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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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DSM-5 Disorder Specific Severity Measures Questionnaires

32 Shared Subjects

N/A
Clinical Assessments
Diagnostic
11/29/2018
dssmq01
11/29/2018
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project participant_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field assessment_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age_months
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender, sex, sex_at_brith
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
version_form String 121 Recommended Form used/assessment name timeframe
Query gad_01 Integer Recommended Generalized Anxiety: I have felt moments of sudden terror, fear, or fright 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time gad_1
Query gad_02 Integer Recommended Generalized Anxiety: I have felt anxious, worried, or nervous 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time gad_2
Query gad_03 Integer Recommended Generalized Anxiety: I have had thoughts of bad things happening, such as family tragedy, ill health, loss of a job or accidents 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time gad_3
Query gad_04 Integer Recommended Generalized Anxiety: I have felt a racing heart, sweaty, trouble breathing, faint, or shaky 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time gad_4
Query gad_05 Integer Recommended Generalized Anxiety: I have felt tense muscles, felt on edge or restless or had trouble relaxing or trouble sleeping 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time gad_5
Query gad_06 Integer Recommended Generalized Anxiety: I have avoided, or did not approach or enter, situations about which I worry 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time gad_6
Query gad_07 Integer Recommended Generalized Anxiety: I have left sitautions early or participated only minimally due to worries 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time gad_7
Query gad_08 Integer Recommended Generalized Anxiety: I have spent lots of time making decisions, putting off making decisions, or preparing for situations, due to worries 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time gad_8
Query gad_09 Integer Recommended Generalized Anxiety: I have sought reassurance from others due to worries 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time gad_9
Query gad_10 Integer Recommended Generalized Anxiety: I have needed help to cope with anxiety (e.g., alcohol or medication, superstitious objects, or other people) 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query socialphob_1 Integer Recommended I have felt moments of sudden terror, fear, or fright in social situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query socialphob_2 Integer Recommended I have felt anxious, worried, or nervous about social situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query socialphob_3 Integer Recommended I have had thoughts of being rejected, humiliated, embarrassed, ridiculed, or offending others 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query socialphob_4 Integer Recommended I have felt a racing heart, sweaty, trouble breathing, faint or shaky in social situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query socialphob_5 Integer Recommended I have felt tense muscles, felt on edge or restless or had trouble relaxing in social situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query socialphob_6 Integer Recommended I have avoided, or did not approach or enter, social situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query socialphob_7 Integer Recommended I have left situations early or participated only minimally (e.g., said little, avoided eye contact) 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query socialphob_8 Integer Recommended I have spent a lot of time preparing what to say or how to act in social situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query socialphob_9 Integer Recommended I have distracted myself to avoid thinking about social situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query socialphob_10 Integer Recommended I have needed help to cope with social situations (e.g., alcohol, medication, superstitious objects) 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query sepanx_1 Integer Recommended When separated from home or from people who are important to you: I have felt moments of sudden terror, fear, or fright when separated 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query sepanx_2 Integer Recommended When separated from home or from people who are important to you: I have felt anxious, worried, or nervous about being separated 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query sepanx_3 Integer Recommended When separated from home or from people who are important to you: I have had thoughts of bad things happening to people important to me or bad things happening to me when separated from them (e.g., getting lost, accidents) 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query sepanx_4 Integer Recommended When separated from home or from people who are important to you: I have felt a racing heart, sweaty, trouble breathing, faint or shaky when separated 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query sepanx_5 Integer Recommended When separated from home or from people who are important