not reported birth.sex, gender
demoses01a Integer Recommended In what ways do you regularly have access to the internet?: Smart Phone 0;1 0= Unchecked; 1= Checked
demoses01b Integer Recommended In what ways do you regularly have access to the internet?: Home computer, laptop, tablet, etc. 0;1 0= Unchecked; 1= Checked internet_1
demoses01c Integer Recommended In what ways do you regularly have access to the internet?: Work computer, laptop, tablet, etc 0;1 0= Unchecked; 1= Checked internet_5
demoses01d Integer Recommended In what ways do you regularly have access to the internet?: School computer, laptop, tablet, etc. 0;1 0= Unchecked; 1= Checked internet_2
demoses01e Integer Recommended In what ways do you regularly have access to the internet?: Friend's computer, laptop, tablet, etc. 0;1 0= Unchecked; 1= Checked internet_3
demoses01f Integer Recommended In what ways do you regularly have access to the internet?: Family member's computer, laptop, tablet, etc. 0;1 0= Unchecked; 1= Checked
demoses01g Integer Recommended In what ways do you regularly have access to the internet?: Library or internet cafe computer, laptop, tablet, smart phone, etc. 0;1 0= Unchecked; 1= Checked internet_4
demoses01h Integer Recommended In what ways do you regularly have access to the internet?: I generally do not have access to the internet 0;1 0= Unchecked; 1= Checked internet_6
demoses01i Integer Recommended In what ways do you regularly have access to the internet?: Other, please specify 0;1 0= Unchecked; 1= Checked
demoses01j String 50 Recommended Specify other way used to regularly access internet
fi06 Integer Recommended 6. Are you Spanish/Hispanic/Latino? 0;1;97;98 0 = No; 1 = Yes; 97 = Refused; 98 = Don't know latin
race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
demoses04 Integer Recommended Which best describes how you identify your sexual orientation? 1::8 1= Asexual; 2= Bisexual; 3= Heterosexual/Straight; 4= Gay; 5= Lesbian; 6= Pansexual; 7= Questioning; 8= Other (please indicate) sexual_orientation
demoses05a Integer Recommended What is your current gender identity?: Man 0;1 0= Unchecked; 1= Checked gender.ident_man
demoses05b Integer Recommended What is your current gender identity?: Woman 0;1 0= Unchecked; 1= Checked gender.ident_woman
demoses05c Integer Recommended What is your current gender identity?: Transgender Man (Female to Male) 0;1 0= Unchecked; 1= Checked gender.ident_ftm
demoses05d Integer Recommended What is your current gender identity?: Transgender Woman (Male to Female) 0;1 0= Unchecked; 1= Checked gender.ident_mtf
demoses05e Integer Recommended What is your current gender identity?: Gender Queer 0;1 0= Unchecked; 1= Checked gender.ident_genderqueer
demoses05f Integer Recommended What is your current gender identity?: Gender Non-Conforming/Non-Binary 0;1 0= Unchecked; 1= Checked gender.ident_gnc_nonbinary
demoses05g Integer Recommended What is your current gender identity?: Two-spirit 0;1 0= Unchecked; 1= Checked gender.ident_twospirit
demoses05h Integer Recommended What is your current gender identity?: Hijra 0;1 0= Unchecked; 1= Checked gender.ident_hijra
demoses05i Integer Recommended What is your current gender identity?: Other (Please Specify) 0;1 0= Unchecked; 1= Checked gender.ident_other
demoses05j String 50 Recommended Specify other Gender Identity gender.ident_other_text
demoses06 Integer Recommended What is your HIV status? 1::3 1= HIV Negative; 2= HIV Positive; 3= HIV-Unknown
demoses07 Integer Recommended Are you currently taking antiretroviral medications to manage your HIV? 0::2 0= No; 1= Yes; 2= I don't know
demoses08 Integer Recommended Is your viral load currently undetectable? 0::2 0= No; 1= Yes; 2= I don't know
demoses09 Integer Recommended Have you ever taken PrEP (pre-exposure prophylaxis) to reduce the likelihood of getting HIV 1::4 1= Yes, I am currently taking HIV PrEP; 2= I am not currently taking HIV PrEP, but I have taken PrEP within the past 3 months; 3= I am not currently taking PrEP, but I have taken PrEP more than 3 months ago; 4= No; I have never taken HIV PrEP
