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Frequently Asked Questions


NDA Help Center

Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Demographic Intake Form



Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectsubjectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fielddate_of_rating
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.demo_01_age
sexString20RequiredSex of the subjectM;FM = Male; F = Femaledemo_04_gender, gender
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reporteddemo_06_race
ethnicityString30RecommendedEthnicity of participantHispanic or Latino; Not Hispanic or Latino; Unknowndemo_05_ethn
demo_maritial_statusIntegerRecommendedMarital Status:1::61=Single/Never married; 2=Married or living with someone as if married; 3= Divorced or annulled; 4= Separated; 5=Widowed; 6=Otherdemo_07_ms
elig_22IntegerRecommendedEnglish fluency
0=No; 1=Yesdemo_08a_lng
behavioralobservations_langString255RecommendedLanguage (e.g., first/native/other language, English fluency, articulation)demo_08_lng
subjeduIntegerRecommendedSubject's Education1::16;18;201; 2; 3; 4; 5; 6; 7; 8; 9; 10=Elementary/ Middle; 11= High School no diploma; 12=H.S. diploma or GED; 13=Vocational; 14=Assoc. or Tech; 15= Some college courses; 16=Bach.; 18=Master; 20=Doc.demo_09_edu
empcurIntegerRecommendedCurrently employed
0;1; -99; 77; 88
0 = No; 1 = Yes; -99= N/A ; 88= Missing ; 77= Refuseddemo__10a_emp
psdem1String50RecommendedWhat kind of jobdemo_10a_i_emp
psdem2String15RecommendedHow long you are employeddemo_10a_ii_emp
psdem3IntegerRecommendedunemployment reason1::31=Disabled; 2=Retired; 3=Otherdemo_10b_emp_i
psdem4String15Recommendeddate of last employmentdemo_10b_ii_emp
psdem5String50RecommendedType of jobdemo_10b_iii_emp
1=No; 2=Yesdemo_11_vet
0=No; 1=Yesdemo_12_con
psdem7IntegerRecommendedConcervator type1;21=County; 2= Private
psqc011String1,000RecommendedSignificant long-term medical problem 1demo_13_med
psycond1_diagString100RecommendedPsychiatric Condition 1: diagnosisdemo_14_psycdx
psdem8IntegerRecommendedDo you have any problems with your eyesight
0=No; 1=Yesdemo_15_eye
psdem9IntegerRecommendedIf yes, are the problems completely corrected by glasses or contact lenses
0=No; 1=Yesdemo_15a_eye
psdem10IntegerRecommendedDo you have glasses or lenses with you
0=No; 1=Yesdemo_15b_eye
psdem11String25RecommendedType of glasses/contacts (e.g. bifocals, reading, hard or soft contacts)demo_15b_eye_desc
psdem12IntegerRecommendedDo you have any eye diseases (e.g. cataracts, glaucoma) and/or have you ever had any eye surgeries or injuries (gone to the eye doctor for anything besides getting glasses)
0=No; 1=Yesdemo_16_eye
psdem13String50RecommendedEye disease, specifydemo_16_eye-ex
psdem14IntegerRecommendeddo you take medication/eye drops
0=No; 1=Yesdemo_16a_eye
psdem15String25RecommendedName of medication/eye dropdemo_16b_eye
psdem16IntegerRecommendedHave you ever had any neurological problems (e.g. epileptic seizures or coma)
0=No; 1=Yesdemo_17_neuro
psdem17String50RecommendedNeurological problems, specifydemo_17a_neuro
headinjrIntegerRecommendedhead injury
0= no; 1= yesdemo_18_inj
midihist_035aString250RecommendedHead Injury describedemo_18a_inj
psdem18IntegerRecommendedWere you unconscious (knocked out)
0=No; 1=Yesdemo_18b_inj-y
psdem19String15RecommendedUncounscious/knocked out how longdemo_18b_inj
psdem20IntegerRecommendedWere you hospitalized for head injury
0=No; 1=Yesdemo_18c_inj
psdem21IntegerRecommendedDid you have a concussion
0=No; 1=Yesdemo_18d_inj
baseline_k_005IntegerRecommendedHas she/he ever been to a doctor for any of these thingsā€¦Diabetes /Diabetes
0;1; -888; -999;-7
0=No; 1=Yes; -888=Not Applicable; -999=Missing/NK; -7=Refused //Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life.demo_19_diab
mdga12IntegerRecommendedDiagnosed with: Diabetes Type I (insulin dependent)
0=No; 1=Yesdemo_19a_diab
biofathereduIntegerRecommendedBio Father's Education1::16;18;201; 2; 3; 4; 5; 6; 7; 8; 9; 10=Elementary/ Middle; 11= High School no diploma; 12=H.S. diploma or GED; 13=Vocational; 14=Assoc. or Tech; 15= Some college courses; 16=Bach.; 18=Master; 20=Doc.demo_20_fedu
employ_f4String100RecommendedDescription of Father's jobdemo_20a_focc
psdem22String25RecommendedWhat was your father's income leveldemo_20b_finc
biomothereduIntegerRecommendedBio Mother's Education1::16;18;201; 2; 3; 4; 5; 6; 7; 8; 9; 10=Elementary/ Middle; 11= High School no diploma; 12=H.S. diploma or GED; 13=Vocational; 14=Assoc. or Tech; 15= Some college courses; 16=Bach.; 18=Master; 20=Doc.demo_21_medu
momoccucString100Recommendedmother's current occupationdemo_21_mocc
psdem23String25RecommendedWhat was your mother's income leveldemo_21_minc
psdem24IntegerRecommendedAre you seeing psychiatrist currently0;10=No; 1=Yesdemo_22_psych
psdem25String15RecommendedLast visit to psychiatristdemo_22a_psych
psdem26IntegerRecommendedWho is responsible for dispensing your daily medications1;21=Me; 2=Someone elsedemo_23_med
psdem27String15RecommendedPerson responsible for my daily medicationsdemo_23a_med
psdem28IntegerRecommendedHave you been or are you currently involved in any outpatient day treatment program? Counseling or group therapy0;10=No; 1=Yesdemo_24_tx
psdem29String50Recommendedwhere did you receive this therapy, how long have you been enrolled, how often do you attend, and what kind of therapy did you receivedemo_24a_tx
psdem30IntegerRecommendedHave you ever been in Cognitive-Behavioral Therapy or Social Skills Training0;10=No; 1=Yesdemo_25_cbt
psdem31String50RecommendedCBT specify
psdem32String50RecommendedSocial Skills Training, specify
age_1st_sxIntegerRecommendedAge of onset of psychiatric symptoms (years)demo_26_pxsym
hpl_03String10RecommendedHow old were you (or what year was) the first time you were hospitalized for psychiatric symptomsin yearsdemo_26a_pxsym
dodeString10RecommendedDate of Data Entrydate_of_entry
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datanotes
aescodeIntegerRecommendedStaff code number of person completing this formrater
t1wkIntegerRecommendedWeeks since Treatment Session 1week
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: difo01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.