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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Dissociative Experiences Scale

2,719 Shared Subjects

N/A
Clinical Assessments
Personality
09/14/2017
des01
02/14/2019
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender, sex
Query des_1 Integer Recommended Some people have the experience of driving or riding in a car or bus or subway and suddenly realizing that they don't remember what has happened during all or part of the trip 0::100 %
Query des_2 Integer Recommended Some people find that sometimes they are listening to someone talk and they suddenly realize that they did not hear part or all of what was said. 0::100 %
Query des_3 Integer Recommended Some people have the experience of finding themselves in a place and have no idea how they got there 0::100 %
Query des_4 Integer Recommended Some people have the experience of finding themselves dressed in clothes that they don't remember putting on 0::100 %
Query des_5 Integer Recommended Some people have the experience of finding new things among their belongings that they do not remember buying 0::100 %
Query des_6 Integer Recommended Some people sometimes find that they are approached by people that they do not know, who call them by another name or insist that they have met them before 0::100 %
Query des_7 Integer Recommended Some people sometimes have the experience of feeling as though they are standing next to themselves or watching themselves do something and they actually see themselves as if they were looking at another person 0::100 %
Query des_8 Integer Recommended Some people are told that they sometimes do not recognize friends of family members. 0::100 %
Query des_9 Integer Recommended Some people find that they have no memory for some important events in their lives (for example, a wedding or graduation) 0::100 %
Query des_10 Integer Recommended Some people have the experience of being accused of lying when they do not think that they have lied 0::100 %
Query des_11 Integer Recommended Some people have the experience of looking in a mirror and not recognizing themselves 0::100 %
Query des_12 Integer Recommended Some people have the experience of feeling that other people, objects, and the world around them are not real. 0::100 %
Query des_13 Integer Recommended Some people have the experience of feeling that their body does not seem to belong to them 0::100 %
Query des_14 Integer Recommended Some people have the experience of sometimes remembering a past event so vividly that they feel as if they were reliving that event 0::100 %
Query des_15 Integer Recommended Some people have the experience of not being sure whether things that they remember happening really did happen or whether they just dreamed them. 0::100 %
Query des_16 Integer Recommended Some people have the experience of being in a familiar place but finding it strange and unfamiliar 0::100 %
Query des_17 Integer Recommended Some people find that when they are watching television or a movie they become so absorbed in the story that they are unaware of other events happening around them 0::100 %
Query des_18 Integer Recommended Some people find that they become so involved in a fantasy or daydream that it feels as though it were really happening to them 0::100 %
Query des_19 Integer Recommended Some people find that they sometimes are able to ignore pain 0::100 %
Query des_20 Integer Recommended Some people find that they sometimes sit staring off into space, thinking of nothing, and are not aware of the passage of time 0::100 %
Query des_21 Integer Recommended Some people sometimes find that when they are alone they talk out loud to themselves 0::100 %
Query des_22 Integer Recommended Some people find that in one situation they may act so differently compared with another situation that they feel almost as if they were two different people 0::100 %
Query des_23 Integer Recommended Some people sometimes find that in certain situations they are able to do things with amazing ease and spontaneity that would usually be difficult for them (for example, sports, work, social situations, etc.) 0::100 %
Query des_24 Integer Recommended Some people sometimes find that they cannot remember whether they have done something or have just thought about doing that thing (for example, not knowing whether they have just mailed a letter or have just thought about mailing it) 0::100 %
Query des_25 Integer Recommended Some people find evidence that they have done things that they do not remember doing 0::100 %
Query des_26 Integer Recommended Some people sometimes find writings, drawings, or notes among their belongings that they must have done but cannot remember doing 0::100 %
Query des_27 Integer Recommended Some people sometimes find that they hear voices inside their head that tell them to do things or comment on things that they are doing 0::100 %
Query des_28 Integer Recommended Some people sometimes feel as if they are looking at the world through a fog, so that people and objects appear far away or unclear 0::100 %
Query des_amf Float Recommended Amnesia Factor Items - 3, 4, 5, 8, 25, 26
Query des_ddf Float Recommended Depersonalization/Derealization Factor Items - 7, 11, 12, 13, 27, 28
Query des_abf Float Recommended Absorption Factor Items - 2, 14, 15, 17, 18, 20
Query des_score Float Recommended DES mean score
site String 101 Recommended Site Study Site siteid
Query timept Integer Recommended Time Point 888 = not applicable; 999 = missing timepoint
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
version_form String 121 Recommended Form used/assessment name
Query thinknothing Integer Recommended I find myself staring into space and thinking of nothing. 0::4 0=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
Query strangeunreal Integer Recommended People, objects, or the world around me see strange or unreal. 0::4 0=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
Query norememberdid Integer Recommended I find that I did things that I do not remember doing. 0::4 0=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
Query talktoself Integer Recommended When I am alone, I talk out loud to myself. 0::4 0=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
Query fogorunclear Integer Recommended I feel as though I were looking at the world through a fog so that people and things seem far away or unclear. 0::4 0=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
Query ignorepain Integer Recommended I am able to ignore pain. 0::4 0=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
Query twopeople Integer Recommended I act so differently from one situation to another that it is almost as if I were two different people. 0::4 0=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
Query doeasily Integer Recommended I can do things very easily that would usually be hard for me. 0::4 0=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
Query desb_rs Integer Recommended Total/ Partial Raw Score 0::32
Query desb_prs Integer Recommended Prorated Total Raw Score 0::32
Query desb_ats Integer Recommended Average Total Score 0::32
Query strangeunreal_freq Integer Recommended People, objects, or the world around me seem strange or unreal. Frequency over past thirty days. 1 :: 5; -5; -7; -8;; 1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -98=DON'T KNOW; -97=REFUSED; -8=DON'T KNOW; -7=REFUSED; -5=Presented, not answered
Query fogorunclear_freq Integer Recommended I feel as though I were looking at the world through a fog so that people and things seem far away or unclear. Frequency over past thirty days. 1 :: 5; -5; -7; -8;; 1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -98=DON'T KNOW; -97=REFUSED; -8=DON'T KNOW; -7=REFUSED; -5=Presented, not answered
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.