demoses10 Integer Recommended About how often do you take PrEP 1::6 1= About 1-2 times per week; 2= About 3 times per week; 3= About 4 times per week; 4= About 5-6 times per week; 5= 7 times per week; 6= I don't take PrEP regularly enough to know
grade_highed String 50 Recommended Grade/Highest education 1 = Less than 6th grade; 2 = Some high school; 3 = High school diploma or GED; 4 = Some college, no degree; 5 = Associate's degree; 6 = Bachelor's degree; 7 = Some graduate school; 8 = Master's degree and above; 9=Some post-graduate training, no degree; 10=Completed 8th grade, no high school; 99=Information not available; 11= High schoo;l 12= College or University; 13= Graduate school; 14= Other; 15 = Less than high school grade.level_self
demoses12 Integer Recommended What is the highest grade of school your mother ( or primary female guardian growing up) completed? 1::9 1= Less than High School; 2= Some High School; 3= High School diploma or GED; 4= Some college without obtaining a degree; 5= An Associate's degree; 6= 4-Year college degree; 7= Some Graduate degree school without obtaining a degree; 8= Master's degree; 9= Advanced graduate school degree (Ph.D, M.D., J.D.) grade.level_mother
demoses13 Integer Recommended What is the highest grade of school your father ( or primary male guardian growing up) completed? 1::9 1= Less than High School; 2= Some High School; 3= High School diploma or GED; 4= Some college without obtaining a degree; 5= An Associate's degree; 6= 4-Year college degree; 7= Some Graduate degree school without obtaining a degree; 8= Master's degree; 9= Advanced graduate school degree (Ph.D, M.D., J.D.) grade.level_father
demoses14 Integer Recommended Which of the following best describes your current employment status? 1::8 1= Full-Time (40 hours per week); 2= Part-Time (Less than 40 hours per week); 3= Full-Time Student; 4= Temporary/Occasional work; 5= Permanently or temporarily disabled and not working; 6= Permanently or temporarily disabled but working off the books; 7= Unemployed- Student; 8= Unemployed-Other employment.status
demoses15 Integer Recommended Do you receive income from a source other than work? 0;1 0= No; 1= Yes alt.income
demoses16a Integer Recommended From what other sources do you receive income?: Retirement account 0;1 0= Unchecked; 1= Checked alt.income.source_retirement
demoses16b Integer Recommended From what other sources do you receive income?: Federal or State Aid 0;1 0= Unchecked; 1= Checked alt.income.source_fed.state.aid
demoses16c Integer Recommended From what other sources do you receive income?: Disability Insurance 0;1 0= Unchecked; 1= Checked alt.income.source_disability
demoses16d Integer Recommended From what other sources do you receive income?: Investment Income 0;1 0= Unchecked; 1= Checked alt.income.source_investments
demoses16e Integer Recommended From what other sources do you receive income?: Personal savings 0;1 0= Unchecked; 1= Checked alt.income.source_savings
demoses16f Integer Recommended From what other sources do you receive income?: Family Financial Support 0;1 0= Unchecked; 1= Checked alt.income.source_family
demoses16g Integer Recommended From what other sources do you receive income?: Academic Financial support (e.g. work-study, student loans, scholarships) 0;1 0= Unchecked; 1= Checked alt.income.source_academic
demoses16h Integer Recommended From what other sources do you receive income?: Inheritance 0;1 0= Unchecked; 1= Checked alt.income.source_inheritance
demoses16i Integer Recommended From what other sources do you receive income?: Other, please specify 0;1 0= Unchecked; 1= Checked alt.income.source_other
demoses16j String 50 Recommended Pleasee specify other source of income alt.income.source_specify
earnings Integer Recommended annual personal income earning 1::9;-7 1=less than $10,000; 2=$10,000-$19,999; 3=$20,000-$29,999; 4-$30,000-$39,999; 5=$40,000-$49,999; 6=$50,000-$74,999; 7=$75,000-$99,999; 8=$100,000-$149,999; 9=$150,000 or more; -7=Refused personal.income