to you: I have felt tense muscles, felt on edge or restless or had trouble relaxing when separated 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query sepanx_6 Integer Recommended When separated from home or from people who are important to you: I have avoided going places where I would be separated 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query sepanx_7 Integer Recommended When separated from home or from people who are important to you: when separated, left places early to go home 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query sepanx_8 Integer Recommended When separated from home or from people who are important to you: I have spent a lot of time preparing how to deal with separation 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query sepanx_9 Integer Recommended When separated from home or from people who are important to you: I have distracted myself to avoid thinking about being separated 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query sepanx_10 Integer Recommended When separated from home or from people who are important to you: I have needed help to cope with separation (e.g., alcohol, medication, superstitious objects) 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query specphob_t Integer Recommended Please select the item below that makes you most anxious. 0 :: 4 0 = Driving, flying, tunnels, bridges, or enclosed spaces; 1 = Animals or insects; 2 = Heights, storms, or water; 3 = Blood, needles, or injections; 4 = Choking or vomiting
Query specphob_1 Integer Recommended Based on the situation you indicated made you most anxious: I have felt moments of sudden terror, fear, or fright in these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query specphob_2 Integer Recommended Based on the situation you indicated made you most anxious: I have felt anxious, worried, or nervous about these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query specphob_3 Integer Recommended Based on the situation you indicated made you most anxious: I have had thoughts of being injured, overcome with fear, or bad things happening in these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query specphob_4 Integer Recommended Based on the situation you indicated made you most anxious: I have felt a racing heart, sweaty, trouble breathing, faint, or shaky in these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query specphob_5 Integer Recommended Based on the situation you indicated made you most anxious: I have felt tense muscles, felt on edge or restless or had trouble relaxing in these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query specphob_6 Integer Recommended Based on the situation you indicated made you most anxious: I have avoided, or did not approach or enter, these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query specphob_7 Integer Recommended Based on the situation you indicated made you most anxious: I have moved away from these situations or left them early 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query specphob_8 Integer Recommended Based on the situation you indicated made you most anxious: I have spent a lot of time preparing for, or procrastinating about (i.e., putting off), these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query specphob_9 Integer Recommended Based on the situation you indicated made you most anxious: I have distracted myself to avoid thinking about these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query specphob_10 Integer Recommended Based on the situation you indicated made you most anxious: I have needed help to cope with separation (e.g., alcohol, medication, superstitious objects, other people) 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query agora_1 Integer Recommended In public, when traveling, or away from home: I have felt moments of sudden terror, fear, or fright in these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query agora_2 Integer Recommended In public, when traveling, or away from home: I have felt anxious, worried, or nervous about these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query agora_3 Integer Recommended In public, when traveling, or away from home: I have had thoughts of panic attacks, uncomfortable physical sensations, getting lost, or being overcome with fear in these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query agora_4 Integer Recommended In public, when traveling, or away from home: I have felt a racing heart, sweaty, trouble breathing, faint, or shaky in these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query agora_5 Integer Recommended In public, when traveling, or away from home: I have felt tense muscles, felt on edge or restless or had trouble relaxing in these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query agora_6 Integer Recommended In public, when traveling, or away from home: I have avoided, or did not approach or enter, these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query agora_7 Integer Recommended In public, when traveling, or away from home: I have moved away from these situations, left them early, or remained close to the exits 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query agora_8 Integer Recommended In public, when traveling, or away from home: I have spent a lot of time preparing for, or procrastinating about (i.e., putting off), these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query agora_9 Integer