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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Dissociative Experiences Scale

des

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender
des_1IntegerRecommendedSome people have the experience of driving or riding in a car or bus or subway and suddenly realizing that they don't remember what has happened during all or part of the trip0::100%
des_2IntegerRecommendedSome people find that sometimes they are listening to someone talk and they suddenly realize that they did not hear part or all of what was said.0::100%
des_3IntegerRecommendedSome people have the experience of finding themselves in a place and have no idea how they got there0::100%
des_4IntegerRecommendedSome people have the experience of finding themselves dressed in clothes that they don't remember putting on0::100%
des_5IntegerRecommendedSome people have the experience of finding new things among their belongings that they do not remember buying0::100%
des_6IntegerRecommendedSome people sometimes find that they are approached by people that they do not know, who call them by another name or insist that they have met them before0::100%
des_7IntegerRecommendedSome people sometimes have the experience of feeling as though they are standing next to themselves or watching themselves do something and they actually see themselves as if they were looking at another person0::100%
des_8IntegerRecommendedSome people are told that they sometimes do not recognize friends of family members.0::100%
des_9IntegerRecommendedSome people find that they have no memory for some important events in their lives (for example, a wedding or graduation)0::100%
des_10IntegerRecommendedSome people have the experience of being accused of lying when they do not think that they have lied0::100%
des_11IntegerRecommendedSome people have the experience of looking in a mirror and not recognizing themselves0::100%
des_12IntegerRecommendedSome people have the experience of feeling that other people, objects, and the world around them are not real.0::100%
des_13IntegerRecommendedSome people have the experience of feeling that their body does not seem to belong to them0::100%
des_14IntegerRecommendedSome people have the experience of sometimes remembering a past event so vividly that they feel as if they were reliving that event0::100%
des_15IntegerRecommendedSome people have the experience of not being sure whether things that they remember happening really did happen or whether they just dreamed them.0::100%
des_16IntegerRecommendedSome people have the experience of being in a familiar place but finding it strange and unfamiliar0::100%
des_17IntegerRecommendedSome people find that when they are watching television or a movie they become so absorbed in the story that they are unaware of other events happening around them0::100%
des_18IntegerRecommendedSome people find that they become so involved in a fantasy or daydream that it feels as though it were really happening to them0::100%
des_19IntegerRecommendedSome people find that they sometimes are able to ignore pain0::100%
des_20IntegerRecommendedSome people find that they sometimes sit staring off into space, thinking of nothing, and are not aware of the passage of time0::100%
des_21IntegerRecommendedSome people sometimes find that when they are alone they talk out loud to themselves0::100%
des_22IntegerRecommendedSome people find that in one situation they may act so differently compared with another situation that they feel almost as if they were two different people0::100%
des_23IntegerRecommendedSome people sometimes find that in certain situations they are able to do things with amazing ease and spontaneity that would usually be difficult for them (for example, sports, work, social situations, etc.)0::100%
des_24IntegerRecommendedSome people sometimes find that they cannot remember whether they have done something or have just thought about doing that thing (for example, not knowing whether they have just mailed a letter or have just thought about mailing it)0::100%
des_25IntegerRecommendedSome people find evidence that they have done things that they do not remember doing0::100%
des_26IntegerRecommendedSome people sometimes find writings, drawings, or notes among their belongings that they must have done but cannot remember doing0::100%
des_27IntegerRecommendedSome people sometimes find that they hear voices inside their head that tell them to do things or comment on things that they are doing0::100%
des_28IntegerRecommendedSome people sometimes feel as if they are looking at the world through a fog, so that people and objects appear far away or unclear0::100%
des_amfFloatRecommendedAmnesia FactorItems - 3, 4, 5, 8, 25, 26
des_ddfFloatRecommendedDepersonalization/Derealization FactorItems - 7, 11, 12, 13, 27, 28
des_abfFloatRecommendedAbsorption FactorItems - 2, 14, 15, 17, 18, 20
des_scoreFloatRecommendedDES mean score
siteString101RecommendedSiteStudy Sitesiteid
timeptIntegerRecommendedTime Point888 = not applicable; 999 = missingtimepoint
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
version_formString100RecommendedForm used/assessment name
thinknothingIntegerRecommendedI find myself staring into space and thinking of nothing.0::40=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
strangeunrealIntegerRecommendedPeople, objects, or the world around me see strange or unreal.0::40=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
norememberdidIntegerRecommendedI find that I did things that I do not remember doing.0::40=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
talktoselfIntegerRecommendedWhen I am alone, I talk out loud to myself.0::40=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
fogorunclearIntegerRecommendedI feel as though I were looking at the world through a fog so that people and things seem far away or unclear.0::40=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
ignorepainIntegerRecommendedI am able to ignore pain.0::40=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
twopeopleIntegerRecommendedI act so differently from one situation to another that it is almost as if I were two different people.0::40=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
doeasilyIntegerRecommendedI can do things very easily that would usually be hard for me.0::40=not at all; 1=once or twice; 2=almost every day; 3=about once a day; 4=more than once a day
desb_rsIntegerRecommendedTotal/ Partial Raw Score0::32
desb_prsIntegerRecommendedProrated Total Raw Score0::32
desb_atsIntegerRecommendedAverage Total Score0::32
strangeunreal_freqIntegerRecommendedPeople, objects, or the world around me seem strange or unreal. Frequency over past thirty days.1 :: 5; -5; -7; -8;;1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -98=DON'T KNOW; -97=REFUSED; -8=DON'T KNOW; -7=REFUSED; -5=Presented, not answered
fogorunclear_freqIntegerRecommendedI feel as though I were looking at the world through a fog so that people and things seem far away or unclear. Frequency over past thirty days.1 :: 5; -5; -7; -8;;1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -98=DON'T KNOW; -97=REFUSED; -8=DON'T KNOW; -7=REFUSED; -5=Presented, not answered
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: des01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.