demoses18 Integer Recommended What do you consider your parents' (or legal guaridans') class background? 1::6 1= Poor; 2= Working Class; 3= Lower Middle Class; 4= Middle Class; 5= Upper Middle Class; 6= Rich family.class.background
demo_8 Integer Recommended What is the best estimate of the total income of ALL family members from all sources, before taxes, in the last calendar year? (Please choose) 1::11; 9999 1= $0 - $10,000; 2= $10,000 - $20,0000; 3= $20,000 - $30,000; 4= $30,000 - $40,000; 5= $40,000 - $50,000; 6= $50,000 - $60,000; 7= $60,000 - $70,000; 8= $70,000 - $80,000; 9= $80,000 - $90,000; 10= $90,000 - $100, 000; 11= Greater than $100,000; 9999= no data
demoses20 Integer Recommended When you were a child, how hard was it for your family to pay for the very basics, like food, housing, medical care, and utilities? 1::3 1= Very Hard; 2= Somewhat hard; 3= Not very hard family.ses
demoses21 Integer Recommended On a scale of 1 to 5; how do you feel about your current financial situation? 1::5 1= Always worry about it; 5= Never worry about it finances.worry
demoses22a Integer Recommended Which of the following best describes your current living situation? 1::18 1= Alone in a house/ apartment that I own; 2= Alone in a house/ apartment that I rent; 3= With parents or guardians in a house/ apartment they own; 4= With parents or guardians in a house/ apartment they rent; 5= With other relatives in a house/ apartment they own; 6= With other relatives in a house/ apartment they rent; 7= With friends in a house/ apartment they own; 8= With friends in a house/ apartment they rent; 9= With domestic partner/ lover in a house/ apartment we own; 10= With domestic partner/ lover in a house/ apartment we rent; 11= In a school dormitory alone; 12= In a school dormitory with roommates; 13= In a shelter/ halfway home; 14= In a rehabilitation facility; 15= In a residential hotel; 16= Homeless/ Unstably housed; 17= Other (Please specify) living.situation.current
currestx String 100 Recommended Other living situation, describe demoses22b, living.situation.current_text
demoses23 Integer Recommended How long has this been your living situation 1::7 1= Less than six months; 2= Six months to a year; 3= One to two years; 4= Two to four years; 5= Four to eight years; 6= Eight to ten years; 7= More than Ten years living.situation.time
demoses24a Integer Recommended Which best describes your current access to transportation? 1::7 1= I own my own vehicle; 2= I lease a vehicle; 3= I share a vehicle with a family member or partner; 4= I use public transportation; 5= I rely on a family member or friend for transportation; 6= 6= I do not have access to transportation; 7= Other, please specify transport.access
demoses24b String 50 Recommended Specify other access to transportation transport.access_text
demoses25 Integer Recommended In the past twelve months, did you delay receiving medical care because of cost? 0;1 0= No; 1= Yes ses_healthcare.delay
demoses26 Integer Recommended About how long has it been since you last saw or talked to a doctor or other health care professional about your own health? Include doctors while seen as a patient at a hospital 1::7 1= Never; 2= 6 months or less; 3= More than 6 months, but no more than 1 year ago; 4= More than 1 year , but no more than 2 years ago; 5= More than 2 years, but not more than 5 years ago; 6= More than 5 years ago; 7= Don't know ses_healthcare.lastcheck
demoses27 Integer Recommended During the past 3 years, did you try to purchase health insurance directly, that is, not through any employer, union or government programs 0;1 0= No; 1= Yes ses_healthcare.insurance
food_lasting Integer Recommended The food that we bought just didn't last, and we didn't have money to get more 0::4 0=Never True; 2=Sometimes True; 4=Often True demoses28, ses_food.secure_1
demoses29 Integer Recommended I/we couldn't afford to eat balanced meals. Was that often, sometimes, or never true for you/your household 1::3 1= Often True; 2= Sometimes true; 3= Never True ses_food.secure_2
