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Duke Social Support Index

326 Shared Subjects

N/A
Clinical Assessments
Social Support
11/29/2016
dssi01
06/06/2022
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query duk1 Integer Recommended Other than persons living with you, how many of your family members live in this area, that is, within one hour's travel (of your home/ from here)? [include any related person subject wants to include as part of family] 0 = none
Query duk2 Integer Recommended How many of your family members that live within one hour's travel (of your home/from here) do you feel you can depend on or feel very close to? 0 = none; 99 = NA
Query duk3 Integer Recommended Other than members of your family, how many persons in this area within one hour's travel (of your home/from here) do you feel you can depend on or feel very close to? 0 = none
Query duk4 Integer Recommended (Other than at work) How many times during the past week did you spend some time with someone who does not live with you, that is, you went to see them or they came to visit you, or you went out together? IF INSTITUTIONAL: DO NOT COUNT STAFF OR OTHER INSTITUTIONAL RESIDENTS. 0::7 0 = not at all; 1 = 1x; 2 = 2x; 3 = 3x; 4 = 4x; 5 = 5x; 6 = 6x; 7 = 7 or 7x more times supp5
Query duk5 Integer Recommended (Other than at work) How many times did you talk to someone -friends, relatives or others-- on the telephone in the past week (either they called you, or you called them)? 0::7 0 = not at all; 1 = 1x; 2 = 2x; 3 = 3x; 4 = 4x; 5 = 5x; 6 = 6x; 7 = 7 or 7x more times
Query duk6 Integer Recommended (Other than at work) About how often did you go to meetings of clubs, religious meetings, or other groups that you belong to in the past week? 0::7 0 = not at all; 1 = 1x; 2 = 2x; 3 = 3x; 4 = 4x; 5 = 5x; 6 = 6x; 7 = 7 or 7x more times
Query duk7 Integer Recommended Does it seem that your family and friends understand you most of the time, some of the time, or hardly ever? 1::3 1 = Hardly ever; 2 = Some; 3 = Most
Query fi105 Integer Recommended 105. Do you feel useful to your family and friends most of the time, some of the time, or hardly ever? 1::3; 97::99 1 = Hardly ever; 2 = Some; 3 = Most; 97 = Refused; 98 = Don't know; 99 = NA duk8
Query fi106 Integer Recommended 106. Do you know what is going on with your family and friends most of the time, some of the time, or hardly ever? 1::3; 97::99 1 = Hardly ever; 2 = Some; 3 = Most; 97 = Refused; 98 = Don't know; 99 = NA duk9
Query fi107 Integer Recommended 107. When you are talking with your family and friends, do you feel you are being listened to most of the time, some of the time, or hardly ever? 1::3; 97::99 1 = Hardly ever; 2 = Some; 3 = Most; 97 = Refused; 98 = Don't know; 99 = NA duk10
Query fi108 Integer Recommended 108. Do you feel you have a definite role (place) in your family and among your friends most of the time, some of the time, or hardly ever? 1::3; 97::99 1 = Hardly ever; 2 = Some; 3 = Most; 97 = Refused; 98 = Don't know; 99 = NA duk11
Query fi109 Integer Recommended 109. Can you talk about your deepest problems with at least some of your family and friends most of the time, some of the time, or hardly ever? 1::3; 97::99 1 = Hardly ever; 2 = Some; 3 = Most; 97 = Refused; 98 = Don't know; 99 = NA duk12
Query fi110 Integer Recommended 110. How satisfied are you with the kinds of relationships you have with your family and friends--very dissatisfied, somewhat dissatisfied, or satisfied? 1::3; 97::99 1 = Very dissatisfied; 2 = Somewhat dissatisfied; 3 = Satisfied; 97 = Refused; 98 = Don't know; 99 = NA duk13
Query duk14 Integer Recommended Do your family and friends help out when you are sick? 0;1 0 = No; 1 = Yes
Query duk15 Integer Recommended Do your family and friends shop or run errands for you? 0;1 0 = No; 1 = Yes
Query duk16 Integer Recommended Do your family and friendsgive you gifts (presents)? 0;1 0 = No; 1 = Yes
Query duk17 Integer Recommended Do your family and friends help you out with money? 0;1 0 = No; 1 = Yes
Query duk18 Integer Recommended Do your family and friends fix things around your house? 0;1 0 = No; 1 = Yes
Query duk19 Integer Recommended Do your family and friends keep house for you, or do household chores? 0;1 0 = No; 1 = Yes
Query duk20 Integer Recommended Do your family and friends give you advice on business or financial matter? 0;1 0 = No; 1 = Yes
Query duk21 Integer Recommended Do your family and friends provide companionship to you? 0;1 0 = No; 1 = Yes
Query duk22 Integer Recommended Do your family and friends listen to your problems? 0;1 0 = No; 1 = Yes
Query duk23 Integer Recommended Do your family and friends give you advice on dealing with life's problems? 0;1 0 = No; 1 = Yes
Query duk24 Integer Recommended Do your family and friends provide transportation for you? 0;1 0 = No; 1 = Yes
Query duk25 Integer Recommended Do your family and friends prepare or provide meals for you? 0;1 0 = No; 1 = Yes
Query duk26 Integer Recommended Do you wish your family and friends would give you (more) help with these kinds of things? 0;1 0 = No; 1 = Yes
Query visit String 60 Recommended Visit name
Query visnum Float Recommended Numeric Visit Number -1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Query me2 Integer Recommended Status 0;1 0 = Past [Inactive]; 1 = Active
Query days_baseline Integer Recommended Days since baseline
Query site String 101 Recommended Site Study Site
Query duk2_3 Integer Recommended Sum of Item 2 and Item 3 0::130
