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Frequently Asked Questions


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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Dependence Scale

417 Shared Subjects

Clinical Assessments

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Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project catieid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
Query visit String 50 Recommended Visit name
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
Query dep02 Integer Recommended Does the patient need reminders or advice to manage chores, do shopping, cooking, play games, or handle money? 0;1;2 0 = No; 1 = Occasionally at least once a month; 2 = Frequently at least once a week
Query dep03 Integer Recommended Does the patient need help to remember important things such as appointments, recent events, or names of family or friends? 0;1;2 0 = No; 1 = Occasionally at least once a month; 2 = Frequently at least once a week
Query dep04 Integer Recommended Does the patient need frequent (at least once a month) help finding misplaced objects, keeping appointments, or maintaining health or safety (locking doors, taking medication)? 0;1 0=No; 1=Yes
Query dep05 Integer Recommended Does the patient need household chore done for them? 0;1 0=No; 1=Yes
Query dep06 Integer Recommended Does the patient need to be watched or kept company when awake? 0;1 0=No; 1=Yes
Query dep07 Integer Recommended Does the patient need to be escorted when outside 0;1 0=No; 1=Yes
Query dep08 Integer Recommended Does the patient need to be accompanied when bathing or eating 0;1 0=No; 1=Yes
Query dep09 Integer Recommended Does the patient have to be dressed, washed and groomed? 0;1 0=No; 1=Yes
Query dep10 Integer Recommended Does the patient have to be taken to toilet regularly to avoid incontinence 0;1 0=No; 1=Yes
Query dep11 Integer Recommended Does the patient have to be fed? 0;1 0=No; 1=Yes
Query dep12 Integer Recommended Does the patient need to be turned, moved or transferred? 0;1 0=No; 1=Yes
Query dep13 Integer Recommended Does the patient wear a diaper or a catheter? 0;1 0=No; 1=Yes
Query dep14 Integer Recommended Does the patient need to be tube fed? 0;1 0=No; 1=Yes
Query dep15 Integer Recommended Equivalent Institutional Care 1;2;3 1 = Limited home care; 2 = Adult home; 3 = Health-related facility
Query visnum Float Recommended Numeric Visit Number -1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Query dependnce Integer Recommended Dependence level 0;1;2;3;4;5 0 = Level 0; 1 = Level 1; 2 = Level 2; 3 = Level 3; 4 = Level 4; 5 = Level 5; A patient may meet the criteria for more than one level. If this is the case, we have assigned the highest level the patient meets. For example, if a patient meets the criteria for both Levels 4 and 5, assign DEPNDNCE = 5.
Query base1 Integer Recommended Flag Baseline Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query last1 Integer Recommended Flag Last Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query base_dep Float Recommended Baseline Dependence Level Score at Phase 1 baseline
Query c_dep Float Recommended Change from Baseline in Dependence Level Change from Phase 1 baseline
Query phase_ct String 20 Recommended Current Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase. Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.