food_mealcut Integer Recommended In the last 12 months, did you or other adults in your household ever cut the size of your meals or skip meals because there wasn't enough money for food? 0;1 0=No; 1=Yes demoses30, ses_food.secure_3
demoses31 Integer Recommended How often did you cut the size of your meals or skip meals because there wasn't enough money for food? 1::4 1= Almost every month; 2= Some months but not every month; 3= Only 1 or 2 months; 4= I don't know ses_food.secure_3a
fseatf Integer Recommended In the last 12 months, did you ever eat less than you felt you should because there wasn't enough money for food? 1::3 1= Yes; 2= No; 3= Don't know demoses32, ses_food.secure_4
food_hungry Integer Recommended In the last 12 months, were you ever hungry but didn't eat because there wasn't enough money for food? 0=No; 1=Yes demoses33, ses_food.secure_5
nimh_rv_dem_03 Integer Recommended Current gender identity 0::5;7;8 0=Male; 1=Female; 2=Trans male/Trans man; 3=Trans female/Trans woman; 4=Genderqueer or Gender non-conforming; 5=Different identity; 7 = Refused; 8 = Don't Know
online03 Integer Recommended Do you have daily personal internet access 0;1 0= No; 1= Yes
selfinj01 Integer Recommended How many times in the past 3 months/past week have you engaged in self-harm behavior (e.g., cutting, biting, burning, hitting self) with the intent of harming, but not killing, yourself?
rel_organized String 50 Recommended Specify "other organized religion religious.affiliation
hcae01 String 20 Recommended How confident are you that you could find a LGBTQ-affirmative mental health care provider if you wanted to? 1= Not Confident; 5= Very Confident hc_1
hcae02 Integer Recommended In the past year, have you been discriminated against or treated poorly by a mental health care provider? 0;1 0= No; 1= Yes hc_2
hcae03 Integer Recommended In your lifetime, has a mental health care provider ever refused to give you care because of your sexual orientation? 0;1 0= No; 1= Yes hc_3
hcae04 Integer Recommended Was there a time in the past 12 months when you needed to see a doctor but did not because you thought you would be disrespected or mistreated because of your sexual orientation? 0;1 0= No; 1= Yes hc_4
hcae05 Integer Recommended Did any professional (such as a psychologist, counselor, or religious advisor) ever try to change your sexual orientation or who you are attracted to (such as try to make you straight/heterosexual)? 0;1 0= No; 1= Yes hc_5
timepoint_label String 5 Recommended Timepoint/visit label assessment.c
self_ses Integer Recommended How hard is it for you to pay for the very basics, like food, housing, medical care, and utilities now? 1::3 1 = Very hard; 2 = Somewhat hard; 3 = Not very hard self.ses
geo_area Integer Recommended Which type of area did you grow up in? 1::5 1 = Large central city (population over 250,000); 2 = Medium size city (population 50,000-250,000); 3 = Suburb of a large or medium size city; 4 = Small city (population 10,000-50,000); 5 = Town/village or unincorporated area geographic.area
sexual_or_descrip String 100 Recommended What is your sexual orientation? sexual_orientation_descrip, sexual_orientation_text
condition_c Integer Recommended Patient Condition 0::2 0 = Control; 1 = Self-Affirmation; 2 = Expressive Writing condition.c
rel_aff_tolerance Integer Recommended How tolerant is your religion toward your sexual orientation? 1::7 1 = Completely tolerant and accepting; 2 = Mostly tolerant and accepting; 3 = Somewhat tolerant and accepting; 4 = Neither accepting nor rejecting; 5 = Somewhat hostile and rejecting; 6 = Mostly hostile and rejecting; 7 = Completely hostile and rejecting religion.affiliation_tolerance, religion_affiliation_tolerance
ethnicity String 30 Recommended Ethnicity of participant Hispanic or Latino; Not Hispanic or Latino; Unknown
edutot Float Recommended Total years of education
mother_edu_years Float Recommended Mother's years of education 101=Missing
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.