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Frequently Asked Questions


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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Diagnoses Form

96 Shared Subjects

Clinical Assessments

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Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field interviewyear
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
Query respondent String 20 Required Respondent
Mother;Father;Both; Child; Other; Parent
respondent_other_specify String 50 Recommended Respondent: Other (specify)
diagnosis String 255 Recommended Subject Diagnosis Final diagnostic group based on ascertainment, ADOS, ADIR, and SCQ
Query odd_diagnosis Integer Recommended Oppositional Defiant Disorder: Formal diagnosis 0;1;-7;-8;-9 0 = No; 1 = Yes; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply dx_odd
Query hupoddyr Float Recommended Oppositional Defiant Disorder age when first noticed or diagnosed odd_onset
Query ksads_dx_cd_current Integer Recommended KSADS Conduct Disorder Diagnosis Criteria Met Current (now) 0;1;-99;77;88 0= No ; 1= Yes ;-99=N/A ; 88= Missing ; 77= Refused dx_cd
Query ksads_cd_age Integer Recommended Conduct Disorder Age of Onset cd_onset
Query child_adhd String 50 Recommended Does (did) the Child have Attention Deficit Hyperactivity Disorder (ADHD)?
Yes; No; NK; NS
NK= Not known; NS = Not sure dx_adhd
Query ksads_adhd_age Integer Recommended ADHD Age of Onset, months adhd_onset
Query deprsion Integer Recommended depression 0;1;-7 0=No; 1=Yes; -7=Refused dx_depr_any
Query depr_onset Integer Recommended Depression age of onset
Query dem_18l Integer Recommended Anxiety 0;1; 999 1=Yes; 0=No; 999=missing dx_anx_any
Query anx_onset Integer Recommended Anxiety age of onset
Query dmddd_pdx Integer Recommended Disruptive Mood Dysregulation Disorder Diagnosis 0;1; 999; 998 0=No; 1=Yes; 999=missing dx_dmdd
Query dmdd_onset Integer Recommended DMDD age of onset
Query cast39_other Integer Recommended Other diagnosis (please specify) 0; 1 0 = No; 1 = Yes dx_other_1
other_1_list String 50 Recommended Other diagnosis 1
Query other_1_onset Integer Recommended Other diagnosis1 onset
Query q52_17aa3 Integer Recommended Other 2: Formal diagnosis 0;1;-7;-8;-9 0 = No; 1 = Yes; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply dx_other_2
Query other_2_list String 50 Recommended Other diagnosis 2
Query other_2_onset Integer Recommended Other diagnosis 2 onset
Query q52_17ab3 Integer Recommended Other 3: Formal diagnosis 0;1;-7;-8;-9 0 = No; 1 = Yes; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply dx_other_3
Query other_3_list String 50 Recommended Other diagnosis 3
Query other_3_onset Integer Recommended Other diagnosis 3 onset
Query q52_17ac3 Integer Recommended Other 4: Formal diagnosis 0;1;-7;-8;-9 0 = No; 1 = Yes; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply dx_other_4
Query other_4_list String 50 Recommended Other diagnosis 4
Query other_4_onset Integer Recommended Other diagnosis onset
comment String 500 Recommended Miscellaneous comments about assessment notes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.