Query duke_sn Integer Recommended Social Network Size 0::14 number of relatives and friends with whom the subject has significant interaction.(four items: number of family members, coworkers, and friends, household size; possible
Query duke_si Float Recommended Social interaction (SI) score number of relatives and friends with whom the subject has significant interaction.
Query duke_is Float Recommended Instrumental social support (IS) score type of assistance a subject has with day-to-day activities. Must have 10 items present to score.
Query duke_ss Integer Recommended Subjective social support (SS) score measures items that refer to frequency of feeling understood. Must have 6 items present to score.
Query duke_fn Integer Recommended Family network size (FN) number of relatives in the patient's household. FN was calculated from the number of family members that the subject identified living with him or her, as well as the number of family members that lived within a 1 hour distance with whom the subject had significant interaction
backover Integer Recommended As you look back over your life, in general would you say it was: 1::4;7::9 1=Very Happy; 2=Moderately Happy; 3=Average; 4=Unhappy ; 7= Refused ; 8= Don't Know ; 9= NA
findlife Integer Recommended Taking all things together, how would you say you find life these days--very satisfying, satisfying, fairly satisfying, or not satisfying? 1::4;7::9 1= Very Satisfying ; 2= Satisfying ; 3= Fairly Satisfying ; 4= Not Satisfying ; 7= Refused ; 8= Don't Know ; 9= NA
money_ Integer Recommended How well does the amount of money you (and your family) have take care of your needs -- poorly, fairly well, or very well? 1::3;7::9 1= Poorly ; 2= Fairly Well ; 3= Very Well ; 7= Refused ; 8= Don't Know ; 9= NA
payments Integer Recommended Are your expenses so heavy that you cannot meet your payments, or you can meet your payments with some difficulty, or are your payments no problem to you? 1::3;7::9 1= Cannot Meet Payments ; 2= With Some Difficulty ; 3= Payments No Problem ; 7= Refused ; 8= Don't Know ; 9= NA
mergency Integer Recommended Do you have enough financial resources to meet emergencies? 0;1;7::9 0= No ; 1= Yes ; 7= Refused ; 8= Don't Know ; 9= NA
packard Integer Recommended How well do you think you are doing financially now compared to other people your age -- better, about the same, or worse? 1::3;7::9 1= Worse ; 2= About Same ; 3= Better ; 7= Refused ; 8= Don't Know ; 9= NA
timeenuf Integer Recommended At the present time, would you say you have -- enough free time, not enough free time, or too much free time? 1::3;7::9 1= Enough Free Time ; 2= Not Enough Free Time ; 3= Too Much Free Time ; 7= Refused ; 8= Don't Know ; 9= NA
timesats Integer Recommended How satisfied are you with the amount of free time you have -- very satisfied, satisfied, dissatisfied, or very dissatisfied? 1::4;7::9 1= Very Satisfied ; 2= Satisfied ; 3= Dissatisfied ; 4= Very Dissatisfied ; 7= Refused ; 8= Don't Know ; 9= NA
handle1 Integer Recommended If an important problem came up in your life, which of the following best describes how you would handle it? 1::3;7::9 1= I would try to work it out on my own ; 2= I would talk it over with someone to decide what to do ; 3= I would try to find someone who could take care of it for me ; 7= Refused ; 8= Don't Know ; 9= NA
handle2 Integer Recommended If no one were around to talk with or help you, how would you feel about dealing with the problem on your own? 1;2;6::9 1= I would have little or no trouble handling it by myself ; 2= I would find it very hard to handle by myself ; 6= Skip ; 7= Refused ; 8= Don't Know ; 9= NA
mntlhlth Integer Recommended At the present time, would you say your mental health is excellent, good, fair, or poor? 1::4;7::9 1= Excellent ; 2= Good ; 3= Fair ; 4= Poor ; 7= Refused ; 8= Don't Know ; 9= NA
supp2 Integer Recommended Other than persons living with you, how many of your brothers and sisters live within one hour's travel (of your home/from here)?
supp3 Integer Recommended Other than those living with you, how many of your children live within one hour's travel (of your home/from here)
supp9 Integer Recommended Are you satisfied with how often you see your friends and relatives: that is, do you see them as often as you want to? If not satisfied, ask: Are you somewhat dissatisfied or very dissatisfied? 1::3;7::9 1=As Often as Want; 2=Somewhat Dissatisfied; 3=Very Dissatisfied; 7=Refused; 8=Don't Know; 9=NA
supp10 Integer Recommended When you are with your family and friends how often do you feel lonely? 1::3;7::9 1=Hardly Ever; 2= Some; 3=Most; 7=Refused; 8=Don't Know; 9=NA
supp12 Integer Recommended Is there at least one person with whom you have a close, lasting relationship; that is, you plan to continue this relationship as far as you can see into the future? 0;1;7::9 0=No; 1=Yes; 7=Refused; 8=Don't Know; 9=NA
supp17 Integer Recommended In time of trouble, can you count on at least some of your family and friends most of the time, some of the time, or hardly ever? 1::3;7::9 1=Hardly Ever; 2= Some; 3=Most; 7=Refused; 8=Don't Know; 9=NA
satisfyd Integer Recommended How satisfied are you with your present living arrangement -- very satisfied, satisfied, or very dissatisfied? 1::3;7::9 1=Very Satisfied; 2=Satisfied; 3=Very Dissatisfied; 7=Refused; 8=Don't Know; 9=NA
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

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  • Description: A basic description
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  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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