Recommended In public, when traveling, or away from home: I have distracted myself to avoid thinking about these situations 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query agora_10 Integer Recommended In public, when traveling, or away from home: I have needed help to cope with these situations (e.g., alcohol, medication, superstitious objects, other people) 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query panic_1 Integer Recommended Panic Disorder: I have felt moments of sudden terror, fear, or fright out of the blue (i.e., panic attack) 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query panic_2 Integer Recommended Panic Disorder: I have felt anxious, worried, or nervous about having more panic attacks 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query panic_3 Integer Recommended Panic Disorder: I have had thoughts of losing control, dying, going crazy or other bad things happening because of panic attacks 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query panic_4 Integer Recommended Panic Disorder: I have felt a racing heart, sweaty, trouble breathing, faint, or shaky 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query panic_5 Integer Recommended Panic Disorder: I have felt tense muscles, felt on edge or restless or had trouble relaxing 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query panic_6 Integer Recommended Panic Disorder: I have avoided, or did not approach or enter, situations in which panic attacks might occur 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query panic_7 Integer Recommended Panic Disorder: I have left situations early or participated only minimally because of panic attacks 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query panic_8 Integer Recommended Panic Disorder: I have spent a lot of time preparing for, or procrastinating about (i.e., putting off), situations in which panic attacks might occur 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query panic_9 Integer Recommended Panic Disorder: I have distracted myself to avoid thinking about panic attacks 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query panic_10 Integer Recommended Panic Disorder: I have needed help to cope with panic attacks (e.g., alcohol, medication, superstitious objects, other people) 0 :: 4 0 = never; 1=occasionally; 2=half of the time; 3=most of the time; 4=all of the time
Query depression_1 Integer Recommended How often have you been bothered by: Little interest or pleasure in doing things 0 :: 3 0 = never; 1=several days; 2=more than half the days; 3=nearly every day
Query depression_2 Integer Recommended How often have you been bothered by: Feeling down, depressed or hopeless 0 :: 3 0 = never; 1=several days; 2=more than half the days; 3=nearly every day
Query depression_3 Integer Recommended How often have you been bothered by: Trouble falling or staying asleep, or sleeping too much 0 :: 3 0 = never; 1=several days; 2=more than half the days; 3=nearly every day
Query depression_4 Integer Recommended How often have you been bothered by: Feeling tired or having little energy 0 :: 3 0 = never; 1=several days; 2=more than half the days; 3=nearly every day
Query depression_5 Integer Recommended How often have you been bothered by: Poor appetite or overeating 0 :: 3 0 = never; 1=several days; 2=more than half the days; 3=nearly every day
Query depression_6 Integer Recommended How often have you been bothered by: Feeling bad about yourself or that you are a failure or have let yourself or your family down 0 :: 3 0 = never; 1=several days; 2=more than half the days; 3=nearly every day
Query depression_7 Integer Recommended How often have you been bothered by: Trouble concentrating on things, such as reading the newspaper or watching television 0 :: 3 0 = never; 1=several days; 2=more than half the days; 3=nearly every day
Query depression_8 Integer Recommended How often have you been bothered by: Moving or speaking so slowly so that other people could have noticed? Or the opposite - being so fidgety or restless that you have been moving around a lot more than usual 0 :: 3 0 = never; 1=several days; 2=more than half the days; 3=nearly every day
Query depression_09 Integer Recommended How often have you been bothered by: Thoughts that you would be better off dead or of hurting yourself in some way 0 :: 3 0 = never; 1=several days; 2=more than half the days; 3=nearly every day depression_9
Query gad_total_raw Integer Recommended DSM-5 GAD SUM 0 :: 40
Query gad_mean Float Recommended DSM-5 GAD SCORE 0 :: 4
Query socialphob_total_raw Integer Recommended DSM-5 SOCIAL PHOBIA SUM 0 :: 40
Query socialphob_mean Float Recommended DSM-5 SOCIAL PHOBIA SCORE 0 :: 4
Query sepanx_total_raw Integer Recommended DSM-5 SEPARATION ANXIETY SUM 0 :: 40
Query sepanx_mean Float Recommended DSM-5 SEPARATION ANXIETY SCORE 0 :: 4
Query specificphob_total_raw Integer Recommended DSM-5 SPECIFIC PHOBIA SUM 0 :: 40
Query specificphob_mean Float Recommended DSM-5 SPECIFIC PHOBIA SCORE 0 :: 4
Query agora_total_raw Integer Recommended DSM-5 AGORAPHOBIA SUM 0 :: 40
Query agora_mean Float Recommended DSM-5 AGORAPHOBIA SCORE 0 :: 4
Query panic_total_raw Integer Recommended DSM-5 PANIC SUM 0 :: 40
Query panic_mean Float Recommended DSM-5 PANIC SCORE 0 :: 4
Query depression_total Integer Recommended DSM-5 DEPRESSION SCORE 0 ::27
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

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